Re: Hello and a question re: latex and hearing aid covers

[Guest guest]

I understand that he wouldn't like hats, however now with his hearing aid he may

be ok with it especially if you explained to him that his hearing aid is not

allowed to get wet or it will break and if he doesn't wear a hat then he has to

take the aid off until he is inside. He will then probably gladly wear the hat.

By the way my son also has to avoid latex. He is in fact allergic although I

don't think that was always the case, he also was at risk and the doctors put in

a latex folley after a surgery one time and had it in for about 4 days (oops!!!)

he blistered up pretty bad on his penis, but also on his leg where they taped

it. Anyway I know that's probably too much info, I just wanted you to know I

sympathize with having to find something latex free, it's not as easy as it

sounds.

Hello and a question re: latex and hearing aid covers

Hi,

I have a 7 year old son who is congenitally blind. There has always

been a suspicion of hearing loss in one ear, but all of his past

hearing tests have always had " but....... " as in " but there is wax "

or fluid, etc. A month ago we finally got a true reading on his

hearing. One ear is okay. The other has a moderate to moderately-

severe conductive hearing loss. NOT what I wanted to hear about my

blind son. Apparently it is a result of malformation of the inner

ear bones which can occur along with his Crouzon syndrome (cranial

facial syndrome.

will be going into 1st. grade. He's in a regular class

with a 1:1 assistant as well as lots of related services for

learning Braille, orientation and mobility, etc. His development is

scattered. His vocabulary is amazing, but social skills are really

poor. I'm hoping his new hearing aid will help with that. I'm

suspecting he hasn't heard alot of what was said to him in a busy

classroom environment.

Mattie loves his new hearing aid. I pushed to get it ASAP to

have time for him to get used to it before school started. Didn't

need that time though. He even wants to sleep with it in! He has

asks for a break from it about once or twice a day, but then is

happy to have it back in just a little while. He fell completely

apart tonight when it needed a new battery for the first time. I

couldn't fix it fast enough.

I'm concerned about protecting his hearing aid when it rains.

Mattie doesn't like to wear hats, they block sound..so I can

understand his resistance. Everything I've found to cover the aid

with, from balloons to special products, have latex in them. He

isn't allergic to latex but is at risk for developing a problem with

it. I'd like to avoid latex it if I can. Does anyone have ideas

for ways to protect the hearing aid from rain that would be latex

free?

Thanks! Gay (Mattie's mom)

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

[Guest guest]

I understand that he wouldn't like hats, however now with his hearing aid he may

be ok with it especially if you explained to him that his hearing aid is not

allowed to get wet or it will break and if he doesn't wear a hat then he has to

take the aid off until he is inside. He will then probably gladly wear the hat.

By the way my son also has to avoid latex. He is in fact allergic although I

don't think that was always the case, he also was at risk and the doctors put in

a latex folley after a surgery one time and had it in for about 4 days (oops!!!)

he blistered up pretty bad on his penis, but also on his leg where they taped

it. Anyway I know that's probably too much info, I just wanted you to know I

sympathize with having to find something latex free, it's not as easy as it

sounds.

Hello and a question re: latex and hearing aid covers

Hi,

I have a 7 year old son who is congenitally blind. There has always

been a suspicion of hearing loss in one ear, but all of his past

hearing tests have always had " but....... " as in " but there is wax "

or fluid, etc. A month ago we finally got a true reading on his

hearing. One ear is okay. The other has a moderate to moderately-

severe conductive hearing loss. NOT what I wanted to hear about my

blind son. Apparently it is a result of malformation of the inner

ear bones which can occur along with his Crouzon syndrome (cranial

facial syndrome.

will be going into 1st. grade. He's in a regular class

with a 1:1 assistant as well as lots of related services for

learning Braille, orientation and mobility, etc. His development is

scattered. His vocabulary is amazing, but social skills are really

poor. I'm hoping his new hearing aid will help with that. I'm

suspecting he hasn't heard alot of what was said to him in a busy

classroom environment.

Mattie loves his new hearing aid. I pushed to get it ASAP to

have time for him to get used to it before school started. Didn't

need that time though. He even wants to sleep with it in! He has

asks for a break from it about once or twice a day, but then is

happy to have it back in just a little while. He fell completely

apart tonight when it needed a new battery for the first time. I

couldn't fix it fast enough.

I'm concerned about protecting his hearing aid when it rains.

Mattie doesn't like to wear hats, they block sound..so I can

understand his resistance. Everything I've found to cover the aid

with, from balloons to special products, have latex in them. He

isn't allergic to latex but is at risk for developing a problem with

it. I'd like to avoid latex it if I can. Does anyone have ideas

for ways to protect the hearing aid from rain that would be latex

free?

Thanks! Gay (Mattie's mom)

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

[Guest guest]

I must have missed the part that said your son has crouzons syndrom. My son was

born with sagittal craniosynostosis, he had severe pressure when he had surgery

at 4 months old and then a few of his other sutures closed and he had to have

another surgery and then all his sutures closed and he had to have a third. He

is currently almost 4, he has a mild hearing loss, but he has also had issues

with processing which seem to really be resolving, however the audiologists keep

telling me that the reason his audiograms are off is because of his processing

problems. I don't buy it I think they just believe he has normal hearing and

they will do anything to explain why his tests don't reflect that because they

don't understand what is going on. Anyway that is beside the point. It is

Natasha who has the daughter (Sierra) who has crouzons syndrom, and is getting a

CI. Feel free to join our other group for children with craniosynostosis. I'm

not sure if that always goes along with crouzons syndrom or not, but there are a

few moms on there with children with that syndrom and even if your son doesn't

have cranio we would be happy to have you to talk about the other issues

involved in that condition.

The website is http://health.groups.yahoo.com/group/cranioandparentssupport/

RE: Hello and a question re: latex and hearing aid covers

Hi Gay,

I love your name - it is my sister's middle name.

I believe there is another mom on the list whose child has Crouzon's

syndrome (Natasha maybe?) and recall they are looking into an implant?

YOu might not be at that point or requirement.

To protect the hearing aid, have you looked yet at listen-up.org? I think

Kay has stuff on the site for situations such as yours.

Good Luck

>

> I'm concerned about protecting his hearing aid when it rains.

>Mattie doesn't like to wear hats, they block sound..so I can

>understand his resistance. Everything I've found to cover the aid

>with, from balloons to special products, have latex in them. He

>isn't allergic to latex but is at risk for developing a problem with

>it. I'd like to avoid latex it if I can. Does anyone have ideas

>for ways to protect the hearing aid from rain that would be latex

>free?

>

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

[Guest guest]

Hi Gay,

My daughter is not a fan of wearing hats when it is required, so we've come

up with a few solutions. I usually don't worry too much if it's a gentle

mist, if all we're doing is running from the car to inside. We pop her aids

in a Dry & Store each night and that keeps any accumulated moisture from

doing harm. We usually just pop a big baseball cap on her head, or have her

use her own umbrella. Since you are staying away from latex, you might want

to look into the sweatbands that cover aids. They aren't waterproof, but

they will add another barrier. I've also heard of some families spraying

the sweatbands with a waterproofing material, but I've never heard how well

that has worked. One place to buy them is

http://www.amyshearingdepot.com/cgi-bin/cart/detail.cgi?detail=75

I'd suggest that you start shopping now for a winter hat and try out

different styles that work for him (assuming you live in an area where he'll

need one!). We have trouble each year finding a hat that keeps her warm but

isn't so tight that it interferes with her hearing or aids. Lands End hats

have been perfect the last two winters for us, but I think this is one area

where depending on the size of the child's head and their interest in diving

into snow makes the fit more individual!

Good luck,

Kerry