Guest guest Posted November 6, 2002 Report Share Posted November 6, 2002 Hi, - Current general (and I use that word loosely, since doctors vary on this) protocol is that you have a hypo scan 6 months to a year after the RAI - and one or 2 clean hypo scans before using thyrogen (which it looks like what you're doing, from the " injection " comments). And then, it's usually a thyrogen scan, rather than a TG only. The TG testing, of course, is done before the scan. And the LID should also be done prior to a scan, whether it's a hypo or thyrogen scan. You might want to ask your doc why s/he is doing things the way s/he is, so that you'll feel more confident about it. Cheers, Alisa Currently off Levoxyl and on Cytomel for scan 12/16/02 2/15/2002: Nodule found 2/27/2002: FNA 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!! 4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos 5/28/2002: TBS and 100 mCi RAI 6/6/2002: TBS - No sign of mets Age: 48 -- Location: near Seattle WA --- Check out my posts: Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472 My LID - http://groups.yahoo.com/group/Thyca/message/15872 My RAI - http://groups.yahoo.com/group/Thyca/message/15873 > I am curious as to why some folks at their six month bench mark are > having to go off their meds, go on the LID,,,,,,then go back for a > scan,,,,,,,,vs. get the TG testing done.........any ideas? > > > (tt 5/1/02, Lid 5/14/02, RAI 100mcg 5/29/02) Papillary carcinoma > scheduled for tg testing Next monday (injections monday and tuesday, > blood work on friday) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2002 Report Share Posted November 6, 2002 Hi, - Current general (and I use that word loosely, since doctors vary on this) protocol is that you have a hypo scan 6 months to a year after the RAI - and one or 2 clean hypo scans before using thyrogen (which it looks like what you're doing, from the " injection " comments). And then, it's usually a thyrogen scan, rather than a TG only. The TG testing, of course, is done before the scan. And the LID should also be done prior to a scan, whether it's a hypo or thyrogen scan. You might want to ask your doc why s/he is doing things the way s/he is, so that you'll feel more confident about it. Cheers, Alisa Currently off Levoxyl and on Cytomel for scan 12/16/02 2/15/2002: Nodule found 2/27/2002: FNA 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!! 4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos 5/28/2002: TBS and 100 mCi RAI 6/6/2002: TBS - No sign of mets Age: 48 -- Location: near Seattle WA --- Check out my posts: Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472 My LID - http://groups.yahoo.com/group/Thyca/message/15872 My RAI - http://groups.yahoo.com/group/Thyca/message/15873 > I am curious as to why some folks at their six month bench mark are > having to go off their meds, go on the LID,,,,,,then go back for a > scan,,,,,,,,vs. get the TG testing done.........any ideas? > > > (tt 5/1/02, Lid 5/14/02, RAI 100mcg 5/29/02) Papillary carcinoma > scheduled for tg testing Next monday (injections monday and tuesday, > blood work on friday) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2002 Report Share Posted November 7, 2002 Alisa: Just a follow up question. I had my second RAI ablation of 100 mc I-131 on October 28, 2002 (TSH at 42). My first RAI ablation was in mid October 2001 (TSH 4.08) (100 mc of I-131) following a TT in August 2001. With the first ablation they did a WBS 48 hours after the RAI dose to determine RAI uptake in the thyroid bed. With the second ablation on October 28, 2002, the radiation oncologist told me that she was not going to do a WBS this time (within the 48 hour period after the RAI treatment). Instead, she indicated that she would do my next WBS in six months. I am wondering if she chose not to do the WBS in that 48 hour window this time because I had a WBS in July 2002 (TSH 18.06) with a traser dose of 5mc of I-131? In July the radiologist's report also showed RAI uptake only within the thyroid bed. What do you think? Jim Re: Curious? Hi, - Current general (and I use that word loosely, since doctors vary on this) protocol is that you have a hypo scan 6 months to a year after the RAI - and one or 2 clean hypo scans before using thyrogen (which it looks like what you're doing, from the " injection " comments). And then, it's usually a thyrogen scan, rather than a TG only. The TG testing, of course, is done before the scan. And the LID should also be done prior to a scan, whether it's a hypo or thyrogen scan. You might want to ask your doc why s/he is doing things the way s/he is, so that you'll feel more confident about it. Cheers, Alisa Currently off Levoxyl and on Cytomel for scan 12/16/02 2/15/2002: Nodule found 2/27/2002: FNA 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!! 4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos 5/28/2002: TBS and 100 mCi RAI 6/6/2002: TBS - No sign of mets Age: 48 -- Location: near Seattle WA --- Check out my posts: Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472 My LID - http://groups.yahoo.com/group/Thyca/message/15872 My RAI - http://groups.yahoo.com/group/Thyca/message/15873 > I am curious as to why some folks at their six month bench mark are > having to go off their meds, go on the LID,,,,,,then go back for a > scan,,,,,,,,vs. get the TG testing done.........any ideas? > > > (tt 5/1/02, Lid 5/14/02, RAI 100mcg 5/29/02) Papillary carcinoma > scheduled for tg testing Next monday (injections monday and tuesday, > blood work on friday) For more information regarding thyroid cancer visit www.thyca.org. If you do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank email to thyca-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2002 Report Share Posted November 7, 2002 Alisa: Just a follow up question. I had my second RAI ablation of 100 mc I-131 on October 28, 2002 (TSH at 42). My first RAI ablation was in mid October 2001 (TSH 4.08) (100 mc of I-131) following a TT in August 2001. With the first ablation they did a WBS 48 hours after the RAI dose to determine RAI uptake in the thyroid bed. With the second ablation on October 28, 2002, the radiation oncologist told me that she was not going to do a WBS this time (within the 48 hour period after the RAI treatment). Instead, she indicated that she would do my next WBS in six months. I am wondering if she chose not to do the WBS in that 48 hour window this time because I had a WBS in July 2002 (TSH 18.06) with a traser dose of 5mc of I-131? In July the radiologist's report also showed RAI uptake only within the thyroid bed. What do you think? Jim Re: Curious? Hi, - Current general (and I use that word loosely, since doctors vary on this) protocol is that you have a hypo scan 6 months to a year after the RAI - and one or 2 clean hypo scans before using thyrogen (which it looks like what you're doing, from the " injection " comments). And then, it's usually a thyrogen scan, rather than a TG only. The TG testing, of course, is done before the scan. And the LID should also be done prior to a scan, whether it's a hypo or thyrogen scan. You might want to ask your doc why s/he is doing things the way s/he is, so that you'll feel more confident about it. Cheers, Alisa Currently off Levoxyl and on Cytomel for scan 12/16/02 2/15/2002: Nodule found 2/27/2002: FNA 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!! 4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos 5/28/2002: TBS and 100 mCi RAI 6/6/2002: TBS - No sign of mets Age: 48 -- Location: near Seattle WA --- Check out my posts: Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472 My LID - http://groups.yahoo.com/group/Thyca/message/15872 My RAI - http://groups.yahoo.com/group/Thyca/message/15873 > I am curious as to why some folks at their six month bench mark are > having to go off their meds, go on the LID,,,,,,then go back for a > scan,,,,,,,,vs. get the TG testing done.........any ideas? > > > (tt 5/1/02, Lid 5/14/02, RAI 100mcg 5/29/02) Papillary carcinoma > scheduled for tg testing Next monday (injections monday and tuesday, > blood work on friday) For more information regarding thyroid cancer visit www.thyca.org. If you do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank email to thyca-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2002 Report Share Posted November 7, 2002 alisa, now i am scared. am i not having the right tests done? i need to call the doctor don't i? i am still on synthroid.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2002 Report Share Posted November 7, 2002 alisa, now i am scared. am i not having the right tests done? i need to call the doctor don't i? i am still on synthroid.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2002 Report Share Posted November 7, 2002 Hey, don't be scared! There's no magical formula that you have to have particular tests done in a certain period of time - some doctors do a followup scan in a year, rather than 6 months. Perhaps that's what they're planning for you. Perhaps they have some other plan. You said you are still on Synthroid, having a TG done next week, and you mentioned in an earlier message that you're having injections monday and tuesday. Am I correct that these are thyrogen injections? I would certainly ask the doctor why you're not getting a scan - maybe s/he's planning it in 6 months from now, and is just checking your hypo (thyrogen induced) TG for now. Keep in mind that if the TG is high, and they want to do a scan after than and/or more RAI (hopefully that won't be the case), you'd want to do the LID. Even if they plan on a thyrogen scan, you still should do the LID. Not every doctor follows the exact same protocol - one of the more frustrating things of dealing with thyca. I wouldn't panic at all, but I'd give them a quick call today and ask. Cheers, Alisa Currently off Levoxyl and on Cytomel for scan 12/16/02 2/15/2002: Nodule found 2/27/2002: FNA 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!! 4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos 5/28/2002: TBS and 100 mCi RAI 6/6/2002: TBS - No sign of mets Age: 48 -- Location: near Seattle WA --- Check out my posts: Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472 My LID - http://groups.yahoo.com/group/Thyca/message/15872 My RAI - http://groups.yahoo.com/group/Thyca/message/15873 > alisa, > now i am scared. am i not having the right tests done? > i need to call the doctor don't i? > i am still on synthroid.. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2002 Report Share Posted November 7, 2002 Hey, don't be scared! There's no magical formula that you have to have particular tests done in a certain period of time - some doctors do a followup scan in a year, rather than 6 months. Perhaps that's what they're planning for you. Perhaps they have some other plan. You said you are still on Synthroid, having a TG done next week, and you mentioned in an earlier message that you're having injections monday and tuesday. Am I correct that these are thyrogen injections? I would certainly ask the doctor why you're not getting a scan - maybe s/he's planning it in 6 months from now, and is just checking your hypo (thyrogen induced) TG for now. Keep in mind that if the TG is high, and they want to do a scan after than and/or more RAI (hopefully that won't be the case), you'd want to do the LID. Even if they plan on a thyrogen scan, you still should do the LID. Not every doctor follows the exact same protocol - one of the more frustrating things of dealing with thyca. I wouldn't panic at all, but I'd give them a quick call today and ask. Cheers, Alisa Currently off Levoxyl and on Cytomel for scan 12/16/02 2/15/2002: Nodule found 2/27/2002: FNA 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!! 4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos 5/28/2002: TBS and 100 mCi RAI 6/6/2002: TBS - No sign of mets Age: 48 -- Location: near Seattle WA --- Check out my posts: Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472 My LID - http://groups.yahoo.com/group/Thyca/message/15872 My RAI - http://groups.yahoo.com/group/Thyca/message/15873 > alisa, > now i am scared. am i not having the right tests done? > i need to call the doctor don't i? > i am still on synthroid.. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2002 Report Share Posted November 7, 2002 Hey, don't be scared! There's no magical formula that you have to have particular tests done in a certain period of time - some doctors do a followup scan in a year, rather than 6 months. Perhaps that's what they're planning for you. Perhaps they have some other plan. You said you are still on Synthroid, having a TG done next week, and you mentioned in an earlier message that you're having injections monday and tuesday. Am I correct that these are thyrogen injections? I would certainly ask the doctor why you're not getting a scan - maybe s/he's planning it in 6 months from now, and is just checking your hypo (thyrogen induced) TG for now. Keep in mind that if the TG is high, and they want to do a scan after than and/or more RAI (hopefully that won't be the case), you'd want to do the LID. Even if they plan on a thyrogen scan, you still should do the LID. Not every doctor follows the exact same protocol - one of the more frustrating things of dealing with thyca. I wouldn't panic at all, but I'd give them a quick call today and ask. Cheers, Alisa Currently off Levoxyl and on Cytomel for scan 12/16/02 2/15/2002: Nodule found 2/27/2002: FNA 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!! 4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos 5/28/2002: TBS and 100 mCi RAI 6/6/2002: TBS - No sign of mets Age: 48 -- Location: near Seattle WA --- Check out my posts: Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472 My LID - http://groups.yahoo.com/group/Thyca/message/15872 My RAI - http://groups.yahoo.com/group/Thyca/message/15873 > alisa, > now i am scared. am i not having the right tests done? > i need to call the doctor don't i? > i am still on synthroid.. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2009 Report Share Posted December 6, 2009 > >I am just curious to know how others dose their t3 once Rt3 is cleared? Initially after clearance I dropped to 50 and climbed up to 125 after a few days. I stayed there a couple of months but have recently gone up to 150 with the darker evenings and colder temperatures. I feel pretty good at that level, I spread them through the day and include a bed time dose. Nick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2009 Report Share Posted December 6, 2009 > >I am just curious to know how others dose their t3 once Rt3 is cleared? Initially after clearance I dropped to 50 and climbed up to 125 after a few days. I stayed there a couple of months but have recently gone up to 150 with the darker evenings and colder temperatures. I feel pretty good at that level, I spread them through the day and include a bed time dose. Nick Quote Link to comment Share on other sites More sharing options...
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