Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Hi - I'm so sorry you're having such a hard time. I've VERY glad you're here! My boys both are deaf - they are now 10 and 12. They both wear hearing aids AND they have an FM system. The FM system is two parts - a set of " boots " that clip on the bottom of their hearing aids and a mic the teacher wears. They both have high powered, digital hearing aids that have worked great for them. The FM is worn at school - it can be set so that our boys hear the teacher's voice louder but they also can hear their classmates; or they can hear their teacher only. Your son is fortunate in that he could hear before he lost his hearing - once he gets amplified correctly (whether by hearing aids or an implant), he should do well. Keep asking questions! We're here to help you. Take care Barbara --- You wrote: Hi thanks I will use all this advice . ok fm trainer is like a walkman teacher wears mic and he wears headphones ent,wants him to try hearing aids says he needs them insted of fm trainer for all the time but,audio says no she don't think it will matter or help due to his hearing changes and ranges? The one dr ent,said implants soon that audio w/her said no she did not know what she was talking about of course we switched dr. Now we see childrens hosp. and they are the ones who also are disagreeing hearing aids or fm ?Who do i listen to and HOW LONG DOES HE GO?LIKE THIS ?NOT READING NOT HEARING ? this is my child and because i am not a dr . no one will listen to what he wants or needs?And the school just stinks they just are doing no good at all he is in special reading but the teacher just tells him sound it out . why aren't you sounding it out? HE CAN'T HEAR IT DUH!!!!!!i AM JUST FRUSTRATED BEYOND HOPE!he deserves so much more! --- end of quote --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 , You have every right to be frustrated. You trust the professionals to do the best thing for your child, and you keep getting conflicting answers. I noticed in a previous post that you live in Missorri. Are you near the St Louis area? I'm not from there, but I hear there are some great schools for children with hearing loss. Maybe contacting them would help clear up some of the confusion. To be honest, I'm as confused as you are. If your son has had a hearing test and it shows that he indeed has a hearing loss, I just can't understand why they won't give him aids. I know there are lots of kids with cookie bite loses that have aids. And with the CI, my understanding is that before someone gets a CI they have to wear aids to see if they help, if not, then the CI is done. I'm wondering what they would do if you got the FM trainer and it didn't work? Would they give him aids then? There are agencies that can help you pay for aids if you qualify, so not being able to pay for them should not be the hold up. Debbie katie rice wrote: Hi thanks I will use all this advice . ok fm trainer is like a walkman teacher wears mic and he wears headphones ent,wants him to try hearing aids says he needs them insted of fm trainer for all the time but,audio says no she don't think it will matter or help due to his hearing changes and ranges? The one dr ent,said implants soon that audio w/her said no she did not know what she was talking about of course we switched dr. Now we see childrens hosp. and they are the ones who also are disagreeing hearing aids or fm ?Who do i listen to and HOW LONG DOES HE GO?LIKE THIS ?NOT READING NOT HEARING ? this is my child and because i am not a dr . no one will listen to what he wants or needs?And the school just stinks they just are doing no good at all he is in special reading but the teacher just tells him sound it out . why aren't you sounding it out? HE CAN'T HEAR IT DUH!!!!!!i AM JUST FRUSTRATED BEYOND HOPE!he deserves so much more! " I'm through accepting limits, Cuz someone says they're so. Some things I cannot change, But till I try I'll never know " Defying Gravity from " Wicked: The Musical " __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 We have and are using the fm trainer no it really has not helped and we are trying other avenues and now the school for the def is going to get involved and try to help thank you i will keep you posted thank you so much Deb DiAnni wrote:, You have every right to be frustrated. You trust the professionals to do the best thing for your child, and you keep getting conflicting answers. I noticed in a previous post that you live in Missorri. Are you near the St Louis area? I'm not from there, but I hear there are some great schools for children with hearing loss. Maybe contacting them would help clear up some of the confusion. To be honest, I'm as confused as you are. If your son has had a hearing test and it shows that he indeed has a hearing loss, I just can't understand why they won't give him aids. I know there are lots of kids with cookie bite loses that have aids. And with the CI, my understanding is that before someone gets a CI they have to wear aids to see if they help, if not, then the CI is done. I'm wondering what they would do if you got the FM trainer and it didn't work? Would they give him aids then? There are agencies that can help you pay for aids if you qualify, so not being able to pay for them should not be the hold up. Debbie katie rice wrote: Hi thanks I will use all this advice . ok fm trainer is like a walkman teacher wears mic and he wears headphones ent,wants him to try hearing aids says he needs them insted of fm trainer for all the time but,audio says no she don't think it will matter or help due to his hearing changes and ranges? The one dr ent,said implants soon that audio w/her said no she did not know what she was talking about of course we switched dr. Now we see childrens hosp. and they are the ones who also are disagreeing hearing aids or fm ?Who do i listen to and HOW LONG DOES HE GO?LIKE THIS ?NOT READING NOT HEARING ? this is my child and because i am not a dr . no one will listen to what he wants or needs?And the school just stinks they just are doing no good at all he is in special reading but the teacher just tells him sound it out . why aren't you sounding it out? HE CAN'T HEAR IT DUH!!!!!!i AM JUST FRUSTRATED BEYOND HOPE!he deserves so much more! " I'm through accepting limits, Cuz someone says they're so. Some things I cannot change, But till I try I'll never know " Defying Gravity from " Wicked: The Musical " __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 We have and are using the fm trainer no it really has not helped and we are trying other avenues and now the school for the def is going to get involved and try to help thank you i will keep you posted thank you so much Deb DiAnni wrote:, You have every right to be frustrated. You trust the professionals to do the best thing for your child, and you keep getting conflicting answers. I noticed in a previous post that you live in Missorri. Are you near the St Louis area? I'm not from there, but I hear there are some great schools for children with hearing loss. Maybe contacting them would help clear up some of the confusion. To be honest, I'm as confused as you are. If your son has had a hearing test and it shows that he indeed has a hearing loss, I just can't understand why they won't give him aids. I know there are lots of kids with cookie bite loses that have aids. And with the CI, my understanding is that before someone gets a CI they have to wear aids to see if they help, if not, then the CI is done. I'm wondering what they would do if you got the FM trainer and it didn't work? Would they give him aids then? There are agencies that can help you pay for aids if you qualify, so not being able to pay for them should not be the hold up. Debbie katie rice wrote: Hi thanks I will use all this advice . ok fm trainer is like a walkman teacher wears mic and he wears headphones ent,wants him to try hearing aids says he needs them insted of fm trainer for all the time but,audio says no she don't think it will matter or help due to his hearing changes and ranges? The one dr ent,said implants soon that audio w/her said no she did not know what she was talking about of course we switched dr. Now we see childrens hosp. and they are the ones who also are disagreeing hearing aids or fm ?Who do i listen to and HOW LONG DOES HE GO?LIKE THIS ?NOT READING NOT HEARING ? this is my child and because i am not a dr . no one will listen to what he wants or needs?And the school just stinks they just are doing no good at all he is in special reading but the teacher just tells him sound it out . why aren't you sounding it out? HE CAN'T HEAR IT DUH!!!!!!i AM JUST FRUSTRATED BEYOND HOPE!he deserves so much more! " I'm through accepting limits, Cuz someone says they're so. Some things I cannot change, But till I try I'll never know " Defying Gravity from " Wicked: The Musical " __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 We have and are using the fm trainer no it really has not helped and we are trying other avenues and now the school for the def is going to get involved and try to help thank you i will keep you posted thank you so much Deb DiAnni wrote:, You have every right to be frustrated. You trust the professionals to do the best thing for your child, and you keep getting conflicting answers. I noticed in a previous post that you live in Missorri. Are you near the St Louis area? I'm not from there, but I hear there are some great schools for children with hearing loss. Maybe contacting them would help clear up some of the confusion. To be honest, I'm as confused as you are. If your son has had a hearing test and it shows that he indeed has a hearing loss, I just can't understand why they won't give him aids. I know there are lots of kids with cookie bite loses that have aids. And with the CI, my understanding is that before someone gets a CI they have to wear aids to see if they help, if not, then the CI is done. I'm wondering what they would do if you got the FM trainer and it didn't work? Would they give him aids then? There are agencies that can help you pay for aids if you qualify, so not being able to pay for them should not be the hold up. Debbie katie rice wrote: Hi thanks I will use all this advice . ok fm trainer is like a walkman teacher wears mic and he wears headphones ent,wants him to try hearing aids says he needs them insted of fm trainer for all the time but,audio says no she don't think it will matter or help due to his hearing changes and ranges? The one dr ent,said implants soon that audio w/her said no she did not know what she was talking about of course we switched dr. Now we see childrens hosp. and they are the ones who also are disagreeing hearing aids or fm ?Who do i listen to and HOW LONG DOES HE GO?LIKE THIS ?NOT READING NOT HEARING ? this is my child and because i am not a dr . no one will listen to what he wants or needs?And the school just stinks they just are doing no good at all he is in special reading but the teacher just tells him sound it out . why aren't you sounding it out? HE CAN'T HEAR IT DUH!!!!!!i AM JUST FRUSTRATED BEYOND HOPE!he deserves so much more! " I'm through accepting limits, Cuz someone says they're so. Some things I cannot change, But till I try I'll never know " Defying Gravity from " Wicked: The Musical " __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 , My daugther was seen by a local children's hospital 6 times between birth and 2 years because there was a suspected hearing loss and she failed her abr twice at another local hospital that does strickly diagnostic hearing tests for babies. After 2 years of fighting, they finally agreed that she had a mod-severe loss in both ears. I could kick myself for wasting 2 years believing them. Her hearing stayed flat for a couple of years and then dropped. It is now a cookie bit shape dipping down to about 85 dbs. We too don't know the reason and I wasn't too concerned except when she began losing more hearing. We are now seeing a genetist (sp?) I have 2 points to this message. 1) I had to go to an ENT to get a " prescription " for the audi to fit her with aids. He didn't specify which hearing aid, etc, but I think it was just to tell the audi that he had checked her, didn't find conductive loss, etc, so that they would know when they recommend certain hearing aids. 2) Go with your heart, and don't let any doctor/audi keep you from doing what you know is right. Find another audi. Also tell your ENT that the audi doesn't want to fit him with aids... maybe he can assist. Also, it sounds like he is oral since he didn't start losing his hearing until after he learned language. There is a website that lists a bunch of schools for oral deaf education, and there are a lot in Missiouri: http://www.oraldeafed.org/schools/index.html Best of luck... Robin mom to Brittney, 6, severe SNHL , 4, hearing -------------- Original message -------------- We have and are using the fm trainer no it really has not helped and we are trying other avenues and now the school for the def is going to get involved and try to help thank you i will keep you posted thank you so much Deb DiAnni wrote:, You have every right to be frustrated. You trust the professionals to do the best thing for your child, and you keep getting conflicting answers. I noticed in a previous post that you live in Missorri. Are you near the St Louis area? I'm not from there, but I hear there are some great schools for children with hearing loss. Maybe contacting them would help clear up some of the confusion. To be honest, I'm as confused as you are. If your son has had a hearing test and it shows that he indeed has a hearing loss, I just can't understand why they won't give him aids. I know there are lots of kids with cookie bite loses that have aids. And with the CI, my understanding is that before someone gets a CI they have to wear aids to see if they help, if not, then the CI is done. I'm wondering what they would do if you got the FM trainer and it didn't work? Would they give him aids then? There are agencies that can help you pay for aids if you qualify, so not being able to pay for them should not be the hold up. Debbie katie rice wrote: Hi thanks I will use all this advice . ok fm trainer is like a walkman teacher wears mic and he wears headphones ent,wants him to try hearing aids says he needs them insted of fm trainer for all the time but,audio says no she don't think it will matter or help due to his hearing changes and ranges? The one dr ent,said implants soon that audio w/her said no she did not know what she was talking about of course we switched dr. Now we see childrens hosp. and they are the ones who also are disagreeing hearing aids or fm ?Who do i listen to and HOW LONG DOES HE GO?LIKE THIS ?NOT READING NOT HEARING ? this is my child and because i am not a dr . no one will listen to what he wants or needs?And the school just stinks they just are doing no good at all he is in special reading but the teacher just tells him sound it out . why aren't you sounding it out? HE CAN'T HEAR IT DUH!!!!!!i AM JUST FRUSTRATED BEYOND HOPE!he deserves so much more! " I'm through accepting limits, Cuz someone says they're so. Some things I cannot change, But till I try I'll never know " Defying Gravity from " Wicked: The Musical " __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 , My daugther was seen by a local children's hospital 6 times between birth and 2 years because there was a suspected hearing loss and she failed her abr twice at another local hospital that does strickly diagnostic hearing tests for babies. After 2 years of fighting, they finally agreed that she had a mod-severe loss in both ears. I could kick myself for wasting 2 years believing them. Her hearing stayed flat for a couple of years and then dropped. It is now a cookie bit shape dipping down to about 85 dbs. We too don't know the reason and I wasn't too concerned except when she began losing more hearing. We are now seeing a genetist (sp?) I have 2 points to this message. 1) I had to go to an ENT to get a " prescription " for the audi to fit her with aids. He didn't specify which hearing aid, etc, but I think it was just to tell the audi that he had checked her, didn't find conductive loss, etc, so that they would know when they recommend certain hearing aids. 2) Go with your heart, and don't let any doctor/audi keep you from doing what you know is right. Find another audi. Also tell your ENT that the audi doesn't want to fit him with aids... maybe he can assist. Also, it sounds like he is oral since he didn't start losing his hearing until after he learned language. There is a website that lists a bunch of schools for oral deaf education, and there are a lot in Missiouri: http://www.oraldeafed.org/schools/index.html Best of luck... Robin mom to Brittney, 6, severe SNHL , 4, hearing -------------- Original message -------------- We have and are using the fm trainer no it really has not helped and we are trying other avenues and now the school for the def is going to get involved and try to help thank you i will keep you posted thank you so much Deb DiAnni wrote:, You have every right to be frustrated. You trust the professionals to do the best thing for your child, and you keep getting conflicting answers. I noticed in a previous post that you live in Missorri. Are you near the St Louis area? I'm not from there, but I hear there are some great schools for children with hearing loss. Maybe contacting them would help clear up some of the confusion. To be honest, I'm as confused as you are. If your son has had a hearing test and it shows that he indeed has a hearing loss, I just can't understand why they won't give him aids. I know there are lots of kids with cookie bite loses that have aids. And with the CI, my understanding is that before someone gets a CI they have to wear aids to see if they help, if not, then the CI is done. I'm wondering what they would do if you got the FM trainer and it didn't work? Would they give him aids then? There are agencies that can help you pay for aids if you qualify, so not being able to pay for them should not be the hold up. Debbie katie rice wrote: Hi thanks I will use all this advice . ok fm trainer is like a walkman teacher wears mic and he wears headphones ent,wants him to try hearing aids says he needs them insted of fm trainer for all the time but,audio says no she don't think it will matter or help due to his hearing changes and ranges? The one dr ent,said implants soon that audio w/her said no she did not know what she was talking about of course we switched dr. Now we see childrens hosp. and they are the ones who also are disagreeing hearing aids or fm ?Who do i listen to and HOW LONG DOES HE GO?LIKE THIS ?NOT READING NOT HEARING ? this is my child and because i am not a dr . no one will listen to what he wants or needs?And the school just stinks they just are doing no good at all he is in special reading but the teacher just tells him sound it out . why aren't you sounding it out? HE CAN'T HEAR IT DUH!!!!!!i AM JUST FRUSTRATED BEYOND HOPE!he deserves so much more! " I'm through accepting limits, Cuz someone says they're so. Some things I cannot change, But till I try I'll never know " Defying Gravity from " Wicked: The Musical " __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 , My daugther was seen by a local children's hospital 6 times between birth and 2 years because there was a suspected hearing loss and she failed her abr twice at another local hospital that does strickly diagnostic hearing tests for babies. After 2 years of fighting, they finally agreed that she had a mod-severe loss in both ears. I could kick myself for wasting 2 years believing them. Her hearing stayed flat for a couple of years and then dropped. It is now a cookie bit shape dipping down to about 85 dbs. We too don't know the reason and I wasn't too concerned except when she began losing more hearing. We are now seeing a genetist (sp?) I have 2 points to this message. 1) I had to go to an ENT to get a " prescription " for the audi to fit her with aids. He didn't specify which hearing aid, etc, but I think it was just to tell the audi that he had checked her, didn't find conductive loss, etc, so that they would know when they recommend certain hearing aids. 2) Go with your heart, and don't let any doctor/audi keep you from doing what you know is right. Find another audi. Also tell your ENT that the audi doesn't want to fit him with aids... maybe he can assist. Also, it sounds like he is oral since he didn't start losing his hearing until after he learned language. There is a website that lists a bunch of schools for oral deaf education, and there are a lot in Missiouri: http://www.oraldeafed.org/schools/index.html Best of luck... Robin mom to Brittney, 6, severe SNHL , 4, hearing -------------- Original message -------------- We have and are using the fm trainer no it really has not helped and we are trying other avenues and now the school for the def is going to get involved and try to help thank you i will keep you posted thank you so much Deb DiAnni wrote:, You have every right to be frustrated. You trust the professionals to do the best thing for your child, and you keep getting conflicting answers. I noticed in a previous post that you live in Missorri. Are you near the St Louis area? I'm not from there, but I hear there are some great schools for children with hearing loss. Maybe contacting them would help clear up some of the confusion. To be honest, I'm as confused as you are. If your son has had a hearing test and it shows that he indeed has a hearing loss, I just can't understand why they won't give him aids. I know there are lots of kids with cookie bite loses that have aids. And with the CI, my understanding is that before someone gets a CI they have to wear aids to see if they help, if not, then the CI is done. I'm wondering what they would do if you got the FM trainer and it didn't work? Would they give him aids then? There are agencies that can help you pay for aids if you qualify, so not being able to pay for them should not be the hold up. Debbie katie rice wrote: Hi thanks I will use all this advice . ok fm trainer is like a walkman teacher wears mic and he wears headphones ent,wants him to try hearing aids says he needs them insted of fm trainer for all the time but,audio says no she don't think it will matter or help due to his hearing changes and ranges? The one dr ent,said implants soon that audio w/her said no she did not know what she was talking about of course we switched dr. Now we see childrens hosp. and they are the ones who also are disagreeing hearing aids or fm ?Who do i listen to and HOW LONG DOES HE GO?LIKE THIS ?NOT READING NOT HEARING ? this is my child and because i am not a dr . no one will listen to what he wants or needs?And the school just stinks they just are doing no good at all he is in special reading but the teacher just tells him sound it out . why aren't you sounding it out? HE CAN'T HEAR IT DUH!!!!!!i AM JUST FRUSTRATED BEYOND HOPE!he deserves so much more! " I'm through accepting limits, Cuz someone says they're so. Some things I cannot change, But till I try I'll never know " Defying Gravity from " Wicked: The Musical " __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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