Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 Yes, she was put under general anesthesia and we stayed overnight in the hospital for observation. She was released the next morning with a prescription for an antibiotic (a pre-emptive measure) and Phenergan/ Tylenol 3. She did just fine. Two things though... If his nose bleeds a little after surgery, that is normal. It is just drainage from the eustachian tubes. No one bothered to tell me that, and when she woke up the next day with a fever and her nose was bleeding I LOST IT. I mean, I went BALLISTIC. It scared me to death. Her surgeon came in (he is a wonderful man) and calmed me down & explained what was happening. We gave her the Tylenol 3 and within an hour she was fine, her Daddy took her to the playroom and we were relased shortly after that. wrote:Thanks . It kinda makes sense. I'm sure as we go along and get closer to implant date, we'll understand better! Was Leyla put under geneneral for the procedure? B wrote: Hi , Leyla was 12 months old when she was implanted, actually 9 days after her birthday. AV Is short for Auditory/Verbal Therapy. Basically speech therapy with exercises designed to " teach " them how to listen. As far as the signals he will recieve, I guess the easiest way to explain it would be to say that he is going to hear electronically. The electronic signals his brain will recieve from his processor that will be interpreted by the brain as sound. Sort of like any electronic device (TV, radio) that relies on signals to operate. Does that make sense? wrote: Thanks . How old was she when she had the implant? Christian will be 13 months old. It should be done in March/April of next year. And what is AV therapy. Never heard of it. I hope the preschool helps her! Can you explain the " signals " they said he would " receive " . I don't quite understand what that means! Thanks again ! B wrote: Welcome ! I'm the mother of 2 year old Leyla Jo and we have done the same thing you're doing now. She has been implanted and turned on for a year now and is doing OK. Not great, not bad, but OK. We are hoping to change that to great soon by enrolling her in a new preschool where she will recieve AV therapy every day. Currently we are only going once a week, and she doesn't " work " well with me at home. I think a lot of that has to do with her age... Anyway, I look forward to getting to know you! B. Mom to Leyla Jo, age 2, profound sensorineual bilaterally, CI 9/17/03 Stepmom to Chase, age 8, hearing wrote: Hi all! My name is and I'm mother to 8 month old Christian. He was born 16 weeks early. Just before hospital discharge (he was 4 months 1 week old), they did a hearing test, which Christian failed. They followed that up about a week later with an abr test. The results showed moderate-severe hearing loss. After discharge, we saw and audiologist for further testing. Christian had another abr test about 1 1/2 months ago. The results were Profound hearing loss. That day we received his hearing aids. Obviously they aren't doing any good. He should get the ci in about 5 months. I'm here to help as I can and to receive help as needed! www.geocities.com/s_lynne_flores/Christian.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 No one bothered to tell me that, and when she woke up the next day with a fever and her nose was bleeding I LOST IT. I mean, I went BALLISTIC. It scared me to death. I know it's not funny, but isn't it strange what catches us off guard? Lindsi's sightly bloody nose did NOT bother me. She had a little nose bleeding after they had put tubes in her ears last year & I expected it. The thing that suprised me most was that the tightness of her head bandage caused her eyes to swell shut. They did lossen it up some before we left the hospital, but for 2-3 days her eyes were quite puffy from the pressure on her forehead. She never bothered the bandage, so I'm sure it didn't bother her, but it was sad to see the eyes so swollen. Debby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 No one bothered to tell me that, and when she woke up the next day with a fever and her nose was bleeding I LOST IT. I mean, I went BALLISTIC. It scared me to death. I know it's not funny, but isn't it strange what catches us off guard? Lindsi's sightly bloody nose did NOT bother me. She had a little nose bleeding after they had put tubes in her ears last year & I expected it. The thing that suprised me most was that the tightness of her head bandage caused her eyes to swell shut. They did lossen it up some before we left the hospital, but for 2-3 days her eyes were quite puffy from the pressure on her forehead. She never bothered the bandage, so I'm sure it didn't bother her, but it was sad to see the eyes so swollen. Debby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 No one bothered to tell me that, and when she woke up the next day with a fever and her nose was bleeding I LOST IT. I mean, I went BALLISTIC. It scared me to death. I know it's not funny, but isn't it strange what catches us off guard? Lindsi's sightly bloody nose did NOT bother me. She had a little nose bleeding after they had put tubes in her ears last year & I expected it. The thing that suprised me most was that the tightness of her head bandage caused her eyes to swell shut. They did lossen it up some before we left the hospital, but for 2-3 days her eyes were quite puffy from the pressure on her forehead. She never bothered the bandage, so I'm sure it didn't bother her, but it was sad to see the eyes so swollen. Debby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 OIC. Thanks for the warning. I'd probably have freaked out too! B wrote: Yes, she was put under general anesthesia and we stayed overnight in the hospital for observation. She was released the next morning with a prescription for an antibiotic (a pre-emptive measure) and Phenergan/ Tylenol 3. She did just fine. Two things though... If his nose bleeds a little after surgery, that is normal. It is just drainage from the eustachian tubes. No one bothered to tell me that, and when she woke up the next day with a fever and her nose was bleeding I LOST IT. I mean, I went BALLISTIC. It scared me to death. Her surgeon came in (he is a wonderful man) and calmed me down & explained what was happening. We gave her the Tylenol 3 and within an hour she was fine, her Daddy took her to the playroom and we were relased shortly after that. wrote:Thanks . It kinda makes sense. I'm sure as we go along and get closer to implant date, we'll understand better! Was Leyla put under geneneral for the procedure? B wrote: Hi , Leyla was 12 months old when she was implanted, actually 9 days after her birthday. AV Is short for Auditory/Verbal Therapy. Basically speech therapy with exercises designed to " teach " them how to listen. As far as the signals he will recieve, I guess the easiest way to explain it would be to say that he is going to hear electronically. The electronic signals his brain will recieve from his processor that will be interpreted by the brain as sound. Sort of like any electronic device (TV, radio) that relies on signals to operate. Does that make sense? wrote: Thanks . How old was she when she had the implant? Christian will be 13 months old. It should be done in March/April of next year. And what is AV therapy. Never heard of it. I hope the preschool helps her! Can you explain the " signals " they said he would " receive " . I don't quite understand what that means! Thanks again ! B wrote: Welcome ! I'm the mother of 2 year old Leyla Jo and we have done the same thing you're doing now. She has been implanted and turned on for a year now and is doing OK. Not great, not bad, but OK. We are hoping to change that to great soon by enrolling her in a new preschool where she will recieve AV therapy every day. Currently we are only going once a week, and she doesn't " work " well with me at home. I think a lot of that has to do with her age... Anyway, I look forward to getting to know you! B. Mom to Leyla Jo, age 2, profound sensorineual bilaterally, CI 9/17/03 Stepmom to Chase, age 8, hearing wrote: Hi all! My name is and I'm mother to 8 month old Christian. He was born 16 weeks early. Just before hospital discharge (he was 4 months 1 week old), they did a hearing test, which Christian failed. They followed that up about a week later with an abr test. The results showed moderate-severe hearing loss. After discharge, we saw and audiologist for further testing. Christian had another abr test about 1 1/2 months ago. The results were Profound hearing loss. That day we received his hearing aids. Obviously they aren't doing any good. He should get the ci in about 5 months. I'm here to help as I can and to receive help as needed! www.geocities.com/s_lynne_flores/Christian.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 OIC. Thanks for the warning. I'd probably have freaked out too! B wrote: Yes, she was put under general anesthesia and we stayed overnight in the hospital for observation. She was released the next morning with a prescription for an antibiotic (a pre-emptive measure) and Phenergan/ Tylenol 3. She did just fine. Two things though... If his nose bleeds a little after surgery, that is normal. It is just drainage from the eustachian tubes. No one bothered to tell me that, and when she woke up the next day with a fever and her nose was bleeding I LOST IT. I mean, I went BALLISTIC. It scared me to death. Her surgeon came in (he is a wonderful man) and calmed me down & explained what was happening. We gave her the Tylenol 3 and within an hour she was fine, her Daddy took her to the playroom and we were relased shortly after that. wrote:Thanks . It kinda makes sense. I'm sure as we go along and get closer to implant date, we'll understand better! Was Leyla put under geneneral for the procedure? B wrote: Hi , Leyla was 12 months old when she was implanted, actually 9 days after her birthday. AV Is short for Auditory/Verbal Therapy. Basically speech therapy with exercises designed to " teach " them how to listen. As far as the signals he will recieve, I guess the easiest way to explain it would be to say that he is going to hear electronically. The electronic signals his brain will recieve from his processor that will be interpreted by the brain as sound. Sort of like any electronic device (TV, radio) that relies on signals to operate. Does that make sense? wrote: Thanks . How old was she when she had the implant? Christian will be 13 months old. It should be done in March/April of next year. And what is AV therapy. Never heard of it. I hope the preschool helps her! Can you explain the " signals " they said he would " receive " . I don't quite understand what that means! Thanks again ! B wrote: Welcome ! I'm the mother of 2 year old Leyla Jo and we have done the same thing you're doing now. She has been implanted and turned on for a year now and is doing OK. Not great, not bad, but OK. We are hoping to change that to great soon by enrolling her in a new preschool where she will recieve AV therapy every day. Currently we are only going once a week, and she doesn't " work " well with me at home. I think a lot of that has to do with her age... Anyway, I look forward to getting to know you! B. Mom to Leyla Jo, age 2, profound sensorineual bilaterally, CI 9/17/03 Stepmom to Chase, age 8, hearing wrote: Hi all! My name is and I'm mother to 8 month old Christian. He was born 16 weeks early. Just before hospital discharge (he was 4 months 1 week old), they did a hearing test, which Christian failed. They followed that up about a week later with an abr test. The results showed moderate-severe hearing loss. After discharge, we saw and audiologist for further testing. Christian had another abr test about 1 1/2 months ago. The results were Profound hearing loss. That day we received his hearing aids. Obviously they aren't doing any good. He should get the ci in about 5 months. I'm here to help as I can and to receive help as needed! www.geocities.com/s_lynne_flores/Christian.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 OIC. Thanks for the warning. I'd probably have freaked out too! B wrote: Yes, she was put under general anesthesia and we stayed overnight in the hospital for observation. She was released the next morning with a prescription for an antibiotic (a pre-emptive measure) and Phenergan/ Tylenol 3. She did just fine. Two things though... If his nose bleeds a little after surgery, that is normal. It is just drainage from the eustachian tubes. No one bothered to tell me that, and when she woke up the next day with a fever and her nose was bleeding I LOST IT. I mean, I went BALLISTIC. It scared me to death. Her surgeon came in (he is a wonderful man) and calmed me down & explained what was happening. We gave her the Tylenol 3 and within an hour she was fine, her Daddy took her to the playroom and we were relased shortly after that. wrote:Thanks . It kinda makes sense. I'm sure as we go along and get closer to implant date, we'll understand better! Was Leyla put under geneneral for the procedure? B wrote: Hi , Leyla was 12 months old when she was implanted, actually 9 days after her birthday. AV Is short for Auditory/Verbal Therapy. Basically speech therapy with exercises designed to " teach " them how to listen. As far as the signals he will recieve, I guess the easiest way to explain it would be to say that he is going to hear electronically. The electronic signals his brain will recieve from his processor that will be interpreted by the brain as sound. Sort of like any electronic device (TV, radio) that relies on signals to operate. Does that make sense? wrote: Thanks . How old was she when she had the implant? Christian will be 13 months old. It should be done in March/April of next year. And what is AV therapy. Never heard of it. I hope the preschool helps her! Can you explain the " signals " they said he would " receive " . I don't quite understand what that means! Thanks again ! B wrote: Welcome ! I'm the mother of 2 year old Leyla Jo and we have done the same thing you're doing now. She has been implanted and turned on for a year now and is doing OK. Not great, not bad, but OK. We are hoping to change that to great soon by enrolling her in a new preschool where she will recieve AV therapy every day. Currently we are only going once a week, and she doesn't " work " well with me at home. I think a lot of that has to do with her age... Anyway, I look forward to getting to know you! B. Mom to Leyla Jo, age 2, profound sensorineual bilaterally, CI 9/17/03 Stepmom to Chase, age 8, hearing wrote: Hi all! My name is and I'm mother to 8 month old Christian. He was born 16 weeks early. Just before hospital discharge (he was 4 months 1 week old), they did a hearing test, which Christian failed. They followed that up about a week later with an abr test. The results showed moderate-severe hearing loss. After discharge, we saw and audiologist for further testing. Christian had another abr test about 1 1/2 months ago. The results were Profound hearing loss. That day we received his hearing aids. Obviously they aren't doing any good. He should get the ci in about 5 months. I'm here to help as I can and to receive help as needed! www.geocities.com/s_lynne_flores/Christian.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2004 Report Share Posted October 16, 2004 Colleen, setting up a website is easy. You can do it free from yahoo. You just need a yahoo account, also free. Go to www.mail.yahoo.com to set one up. Once you have one, you can go to www.geocities.com and log in with your yahoo login. Then go to page wizard. Once set up, you can do page builder if you wish. It allows you to add more stuff. It's really cool. If you want me to help you with it, just email me at s_lynne_flores@... and I'll be happy to help you. Christians almost done with his apnea monitor. We have a pulm appt on Tuesday and I'm thinking she'll let us get rid of it. He got the belt at the beginning of Sept and hasn't had any alarms. When he had the stickers, he alarmed a lot. Like as in 10-15 alarms a night sometimes. UGH! Besides his bpd, thats his only remaining preemie issue. Well, I guess rsv is a pretty big concern for us now. Chrsitian gets his first shot on Nov 1st. He's hibernating for the winter too. That'll be hard! A long 6 months. His hearing is a pretty big concern for us. I've accepted that he's deaf. I've accepted that he'll need the surgery for his ci in a couple months, but dh....... Now thats another story. I don't think he's quite accepted Christians " deafness " yet. He doesn't really want to learn sign b/c he hasn't accepted the deafness. So, Christian and I'll secret language for awhile until he learns it. LOL! He's had the hearing aids for 2 months now. The first month was a long one b/c the left mold was too small already (it took 1 month the first time the ear molds were made to get the hearing aids in, so by then, the molds were too small). So the left one was always shut off. Otherwise, it was constantly giving feedback. We'll get used to the life, I'm sure. It's just kinda frustrating to know that Christian may never hear my voice. I guess I've rambled long enough! LOL! Colleen Guth wrote: , Lol, I remember that first year too well. But it's amazing how fast we move on. le was on the apnea monitor for the first 8 months. She has alot of different issues, but the hearing loss is all we concentrate on now. It seemed like it took forever for us to get to that point, but it was well worth it. She was big she was 4lbs 7oz's. She sure isn't a preemie anymore, I think she is going to tower over my son. Your son is adorable, happy as can be. I have always wanted to make a site and never took the time to learn how to do it. Maybe since both are in school all day I will look into learning how to do that. If you ever feel like rambling feel free to email me off the list. I am still learning ton's on this journey. There's still tons I am learning every day. That is what makes this list so nice. There's always someone out there that has already been at that stage and is on to the next. You will no sooner get all of this down pat and then you will be moving on to the school issues and start all over again educating yourself on more things. Trust me you will have many, many more questions and abbreviations that you don't know, just ask and someone will be sure to answer. On the Listen-Up website Kay has tons of information and help available for everyone, it's especially nice when your just starting out and you what to learn all you can, before the next appointment comes along. Tons of valuable information on that site.( www.listen-up.org ). Another thing that was extremely helpful in the beginning was the free correspondence courses from the Clinc www.jtc.org , it's a free correspondence course sent right to your home with helpful ideas and games to play with your child, they send you videos and all the correspondence free of charge. Also look into getting Early Intervention Services in your area. In PA they came right to your home from birth to three, they sent a TOD (teacher of the deaf) and AV (auditory verbal therapist) through the county. Hope this helps. Take Care, Colleen Newbie! > > > > > > Hi all! My name is and I'm mother to 8 month old Christian. He > was born 16 weeks early. Just before hospital discharge (he was 4 months 1 > week old), they did a hearing test, which Christian failed. They followed > that up about a week later with an abr test. The results showed > moderate-severe hearing loss. After discharge, we saw and audiologist for > further testing. Christian had another abr test about 1 1/2 months ago. > The results were Profound hearing loss. That day we received his hearing > aids. Obviously they aren't doing any good. He should get the ci in about > 5 months. I'm here to help as I can and to receive help as needed! > > > > www.geocities.com/s_lynne_flores/Christian.html > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 Phase one is a little challenging. Most find that it works and works well as far as cravings -- provided you actually follow the book. You will find one very interesting thing when you move to phase 2. And that is how sweet fruit really is all on it's own. I still am amazed by that. Chuck Newbie! > Hope I can get this right! > > Is it really hard in Phase 1? I am a sugar monger right now. Do the > cravings really stop? > > Have a good day! > > Jenn > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 Phase one is a little challenging. Most find that it works and works well as far as cravings -- provided you actually follow the book. You will find one very interesting thing when you move to phase 2. And that is how sweet fruit really is all on it's own. I still am amazed by that. Chuck Newbie! > Hope I can get this right! > > Is it really hard in Phase 1? I am a sugar monger right now. Do the > cravings really stop? > > Have a good day! > > Jenn > > Quote Link to comment Share on other sites More sharing options...
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