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Re: Progress among Finnish doctors, serious set-backs with parents

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Posted
Posted

Hi Sanna-

Just so you know that doctors here in the states used to use the DBB back in

the 70's for MA, which was deemed to be not succesful. As you know the DBB

is succesful with the Ponseti Method of treating club feet. I bet your

doctor is referring to the use of the DBB for MA as back then and not

clubfeet.

My original ortho said that the DBB was not going to help in the regression

of the hindfoot too. He said it just keeps them from not turning in. My new

ortho does believe the DBB helps with the regression of the hindfoot because

they DBB is bent so the foot stays in a slight dorsiflexion. My original

ortho did not bend the bar but my new ortho does and he works hand in hand

with Ponseti all the time. So I do believe that it helps with the forefoot

AND the hindfoot.

I may of missed a post but why does Veeti have to have hand surgery?

Take care,

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Progress among Finnish doctors, serious

>set-backs with parents

>Date: Thu, 03 Apr 2003 15:00:40 -0000

>

>Hi all,

>

>We went to see our original doctor this morning as he was interested

>to see how Veeti is coping with the DBB. He was glad that it had

>been so easy for him to adjust to it, and was ready to start using

>the DBB:s himself! Well not himself but his patients:) He has

>ordered three DBB's from the USA. He said that years ago they were

>used in Finland, but the senior orthos said they didn't work and the

>younger ones believed them. Now as he has seen one in action he is

>ready to try them too. He was still of the opinion that it is an

>American way to put the children through such a long term splinting,

>and in Europe they consider surgery a better option, or not as bad

>anyway. Still he is starting to use the DBB's in preventing

>relapses, so I guess he is still in a process of figuring out what

>really to think of all this. He was impressed of the position of

>Veeti's foot, which was a great relief to us although we have seen

>it ourselves, but it is always good to hear it from a doctor. There

>were a couple of things that concern us, however. He said to us that

>the DBB holds the position of the forefoot corrected, but can't keep

>the hindfoot from relapsing if that is " meant to happen " . Yet I have

>understood that the DBB indeed prevents the foot from relapsing,

>both the fore and the hindfoot. Another issue that is concerning is

>that Veeti's clubfoot is a lot shorter (from ankle to hip) than the

>other one. According to our doctor, it doesn't cause any damage to

>the correction of the clubfoot, but may cause problems when Veeti

>will have growth spurs if the difference gets even bigger. I know

>that there is nothing we can do about it at the moment, but it just

>keeps us worrying for the next ten years at least.. Veeti's hands

>will be operated on September, so luckily we can lead a normal life

>for a few months now. He will need two or three surgeries for the

>hands.

>

>So I guess I can call it a progress what has happened with our

>doctor. He has been really great to us, shown interest and not being

>upset by our decision to treat Veeti against his advice. I will keep

>in touch with our doctor and try to inform him about Ponseti method

>and possible news about it. On the other hand, I will give up with

>the parents. My people skills don't seem to be good enough for

>handling this matter correctly. So I guess I'm through explaining

>myself and will concentrate on enjoying my son's beautiful new foot

>and also working with the new Finnish clubfoot association that we

>have established.

>

>By the way, I'm looking forward to hearing from 's family: are

>you already in Iowa?

>

>Sanna & Veeti 6.5.2002 left clubfoot, DBB full-time

>

_________________________________________________________________

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Posted
Posted

Hi Sanna-

Just so you know that doctors here in the states used to use the DBB back in

the 70's for MA, which was deemed to be not succesful. As you know the DBB

is succesful with the Ponseti Method of treating club feet. I bet your

doctor is referring to the use of the DBB for MA as back then and not

clubfeet.

My original ortho said that the DBB was not going to help in the regression

of the hindfoot too. He said it just keeps them from not turning in. My new

ortho does believe the DBB helps with the regression of the hindfoot because

they DBB is bent so the foot stays in a slight dorsiflexion. My original

ortho did not bend the bar but my new ortho does and he works hand in hand

with Ponseti all the time. So I do believe that it helps with the forefoot

AND the hindfoot.

I may of missed a post but why does Veeti have to have hand surgery?

Take care,

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Progress among Finnish doctors, serious

>set-backs with parents

>Date: Thu, 03 Apr 2003 15:00:40 -0000

>

>Hi all,

>

>We went to see our original doctor this morning as he was interested

>to see how Veeti is coping with the DBB. He was glad that it had

>been so easy for him to adjust to it, and was ready to start using

>the DBB:s himself! Well not himself but his patients:) He has

>ordered three DBB's from the USA. He said that years ago they were

>used in Finland, but the senior orthos said they didn't work and the

>younger ones believed them. Now as he has seen one in action he is

>ready to try them too. He was still of the opinion that it is an

>American way to put the children through such a long term splinting,

>and in Europe they consider surgery a better option, or not as bad

>anyway. Still he is starting to use the DBB's in preventing

>relapses, so I guess he is still in a process of figuring out what

>really to think of all this. He was impressed of the position of

>Veeti's foot, which was a great relief to us although we have seen

>it ourselves, but it is always good to hear it from a doctor. There

>were a couple of things that concern us, however. He said to us that

>the DBB holds the position of the forefoot corrected, but can't keep

>the hindfoot from relapsing if that is " meant to happen " . Yet I have

>understood that the DBB indeed prevents the foot from relapsing,

>both the fore and the hindfoot. Another issue that is concerning is

>that Veeti's clubfoot is a lot shorter (from ankle to hip) than the

>other one. According to our doctor, it doesn't cause any damage to

>the correction of the clubfoot, but may cause problems when Veeti

>will have growth spurs if the difference gets even bigger. I know

>that there is nothing we can do about it at the moment, but it just

>keeps us worrying for the next ten years at least.. Veeti's hands

>will be operated on September, so luckily we can lead a normal life

>for a few months now. He will need two or three surgeries for the

>hands.

>

>So I guess I can call it a progress what has happened with our

>doctor. He has been really great to us, shown interest and not being

>upset by our decision to treat Veeti against his advice. I will keep

>in touch with our doctor and try to inform him about Ponseti method

>and possible news about it. On the other hand, I will give up with

>the parents. My people skills don't seem to be good enough for

>handling this matter correctly. So I guess I'm through explaining

>myself and will concentrate on enjoying my son's beautiful new foot

>and also working with the new Finnish clubfoot association that we

>have established.

>

>By the way, I'm looking forward to hearing from 's family: are

>you already in Iowa?

>

>Sanna & Veeti 6.5.2002 left clubfoot, DBB full-time

>

_________________________________________________________________

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Guest guest

Posted
Posted

Hi Sanna-

Just so you know that doctors here in the states used to use the DBB back in

the 70's for MA, which was deemed to be not succesful. As you know the DBB

is succesful with the Ponseti Method of treating club feet. I bet your

doctor is referring to the use of the DBB for MA as back then and not

clubfeet.

My original ortho said that the DBB was not going to help in the regression

of the hindfoot too. He said it just keeps them from not turning in. My new

ortho does believe the DBB helps with the regression of the hindfoot because

they DBB is bent so the foot stays in a slight dorsiflexion. My original

ortho did not bend the bar but my new ortho does and he works hand in hand

with Ponseti all the time. So I do believe that it helps with the forefoot

AND the hindfoot.

I may of missed a post but why does Veeti have to have hand surgery?

Take care,

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Progress among Finnish doctors, serious

>set-backs with parents

>Date: Thu, 03 Apr 2003 15:00:40 -0000

>

>Hi all,

>

>We went to see our original doctor this morning as he was interested

>to see how Veeti is coping with the DBB. He was glad that it had

>been so easy for him to adjust to it, and was ready to start using

>the DBB:s himself! Well not himself but his patients:) He has

>ordered three DBB's from the USA. He said that years ago they were

>used in Finland, but the senior orthos said they didn't work and the

>younger ones believed them. Now as he has seen one in action he is

>ready to try them too. He was still of the opinion that it is an

>American way to put the children through such a long term splinting,

>and in Europe they consider surgery a better option, or not as bad

>anyway. Still he is starting to use the DBB's in preventing

>relapses, so I guess he is still in a process of figuring out what

>really to think of all this. He was impressed of the position of

>Veeti's foot, which was a great relief to us although we have seen

>it ourselves, but it is always good to hear it from a doctor. There

>were a couple of things that concern us, however. He said to us that

>the DBB holds the position of the forefoot corrected, but can't keep

>the hindfoot from relapsing if that is " meant to happen " . Yet I have

>understood that the DBB indeed prevents the foot from relapsing,

>both the fore and the hindfoot. Another issue that is concerning is

>that Veeti's clubfoot is a lot shorter (from ankle to hip) than the

>other one. According to our doctor, it doesn't cause any damage to

>the correction of the clubfoot, but may cause problems when Veeti

>will have growth spurs if the difference gets even bigger. I know

>that there is nothing we can do about it at the moment, but it just

>keeps us worrying for the next ten years at least.. Veeti's hands

>will be operated on September, so luckily we can lead a normal life

>for a few months now. He will need two or three surgeries for the

>hands.

>

>So I guess I can call it a progress what has happened with our

>doctor. He has been really great to us, shown interest and not being

>upset by our decision to treat Veeti against his advice. I will keep

>in touch with our doctor and try to inform him about Ponseti method

>and possible news about it. On the other hand, I will give up with

>the parents. My people skills don't seem to be good enough for

>handling this matter correctly. So I guess I'm through explaining

>myself and will concentrate on enjoying my son's beautiful new foot

>and also working with the new Finnish clubfoot association that we

>have established.

>

>By the way, I'm looking forward to hearing from 's family: are

>you already in Iowa?

>

>Sanna & Veeti 6.5.2002 left clubfoot, DBB full-time

>

_________________________________________________________________

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Posted
Posted

Sanna,

Your doctor has been much more open at the beginning than most of

ours have been. So congratulations, he may yet surprise you in a

while. As I have mentioned before, it took our original ped ortho

about 2 1/2 years to switch over.

As far as the Finnish parents site, what you are experiencing in

trying to introduce Parents in Finland to the Ponseti method is

similar to what we experienced on the English language sites in

1999. In June of 1999, there were only 3 Ponseti method parents who

had all just joined a site called Parentsplace. The other parents

had not had the information that the Ponseti method existed and most

of them had already been through the posterior release types of

surgery. Our bringing up the Ponseti method was welcomed by new

parents, but met with a some resistance by some who had been through

the surgery.

In 1999, on the parentsplace site and the general clubfoot

information site at yahoo there were about 3-5 Ponseti method parents

and 30-40 parents whose children had already had the surgery. As new

parents came on, they welcomed information about the Ponseti method

and our numbers gradually grew. By December 1999, the Ponseti method

parents felt a need to have our own message board so set up

this site. By January 2000, there were 40 parents on the General

Information yahoo Clubfoot site and 20 on the Ponseti method yahoo

site. Many of us Ponseti method parents were on both sites to try to

help new parents be aware that the Ponseti method existed. My guess

is that if you can hang on and not get discouraged, that many of the

new parents to your Finnish site will choose the Ponseti method

(although travel is going to be a bit difficult until your doctor

decides he is ready to change over.)

At your Finnish parents site, I noticed that you have about 43

members (which has increased by 5 in the past week) and that the

number of messages had been about 20-40 per month until January when

it jumped to 200 to 365 per month. Since I am not a member and can't

read Finnish, I assume that is when some of the discussion of the

Ponseti method began. In a few years, those 43 parents will have

become 200-300 parents and you can help them know that they have some

alternatives. http://groups.yahoo.com/group/kampurat/

By the way, I got an e-mail from Dr. Morcuende at the U of Iowa and

he indicated that he is going to go to visit the Swedish doctor I

think in May during an upcoming meeting.

and (3-17-99)

> Hi all,

>

> We went to see our original doctor this morning as he was

interested

> to see how Veeti is coping with the DBB. He was glad that it had

> been so easy for him to adjust to it, and was ready to start using

> the DBB:s himself! Well not himself but his patients:) He has

> ordered three DBB's from the USA. He said that years ago they were

> used in Finland, but the senior orthos said they didn't work and

the

> younger ones believed them. Now as he has seen one in action he is

> ready to try them too. He was still of the opinion that it is an

> American way to put the children through such a long term

splinting,

> and in Europe they consider surgery a better option, or not as bad

> anyway. Still he is starting to use the DBB's in preventing

> relapses, so I guess he is still in a process of figuring out what

> really to think of all this. He was impressed of the position of

> Veeti's foot, which was a great relief to us although we have seen

> it ourselves, but it is always good to hear it from a doctor. There

> were a couple of things that concern us, however. He said to us

that

> the DBB holds the position of the forefoot corrected, but can't

keep

> the hindfoot from relapsing if that is " meant to happen " . Yet I

have

> understood that the DBB indeed prevents the foot from relapsing,

> both the fore and the hindfoot. Another issue that is concerning is

> that Veeti's clubfoot is a lot shorter (from ankle to hip) than the

> other one. According to our doctor, it doesn't cause any damage to

> the correction of the clubfoot, but may cause problems when Veeti

> will have growth spurs if the difference gets even bigger. I know

> that there is nothing we can do about it at the moment, but it just

> keeps us worrying for the next ten years at least.. Veeti's hands

> will be operated on September, so luckily we can lead a normal life

> for a few months now. He will need two or three surgeries for the

> hands.

>

> So I guess I can call it a progress what has happened with our

> doctor. He has been really great to us, shown interest and not

being

> upset by our decision to treat Veeti against his advice. I will

keep

> in touch with our doctor and try to inform him about Ponseti method

> and possible news about it. On the other hand, I will give up with

> the parents. My people skills don't seem to be good enough for

> handling this matter correctly. So I guess I'm through explaining

> myself and will concentrate on enjoying my son's beautiful new foot

> and also working with the new Finnish clubfoot association that we

> have established.

>

> By the way, I'm looking forward to hearing from 's family: are

> you already in Iowa?

>

> Sanna & Veeti 6.5.2002 left clubfoot, DBB full-time

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Posted
Posted

Sanna,

Your doctor has been much more open at the beginning than most of

ours have been. So congratulations, he may yet surprise you in a

while. As I have mentioned before, it took our original ped ortho

about 2 1/2 years to switch over.

As far as the Finnish parents site, what you are experiencing in

trying to introduce Parents in Finland to the Ponseti method is

similar to what we experienced on the English language sites in

1999. In June of 1999, there were only 3 Ponseti method parents who

had all just joined a site called Parentsplace. The other parents

had not had the information that the Ponseti method existed and most

of them had already been through the posterior release types of

surgery. Our bringing up the Ponseti method was welcomed by new

parents, but met with a some resistance by some who had been through

the surgery.

In 1999, on the parentsplace site and the general clubfoot

information site at yahoo there were about 3-5 Ponseti method parents

and 30-40 parents whose children had already had the surgery. As new

parents came on, they welcomed information about the Ponseti method

and our numbers gradually grew. By December 1999, the Ponseti method

parents felt a need to have our own message board so set up

this site. By January 2000, there were 40 parents on the General

Information yahoo Clubfoot site and 20 on the Ponseti method yahoo

site. Many of us Ponseti method parents were on both sites to try to

help new parents be aware that the Ponseti method existed. My guess

is that if you can hang on and not get discouraged, that many of the

new parents to your Finnish site will choose the Ponseti method

(although travel is going to be a bit difficult until your doctor

decides he is ready to change over.)

At your Finnish parents site, I noticed that you have about 43

members (which has increased by 5 in the past week) and that the

number of messages had been about 20-40 per month until January when

it jumped to 200 to 365 per month. Since I am not a member and can't

read Finnish, I assume that is when some of the discussion of the

Ponseti method began. In a few years, those 43 parents will have

become 200-300 parents and you can help them know that they have some

alternatives. http://groups.yahoo.com/group/kampurat/

By the way, I got an e-mail from Dr. Morcuende at the U of Iowa and

he indicated that he is going to go to visit the Swedish doctor I

think in May during an upcoming meeting.

and (3-17-99)

> Hi all,

>

> We went to see our original doctor this morning as he was

interested

> to see how Veeti is coping with the DBB. He was glad that it had

> been so easy for him to adjust to it, and was ready to start using

> the DBB:s himself! Well not himself but his patients:) He has

> ordered three DBB's from the USA. He said that years ago they were

> used in Finland, but the senior orthos said they didn't work and

the

> younger ones believed them. Now as he has seen one in action he is

> ready to try them too. He was still of the opinion that it is an

> American way to put the children through such a long term

splinting,

> and in Europe they consider surgery a better option, or not as bad

> anyway. Still he is starting to use the DBB's in preventing

> relapses, so I guess he is still in a process of figuring out what

> really to think of all this. He was impressed of the position of

> Veeti's foot, which was a great relief to us although we have seen

> it ourselves, but it is always good to hear it from a doctor. There

> were a couple of things that concern us, however. He said to us

that

> the DBB holds the position of the forefoot corrected, but can't

keep

> the hindfoot from relapsing if that is " meant to happen " . Yet I

have

> understood that the DBB indeed prevents the foot from relapsing,

> both the fore and the hindfoot. Another issue that is concerning is

> that Veeti's clubfoot is a lot shorter (from ankle to hip) than the

> other one. According to our doctor, it doesn't cause any damage to

> the correction of the clubfoot, but may cause problems when Veeti

> will have growth spurs if the difference gets even bigger. I know

> that there is nothing we can do about it at the moment, but it just

> keeps us worrying for the next ten years at least.. Veeti's hands

> will be operated on September, so luckily we can lead a normal life

> for a few months now. He will need two or three surgeries for the

> hands.

>

> So I guess I can call it a progress what has happened with our

> doctor. He has been really great to us, shown interest and not

being

> upset by our decision to treat Veeti against his advice. I will

keep

> in touch with our doctor and try to inform him about Ponseti method

> and possible news about it. On the other hand, I will give up with

> the parents. My people skills don't seem to be good enough for

> handling this matter correctly. So I guess I'm through explaining

> myself and will concentrate on enjoying my son's beautiful new foot

> and also working with the new Finnish clubfoot association that we

> have established.

>

> By the way, I'm looking forward to hearing from 's family: are

> you already in Iowa?

>

> Sanna & Veeti 6.5.2002 left clubfoot, DBB full-time

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Share on other sites
Guest guest

Guest guest

Posted
Posted

Sanna,

Your doctor has been much more open at the beginning than most of

ours have been. So congratulations, he may yet surprise you in a

while. As I have mentioned before, it took our original ped ortho

about 2 1/2 years to switch over.

As far as the Finnish parents site, what you are experiencing in

trying to introduce Parents in Finland to the Ponseti method is

similar to what we experienced on the English language sites in

1999. In June of 1999, there were only 3 Ponseti method parents who

had all just joined a site called Parentsplace. The other parents

had not had the information that the Ponseti method existed and most

of them had already been through the posterior release types of

surgery. Our bringing up the Ponseti method was welcomed by new

parents, but met with a some resistance by some who had been through

the surgery.

In 1999, on the parentsplace site and the general clubfoot

information site at yahoo there were about 3-5 Ponseti method parents

and 30-40 parents whose children had already had the surgery. As new

parents came on, they welcomed information about the Ponseti method

and our numbers gradually grew. By December 1999, the Ponseti method

parents felt a need to have our own message board so set up

this site. By January 2000, there were 40 parents on the General

Information yahoo Clubfoot site and 20 on the Ponseti method yahoo

site. Many of us Ponseti method parents were on both sites to try to

help new parents be aware that the Ponseti method existed. My guess

is that if you can hang on and not get discouraged, that many of the

new parents to your Finnish site will choose the Ponseti method

(although travel is going to be a bit difficult until your doctor

decides he is ready to change over.)

At your Finnish parents site, I noticed that you have about 43

members (which has increased by 5 in the past week) and that the

number of messages had been about 20-40 per month until January when

it jumped to 200 to 365 per month. Since I am not a member and can't

read Finnish, I assume that is when some of the discussion of the

Ponseti method began. In a few years, those 43 parents will have

become 200-300 parents and you can help them know that they have some

alternatives. http://groups.yahoo.com/group/kampurat/

By the way, I got an e-mail from Dr. Morcuende at the U of Iowa and

he indicated that he is going to go to visit the Swedish doctor I

think in May during an upcoming meeting.

and (3-17-99)

> Hi all,

>

> We went to see our original doctor this morning as he was

interested

> to see how Veeti is coping with the DBB. He was glad that it had

> been so easy for him to adjust to it, and was ready to start using

> the DBB:s himself! Well not himself but his patients:) He has

> ordered three DBB's from the USA. He said that years ago they were

> used in Finland, but the senior orthos said they didn't work and

the

> younger ones believed them. Now as he has seen one in action he is

> ready to try them too. He was still of the opinion that it is an

> American way to put the children through such a long term

splinting,

> and in Europe they consider surgery a better option, or not as bad

> anyway. Still he is starting to use the DBB's in preventing

> relapses, so I guess he is still in a process of figuring out what

> really to think of all this. He was impressed of the position of

> Veeti's foot, which was a great relief to us although we have seen

> it ourselves, but it is always good to hear it from a doctor. There

> were a couple of things that concern us, however. He said to us

that

> the DBB holds the position of the forefoot corrected, but can't

keep

> the hindfoot from relapsing if that is " meant to happen " . Yet I

have

> understood that the DBB indeed prevents the foot from relapsing,

> both the fore and the hindfoot. Another issue that is concerning is

> that Veeti's clubfoot is a lot shorter (from ankle to hip) than the

> other one. According to our doctor, it doesn't cause any damage to

> the correction of the clubfoot, but may cause problems when Veeti

> will have growth spurs if the difference gets even bigger. I know

> that there is nothing we can do about it at the moment, but it just

> keeps us worrying for the next ten years at least.. Veeti's hands

> will be operated on September, so luckily we can lead a normal life

> for a few months now. He will need two or three surgeries for the

> hands.

>

> So I guess I can call it a progress what has happened with our

> doctor. He has been really great to us, shown interest and not

being

> upset by our decision to treat Veeti against his advice. I will

keep

> in touch with our doctor and try to inform him about Ponseti method

> and possible news about it. On the other hand, I will give up with

> the parents. My people skills don't seem to be good enough for

> handling this matter correctly. So I guess I'm through explaining

> myself and will concentrate on enjoying my son's beautiful new foot

> and also working with the new Finnish clubfoot association that we

> have established.

>

> By the way, I'm looking forward to hearing from 's family: are

> you already in Iowa?

>

> Sanna & Veeti 6.5.2002 left clubfoot, DBB full-time

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Posted
Posted

Sanna,

That's great that the doctor was at least willing to listen to you

and will at least try the DBB to prevent relapses.

What I wanted to comment on was the difference in Veeti's leg

length. If in fact the difference does become much different there

is actually a procedure done by Dr. Herzenberg at the Rubin Institute

for Advanced Orthopedics that can actually lengthen limbs! You can

see more info on it at www.limblengthening.org Dylan's roommate

after his surgery had had it done. It's pretty amazing what they can

do. Just thought I'd throw that out to you!

Also, I think I missed it in an earlier post from you, but what

surgery will Veeti be having on his hands?

Theresa

mom to Dylan, born 2/24/01

bilateral clubfoot (DBB nighttime only)

unilateral cleft lip & palate (repaired - speech 1x/week)

> Hi all,

>

> We went to see our original doctor this morning as he was

interested

> to see how Veeti is coping with the DBB. He was glad that it had

> been so easy for him to adjust to it, and was ready to start using

> the DBB:s himself! Well not himself but his patients:) He has

> ordered three DBB's from the USA. He said that years ago they were

> used in Finland, but the senior orthos said they didn't work and

the

> younger ones believed them. Now as he has seen one in action he is

> ready to try them too. He was still of the opinion that it is an

> American way to put the children through such a long term

splinting,

> and in Europe they consider surgery a better option, or not as bad

> anyway. Still he is starting to use the DBB's in preventing

> relapses, so I guess he is still in a process of figuring out what

> really to think of all this. He was impressed of the position of

> Veeti's foot, which was a great relief to us although we have seen

> it ourselves, but it is always good to hear it from a doctor. There

> were a couple of things that concern us, however. He said to us

that

> the DBB holds the position of the forefoot corrected, but can't

keep

> the hindfoot from relapsing if that is " meant to happen " . Yet I

have

> understood that the DBB indeed prevents the foot from relapsing,

> both the fore and the hindfoot. Another issue that is concerning is

> that Veeti's clubfoot is a lot shorter (from ankle to hip) than the

> other one. According to our doctor, it doesn't cause any damage to

> the correction of the clubfoot, but may cause problems when Veeti

> will have growth spurs if the difference gets even bigger. I know

> that there is nothing we can do about it at the moment, but it just

> keeps us worrying for the next ten years at least.. Veeti's hands

> will be operated on September, so luckily we can lead a normal life

> for a few months now. He will need two or three surgeries for the

> hands.

>

> So I guess I can call it a progress what has happened with our

> doctor. He has been really great to us, shown interest and not

being

> upset by our decision to treat Veeti against his advice. I will

keep

> in touch with our doctor and try to inform him about Ponseti method

> and possible news about it. On the other hand, I will give up with

> the parents. My people skills don't seem to be good enough for

> handling this matter correctly. So I guess I'm through explaining

> myself and will concentrate on enjoying my son's beautiful new foot

> and also working with the new Finnish clubfoot association that we

> have established.

>

> By the way, I'm looking forward to hearing from 's family: are

> you already in Iowa?

>

> Sanna & Veeti 6.5.2002 left clubfoot, DBB full-time

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Posted
Posted

Sanna,

That's great that the doctor was at least willing to listen to you

and will at least try the DBB to prevent relapses.

What I wanted to comment on was the difference in Veeti's leg

length. If in fact the difference does become much different there

is actually a procedure done by Dr. Herzenberg at the Rubin Institute

for Advanced Orthopedics that can actually lengthen limbs! You can

see more info on it at www.limblengthening.org Dylan's roommate

after his surgery had had it done. It's pretty amazing what they can

do. Just thought I'd throw that out to you!

Also, I think I missed it in an earlier post from you, but what

surgery will Veeti be having on his hands?

Theresa

mom to Dylan, born 2/24/01

bilateral clubfoot (DBB nighttime only)

unilateral cleft lip & palate (repaired - speech 1x/week)

> Hi all,

>

> We went to see our original doctor this morning as he was

interested

> to see how Veeti is coping with the DBB. He was glad that it had

> been so easy for him to adjust to it, and was ready to start using

> the DBB:s himself! Well not himself but his patients:) He has

> ordered three DBB's from the USA. He said that years ago they were

> used in Finland, but the senior orthos said they didn't work and

the

> younger ones believed them. Now as he has seen one in action he is

> ready to try them too. He was still of the opinion that it is an

> American way to put the children through such a long term

splinting,

> and in Europe they consider surgery a better option, or not as bad

> anyway. Still he is starting to use the DBB's in preventing

> relapses, so I guess he is still in a process of figuring out what

> really to think of all this. He was impressed of the position of

> Veeti's foot, which was a great relief to us although we have seen

> it ourselves, but it is always good to hear it from a doctor. There

> were a couple of things that concern us, however. He said to us

that

> the DBB holds the position of the forefoot corrected, but can't

keep

> the hindfoot from relapsing if that is " meant to happen " . Yet I

have

> understood that the DBB indeed prevents the foot from relapsing,

> both the fore and the hindfoot. Another issue that is concerning is

> that Veeti's clubfoot is a lot shorter (from ankle to hip) than the

> other one. According to our doctor, it doesn't cause any damage to

> the correction of the clubfoot, but may cause problems when Veeti

> will have growth spurs if the difference gets even bigger. I know

> that there is nothing we can do about it at the moment, but it just

> keeps us worrying for the next ten years at least.. Veeti's hands

> will be operated on September, so luckily we can lead a normal life

> for a few months now. He will need two or three surgeries for the

> hands.

>

> So I guess I can call it a progress what has happened with our

> doctor. He has been really great to us, shown interest and not

being

> upset by our decision to treat Veeti against his advice. I will

keep

> in touch with our doctor and try to inform him about Ponseti method

> and possible news about it. On the other hand, I will give up with

> the parents. My people skills don't seem to be good enough for

> handling this matter correctly. So I guess I'm through explaining

> myself and will concentrate on enjoying my son's beautiful new foot

> and also working with the new Finnish clubfoot association that we

> have established.

>

> By the way, I'm looking forward to hearing from 's family: are

> you already in Iowa?

>

> Sanna & Veeti 6.5.2002 left clubfoot, DBB full-time

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Posted
Posted

Hi ,

Veeti has only three fingers in his left hand: a thumb, an index

finger and a ring finger. The index and the ring fingers are

attached together, but they cannot be separated as we originally

thought, because there aren't enough bones in his hands. So they

will only rotate the thumb as all the fingers are in a row at the

moment. In his right hand Veeti has six fingers, of which three are

attached. They will be separated and one of them will be removed, so

he will have five fingers. So the hand surgeries will be a much

bigger deal than the clubfoot, and so far I unfortunately haven't

heard of any doctor who could correct the hands without surgery, so

I guess we have to go through with it.. ;)

Sanna & Veeti

> Hi Sanna-

>

> Just so you know that doctors here in the states used to use the

DBB back in

> the 70's for MA, which was deemed to be not succesful. As you know

the DBB

> is succesful with the Ponseti Method of treating club feet. I bet

your

> doctor is referring to the use of the DBB for MA as back then and

not

> clubfeet.

>

> My original ortho said that the DBB was not going to help in the

regression

> of the hindfoot too. He said it just keeps them from not turning

in. My new

> ortho does believe the DBB helps with the regression of the

hindfoot because

> they DBB is bent so the foot stays in a slight dorsiflexion. My

original

> ortho did not bend the bar but my new ortho does and he works hand

in hand

> with Ponseti all the time. So I do believe that it helps with the

forefoot

> AND the hindfoot.

>

> I may of missed a post but why does Veeti have to have hand

surgery?

>

> Take care,

>

>

>

>

>

>

>

> >From: " Sanna Rekila " <srekila@y...>

> >Reply-To: nosurgery4clubfoot

> >To: nosurgery4clubfoot

> >Subject: Progress among Finnish doctors,

serious

> >set-backs with parents

> >Date: Thu, 03 Apr 2003 15:00:40 -0000

> >

> >Hi all,

> >

> >We went to see our original doctor this morning as he was

interested

> >to see how Veeti is coping with the DBB. He was glad that it had

> >been so easy for him to adjust to it, and was ready to start using

> >the DBB:s himself! Well not himself but his patients:) He has

> >ordered three DBB's from the USA. He said that years ago they were

> >used in Finland, but the senior orthos said they didn't work and

the

> >younger ones believed them. Now as he has seen one in action he is

> >ready to try them too. He was still of the opinion that it is an

> >American way to put the children through such a long term

splinting,

> >and in Europe they consider surgery a better option, or not as bad

> >anyway. Still he is starting to use the DBB's in preventing

> >relapses, so I guess he is still in a process of figuring out what

> >really to think of all this. He was impressed of the position of

> >Veeti's foot, which was a great relief to us although we have seen

> >it ourselves, but it is always good to hear it from a doctor.

There

> >were a couple of things that concern us, however. He said to us

that

> >the DBB holds the position of the forefoot corrected, but can't

keep

> >the hindfoot from relapsing if that is " meant to happen " . Yet I

have

> >understood that the DBB indeed prevents the foot from relapsing,

> >both the fore and the hindfoot. Another issue that is concerning

is

> >that Veeti's clubfoot is a lot shorter (from ankle to hip) than

the

> >other one. According to our doctor, it doesn't cause any damage to

> >the correction of the clubfoot, but may cause problems when Veeti

> >will have growth spurs if the difference gets even bigger. I know

> >that there is nothing we can do about it at the moment, but it

just

> >keeps us worrying for the next ten years at least.. Veeti's hands

> >will be operated on September, so luckily we can lead a normal

life

> >for a few months now. He will need two or three surgeries for the

> >hands.

> >

> >So I guess I can call it a progress what has happened with our

> >doctor. He has been really great to us, shown interest and not

being

> >upset by our decision to treat Veeti against his advice. I will

keep

> >in touch with our doctor and try to inform him about Ponseti

method

> >and possible news about it. On the other hand, I will give up with

> >the parents. My people skills don't seem to be good enough for

> >handling this matter correctly. So I guess I'm through explaining

> >myself and will concentrate on enjoying my son's beautiful new

foot

> >and also working with the new Finnish clubfoot association that we

> >have established.

> >

> >By the way, I'm looking forward to hearing from 's family:

are

> >you already in Iowa?

> >

> >Sanna & Veeti 6.5.2002 left clubfoot, DBB full-time

> >

>

>

> _________________________________________________________________

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Posted
Posted

Theresa,

Thank you! I will have a look at that website.

Sanna

> > Hi all,

> >

> > We went to see our original doctor this morning as he was

> interested

> > to see how Veeti is coping with the DBB. He was glad that it had

> > been so easy for him to adjust to it, and was ready to start

using

> > the DBB:s himself! Well not himself but his patients:) He has

> > ordered three DBB's from the USA. He said that years ago they

were

> > used in Finland, but the senior orthos said they didn't work and

> the

> > younger ones believed them. Now as he has seen one in action he

is

> > ready to try them too. He was still of the opinion that it is an

> > American way to put the children through such a long term

> splinting,

> > and in Europe they consider surgery a better option, or not as

bad

> > anyway. Still he is starting to use the DBB's in preventing

> > relapses, so I guess he is still in a process of figuring out

what

> > really to think of all this. He was impressed of the position of

> > Veeti's foot, which was a great relief to us although we have

seen

> > it ourselves, but it is always good to hear it from a doctor.

There

> > were a couple of things that concern us, however. He said to us

> that

> > the DBB holds the position of the forefoot corrected, but can't

> keep

> > the hindfoot from relapsing if that is " meant to happen " . Yet I

> have

> > understood that the DBB indeed prevents the foot from relapsing,

> > both the fore and the hindfoot. Another issue that is concerning

is

> > that Veeti's clubfoot is a lot shorter (from ankle to hip) than

the

> > other one. According to our doctor, it doesn't cause any damage

to

> > the correction of the clubfoot, but may cause problems when

Veeti

> > will have growth spurs if the difference gets even bigger. I

know

> > that there is nothing we can do about it at the moment, but it

just

> > keeps us worrying for the next ten years at least.. Veeti's

hands

> > will be operated on September, so luckily we can lead a normal

life

> > for a few months now. He will need two or three surgeries for

the

> > hands.

> >

> > So I guess I can call it a progress what has happened with our

> > doctor. He has been really great to us, shown interest and not

> being

> > upset by our decision to treat Veeti against his advice. I will

> keep

> > in touch with our doctor and try to inform him about Ponseti

method

> > and possible news about it. On the other hand, I will give up

with

> > the parents. My people skills don't seem to be good enough for

> > handling this matter correctly. So I guess I'm through

explaining

> > myself and will concentrate on enjoying my son's beautiful new

foot

> > and also working with the new Finnish clubfoot association that

we

> > have established.

> >

> > By the way, I'm looking forward to hearing from 's family:

are

> > you already in Iowa?

> >

> > Sanna & Veeti 6.5.2002 left clubfoot, DBB full-time

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Posted
Posted

Theresa,

Thank you! I will have a look at that website.

Sanna

> > Hi all,

> >

> > We went to see our original doctor this morning as he was

> interested

> > to see how Veeti is coping with the DBB. He was glad that it had

> > been so easy for him to adjust to it, and was ready to start

using

> > the DBB:s himself! Well not himself but his patients:) He has

> > ordered three DBB's from the USA. He said that years ago they

were

> > used in Finland, but the senior orthos said they didn't work and

> the

> > younger ones believed them. Now as he has seen one in action he

is

> > ready to try them too. He was still of the opinion that it is an

> > American way to put the children through such a long term

> splinting,

> > and in Europe they consider surgery a better option, or not as

bad

> > anyway. Still he is starting to use the DBB's in preventing

> > relapses, so I guess he is still in a process of figuring out

what

> > really to think of all this. He was impressed of the position of

> > Veeti's foot, which was a great relief to us although we have

seen

> > it ourselves, but it is always good to hear it from a doctor.

There

> > were a couple of things that concern us, however. He said to us

> that

> > the DBB holds the position of the forefoot corrected, but can't

> keep

> > the hindfoot from relapsing if that is " meant to happen " . Yet I

> have

> > understood that the DBB indeed prevents the foot from relapsing,

> > both the fore and the hindfoot. Another issue that is concerning

is

> > that Veeti's clubfoot is a lot shorter (from ankle to hip) than

the

> > other one. According to our doctor, it doesn't cause any damage

to

> > the correction of the clubfoot, but may cause problems when

Veeti

> > will have growth spurs if the difference gets even bigger. I

know

> > that there is nothing we can do about it at the moment, but it

just

> > keeps us worrying for the next ten years at least.. Veeti's

hands

> > will be operated on September, so luckily we can lead a normal

life

> > for a few months now. He will need two or three surgeries for

the

> > hands.

> >

> > So I guess I can call it a progress what has happened with our

> > doctor. He has been really great to us, shown interest and not

> being

> > upset by our decision to treat Veeti against his advice. I will

> keep

> > in touch with our doctor and try to inform him about Ponseti

method

> > and possible news about it. On the other hand, I will give up

with

> > the parents. My people skills don't seem to be good enough for

> > handling this matter correctly. So I guess I'm through

explaining

> > myself and will concentrate on enjoying my son's beautiful new

foot

> > and also working with the new Finnish clubfoot association that

we

> > have established.

> >

> > By the way, I'm looking forward to hearing from 's family:

are

> > you already in Iowa?

> >

> > Sanna & Veeti 6.5.2002 left clubfoot, DBB full-time

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Posted
Posted

Theresa,

Thank you! I will have a look at that website.

Sanna

> > Hi all,

> >

> > We went to see our original doctor this morning as he was

> interested

> > to see how Veeti is coping with the DBB. He was glad that it had

> > been so easy for him to adjust to it, and was ready to start

using

> > the DBB:s himself! Well not himself but his patients:) He has

> > ordered three DBB's from the USA. He said that years ago they

were

> > used in Finland, but the senior orthos said they didn't work and

> the

> > younger ones believed them. Now as he has seen one in action he

is

> > ready to try them too. He was still of the opinion that it is an

> > American way to put the children through such a long term

> splinting,

> > and in Europe they consider surgery a better option, or not as

bad

> > anyway. Still he is starting to use the DBB's in preventing

> > relapses, so I guess he is still in a process of figuring out

what

> > really to think of all this. He was impressed of the position of

> > Veeti's foot, which was a great relief to us although we have

seen

> > it ourselves, but it is always good to hear it from a doctor.

There

> > were a couple of things that concern us, however. He said to us

> that

> > the DBB holds the position of the forefoot corrected, but can't

> keep

> > the hindfoot from relapsing if that is " meant to happen " . Yet I

> have

> > understood that the DBB indeed prevents the foot from relapsing,

> > both the fore and the hindfoot. Another issue that is concerning

is

> > that Veeti's clubfoot is a lot shorter (from ankle to hip) than

the

> > other one. According to our doctor, it doesn't cause any damage

to

> > the correction of the clubfoot, but may cause problems when

Veeti

> > will have growth spurs if the difference gets even bigger. I

know

> > that there is nothing we can do about it at the moment, but it

just

> > keeps us worrying for the next ten years at least.. Veeti's

hands

> > will be operated on September, so luckily we can lead a normal

life

> > for a few months now. He will need two or three surgeries for

the

> > hands.

> >

> > So I guess I can call it a progress what has happened with our

> > doctor. He has been really great to us, shown interest and not

> being

> > upset by our decision to treat Veeti against his advice. I will

> keep

> > in touch with our doctor and try to inform him about Ponseti

method

> > and possible news about it. On the other hand, I will give up

with

> > the parents. My people skills don't seem to be good enough for

> > handling this matter correctly. So I guess I'm through

explaining

> > myself and will concentrate on enjoying my son's beautiful new

foot

> > and also working with the new Finnish clubfoot association that

we

> > have established.

> >

> > By the way, I'm looking forward to hearing from 's family:

are

> > you already in Iowa?

> >

> > Sanna & Veeti 6.5.2002 left clubfoot, DBB full-time

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Posted
Posted

,

Thank you for your message. You always seem to know exactly the

right words to say! Perhaps I'll learn that too some day.:) I know I

shouldn't give up at this point and especially now that I have

something concrete to base my arguments on, but sometimes it's just

so depressing.. Let's see what happens.

Sanna

> > Hi all,

> >

> > We went to see our original doctor this morning as he was

> interested

> > to see how Veeti is coping with the DBB. He was glad that it had

> > been so easy for him to adjust to it, and was ready to start

using

> > the DBB:s himself! Well not himself but his patients:) He has

> > ordered three DBB's from the USA. He said that years ago they

were

> > used in Finland, but the senior orthos said they didn't work and

> the

> > younger ones believed them. Now as he has seen one in action he

is

> > ready to try them too. He was still of the opinion that it is an

> > American way to put the children through such a long term

> splinting,

> > and in Europe they consider surgery a better option, or not as

bad

> > anyway. Still he is starting to use the DBB's in preventing

> > relapses, so I guess he is still in a process of figuring out

what

> > really to think of all this. He was impressed of the position of

> > Veeti's foot, which was a great relief to us although we have

seen

> > it ourselves, but it is always good to hear it from a doctor.

There

> > were a couple of things that concern us, however. He said to us

> that

> > the DBB holds the position of the forefoot corrected, but can't

> keep

> > the hindfoot from relapsing if that is " meant to happen " . Yet I

> have

> > understood that the DBB indeed prevents the foot from relapsing,

> > both the fore and the hindfoot. Another issue that is concerning

is

> > that Veeti's clubfoot is a lot shorter (from ankle to hip) than

the

> > other one. According to our doctor, it doesn't cause any damage

to

> > the correction of the clubfoot, but may cause problems when

Veeti

> > will have growth spurs if the difference gets even bigger. I

know

> > that there is nothing we can do about it at the moment, but it

just

> > keeps us worrying for the next ten years at least.. Veeti's

hands

> > will be operated on September, so luckily we can lead a normal

life

> > for a few months now. He will need two or three surgeries for

the

> > hands.

> >

> > So I guess I can call it a progress what has happened with our

> > doctor. He has been really great to us, shown interest and not

> being

> > upset by our decision to treat Veeti against his advice. I will

> keep

> > in touch with our doctor and try to inform him about Ponseti

method

> > and possible news about it. On the other hand, I will give up

with

> > the parents. My people skills don't seem to be good enough for

> > handling this matter correctly. So I guess I'm through

explaining

> > myself and will concentrate on enjoying my son's beautiful new

foot

> > and also working with the new Finnish clubfoot association that

we

> > have established.

> >

> > By the way, I'm looking forward to hearing from 's family:

are

> > you already in Iowa?

> >

> > Sanna & Veeti 6.5.2002 left clubfoot, DBB full-time

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Posted
Posted

Hi Sanna-

Yes...the clubfoot does seem like " nothing " compared to the reconstructive

surgery he will have on his hands. What a great mom you are to of taken him

all the way to Iowa for his clubfoot treatment when you had his hands to

deal with as well in Finland! I'll keep Veeti in my prayers as he goes

through his hand surgery. Will it just be one surgery or will they have to

do multiple surgeries???

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Re: Progress among Finnish doctors, serious

>set-backs with parents

>Date: Mon, 07 Apr 2003 15:42:21 -0000

>

>Hi ,

>

>Veeti has only three fingers in his left hand: a thumb, an index

>finger and a ring finger. The index and the ring fingers are

>attached together, but they cannot be separated as we originally

>thought, because there aren't enough bones in his hands. So they

>will only rotate the thumb as all the fingers are in a row at the

>moment. In his right hand Veeti has six fingers, of which three are

>attached. They will be separated and one of them will be removed, so

>he will have five fingers. So the hand surgeries will be a much

>bigger deal than the clubfoot, and so far I unfortunately haven't

>heard of any doctor who could correct the hands without surgery, so

>I guess we have to go through with it.. ;)

>

>Sanna & Veeti

>

>

> > Hi Sanna-

> >

> > Just so you know that doctors here in the states used to use the

>DBB back in

> > the 70's for MA, which was deemed to be not succesful. As you know

>the DBB

> > is succesful with the Ponseti Method of treating club feet. I bet

>your

> > doctor is referring to the use of the DBB for MA as back then and

>not

> > clubfeet.

> >

> > My original ortho said that the DBB was not going to help in the

>regression

> > of the hindfoot too. He said it just keeps them from not turning

>in. My new

> > ortho does believe the DBB helps with the regression of the

>hindfoot because

> > they DBB is bent so the foot stays in a slight dorsiflexion. My

>original

> > ortho did not bend the bar but my new ortho does and he works hand

>in hand

> > with Ponseti all the time. So I do believe that it helps with the

>forefoot

> > AND the hindfoot.

> >

> > I may of missed a post but why does Veeti have to have hand

>surgery?

> >

> > Take care,

> >

> >

> >

> >

> >

> >

> >

> > >From: " Sanna Rekila " <srekila@y...>

> > >Reply-To: nosurgery4clubfoot

> > >To: nosurgery4clubfoot

> > >Subject: Progress among Finnish doctors,

>serious

> > >set-backs with parents

> > >Date: Thu, 03 Apr 2003 15:00:40 -0000

> > >

> > >Hi all,

> > >

> > >We went to see our original doctor this morning as he was

>interested

> > >to see how Veeti is coping with the DBB. He was glad that it had

> > >been so easy for him to adjust to it, and was ready to start using

> > >the DBB:s himself! Well not himself but his patients:) He has

> > >ordered three DBB's from the USA. He said that years ago they were

> > >used in Finland, but the senior orthos said they didn't work and

>the

> > >younger ones believed them. Now as he has seen one in action he is

> > >ready to try them too. He was still of the opinion that it is an

> > >American way to put the children through such a long term

>splinting,

> > >and in Europe they consider surgery a better option, or not as bad

> > >anyway. Still he is starting to use the DBB's in preventing

> > >relapses, so I guess he is still in a process of figuring out what

> > >really to think of all this. He was impressed of the position of

> > >Veeti's foot, which was a great relief to us although we have seen

> > >it ourselves, but it is always good to hear it from a doctor.

>There

> > >were a couple of things that concern us, however. He said to us

>that

> > >the DBB holds the position of the forefoot corrected, but can't

>keep

> > >the hindfoot from relapsing if that is " meant to happen " . Yet I

>have

> > >understood that the DBB indeed prevents the foot from relapsing,

> > >both the fore and the hindfoot. Another issue that is concerning

>is

> > >that Veeti's clubfoot is a lot shorter (from ankle to hip) than

>the

> > >other one. According to our doctor, it doesn't cause any damage to

> > >the correction of the clubfoot, but may cause problems when Veeti

> > >will have growth spurs if the difference gets even bigger. I know

> > >that there is nothing we can do about it at the moment, but it

>just

> > >keeps us worrying for the next ten years at least.. Veeti's hands

> > >will be operated on September, so luckily we can lead a normal

>life

> > >for a few months now. He will need two or three surgeries for the

> > >hands.

> > >

> > >So I guess I can call it a progress what has happened with our

> > >doctor. He has been really great to us, shown interest and not

>being

> > >upset by our decision to treat Veeti against his advice. I will

>keep

> > >in touch with our doctor and try to inform him about Ponseti

>method

> > >and possible news about it. On the other hand, I will give up with

> > >the parents. My people skills don't seem to be good enough for

> > >handling this matter correctly. So I guess I'm through explaining

> > >myself and will concentrate on enjoying my son's beautiful new

>foot

> > >and also working with the new Finnish clubfoot association that we

> > >have established.

> > >

> > >By the way, I'm looking forward to hearing from 's family:

>are

> > >you already in Iowa?

> > >

> > >Sanna & Veeti 6.5.2002 left clubfoot, DBB full-time

> > >

> >

> >

> > _________________________________________________________________

>

_________________________________________________________________

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Posted
Posted

Sanna,

Yes, we are here in Iowa, got here the 6th and this is the first time I

have checked email (too jetlagged before!). had his first

treatment with Dr Ponseti this morning and has his casts on. He really

liked Dr Ponseti and had a long conversation with him - as much as you

can have at 10 weeks...

He slept a good 8 and a half this afternoon and evening (still on

South African time) and his leg movement seems pretty good, not

bothering him at all. I was so emotional when we first got to the

orthopaedic section and saw the quilt on the wall with some of the

beautiful babies he has treated. We are the first South Africans

patients of Dr Ponseti and we feel very privileged to have been able to

come here and get such good treatment.

We are in Mac, managed to get a suite, aren't they

wonderful! It's room 221, I think it may have been your room, because

there is a bottle of shampoo with Finnish type writing on it. Will

write again with an update later in the week

Best,

riginal Message-----

From: Sanna Rekila

Sent: Thu 4/3/2003 5:00 PM

To: nosurgery4clubfoot

Cc:

Subject: Progress among Finnish doctors, serious

set-backs with parents

Hi all,

We went to see our original doctor this morning as he was

interested

to see how Veeti is coping with the DBB. He was glad that it had

been so easy for him to adjust to it, and was ready to start

using

the DBB:s himself! Well not himself but his patients:) He has

ordered three DBB's from the USA. He said that years ago they

were

used in Finland, but the senior orthos said they didn't work and

the

younger ones believed them. Now as he has seen one in action he

is

ready to try them too. He was still of the opinion that it is an

American way to put the children through such a long term

splinting,

and in Europe they consider surgery a better option, or not as

bad

anyway. Still he is starting to use the DBB's in preventing

relapses, so I guess he is still in a process of figuring out

what

really to think of all this. He was impressed of the position of

Veeti's foot, which was a great relief to us although we have

seen

it ourselves, but it is always good to hear it from a doctor.

There

were a couple of things that concern us, however. He said to us

that

the DBB holds the position of the forefoot corrected, but can't

keep

the hindfoot from relapsing if that is " meant to happen " . Yet I

have

understood that the DBB indeed prevents the foot from relapsing,

both the fore and the hindfoot. Another issue that is concerning

is

that Veeti's clubfoot is a lot shorter (from ankle to hip) than

the

other one. According to our doctor, it doesn't cause any damage

to

the correction of the clubfoot, but may cause problems when

Veeti

will have growth spurs if the difference gets even bigger. I

know

that there is nothing we can do about it at the moment, but it

just

keeps us worrying for the next ten years at least.. Veeti's

hands

will be operated on September, so luckily we can lead a normal

life

for a few months now. He will need two or three surgeries for

the

hands.

So I guess I can call it a progress what has happened with our

doctor. He has been really great to us, shown interest and not

being

upset by our decision to treat Veeti against his advice. I will

keep

in touch with our doctor and try to inform him about Ponseti

method

and possible news about it. On the other hand, I will give up

with

the parents. My people skills don't seem to be good enough for

handling this matter correctly. So I guess I'm through

explaining

myself and will concentrate on enjoying my son's beautiful new

foot

and also working with the new Finnish clubfoot association that

we

have established.

By the way, I'm looking forward to hearing from 's family:

are

you already in Iowa?

Sanna & Veeti 6.5.2002 left clubfoot, DBB full-time

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Posted
Posted

Sanna,

Yes, we are here in Iowa, got here the 6th and this is the first time I

have checked email (too jetlagged before!). had his first

treatment with Dr Ponseti this morning and has his casts on. He really

liked Dr Ponseti and had a long conversation with him - as much as you

can have at 10 weeks...

He slept a good 8 and a half this afternoon and evening (still on

South African time) and his leg movement seems pretty good, not

bothering him at all. I was so emotional when we first got to the

orthopaedic section and saw the quilt on the wall with some of the

beautiful babies he has treated. We are the first South Africans

patients of Dr Ponseti and we feel very privileged to have been able to

come here and get such good treatment.

We are in Mac, managed to get a suite, aren't they

wonderful! It's room 221, I think it may have been your room, because

there is a bottle of shampoo with Finnish type writing on it. Will

write again with an update later in the week

Best,

riginal Message-----

From: Sanna Rekila

Sent: Thu 4/3/2003 5:00 PM

To: nosurgery4clubfoot

Cc:

Subject: Progress among Finnish doctors, serious

set-backs with parents

Hi all,

We went to see our original doctor this morning as he was

interested

to see how Veeti is coping with the DBB. He was glad that it had

been so easy for him to adjust to it, and was ready to start

using

the DBB:s himself! Well not himself but his patients:) He has

ordered three DBB's from the USA. He said that years ago they

were

used in Finland, but the senior orthos said they didn't work and

the

younger ones believed them. Now as he has seen one in action he

is

ready to try them too. He was still of the opinion that it is an

American way to put the children through such a long term

splinting,

and in Europe they consider surgery a better option, or not as

bad

anyway. Still he is starting to use the DBB's in preventing

relapses, so I guess he is still in a process of figuring out

what

really to think of all this. He was impressed of the position of

Veeti's foot, which was a great relief to us although we have

seen

it ourselves, but it is always good to hear it from a doctor.

There

were a couple of things that concern us, however. He said to us

that

the DBB holds the position of the forefoot corrected, but can't

keep

the hindfoot from relapsing if that is " meant to happen " . Yet I

have

understood that the DBB indeed prevents the foot from relapsing,

both the fore and the hindfoot. Another issue that is concerning

is

that Veeti's clubfoot is a lot shorter (from ankle to hip) than

the

other one. According to our doctor, it doesn't cause any damage

to

the correction of the clubfoot, but may cause problems when

Veeti

will have growth spurs if the difference gets even bigger. I

know

that there is nothing we can do about it at the moment, but it

just

keeps us worrying for the next ten years at least.. Veeti's

hands

will be operated on September, so luckily we can lead a normal

life

for a few months now. He will need two or three surgeries for

the

hands.

So I guess I can call it a progress what has happened with our

doctor. He has been really great to us, shown interest and not

being

upset by our decision to treat Veeti against his advice. I will

keep

in touch with our doctor and try to inform him about Ponseti

method

and possible news about it. On the other hand, I will give up

with

the parents. My people skills don't seem to be good enough for

handling this matter correctly. So I guess I'm through

explaining

myself and will concentrate on enjoying my son's beautiful new

foot

and also working with the new Finnish clubfoot association that

we

have established.

By the way, I'm looking forward to hearing from 's family:

are

you already in Iowa?

Sanna & Veeti 6.5.2002 left clubfoot, DBB full-time

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Share on other sites
Guest guest

Guest guest

Posted
Posted

Sanna,

Yes, we are here in Iowa, got here the 6th and this is the first time I

have checked email (too jetlagged before!). had his first

treatment with Dr Ponseti this morning and has his casts on. He really

liked Dr Ponseti and had a long conversation with him - as much as you

can have at 10 weeks...

He slept a good 8 and a half this afternoon and evening (still on

South African time) and his leg movement seems pretty good, not

bothering him at all. I was so emotional when we first got to the

orthopaedic section and saw the quilt on the wall with some of the

beautiful babies he has treated. We are the first South Africans

patients of Dr Ponseti and we feel very privileged to have been able to

come here and get such good treatment.

We are in Mac, managed to get a suite, aren't they

wonderful! It's room 221, I think it may have been your room, because

there is a bottle of shampoo with Finnish type writing on it. Will

write again with an update later in the week

Best,

riginal Message-----

From: Sanna Rekila

Sent: Thu 4/3/2003 5:00 PM

To: nosurgery4clubfoot

Cc:

Subject: Progress among Finnish doctors, serious

set-backs with parents

Hi all,

We went to see our original doctor this morning as he was

interested

to see how Veeti is coping with the DBB. He was glad that it had

been so easy for him to adjust to it, and was ready to start

using

the DBB:s himself! Well not himself but his patients:) He has

ordered three DBB's from the USA. He said that years ago they

were

used in Finland, but the senior orthos said they didn't work and

the

younger ones believed them. Now as he has seen one in action he

is

ready to try them too. He was still of the opinion that it is an

American way to put the children through such a long term

splinting,

and in Europe they consider surgery a better option, or not as

bad

anyway. Still he is starting to use the DBB's in preventing

relapses, so I guess he is still in a process of figuring out

what

really to think of all this. He was impressed of the position of

Veeti's foot, which was a great relief to us although we have

seen

it ourselves, but it is always good to hear it from a doctor.

There

were a couple of things that concern us, however. He said to us

that

the DBB holds the position of the forefoot corrected, but can't

keep

the hindfoot from relapsing if that is " meant to happen " . Yet I

have

understood that the DBB indeed prevents the foot from relapsing,

both the fore and the hindfoot. Another issue that is concerning

is

that Veeti's clubfoot is a lot shorter (from ankle to hip) than

the

other one. According to our doctor, it doesn't cause any damage

to

the correction of the clubfoot, but may cause problems when

Veeti

will have growth spurs if the difference gets even bigger. I

know

that there is nothing we can do about it at the moment, but it

just

keeps us worrying for the next ten years at least.. Veeti's

hands

will be operated on September, so luckily we can lead a normal

life

for a few months now. He will need two or three surgeries for

the

hands.

So I guess I can call it a progress what has happened with our

doctor. He has been really great to us, shown interest and not

being

upset by our decision to treat Veeti against his advice. I will

keep

in touch with our doctor and try to inform him about Ponseti

method

and possible news about it. On the other hand, I will give up

with

the parents. My people skills don't seem to be good enough for

handling this matter correctly. So I guess I'm through

explaining

myself and will concentrate on enjoying my son's beautiful new

foot

and also working with the new Finnish clubfoot association that

we

have established.

By the way, I'm looking forward to hearing from 's family:

are

you already in Iowa?

Sanna & Veeti 6.5.2002 left clubfoot, DBB full-time

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Guest guest

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Posted
Posted

,

Best of luck to your family now that you are in Iowa. I know that the time

will go by fast and that s foot will be beautiful! We too have

stayed in the Mc House before and were so welcomed by the warm

staff and visitors who are there.

I know what you mean about the quilt also, even though I've been there

seeminly a million times I always stop and admire it, it really is

beautiful! Our daughter is one of the babies on it and was lucky enough to

recieve such wonderful treatment by Dr. Ponseti also. I know Dr. Ponseti is

proud of that quilt also, he smiles every time I have mentioned it.

All the best to you and I'm looking forward to reading about your son's

progress!

Holly and (from Michigan, USA)

Progress among Finnish doctors, serious

>set-backs with parents

>

>

>

> Hi all,

>

> We went to see our original doctor this morning as he was

>interested

> to see how Veeti is coping with the DBB. He was glad that it had

> been so easy for him to adjust to it, and was ready to start

>using

> the DBB:s himself! Well not himself but his patients:) He has

> ordered three DBB's from the USA. He said that years ago they

>were

> used in Finland, but the senior orthos said they didn't work and

>the

> younger ones believed them. Now as he has seen one in action he

>is

> ready to try them too. He was still of the opinion that it is an

> American way to put the children through such a long term

>splinting,

> and in Europe they consider surgery a better option, or not as

>bad

> anyway. Still he is starting to use the DBB's in preventing

> relapses, so I guess he is still in a process of figuring out

>what

> really to think of all this. He was impressed of the position of

> Veeti's foot, which was a great relief to us although we have

>seen

> it ourselves, but it is always good to hear it from a doctor.

>There

> were a couple of things that concern us, however. He said to us

>that

> the DBB holds the position of the forefoot corrected, but can't

>keep

> the hindfoot from relapsing if that is " meant to happen " . Yet I

>have

> understood that the DBB indeed prevents the foot from relapsing,

> both the fore and the hindfoot. Another issue that is concerning

>is

> that Veeti's clubfoot is a lot shorter (from ankle to hip) than

>the

> other one. According to our doctor, it doesn't cause any damage

>to

> the correction of the clubfoot, but may cause problems when

>Veeti

> will have growth spurs if the difference gets even bigger. I

>know

> that there is nothing we can do about it at the moment, but it

>just

> keeps us worrying for the next ten years at least.. Veeti's

>hands

> will be operated on September, so luckily we can lead a normal

>life

> for a few months now. He will need two or three surgeries for

>the

> hands.

>

> So I guess I can call it a progress what has happened with our

> doctor. He has been really great to us, shown interest and not

>being

> upset by our decision to treat Veeti against his advice. I will

>keep

> in touch with our doctor and try to inform him about Ponseti

>method

> and possible news about it. On the other hand, I will give up

>with

> the parents. My people skills don't seem to be good enough for

> handling this matter correctly. So I guess I'm through

>explaining

> myself and will concentrate on enjoying my son's beautiful new

>foot

> and also working with the new Finnish clubfoot association that

>we

> have established.

>

> By the way, I'm looking forward to hearing from 's family:

>are

> you already in Iowa?

>

> Sanna & Veeti 6.5.2002 left clubfoot, DBB full-time

>

>

>

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Posted
Posted

,

Best of luck to your family now that you are in Iowa. I know that the time

will go by fast and that s foot will be beautiful! We too have

stayed in the Mc House before and were so welcomed by the warm

staff and visitors who are there.

I know what you mean about the quilt also, even though I've been there

seeminly a million times I always stop and admire it, it really is

beautiful! Our daughter is one of the babies on it and was lucky enough to

recieve such wonderful treatment by Dr. Ponseti also. I know Dr. Ponseti is

proud of that quilt also, he smiles every time I have mentioned it.

All the best to you and I'm looking forward to reading about your son's

progress!

Holly and (from Michigan, USA)

Progress among Finnish doctors, serious

>set-backs with parents

>

>

>

> Hi all,

>

> We went to see our original doctor this morning as he was

>interested

> to see how Veeti is coping with the DBB. He was glad that it had

> been so easy for him to adjust to it, and was ready to start

>using

> the DBB:s himself! Well not himself but his patients:) He has

> ordered three DBB's from the USA. He said that years ago they

>were

> used in Finland, but the senior orthos said they didn't work and

>the

> younger ones believed them. Now as he has seen one in action he

>is

> ready to try them too. He was still of the opinion that it is an

> American way to put the children through such a long term

>splinting,

> and in Europe they consider surgery a better option, or not as

>bad

> anyway. Still he is starting to use the DBB's in preventing

> relapses, so I guess he is still in a process of figuring out

>what

> really to think of all this. He was impressed of the position of

> Veeti's foot, which was a great relief to us although we have

>seen

> it ourselves, but it is always good to hear it from a doctor.

>There

> were a couple of things that concern us, however. He said to us

>that

> the DBB holds the position of the forefoot corrected, but can't

>keep

> the hindfoot from relapsing if that is " meant to happen " . Yet I

>have

> understood that the DBB indeed prevents the foot from relapsing,

> both the fore and the hindfoot. Another issue that is concerning

>is

> that Veeti's clubfoot is a lot shorter (from ankle to hip) than

>the

> other one. According to our doctor, it doesn't cause any damage

>to

> the correction of the clubfoot, but may cause problems when

>Veeti

> will have growth spurs if the difference gets even bigger. I

>know

> that there is nothing we can do about it at the moment, but it

>just

> keeps us worrying for the next ten years at least.. Veeti's

>hands

> will be operated on September, so luckily we can lead a normal

>life

> for a few months now. He will need two or three surgeries for

>the

> hands.

>

> So I guess I can call it a progress what has happened with our

> doctor. He has been really great to us, shown interest and not

>being

> upset by our decision to treat Veeti against his advice. I will

>keep

> in touch with our doctor and try to inform him about Ponseti

>method

> and possible news about it. On the other hand, I will give up

>with

> the parents. My people skills don't seem to be good enough for

> handling this matter correctly. So I guess I'm through

>explaining

> myself and will concentrate on enjoying my son's beautiful new

>foot

> and also working with the new Finnish clubfoot association that

>we

> have established.

>

> By the way, I'm looking forward to hearing from 's family:

>are

> you already in Iowa?

>

> Sanna & Veeti 6.5.2002 left clubfoot, DBB full-time

>

>

>

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Share on other sites
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Posted
Posted

,

Thank you, we will need all the prayers..

They will do at least two or three surgeries beginning from

September, and then later they will see if yet another one will be

needed..

Sanna

> > > Hi Sanna-

> > >

> > > Just so you know that doctors here in the states used to use the

> >DBB back in

> > > the 70's for MA, which was deemed to be not succesful. As you

know

> >the DBB

> > > is succesful with the Ponseti Method of treating club feet. I

bet

> >your

> > > doctor is referring to the use of the DBB for MA as back then

and

> >not

> > > clubfeet.

> > >

> > > My original ortho said that the DBB was not going to help in the

> >regression

> > > of the hindfoot too. He said it just keeps them from not turning

> >in. My new

> > > ortho does believe the DBB helps with the regression of the

> >hindfoot because

> > > they DBB is bent so the foot stays in a slight dorsiflexion. My

> >original

> > > ortho did not bend the bar but my new ortho does and he works

hand

> >in hand

> > > with Ponseti all the time. So I do believe that it helps with

the

> >forefoot

> > > AND the hindfoot.

> > >

> > > I may of missed a post but why does Veeti have to have hand

> >surgery?

> > >

> > > Take care,

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > >From: " Sanna Rekila " <srekila@y...>

> > > >Reply-To: nosurgery4clubfoot

> > > >To: nosurgery4clubfoot

> > > >Subject: Progress among Finnish doctors,

> >serious

> > > >set-backs with parents

> > > >Date: Thu, 03 Apr 2003 15:00:40 -0000

> > > >

> > > >Hi all,

> > > >

> > > >We went to see our original doctor this morning as he was

> >interested

> > > >to see how Veeti is coping with the DBB. He was glad that it

had

> > > >been so easy for him to adjust to it, and was ready to start

using

> > > >the DBB:s himself! Well not himself but his patients:) He has

> > > >ordered three DBB's from the USA. He said that years ago they

were

> > > >used in Finland, but the senior orthos said they didn't work

and

> >the

> > > >younger ones believed them. Now as he has seen one in action

he is

> > > >ready to try them too. He was still of the opinion that it is

an

> > > >American way to put the children through such a long term

> >splinting,

> > > >and in Europe they consider surgery a better option, or not as

bad

> > > >anyway. Still he is starting to use the DBB's in preventing

> > > >relapses, so I guess he is still in a process of figuring out

what

> > > >really to think of all this. He was impressed of the position

of

> > > >Veeti's foot, which was a great relief to us although we have

seen

> > > >it ourselves, but it is always good to hear it from a doctor.

> >There

> > > >were a couple of things that concern us, however. He said to us

> >that

> > > >the DBB holds the position of the forefoot corrected, but can't

> >keep

> > > >the hindfoot from relapsing if that is " meant to happen " . Yet I

> >have

> > > >understood that the DBB indeed prevents the foot from

relapsing,

> > > >both the fore and the hindfoot. Another issue that is

concerning

> >is

> > > >that Veeti's clubfoot is a lot shorter (from ankle to hip) than

> >the

> > > >other one. According to our doctor, it doesn't cause any

damage to

> > > >the correction of the clubfoot, but may cause problems when

Veeti

> > > >will have growth spurs if the difference gets even bigger. I

know

> > > >that there is nothing we can do about it at the moment, but it

> >just

> > > >keeps us worrying for the next ten years at least.. Veeti's

hands

> > > >will be operated on September, so luckily we can lead a normal

> >life

> > > >for a few months now. He will need two or three surgeries for

the

> > > >hands.

> > > >

> > > >So I guess I can call it a progress what has happened with our

> > > >doctor. He has been really great to us, shown interest and not

> >being

> > > >upset by our decision to treat Veeti against his advice. I will

> >keep

> > > >in touch with our doctor and try to inform him about Ponseti

> >method

> > > >and possible news about it. On the other hand, I will give up

with

> > > >the parents. My people skills don't seem to be good enough for

> > > >handling this matter correctly. So I guess I'm through

explaining

> > > >myself and will concentrate on enjoying my son's beautiful new

> >foot

> > > >and also working with the new Finnish clubfoot association

that we

> > > >have established.

> > > >

> > > >By the way, I'm looking forward to hearing from 's family:

> >are

> > > >you already in Iowa?

> > > >

> > > >Sanna & Veeti 6.5.2002 left clubfoot, DBB full-time

> > > >

> > >

> > >

> > >

_________________________________________________________________

> >

>

>

> _________________________________________________________________

> The new MSN 8: smart spam protection and 2 months FREE*

> http://join.msn.com/?page=features/junkmail

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Guest guest

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Posted
Posted

,

Thank you, we will need all the prayers..

They will do at least two or three surgeries beginning from

September, and then later they will see if yet another one will be

needed..

Sanna

> > > Hi Sanna-

> > >

> > > Just so you know that doctors here in the states used to use the

> >DBB back in

> > > the 70's for MA, which was deemed to be not succesful. As you

know

> >the DBB

> > > is succesful with the Ponseti Method of treating club feet. I

bet

> >your

> > > doctor is referring to the use of the DBB for MA as back then

and

> >not

> > > clubfeet.

> > >

> > > My original ortho said that the DBB was not going to help in the

> >regression

> > > of the hindfoot too. He said it just keeps them from not turning

> >in. My new

> > > ortho does believe the DBB helps with the regression of the

> >hindfoot because

> > > they DBB is bent so the foot stays in a slight dorsiflexion. My

> >original

> > > ortho did not bend the bar but my new ortho does and he works

hand

> >in hand

> > > with Ponseti all the time. So I do believe that it helps with

the

> >forefoot

> > > AND the hindfoot.

> > >

> > > I may of missed a post but why does Veeti have to have hand

> >surgery?

> > >

> > > Take care,

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > >From: " Sanna Rekila " <srekila@y...>

> > > >Reply-To: nosurgery4clubfoot

> > > >To: nosurgery4clubfoot

> > > >Subject: Progress among Finnish doctors,

> >serious

> > > >set-backs with parents

> > > >Date: Thu, 03 Apr 2003 15:00:40 -0000

> > > >

> > > >Hi all,

> > > >

> > > >We went to see our original doctor this morning as he was

> >interested

> > > >to see how Veeti is coping with the DBB. He was glad that it

had

> > > >been so easy for him to adjust to it, and was ready to start

using

> > > >the DBB:s himself! Well not himself but his patients:) He has

> > > >ordered three DBB's from the USA. He said that years ago they

were

> > > >used in Finland, but the senior orthos said they didn't work

and

> >the

> > > >younger ones believed them. Now as he has seen one in action

he is

> > > >ready to try them too. He was still of the opinion that it is

an

> > > >American way to put the children through such a long term

> >splinting,

> > > >and in Europe they consider surgery a better option, or not as

bad

> > > >anyway. Still he is starting to use the DBB's in preventing

> > > >relapses, so I guess he is still in a process of figuring out

what

> > > >really to think of all this. He was impressed of the position

of

> > > >Veeti's foot, which was a great relief to us although we have

seen

> > > >it ourselves, but it is always good to hear it from a doctor.

> >There

> > > >were a couple of things that concern us, however. He said to us

> >that

> > > >the DBB holds the position of the forefoot corrected, but can't

> >keep

> > > >the hindfoot from relapsing if that is " meant to happen " . Yet I

> >have

> > > >understood that the DBB indeed prevents the foot from

relapsing,

> > > >both the fore and the hindfoot. Another issue that is

concerning

> >is

> > > >that Veeti's clubfoot is a lot shorter (from ankle to hip) than

> >the

> > > >other one. According to our doctor, it doesn't cause any

damage to

> > > >the correction of the clubfoot, but may cause problems when

Veeti

> > > >will have growth spurs if the difference gets even bigger. I

know

> > > >that there is nothing we can do about it at the moment, but it

> >just

> > > >keeps us worrying for the next ten years at least.. Veeti's

hands

> > > >will be operated on September, so luckily we can lead a normal

> >life

> > > >for a few months now. He will need two or three surgeries for

the

> > > >hands.

> > > >

> > > >So I guess I can call it a progress what has happened with our

> > > >doctor. He has been really great to us, shown interest and not

> >being

> > > >upset by our decision to treat Veeti against his advice. I will

> >keep

> > > >in touch with our doctor and try to inform him about Ponseti

> >method

> > > >and possible news about it. On the other hand, I will give up

with

> > > >the parents. My people skills don't seem to be good enough for

> > > >handling this matter correctly. So I guess I'm through

explaining

> > > >myself and will concentrate on enjoying my son's beautiful new

> >foot

> > > >and also working with the new Finnish clubfoot association

that we

> > > >have established.

> > > >

> > > >By the way, I'm looking forward to hearing from 's family:

> >are

> > > >you already in Iowa?

> > > >

> > > >Sanna & Veeti 6.5.2002 left clubfoot, DBB full-time

> > > >

> > >

> > >

> > >

_________________________________________________________________

> >

>

>

> _________________________________________________________________

> The new MSN 8: smart spam protection and 2 months FREE*

> http://join.msn.com/?page=features/junkmail

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Posted
Posted

,

Thank you, we will need all the prayers..

They will do at least two or three surgeries beginning from

September, and then later they will see if yet another one will be

needed..

Sanna

> > > Hi Sanna-

> > >

> > > Just so you know that doctors here in the states used to use the

> >DBB back in

> > > the 70's for MA, which was deemed to be not succesful. As you

know

> >the DBB

> > > is succesful with the Ponseti Method of treating club feet. I

bet

> >your

> > > doctor is referring to the use of the DBB for MA as back then

and

> >not

> > > clubfeet.

> > >

> > > My original ortho said that the DBB was not going to help in the

> >regression

> > > of the hindfoot too. He said it just keeps them from not turning

> >in. My new

> > > ortho does believe the DBB helps with the regression of the

> >hindfoot because

> > > they DBB is bent so the foot stays in a slight dorsiflexion. My

> >original

> > > ortho did not bend the bar but my new ortho does and he works

hand

> >in hand

> > > with Ponseti all the time. So I do believe that it helps with

the

> >forefoot

> > > AND the hindfoot.

> > >

> > > I may of missed a post but why does Veeti have to have hand

> >surgery?

> > >

> > > Take care,

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > >From: " Sanna Rekila " <srekila@y...>

> > > >Reply-To: nosurgery4clubfoot

> > > >To: nosurgery4clubfoot

> > > >Subject: Progress among Finnish doctors,

> >serious

> > > >set-backs with parents

> > > >Date: Thu, 03 Apr 2003 15:00:40 -0000

> > > >

> > > >Hi all,

> > > >

> > > >We went to see our original doctor this morning as he was

> >interested

> > > >to see how Veeti is coping with the DBB. He was glad that it

had

> > > >been so easy for him to adjust to it, and was ready to start

using

> > > >the DBB:s himself! Well not himself but his patients:) He has

> > > >ordered three DBB's from the USA. He said that years ago they

were

> > > >used in Finland, but the senior orthos said they didn't work

and

> >the

> > > >younger ones believed them. Now as he has seen one in action

he is

> > > >ready to try them too. He was still of the opinion that it is

an

> > > >American way to put the children through such a long term

> >splinting,

> > > >and in Europe they consider surgery a better option, or not as

bad

> > > >anyway. Still he is starting to use the DBB's in preventing

> > > >relapses, so I guess he is still in a process of figuring out

what

> > > >really to think of all this. He was impressed of the position

of

> > > >Veeti's foot, which was a great relief to us although we have

seen

> > > >it ourselves, but it is always good to hear it from a doctor.

> >There

> > > >were a couple of things that concern us, however. He said to us

> >that

> > > >the DBB holds the position of the forefoot corrected, but can't

> >keep

> > > >the hindfoot from relapsing if that is " meant to happen " . Yet I

> >have

> > > >understood that the DBB indeed prevents the foot from

relapsing,

> > > >both the fore and the hindfoot. Another issue that is

concerning

> >is

> > > >that Veeti's clubfoot is a lot shorter (from ankle to hip) than

> >the

> > > >other one. According to our doctor, it doesn't cause any

damage to

> > > >the correction of the clubfoot, but may cause problems when

Veeti

> > > >will have growth spurs if the difference gets even bigger. I

know

> > > >that there is nothing we can do about it at the moment, but it

> >just

> > > >keeps us worrying for the next ten years at least.. Veeti's

hands

> > > >will be operated on September, so luckily we can lead a normal

> >life

> > > >for a few months now. He will need two or three surgeries for

the

> > > >hands.

> > > >

> > > >So I guess I can call it a progress what has happened with our

> > > >doctor. He has been really great to us, shown interest and not

> >being

> > > >upset by our decision to treat Veeti against his advice. I will

> >keep

> > > >in touch with our doctor and try to inform him about Ponseti

> >method

> > > >and possible news about it. On the other hand, I will give up

with

> > > >the parents. My people skills don't seem to be good enough for

> > > >handling this matter correctly. So I guess I'm through

explaining

> > > >myself and will concentrate on enjoying my son's beautiful new

> >foot

> > > >and also working with the new Finnish clubfoot association

that we

> > > >have established.

> > > >

> > > >By the way, I'm looking forward to hearing from 's family:

> >are

> > > >you already in Iowa?

> > > >

> > > >Sanna & Veeti 6.5.2002 left clubfoot, DBB full-time

> > > >

> > >

> > >

> > >

_________________________________________________________________

> >

>

>

> _________________________________________________________________

> The new MSN 8: smart spam protection and 2 months FREE*

> http://join.msn.com/?page=features/junkmail

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Posted
Posted

!

Indeed you are staying at our suite, the 221! How wonderful!! I left

my shampoo there by accident:) We also sent them a thank you note

which had a huge flag of Finland on the front page, I wonder if you

have seen it. Please say hello to Kendra, , Jill and Ed for us.

And Beth the night manager too. I have this strange feeling that I

miss those days we spent in Iowa, although we were glad to go home

and hoping that it was over, but still.. And I too got very emotional

when we first went to the clinic and saw the quilt, and when I first

met Dr. Ponseti I almost wasn't able to get a word out of my mouth.

Was Dr. P able to give you an estimation how long do you have to stay

in Iowa?

I will send some pictures of our family to the house and I should

send one of Veeti's foot to Dr. P as well.

Looking forward to hearing more from you!

Sanna & Veeti

> Sanna,

> Yes, we are here in Iowa, got here the 6th and this is the first

time I

> have checked email (too jetlagged before!). had his first

> treatment with Dr Ponseti this morning and has his casts on. He

really

> liked Dr Ponseti and had a long conversation with him - as much as

you

> can have at 10 weeks...

>

> He slept a good 8 and a half this afternoon and evening (still on

> South African time) and his leg movement seems pretty good, not

> bothering him at all. I was so emotional when we first got to the

> orthopaedic section and saw the quilt on the wall with some of the

> beautiful babies he has treated. We are the first South Africans

> patients of Dr Ponseti and we feel very privileged to have been

able to

> come here and get such good treatment.

>

> We are in Mac, managed to get a suite, aren't they

> wonderful! It's room 221, I think it may have been your room,

because

> there is a bottle of shampoo with Finnish type writing on it. Will

> write again with an update later in the week

>

> Best,

>

>

> riginal Message-----

> From: Sanna Rekila

> Sent: Thu 4/3/2003 5:00 PM

> To: nosurgery4clubfoot

> Cc:

> Subject: Progress among Finnish doctors,

serious

> set-backs with parents

>

>

>

> Hi all,

>

> We went to see our original doctor this morning as he was

> interested

> to see how Veeti is coping with the DBB. He was glad that it

had

> been so easy for him to adjust to it, and was ready to start

> using

> the DBB:s himself! Well not himself but his patients:) He has

> ordered three DBB's from the USA. He said that years ago they

> were

> used in Finland, but the senior orthos said they didn't work

and

> the

> younger ones believed them. Now as he has seen one in action

he

> is

> ready to try them too. He was still of the opinion that it is

an

> American way to put the children through such a long term

> splinting,

> and in Europe they consider surgery a better option, or not as

> bad

> anyway. Still he is starting to use the DBB's in preventing

> relapses, so I guess he is still in a process of figuring out

> what

> really to think of all this. He was impressed of the position

of

> Veeti's foot, which was a great relief to us although we have

> seen

> it ourselves, but it is always good to hear it from a doctor.

> There

> were a couple of things that concern us, however. He said to

us

> that

> the DBB holds the position of the forefoot corrected, but

can't

> keep

> the hindfoot from relapsing if that is " meant to happen " . Yet

I

> have

> understood that the DBB indeed prevents the foot from

relapsing,

> both the fore and the hindfoot. Another issue that is

concerning

> is

> that Veeti's clubfoot is a lot shorter (from ankle to hip)

than

> the

> other one. According to our doctor, it doesn't cause any

damage

> to

> the correction of the clubfoot, but may cause problems when

> Veeti

> will have growth spurs if the difference gets even bigger. I

> know

> that there is nothing we can do about it at the moment, but it

> just

> keeps us worrying for the next ten years at least.. Veeti's

> hands

> will be operated on September, so luckily we can lead a normal

> life

> for a few months now. He will need two or three surgeries for

> the

> hands.

>

> So I guess I can call it a progress what has happened with our

> doctor. He has been really great to us, shown interest and not

> being

> upset by our decision to treat Veeti against his advice. I

will

> keep

> in touch with our doctor and try to inform him about Ponseti

> method

> and possible news about it. On the other hand, I will give up

> with

> the parents. My people skills don't seem to be good enough for

> handling this matter correctly. So I guess I'm through

> explaining

> myself and will concentrate on enjoying my son's beautiful new

> foot

> and also working with the new Finnish clubfoot association

that

> we

> have established.

>

> By the way, I'm looking forward to hearing from 's

family:

> are

> you already in Iowa?

>

> Sanna & Veeti 6.5.2002 left clubfoot, DBB full-time

>

>

>

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Posted
Posted

!

Indeed you are staying at our suite, the 221! How wonderful!! I left

my shampoo there by accident:) We also sent them a thank you note

which had a huge flag of Finland on the front page, I wonder if you

have seen it. Please say hello to Kendra, , Jill and Ed for us.

And Beth the night manager too. I have this strange feeling that I

miss those days we spent in Iowa, although we were glad to go home

and hoping that it was over, but still.. And I too got very emotional

when we first went to the clinic and saw the quilt, and when I first

met Dr. Ponseti I almost wasn't able to get a word out of my mouth.

Was Dr. P able to give you an estimation how long do you have to stay

in Iowa?

I will send some pictures of our family to the house and I should

send one of Veeti's foot to Dr. P as well.

Looking forward to hearing more from you!

Sanna & Veeti

> Sanna,

> Yes, we are here in Iowa, got here the 6th and this is the first

time I

> have checked email (too jetlagged before!). had his first

> treatment with Dr Ponseti this morning and has his casts on. He

really

> liked Dr Ponseti and had a long conversation with him - as much as

you

> can have at 10 weeks...

>

> He slept a good 8 and a half this afternoon and evening (still on

> South African time) and his leg movement seems pretty good, not

> bothering him at all. I was so emotional when we first got to the

> orthopaedic section and saw the quilt on the wall with some of the

> beautiful babies he has treated. We are the first South Africans

> patients of Dr Ponseti and we feel very privileged to have been

able to

> come here and get such good treatment.

>

> We are in Mac, managed to get a suite, aren't they

> wonderful! It's room 221, I think it may have been your room,

because

> there is a bottle of shampoo with Finnish type writing on it. Will

> write again with an update later in the week

>

> Best,

>

>

> riginal Message-----

> From: Sanna Rekila

> Sent: Thu 4/3/2003 5:00 PM

> To: nosurgery4clubfoot

> Cc:

> Subject: Progress among Finnish doctors,

serious

> set-backs with parents

>

>

>

> Hi all,

>

> We went to see our original doctor this morning as he was

> interested

> to see how Veeti is coping with the DBB. He was glad that it

had

> been so easy for him to adjust to it, and was ready to start

> using

> the DBB:s himself! Well not himself but his patients:) He has

> ordered three DBB's from the USA. He said that years ago they

> were

> used in Finland, but the senior orthos said they didn't work

and

> the

> younger ones believed them. Now as he has seen one in action

he

> is

> ready to try them too. He was still of the opinion that it is

an

> American way to put the children through such a long term

> splinting,

> and in Europe they consider surgery a better option, or not as

> bad

> anyway. Still he is starting to use the DBB's in preventing

> relapses, so I guess he is still in a process of figuring out

> what

> really to think of all this. He was impressed of the position

of

> Veeti's foot, which was a great relief to us although we have

> seen

> it ourselves, but it is always good to hear it from a doctor.

> There

> were a couple of things that concern us, however. He said to

us

> that

> the DBB holds the position of the forefoot corrected, but

can't

> keep

> the hindfoot from relapsing if that is " meant to happen " . Yet

I

> have

> understood that the DBB indeed prevents the foot from

relapsing,

> both the fore and the hindfoot. Another issue that is

concerning

> is

> that Veeti's clubfoot is a lot shorter (from ankle to hip)

than

> the

> other one. According to our doctor, it doesn't cause any

damage

> to

> the correction of the clubfoot, but may cause problems when

> Veeti

> will have growth spurs if the difference gets even bigger. I

> know

> that there is nothing we can do about it at the moment, but it

> just

> keeps us worrying for the next ten years at least.. Veeti's

> hands

> will be operated on September, so luckily we can lead a normal

> life

> for a few months now. He will need two or three surgeries for

> the

> hands.

>

> So I guess I can call it a progress what has happened with our

> doctor. He has been really great to us, shown interest and not

> being

> upset by our decision to treat Veeti against his advice. I

will

> keep

> in touch with our doctor and try to inform him about Ponseti

> method

> and possible news about it. On the other hand, I will give up

> with

> the parents. My people skills don't seem to be good enough for

> handling this matter correctly. So I guess I'm through

> explaining

> myself and will concentrate on enjoying my son's beautiful new

> foot

> and also working with the new Finnish clubfoot association

that

> we

> have established.

>

> By the way, I'm looking forward to hearing from 's

family:

> are

> you already in Iowa?

>

> Sanna & Veeti 6.5.2002 left clubfoot, DBB full-time

>

>

>

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Share on other sites
Guest guest

Guest guest

Posted
Posted

!

Indeed you are staying at our suite, the 221! How wonderful!! I left

my shampoo there by accident:) We also sent them a thank you note

which had a huge flag of Finland on the front page, I wonder if you

have seen it. Please say hello to Kendra, , Jill and Ed for us.

And Beth the night manager too. I have this strange feeling that I

miss those days we spent in Iowa, although we were glad to go home

and hoping that it was over, but still.. And I too got very emotional

when we first went to the clinic and saw the quilt, and when I first

met Dr. Ponseti I almost wasn't able to get a word out of my mouth.

Was Dr. P able to give you an estimation how long do you have to stay

in Iowa?

I will send some pictures of our family to the house and I should

send one of Veeti's foot to Dr. P as well.

Looking forward to hearing more from you!

Sanna & Veeti

> Sanna,

> Yes, we are here in Iowa, got here the 6th and this is the first

time I

> have checked email (too jetlagged before!). had his first

> treatment with Dr Ponseti this morning and has his casts on. He

really

> liked Dr Ponseti and had a long conversation with him - as much as

you

> can have at 10 weeks...

>

> He slept a good 8 and a half this afternoon and evening (still on

> South African time) and his leg movement seems pretty good, not

> bothering him at all. I was so emotional when we first got to the

> orthopaedic section and saw the quilt on the wall with some of the

> beautiful babies he has treated. We are the first South Africans

> patients of Dr Ponseti and we feel very privileged to have been

able to

> come here and get such good treatment.

>

> We are in Mac, managed to get a suite, aren't they

> wonderful! It's room 221, I think it may have been your room,

because

> there is a bottle of shampoo with Finnish type writing on it. Will

> write again with an update later in the week

>

> Best,

>

>

> riginal Message-----

> From: Sanna Rekila

> Sent: Thu 4/3/2003 5:00 PM

> To: nosurgery4clubfoot

> Cc:

> Subject: Progress among Finnish doctors,

serious

> set-backs with parents

>

>

>

> Hi all,

>

> We went to see our original doctor this morning as he was

> interested

> to see how Veeti is coping with the DBB. He was glad that it

had

> been so easy for him to adjust to it, and was ready to start

> using

> the DBB:s himself! Well not himself but his patients:) He has

> ordered three DBB's from the USA. He said that years ago they

> were

> used in Finland, but the senior orthos said they didn't work

and

> the

> younger ones believed them. Now as he has seen one in action

he

> is

> ready to try them too. He was still of the opinion that it is

an

> American way to put the children through such a long term

> splinting,

> and in Europe they consider surgery a better option, or not as

> bad

> anyway. Still he is starting to use the DBB's in preventing

> relapses, so I guess he is still in a process of figuring out

> what

> really to think of all this. He was impressed of the position

of

> Veeti's foot, which was a great relief to us although we have

> seen

> it ourselves, but it is always good to hear it from a doctor.

> There

> were a couple of things that concern us, however. He said to

us

> that

> the DBB holds the position of the forefoot corrected, but

can't

> keep

> the hindfoot from relapsing if that is " meant to happen " . Yet

I

> have

> understood that the DBB indeed prevents the foot from

relapsing,

> both the fore and the hindfoot. Another issue that is

concerning

> is

> that Veeti's clubfoot is a lot shorter (from ankle to hip)

than

> the

> other one. According to our doctor, it doesn't cause any

damage

> to

> the correction of the clubfoot, but may cause problems when

> Veeti

> will have growth spurs if the difference gets even bigger. I

> know

> that there is nothing we can do about it at the moment, but it

> just

> keeps us worrying for the next ten years at least.. Veeti's

> hands

> will be operated on September, so luckily we can lead a normal

> life

> for a few months now. He will need two or three surgeries for

> the

> hands.

>

> So I guess I can call it a progress what has happened with our

> doctor. He has been really great to us, shown interest and not

> being

> upset by our decision to treat Veeti against his advice. I

will

> keep

> in touch with our doctor and try to inform him about Ponseti

> method

> and possible news about it. On the other hand, I will give up

> with

> the parents. My people skills don't seem to be good enough for

> handling this matter correctly. So I guess I'm through

> explaining

> myself and will concentrate on enjoying my son's beautiful new

> foot

> and also working with the new Finnish clubfoot association

that

> we

> have established.

>

> By the way, I'm looking forward to hearing from 's

family:

> are

> you already in Iowa?

>

> Sanna & Veeti 6.5.2002 left clubfoot, DBB full-time

>

>

>

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