Guest guest Posted October 16, 2004 Report Share Posted October 16, 2004 I have never heard of an Audiologist 'correcting' the ABR but I truly believe that the ABR's that are done on infants are inaccurate. These babies are way too young and I think the older they get the more accurate results you will get. But I am by no means an expert. I was just in the same situation as you and think my daughter hears better than she should too.. jbkdarby wrote: My daughter's ABR indicated that she has a Moderate to Moderate severe bilateral hearing loss. However, the audiologist at the " House Ear Inst " indicated in her report that her loss was " Moderate " and she then verbally described our daughter's loss as " Mild to Moderate, " stating that she " Corrects " ABR scores by ten points on infants. Does anyone know if this is an industry standard? My daughter seems to hear a lot more than she is supposed to from what I have read on Moderate hearing losses. Also, when wearing her hearing aids she starts at the sound of a cup being placed on a table or a kitchen cabinet being closed (all out of her line of site). Thank you. , mom to Kate 4 mos All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2004 Report Share Posted October 16, 2004 Alison DelGaudio wrote: > I have never heard of an Audiologist 'correcting' the ABR but I truly > believe that the ABR's that are done on infants are inaccurate. These > babies are way too young and I think the older they get the more > accurate results you will get. But I am by no means an expert. I was > just in the same situation as you and think my daughter hears better > than she should too.. > I agree but for the opposite reason. My son failed the new born screening, as was given an ABR about a month later. We were told that the results were " normal " and later at about 1 year, we discovered that Caleb had a moderate loss - severe in the high frequencies. Go figure. , 7, hearing Caleb, 5, bilateral SNHL, aided Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2004 Report Share Posted October 16, 2004 Have they done a booth test. It won't tell you how deaf she is, but just an idea. Alison DelGaudio wrote: I have never heard of an Audiologist 'correcting' the ABR but I truly believe that the ABR's that are done on infants are inaccurate. These babies are way too young and I think the older they get the more accurate results you will get. But I am by no means an expert. I was just in the same situation as you and think my daughter hears better than she should too.. jbkdarby wrote: My daughter's ABR indicated that she has a Moderate to Moderate severe bilateral hearing loss. However, the audiologist at the " House Ear Inst " indicated in her report that her loss was " Moderate " and she then verbally described our daughter's loss as " Mild to Moderate, " stating that she " Corrects " ABR scores by ten points on infants. Does anyone know if this is an industry standard? My daughter seems to hear a lot more than she is supposed to from what I have read on Moderate hearing losses. Also, when wearing her hearing aids she starts at the sound of a cup being placed on a table or a kitchen cabinet being closed (all out of her line of site). Thank you. , mom to Kate 4 mos All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2004 Report Share Posted October 16, 2004 Have they done a booth test. It won't tell you how deaf she is, but just an idea. Alison DelGaudio wrote: I have never heard of an Audiologist 'correcting' the ABR but I truly believe that the ABR's that are done on infants are inaccurate. These babies are way too young and I think the older they get the more accurate results you will get. But I am by no means an expert. I was just in the same situation as you and think my daughter hears better than she should too.. jbkdarby wrote: My daughter's ABR indicated that she has a Moderate to Moderate severe bilateral hearing loss. However, the audiologist at the " House Ear Inst " indicated in her report that her loss was " Moderate " and she then verbally described our daughter's loss as " Mild to Moderate, " stating that she " Corrects " ABR scores by ten points on infants. Does anyone know if this is an industry standard? My daughter seems to hear a lot more than she is supposed to from what I have read on Moderate hearing losses. Also, when wearing her hearing aids she starts at the sound of a cup being placed on a table or a kitchen cabinet being closed (all out of her line of site). Thank you. , mom to Kate 4 mos All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2004 Report Share Posted October 16, 2004 Have they done a booth test. It won't tell you how deaf she is, but just an idea. Alison DelGaudio wrote: I have never heard of an Audiologist 'correcting' the ABR but I truly believe that the ABR's that are done on infants are inaccurate. These babies are way too young and I think the older they get the more accurate results you will get. But I am by no means an expert. I was just in the same situation as you and think my daughter hears better than she should too.. jbkdarby wrote: My daughter's ABR indicated that she has a Moderate to Moderate severe bilateral hearing loss. However, the audiologist at the " House Ear Inst " indicated in her report that her loss was " Moderate " and she then verbally described our daughter's loss as " Mild to Moderate, " stating that she " Corrects " ABR scores by ten points on infants. Does anyone know if this is an industry standard? My daughter seems to hear a lot more than she is supposed to from what I have read on Moderate hearing losses. Also, when wearing her hearing aids she starts at the sound of a cup being placed on a table or a kitchen cabinet being closed (all out of her line of site). Thank you. , mom to Kate 4 mos All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2004 Report Share Posted October 16, 2004 She's had the booth test several times and the audies (we've been to several) were impressed. Her most recent booth test was two weeks ago and from that they are calling her loss mild. wrote:Have they done a booth test. It won't tell you how deaf she is, but just an idea. Alison DelGaudio wrote: I have never heard of an Audiologist 'correcting' the ABR but I truly believe that the ABR's that are done on infants are inaccurate. These babies are way too young and I think the older they get the more accurate results you will get. But I am by no means an expert. I was just in the same situation as you and think my daughter hears better than she should too.. jbkdarby wrote: My daughter's ABR indicated that she has a Moderate to Moderate severe bilateral hearing loss. However, the audiologist at the " House Ear Inst " indicated in her report that her loss was " Moderate " and she then verbally described our daughter's loss as " Mild to Moderate, " stating that she " Corrects " ABR scores by ten points on infants. Does anyone know if this is an industry standard? My daughter seems to hear a lot more than she is supposed to from what I have read on Moderate hearing losses. Also, when wearing her hearing aids she starts at the sound of a cup being placed on a table or a kitchen cabinet being closed (all out of her line of site). Thank you. , mom to Kate 4 mos All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2004 Report Share Posted October 16, 2004 She's had the booth test several times and the audies (we've been to several) were impressed. Her most recent booth test was two weeks ago and from that they are calling her loss mild. wrote:Have they done a booth test. It won't tell you how deaf she is, but just an idea. Alison DelGaudio wrote: I have never heard of an Audiologist 'correcting' the ABR but I truly believe that the ABR's that are done on infants are inaccurate. These babies are way too young and I think the older they get the more accurate results you will get. But I am by no means an expert. I was just in the same situation as you and think my daughter hears better than she should too.. jbkdarby wrote: My daughter's ABR indicated that she has a Moderate to Moderate severe bilateral hearing loss. However, the audiologist at the " House Ear Inst " indicated in her report that her loss was " Moderate " and she then verbally described our daughter's loss as " Mild to Moderate, " stating that she " Corrects " ABR scores by ten points on infants. Does anyone know if this is an industry standard? My daughter seems to hear a lot more than she is supposed to from what I have read on Moderate hearing losses. Also, when wearing her hearing aids she starts at the sound of a cup being placed on a table or a kitchen cabinet being closed (all out of her line of site). Thank you. , mom to Kate 4 mos All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2004 Report Share Posted October 16, 2004 She's had the booth test several times and the audies (we've been to several) were impressed. Her most recent booth test was two weeks ago and from that they are calling her loss mild. wrote:Have they done a booth test. It won't tell you how deaf she is, but just an idea. Alison DelGaudio wrote: I have never heard of an Audiologist 'correcting' the ABR but I truly believe that the ABR's that are done on infants are inaccurate. These babies are way too young and I think the older they get the more accurate results you will get. But I am by no means an expert. I was just in the same situation as you and think my daughter hears better than she should too.. jbkdarby wrote: My daughter's ABR indicated that she has a Moderate to Moderate severe bilateral hearing loss. However, the audiologist at the " House Ear Inst " indicated in her report that her loss was " Moderate " and she then verbally described our daughter's loss as " Mild to Moderate, " stating that she " Corrects " ABR scores by ten points on infants. Does anyone know if this is an industry standard? My daughter seems to hear a lot more than she is supposed to from what I have read on Moderate hearing losses. Also, when wearing her hearing aids she starts at the sound of a cup being placed on a table or a kitchen cabinet being closed (all out of her line of site). Thank you. , mom to Kate 4 mos All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2004 Report Share Posted October 16, 2004 Thats good, right? After Christian was aided for 2 months, they did a booth test for him. I wasn't there, but no results. We weren't anticapting any thought! Alison DelGaudio wrote: She's had the booth test several times and the audies (we've been to several) were impressed. Her most recent booth test was two weeks ago and from that they are calling her loss mild. wrote:Have they done a booth test. It won't tell you how deaf she is, but just an idea. Alison DelGaudio wrote: I have never heard of an Audiologist 'correcting' the ABR but I truly believe that the ABR's that are done on infants are inaccurate. These babies are way too young and I think the older they get the more accurate results you will get. But I am by no means an expert. I was just in the same situation as you and think my daughter hears better than she should too.. jbkdarby wrote: My daughter's ABR indicated that she has a Moderate to Moderate severe bilateral hearing loss. However, the audiologist at the " House Ear Inst " indicated in her report that her loss was " Moderate " and she then verbally described our daughter's loss as " Mild to Moderate, " stating that she " Corrects " ABR scores by ten points on infants. Does anyone know if this is an industry standard? My daughter seems to hear a lot more than she is supposed to from what I have read on Moderate hearing losses. Also, when wearing her hearing aids she starts at the sound of a cup being placed on a table or a kitchen cabinet being closed (all out of her line of site). Thank you. , mom to Kate 4 mos All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2004 Report Share Posted October 16, 2004 We have had the opposite experience. Our daughter was tested at 16 months with an ABR and they told us her loss was moderate/severe, with thresholds of 55 dB in her left ear. Her right ear was totally profound (on the ABR even). However, her loss in her left ear is really worse than reported on the ABR. When we called to speak with someone about the ABR and our problems with her hearing aid (which had been adjusted according to the ABR), they told us that it had been adjusted 10dB lower than where the response actually was, making her loss closer to severe. Since then, she has always booth tested at levels 70dB and above. We are in the process right now of getting her a cochlear implant. However, we do know that our daughter has a condition called Enlarged Vestibular Aqueducts. We just found this out, so it is likely that her loss will progress. Sara >jbkdarby wrote: >My daughter's ABR indicated that she has a Moderate to Moderate >severe bilateral hearing loss. However, the audiologist at >the " House Ear Inst " indicated in her report that her loss >was " Moderate " and she then verbally described our daughter's loss >as " Mild to Moderate, " stating that she " Corrects " ABR scores by ten >points on infants. Does anyone know if this is an industry >standard? > >My daughter seems to hear a lot more than she is supposed to from >what I have read on Moderate hearing losses. Also, when wearing >her hearing aids she starts at the sound of a cup being placed on a >table or a kitchen cabinet being closed (all out of her line of >site). > >Thank you. > >, mom to Kate 4 mos > > > > > >All messages posted to this list are private and confidential. Each post >is the intellectual property of the author and therefore subject to >copyright restrictions. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2004 Report Share Posted October 16, 2004 Hi--May I ask, what is a booth test? THX, (mom to kate 4mos > My daughter's ABR indicated that she has a Moderate to Moderate > severe bilateral hearing loss. However, the audiologist at > the " House Ear Inst " indicated in her report that her loss > was " Moderate " and she then verbally described our daughter's loss > as " Mild to Moderate, " stating that she " Corrects " ABR scores by ten > points on infants. Does anyone know if this is an industry > standard? > > My daughter seems to hear a lot more than she is supposed to from > what I have read on Moderate hearing losses. Also, when wearing > her hearing aids she starts at the sound of a cup being placed on a > table or a kitchen cabinet being closed (all out of her line of > site). > > Thank you. > > , mom to Kate 4 mos > > > > > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 , Remember when you were younger, when you sat in a soundproof booth and they told you to raise your hand when you heard the beep? Thats a booth test. In infants, they look for subtle things. They told me things like, the baby will stop sucking on binky when they hear the noise. jbkdarby wrote: Hi--May I ask, what is a booth test? THX, (mom to kate 4mos > My daughter's ABR indicated that she has a Moderate to Moderate > severe bilateral hearing loss. However, the audiologist at > the " House Ear Inst " indicated in her report that her loss > was " Moderate " and she then verbally described our daughter's loss > as " Mild to Moderate, " stating that she " Corrects " ABR scores by ten > points on infants. Does anyone know if this is an industry > standard? > > My daughter seems to hear a lot more than she is supposed to from > what I have read on Moderate hearing losses. Also, when wearing > her hearing aids she starts at the sound of a cup being placed on a > table or a kitchen cabinet being closed (all out of her line of > site). > > Thank you. > > , mom to Kate 4 mos > > > > > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 , Remember when you were younger, when you sat in a soundproof booth and they told you to raise your hand when you heard the beep? Thats a booth test. In infants, they look for subtle things. They told me things like, the baby will stop sucking on binky when they hear the noise. jbkdarby wrote: Hi--May I ask, what is a booth test? THX, (mom to kate 4mos > My daughter's ABR indicated that she has a Moderate to Moderate > severe bilateral hearing loss. However, the audiologist at > the " House Ear Inst " indicated in her report that her loss > was " Moderate " and she then verbally described our daughter's loss > as " Mild to Moderate, " stating that she " Corrects " ABR scores by ten > points on infants. Does anyone know if this is an industry > standard? > > My daughter seems to hear a lot more than she is supposed to from > what I have read on Moderate hearing losses. Also, when wearing > her hearing aids she starts at the sound of a cup being placed on a > table or a kitchen cabinet being closed (all out of her line of > site). > > Thank you. > > , mom to Kate 4 mos > > > > > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 It is true that it is difficult to interpret the ABR results on young children because the responses that are looked for can vary based on neural maturation and/or hearing loss. I don't think that ABR's are globally inaccurate for all children, and they are empiracally proven to assist audiologists in diagnosing hearing loss as well as determing what is causing the loss (cochlear, retrocochlear). In my opinion, an ABR should not be the only test used to determine the presence or absence of a hearing loss, especially now that we have otoacousic emissions (OAE), acoustic reflexes, and other objective measures. I noticed that you felt though your children were misdiagnosed at early ages and hearing loss was not detected - While I don't know your specific circumstances, sometimes hearing loss will not present until some time after birth, therefore they will pass newborn screenings. For example, my daughters hearing loss is from Congenital Cytomegalovirus (CMV). Children with CMV often will progressively lose their hearing at unpredictable amounts and times, so many pass newborn screenings and are identified later. It is possible that this situation can occur for many other children with hearing loss of other etiologies. Colin Paxton, dad to Marissa - 6, CI 11/4/2003 (Auria 90K), CP, Congenital CMV, Cory 9, and Skyler - 2. > >Alison DelGaudio wrote: > > > I have never heard of an Audiologist 'correcting' the ABR but I truly > > believe that the ABR's that are done on infants are inaccurate. These > > babies are way too young and I think the older they get the more > > accurate results you will get. But I am by no means an expert. I was > > just in the same situation as you and think my daughter hears better > > than she should too.. > > >I agree but for the opposite reason. My son failed the new born >screening, as was given an ABR about a month later. We were told that >the results were " normal " and later at about 1 year, we discovered that >Caleb had a moderate loss - severe in the high frequencies. Go figure. > > >, 7, hearing >Caleb, 5, bilateral SNHL, aided > _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 It is true that it is difficult to interpret the ABR results on young children because the responses that are looked for can vary based on neural maturation and/or hearing loss. I don't think that ABR's are globally inaccurate for all children, and they are empiracally proven to assist audiologists in diagnosing hearing loss as well as determing what is causing the loss (cochlear, retrocochlear). In my opinion, an ABR should not be the only test used to determine the presence or absence of a hearing loss, especially now that we have otoacousic emissions (OAE), acoustic reflexes, and other objective measures. I noticed that you felt though your children were misdiagnosed at early ages and hearing loss was not detected - While I don't know your specific circumstances, sometimes hearing loss will not present until some time after birth, therefore they will pass newborn screenings. For example, my daughters hearing loss is from Congenital Cytomegalovirus (CMV). Children with CMV often will progressively lose their hearing at unpredictable amounts and times, so many pass newborn screenings and are identified later. It is possible that this situation can occur for many other children with hearing loss of other etiologies. Colin Paxton, dad to Marissa - 6, CI 11/4/2003 (Auria 90K), CP, Congenital CMV, Cory 9, and Skyler - 2. > >Alison DelGaudio wrote: > > > I have never heard of an Audiologist 'correcting' the ABR but I truly > > believe that the ABR's that are done on infants are inaccurate. These > > babies are way too young and I think the older they get the more > > accurate results you will get. But I am by no means an expert. I was > > just in the same situation as you and think my daughter hears better > > than she should too.. > > >I agree but for the opposite reason. My son failed the new born >screening, as was given an ABR about a month later. We were told that >the results were " normal " and later at about 1 year, we discovered that >Caleb had a moderate loss - severe in the high frequencies. Go figure. > > >, 7, hearing >Caleb, 5, bilateral SNHL, aided > _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 It is true that it is difficult to interpret the ABR results on young children because the responses that are looked for can vary based on neural maturation and/or hearing loss. I don't think that ABR's are globally inaccurate for all children, and they are empiracally proven to assist audiologists in diagnosing hearing loss as well as determing what is causing the loss (cochlear, retrocochlear). In my opinion, an ABR should not be the only test used to determine the presence or absence of a hearing loss, especially now that we have otoacousic emissions (OAE), acoustic reflexes, and other objective measures. I noticed that you felt though your children were misdiagnosed at early ages and hearing loss was not detected - While I don't know your specific circumstances, sometimes hearing loss will not present until some time after birth, therefore they will pass newborn screenings. For example, my daughters hearing loss is from Congenital Cytomegalovirus (CMV). Children with CMV often will progressively lose their hearing at unpredictable amounts and times, so many pass newborn screenings and are identified later. It is possible that this situation can occur for many other children with hearing loss of other etiologies. Colin Paxton, dad to Marissa - 6, CI 11/4/2003 (Auria 90K), CP, Congenital CMV, Cory 9, and Skyler - 2. > >Alison DelGaudio wrote: > > > I have never heard of an Audiologist 'correcting' the ABR but I truly > > believe that the ABR's that are done on infants are inaccurate. These > > babies are way too young and I think the older they get the more > > accurate results you will get. But I am by no means an expert. I was > > just in the same situation as you and think my daughter hears better > > than she should too.. > > >I agree but for the opposite reason. My son failed the new born >screening, as was given an ABR about a month later. We were told that >the results were " normal " and later at about 1 year, we discovered that >Caleb had a moderate loss - severe in the high frequencies. Go figure. > > >, 7, hearing >Caleb, 5, bilateral SNHL, aided > _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 My daughter failed the newborn hearing screening at birth in both ears. She was born 7 weeks premature. We were referred to Children's Hospital to have an ABR test done when leaving the NICU. Her first ABR was unsuccessful due to she was not cooperative. We went back and another one done with sedation a month later, and she kept waking up. Due to inconsistency we were told to come back for another ABR before aiding her, to make sure. This went on for 7 months before aiding her. At the time we were told this is very rare and usually doesn't happen that the test is usually very accurate. Since then I have met several that this has happened too. I can not comment professionally whether the ABR's are accurate or not. However I do feel they are accurate but it depends on the child's ability at the time of testing. They are so little and so fidgety. We went through so many levels of doubt and frustration in this journey, and at times still feel like we are on a very bad roller coaster ride that just keeps going up and down. We battled with keeping the aids in, we tried everything to keep her from pulling them out, if she pulled them out we put them right back in. Then we doubted if she was getting benefit why would she pull them out. We questioned everything and our frustration levels grew tremendously. She responded to so much without her aids we started questioning the diagnosis, so we got another opinion elsewhere when she was 3 years old, and were told that she was underaided. We felt like we were hit all over again, wondering what to do. We decided we didn't have a choice but to go with the new audies opinion and from that day forward she has never pulled her aids out once. There was noticeable difference in her speech and language within just 3 weeks. We were now confident that she is properly aided and she indeed did have a hearing loss. She was very vocal as a baby even when she wasn't aided, and always made sounds. She would turn to sound without her aids. She responded to things she shouldn't of responded too. If we talk loud enough in a quite environment without her aids in, she can hear us, she may say I didn't hear you say it again, and have a conversation with us. She is now 6 and has a moderate to severe conductive hearing loss. When she wakes up in the morning the first thing she does is goes and puts in her aids. If she is in the tub and the water isn't running, she can hear what we say if we say it loud enough. I don't think I will ever forget the frustration or the endless night sleep, wondering if we were doing the right thing. This list has helped me so much overcome all of those frustrations and fears I had in the beginning. I have learned that no one knows your child better than you. Go with your gut, if your uneasy with what is being told, question them until you comfortable. If you still aren't comfortable get a second, third or fourth opinion. Whatever it takes. I truly doubted that my daughters loss was what they claimed it was, until we saw for ourselves a major difference in just a few weeks. Hang in there, it does get easier. You are doing all the right things by asking questions and trying to get your children what they need. I have cried many tears in her 6 years old life, but the joy she has brought into our lives and the accomplishments she makes on a daily basis is truly amazing. And I can honestly say this is the most rewarding job I have ever had. Take Care, Colleen Mom to le 6 (mod.to sev loss, 's Anomaly left eye, scoliosis, asthma,etc. ) 10 (hearing, asthma, allergies) Re: Infant ABR Accuracy ? > > I have never heard of an Audiologist 'correcting' the ABR but I truly believe that the ABR's that are done on infants are inaccurate. These babies are way too young and I think the older they get the more accurate results you will get. But I am by no means an expert. I was just in the same situation as you and think my daughter hears better than she should too.. > > jbkdarby wrote: > My daughter's ABR indicated that she has a Moderate to Moderate > severe bilateral hearing loss. However, the audiologist at > the " House Ear Inst " indicated in her report that her loss > was " Moderate " and she then verbally described our daughter's loss > as " Mild to Moderate, " stating that she " Corrects " ABR scores by ten > points on infants. Does anyone know if this is an industry > standard? > > My daughter seems to hear a lot more than she is supposed to from > what I have read on Moderate hearing losses. Also, when wearing > her hearing aids she starts at the sound of a cup being placed on a > table or a kitchen cabinet being closed (all out of her line of > site). > > Thank you. > > , mom to Kate 4 mos > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 > We have had the opposite experience. Our daughter was tested at 16 months > with an ABR Maybe this is the difference, having ABRs at a slightly older age. We started booth testing my daughter at 1 yr of age for her hearing loss. Every booth test would fluctuate between mild - moderate loss. We even aided her to those losses. After 2 months in aids with no improvement & then an ABR at 20 months, she tested profound in one ear & severe - profound in the other & was immediately marked as a CI candidate. We had the ABR done at UCLA. We then moved across the country & the CI team at Univ of Fl, evaluated her & came up with similiar results as her ABR showed. By the way, my daughter is now & has always been extremely vocal (but not talking). In a group of playing children, you can not pick her out as a deaf child. Her imitation skills & cue pick up are incredible. Which has made even family members question me about her deafness. Yes, she is deaf. Does she naturally accomodate well to the hearing world? Yes.... Good luck, Debby Mom to Lindsi (28 months) Med El CI on 9/23/04 Hook Up on 10/26/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 > We have had the opposite experience. Our daughter was tested at 16 months > with an ABR Maybe this is the difference, having ABRs at a slightly older age. We started booth testing my daughter at 1 yr of age for her hearing loss. Every booth test would fluctuate between mild - moderate loss. We even aided her to those losses. After 2 months in aids with no improvement & then an ABR at 20 months, she tested profound in one ear & severe - profound in the other & was immediately marked as a CI candidate. We had the ABR done at UCLA. We then moved across the country & the CI team at Univ of Fl, evaluated her & came up with similiar results as her ABR showed. By the way, my daughter is now & has always been extremely vocal (but not talking). In a group of playing children, you can not pick her out as a deaf child. Her imitation skills & cue pick up are incredible. Which has made even family members question me about her deafness. Yes, she is deaf. Does she naturally accomodate well to the hearing world? Yes.... Good luck, Debby Mom to Lindsi (28 months) Med El CI on 9/23/04 Hook Up on 10/26/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 Are these sedated ABRs? Hadley had two incomplete and inconclusive ABRs (at 3 and 4 months) before we got a referral to Children's Hospital and did a sedated ABR. Her unaided test scores in the sound booth have not dramatically changed since that final ABR (+/- 5dB) done almost 3 years ago. Obviously, a child with a fluctuating or progressive hearing loss will have changing test results that would be monitored by the team. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 Are these sedated ABRs? Hadley had two incomplete and inconclusive ABRs (at 3 and 4 months) before we got a referral to Children's Hospital and did a sedated ABR. Her unaided test scores in the sound booth have not dramatically changed since that final ABR (+/- 5dB) done almost 3 years ago. Obviously, a child with a fluctuating or progressive hearing loss will have changing test results that would be monitored by the team. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 Are these sedated ABRs? Hadley had two incomplete and inconclusive ABRs (at 3 and 4 months) before we got a referral to Children's Hospital and did a sedated ABR. Her unaided test scores in the sound booth have not dramatically changed since that final ABR (+/- 5dB) done almost 3 years ago. Obviously, a child with a fluctuating or progressive hearing loss will have changing test results that would be monitored by the team. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 The first one we had was not sedated and they continued with the test but they said they wanted to repeat it with sedation before aiding her, due to she was not totally cooperative. The next one with sedation was a totally different results than what they expected, and not close to the other testing that was done. Then they did one in the OR when she had her tubes put in, at 3 months old, but she had a full blown ear infection at the time, that her peds missed when she was in for clearance two days before going in the OR. We wanted her doctor to check her to make sure her ears were clear and nothing would complicate the testing, since it was being done it the OR. We had 5 ABR's in the 7 months until we had two that had the same results. At the time I was totally frustrated that my child was diagnosis at birth and not aided still until 7 months. However, I did respect that fact that they didn't want to over amplify her. In between that the testing they did loan us a bone conduction aid ( the head band type, that you see on Barney) but it wasn't strong enough to push the sound through. In between that time we also seeked the opinion from another's children's hospital as a second opinion. At birth she was referred to as complicated child with many issues, and did not fit into a syndrome. It turned out that the very first ABR she had done is what her loss is now, so go figure. Once she cooperated in the booth and could tolerate the head phones we finally got the results we longed for. The booth was just as frustrating for us in the beginning due to sensory issues, she would not tolerate the headphones. Once we got past that, things went much smoother. Take Care Colleen RE: Re: Infant ABR Accuracy ? > > Are these sedated ABRs? Hadley had two incomplete and inconclusive ABRs > (at 3 and 4 months) before we got a referral to Children's Hospital and > did a sedated ABR. Her unaided test scores in the sound booth have not > dramatically changed since that final ABR (+/- 5dB) done almost 3 years > ago. Obviously, a child with a fluctuating or progressive hearing loss > will have changing test results that would be monitored by the team. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 The first one we had was not sedated and they continued with the test but they said they wanted to repeat it with sedation before aiding her, due to she was not totally cooperative. The next one with sedation was a totally different results than what they expected, and not close to the other testing that was done. Then they did one in the OR when she had her tubes put in, at 3 months old, but she had a full blown ear infection at the time, that her peds missed when she was in for clearance two days before going in the OR. We wanted her doctor to check her to make sure her ears were clear and nothing would complicate the testing, since it was being done it the OR. We had 5 ABR's in the 7 months until we had two that had the same results. At the time I was totally frustrated that my child was diagnosis at birth and not aided still until 7 months. However, I did respect that fact that they didn't want to over amplify her. In between that the testing they did loan us a bone conduction aid ( the head band type, that you see on Barney) but it wasn't strong enough to push the sound through. In between that time we also seeked the opinion from another's children's hospital as a second opinion. At birth she was referred to as complicated child with many issues, and did not fit into a syndrome. It turned out that the very first ABR she had done is what her loss is now, so go figure. Once she cooperated in the booth and could tolerate the head phones we finally got the results we longed for. The booth was just as frustrating for us in the beginning due to sensory issues, she would not tolerate the headphones. Once we got past that, things went much smoother. Take Care Colleen RE: Re: Infant ABR Accuracy ? > > Are these sedated ABRs? Hadley had two incomplete and inconclusive ABRs > (at 3 and 4 months) before we got a referral to Children's Hospital and > did a sedated ABR. Her unaided test scores in the sound booth have not > dramatically changed since that final ABR (+/- 5dB) done almost 3 years > ago. Obviously, a child with a fluctuating or progressive hearing loss > will have changing test results that would be monitored by the team. Quote Link to comment Share on other sites More sharing options...
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