Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Welcome ! I'm the mother of 2 year old Leyla Jo and we have done the same thing you're doing now. She has been implanted and turned on for a year now and is doing OK. Not great, not bad, but OK. We are hoping to change that to great soon by enrolling her in a new preschool where she will recieve AV therapy every day. Currently we are only going once a week, and she doesn't " work " well with me at home. I think a lot of that has to do with her age... Anyway, I look forward to getting to know you! B. Mom to Leyla Jo, age 2, profound sensorineual bilaterally, CI 9/17/03 Stepmom to Chase, age 8, hearing wrote: Hi all! My name is and I'm mother to 8 month old Christian. He was born 16 weeks early. Just before hospital discharge (he was 4 months 1 week old), they did a hearing test, which Christian failed. They followed that up about a week later with an abr test. The results showed moderate-severe hearing loss. After discharge, we saw and audiologist for further testing. Christian had another abr test about 1 1/2 months ago. The results were Profound hearing loss. That day we received his hearing aids. Obviously they aren't doing any good. He should get the ci in about 5 months. I'm here to help as I can and to receive help as needed! www.geocities.com/s_lynne_flores/Christian.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Welcome ! I'm the mother of 2 year old Leyla Jo and we have done the same thing you're doing now. She has been implanted and turned on for a year now and is doing OK. Not great, not bad, but OK. We are hoping to change that to great soon by enrolling her in a new preschool where she will recieve AV therapy every day. Currently we are only going once a week, and she doesn't " work " well with me at home. I think a lot of that has to do with her age... Anyway, I look forward to getting to know you! B. Mom to Leyla Jo, age 2, profound sensorineual bilaterally, CI 9/17/03 Stepmom to Chase, age 8, hearing wrote: Hi all! My name is and I'm mother to 8 month old Christian. He was born 16 weeks early. Just before hospital discharge (he was 4 months 1 week old), they did a hearing test, which Christian failed. They followed that up about a week later with an abr test. The results showed moderate-severe hearing loss. After discharge, we saw and audiologist for further testing. Christian had another abr test about 1 1/2 months ago. The results were Profound hearing loss. That day we received his hearing aids. Obviously they aren't doing any good. He should get the ci in about 5 months. I'm here to help as I can and to receive help as needed! www.geocities.com/s_lynne_flores/Christian.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Thanks . How old was she when she had the implant? Christian will be 13 months old. It should be done in March/April of next year. And what is AV therapy. Never heard of it. I hope the preschool helps her! Can you explain the " signals " they said he would " receive " . I don't quite understand what that means! Thanks again ! B wrote: Welcome ! I'm the mother of 2 year old Leyla Jo and we have done the same thing you're doing now. She has been implanted and turned on for a year now and is doing OK. Not great, not bad, but OK. We are hoping to change that to great soon by enrolling her in a new preschool where she will recieve AV therapy every day. Currently we are only going once a week, and she doesn't " work " well with me at home. I think a lot of that has to do with her age... Anyway, I look forward to getting to know you! B. Mom to Leyla Jo, age 2, profound sensorineual bilaterally, CI 9/17/03 Stepmom to Chase, age 8, hearing wrote: Hi all! My name is and I'm mother to 8 month old Christian. He was born 16 weeks early. Just before hospital discharge (he was 4 months 1 week old), they did a hearing test, which Christian failed. They followed that up about a week later with an abr test. The results showed moderate-severe hearing loss. After discharge, we saw and audiologist for further testing. Christian had another abr test about 1 1/2 months ago. The results were Profound hearing loss. That day we received his hearing aids. Obviously they aren't doing any good. He should get the ci in about 5 months. I'm here to help as I can and to receive help as needed! www.geocities.com/s_lynne_flores/Christian.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Thanks . How old was she when she had the implant? Christian will be 13 months old. It should be done in March/April of next year. And what is AV therapy. Never heard of it. I hope the preschool helps her! Can you explain the " signals " they said he would " receive " . I don't quite understand what that means! Thanks again ! B wrote: Welcome ! I'm the mother of 2 year old Leyla Jo and we have done the same thing you're doing now. She has been implanted and turned on for a year now and is doing OK. Not great, not bad, but OK. We are hoping to change that to great soon by enrolling her in a new preschool where she will recieve AV therapy every day. Currently we are only going once a week, and she doesn't " work " well with me at home. I think a lot of that has to do with her age... Anyway, I look forward to getting to know you! B. Mom to Leyla Jo, age 2, profound sensorineual bilaterally, CI 9/17/03 Stepmom to Chase, age 8, hearing wrote: Hi all! My name is and I'm mother to 8 month old Christian. He was born 16 weeks early. Just before hospital discharge (he was 4 months 1 week old), they did a hearing test, which Christian failed. They followed that up about a week later with an abr test. The results showed moderate-severe hearing loss. After discharge, we saw and audiologist for further testing. Christian had another abr test about 1 1/2 months ago. The results were Profound hearing loss. That day we received his hearing aids. Obviously they aren't doing any good. He should get the ci in about 5 months. I'm here to help as I can and to receive help as needed! www.geocities.com/s_lynne_flores/Christian.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 , Welcome to the group. Asyou can see, it's a nice group of people. I am Jill, mother of 2. Ian (14) is HOH with a moderate conductive loss in both ears. He is aided in both ears, uses an FM system at school and recieves services from a TOD (teacher of the deaf). He is completely verbal. We discovered his hearing lossvery late -- when he was about 7. So his loss is post-lingual. We've no idea when the loss started, only that we found out about it when it was about a 35 db loss in one ear. Both ears lost ground until he now has approxiamtely a 50 db loss in both ears. He used to have a cookie bite shaped loss, but over the past year it has flattened out to about 50 dbs across the board. For wahtever reason, this eyar he lost the high and low frequencies, but the middle ranges satyed pretty much the same. This year he is a freshman in our local high school. He has always been mainstreamed. I'm now telling him to stop growing up because I simply refuse to have a high-school-age child (grin). He's a wonderful kid and we adore him. My other child is our daughter who is 10 going on 25. She is bright, funny, outgoing and incredibly talkative, unlike our son who is very soft spoken. They're opposites when it comes to personality. It's never a dull house around here. And, of course, there's my husband. We've been married for 22 years. I'm amazed. It certainly sounds longer than it feels. So, welcome to the list. Ask lots of questions. Any advice or stories that you're willing to share will be enjoyed and hashed over by many. There are lively debates, in-depth discussions, and always respect for all choices made by parents. There is no one right choice for every kid and that's why we're here. To find what works for our own child and share that experience. All communication modalities are discussed and questions get answered to the best of our shared abilities. It's a great group. Welcome again -- Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 , Welcome to the group. Asyou can see, it's a nice group of people. I am Jill, mother of 2. Ian (14) is HOH with a moderate conductive loss in both ears. He is aided in both ears, uses an FM system at school and recieves services from a TOD (teacher of the deaf). He is completely verbal. We discovered his hearing lossvery late -- when he was about 7. So his loss is post-lingual. We've no idea when the loss started, only that we found out about it when it was about a 35 db loss in one ear. Both ears lost ground until he now has approxiamtely a 50 db loss in both ears. He used to have a cookie bite shaped loss, but over the past year it has flattened out to about 50 dbs across the board. For wahtever reason, this eyar he lost the high and low frequencies, but the middle ranges satyed pretty much the same. This year he is a freshman in our local high school. He has always been mainstreamed. I'm now telling him to stop growing up because I simply refuse to have a high-school-age child (grin). He's a wonderful kid and we adore him. My other child is our daughter who is 10 going on 25. She is bright, funny, outgoing and incredibly talkative, unlike our son who is very soft spoken. They're opposites when it comes to personality. It's never a dull house around here. And, of course, there's my husband. We've been married for 22 years. I'm amazed. It certainly sounds longer than it feels. So, welcome to the list. Ask lots of questions. Any advice or stories that you're willing to share will be enjoyed and hashed over by many. There are lively debates, in-depth discussions, and always respect for all choices made by parents. There is no one right choice for every kid and that's why we're here. To find what works for our own child and share that experience. All communication modalities are discussed and questions get answered to the best of our shared abilities. It's a great group. Welcome again -- Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Hi , Nice to meet you. My name is Debbie and I'm mom to who is 5 and who is 2. has a moderate sloping to severe bilateral SNHL that was discovered when she was 2 1/2. We all believe that she was born with this loss. She currently attends kindergarten in a mainstreamed classroom, and is the only child with a hearing loss at her school. Welcome to the group! Debbie wrote: Hi all! My name is and I'm mother to 8 month old Christian. He was born 16 weeks early. Just before hospital discharge (he was 4 months 1 week old), they did a hearing test, which Christian failed. They followed that up about a week later with an abr test. The results showed moderate-severe hearing loss. After discharge, we saw and audiologist for further testing. Christian had another abr test about 1 1/2 months ago. The results were Profound hearing loss. That day we received his hearing aids. Obviously they aren't doing any good. He should get the ci in about 5 months. I'm here to help as I can and to receive help as needed! www.geocities.com/s_lynne_flores/Christian.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Thanks Debbie. I'm still getting familiarized with all the " hearing loss " talk. I'm used to nicu talk. LOL! What, exactly, is SNHL? Deb DiAnni wrote: Hi , Nice to meet you. My name is Debbie and I'm mom to who is 5 and who is 2. has a moderate sloping to severe bilateral SNHL that was discovered when she was 2 1/2. We all believe that she was born with this loss. She currently attends kindergarten in a mainstreamed classroom, and is the only child with a hearing loss at her school. Welcome to the group! Debbie wrote: Hi all! My name is and I'm mother to 8 month old Christian. He was born 16 weeks early. Just before hospital discharge (he was 4 months 1 week old), they did a hearing test, which Christian failed. They followed that up about a week later with an abr test. The results showed moderate-severe hearing loss. After discharge, we saw and audiologist for further testing. Christian had another abr test about 1 1/2 months ago. The results were Profound hearing loss. That day we received his hearing aids. Obviously they aren't doing any good. He should get the ci in about 5 months. I'm here to help as I can and to receive help as needed! www.geocities.com/s_lynne_flores/Christian.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Thanks Debbie. I'm still getting familiarized with all the " hearing loss " talk. I'm used to nicu talk. LOL! What, exactly, is SNHL? Deb DiAnni wrote: Hi , Nice to meet you. My name is Debbie and I'm mom to who is 5 and who is 2. has a moderate sloping to severe bilateral SNHL that was discovered when she was 2 1/2. We all believe that she was born with this loss. She currently attends kindergarten in a mainstreamed classroom, and is the only child with a hearing loss at her school. Welcome to the group! Debbie wrote: Hi all! My name is and I'm mother to 8 month old Christian. He was born 16 weeks early. Just before hospital discharge (he was 4 months 1 week old), they did a hearing test, which Christian failed. They followed that up about a week later with an abr test. The results showed moderate-severe hearing loss. After discharge, we saw and audiologist for further testing. Christian had another abr test about 1 1/2 months ago. The results were Profound hearing loss. That day we received his hearing aids. Obviously they aren't doing any good. He should get the ci in about 5 months. I'm here to help as I can and to receive help as needed! www.geocities.com/s_lynne_flores/Christian.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Colleen, preemie stuff stinks huh? Christian has BPD. Besides deafness (which we think was caused by a combo of long ventilation (14 weeks), gent use (several times) and his extreme low birth weight (1 lb 6oz or 630 grams), his BPD is his only " remaining " premature issue. He's on meds for jaundice (we did blood work to see if it's gone and then he'll lose one med. Will find results on the 19th) and " fluid " in his lungs (we had an x-ray to see if it's better and to us it looked better-but doc will ultimately tell. Also get results on the 19th). Christian came home on o2 (lasted 1 month after hospital discharge), ng tube (lasted about 2 weeks after he came home and we used it about 10 times), apnea monitor (still have to use at night but since we got the " belt " at beg of August, we've had no alarms so at our pulm appt on the 19th, we're thinking it will go too!), svn machine (down to 2 daily treatments with only 2 meds, from 3 treatments daily and 3 meds). He also received a pulseox shortly after he came home. We don't use it anymore, but it's still sitting in his room, like his o2 is still sitting all over my house. LOL! Sorry, I'm probably compelety boring the group. I'll shut up now! www.geocities.com/s_lynne_flores/Christian.html His website has birth pics and current pics along with a " journal " since he's come home! Colleen Guth wrote: Hi , Welcome to this wonderful list of support and help. I have a 6 year old daughter who was born 7 weeks early, and also failed the newborn hearing screening in both ears. We had conflicting ABR's up to 7 months old and wasn't aided until 7 months old due to that. She has a moderate to severe conductive hearing loss. She gets great benefit from her aids. Her speech and articulation were slow going. For the longest time only family members understood what she says. Around 3 1/2 years old her speech and language really took off and now she talks non-stop. She has some articulation issues which she was finally diagnosed with VPI (velopharyngeal dysfunction) and will be having surgery on November 3 to correct the nasal emissions. She has always had a love for music and loves to sing and loves to be read to. She just entered Kindergarten and is doing well so far. Since she has been born, we have been on a wild rollercoaster ride. That goes up and down and sometimes stops for a while. She has other issues besides hearing loss, however with her strong will and the desire to do the things she loves she continues to shock the professionals and even us. We have had many tears, but there has been and enormous amount of joy that comes with them. She is so happy and full of life and nothing stops her. She has been a true blessing to us. This list is full of wonderful people who have all been there and understand what your going through and feeling. Welcome to the list where you will find an enormous amount of wisdom and knowledge. Take Care Mom to le 6 (mod.to sev loss,asthma,scoliosis,'s Anomaly Left eye, etc) 10 (hearing, asthma and allergies) Newbie! > > Hi all! My name is and I'm mother to 8 month old Christian. He was born 16 weeks early. Just before hospital discharge (he was 4 months 1 week old), they did a hearing test, which Christian failed. They followed that up about a week later with an abr test. The results showed moderate-severe hearing loss. After discharge, we saw and audiologist for further testing. Christian had another abr test about 1 1/2 months ago. The results were Profound hearing loss. That day we received his hearing aids. Obviously they aren't doing any good. He should get the ci in about 5 months. I'm here to help as I can and to receive help as needed! > > www.geocities.com/s_lynne_flores/Christian.html > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Colleen, preemie stuff stinks huh? Christian has BPD. Besides deafness (which we think was caused by a combo of long ventilation (14 weeks), gent use (several times) and his extreme low birth weight (1 lb 6oz or 630 grams), his BPD is his only " remaining " premature issue. He's on meds for jaundice (we did blood work to see if it's gone and then he'll lose one med. Will find results on the 19th) and " fluid " in his lungs (we had an x-ray to see if it's better and to us it looked better-but doc will ultimately tell. Also get results on the 19th). Christian came home on o2 (lasted 1 month after hospital discharge), ng tube (lasted about 2 weeks after he came home and we used it about 10 times), apnea monitor (still have to use at night but since we got the " belt " at beg of August, we've had no alarms so at our pulm appt on the 19th, we're thinking it will go too!), svn machine (down to 2 daily treatments with only 2 meds, from 3 treatments daily and 3 meds). He also received a pulseox shortly after he came home. We don't use it anymore, but it's still sitting in his room, like his o2 is still sitting all over my house. LOL! Sorry, I'm probably compelety boring the group. I'll shut up now! www.geocities.com/s_lynne_flores/Christian.html His website has birth pics and current pics along with a " journal " since he's come home! Colleen Guth wrote: Hi , Welcome to this wonderful list of support and help. I have a 6 year old daughter who was born 7 weeks early, and also failed the newborn hearing screening in both ears. We had conflicting ABR's up to 7 months old and wasn't aided until 7 months old due to that. She has a moderate to severe conductive hearing loss. She gets great benefit from her aids. Her speech and articulation were slow going. For the longest time only family members understood what she says. Around 3 1/2 years old her speech and language really took off and now she talks non-stop. She has some articulation issues which she was finally diagnosed with VPI (velopharyngeal dysfunction) and will be having surgery on November 3 to correct the nasal emissions. She has always had a love for music and loves to sing and loves to be read to. She just entered Kindergarten and is doing well so far. Since she has been born, we have been on a wild rollercoaster ride. That goes up and down and sometimes stops for a while. She has other issues besides hearing loss, however with her strong will and the desire to do the things she loves she continues to shock the professionals and even us. We have had many tears, but there has been and enormous amount of joy that comes with them. She is so happy and full of life and nothing stops her. She has been a true blessing to us. This list is full of wonderful people who have all been there and understand what your going through and feeling. Welcome to the list where you will find an enormous amount of wisdom and knowledge. Take Care Mom to le 6 (mod.to sev loss,asthma,scoliosis,'s Anomaly Left eye, etc) 10 (hearing, asthma and allergies) Newbie! > > Hi all! My name is and I'm mother to 8 month old Christian. He was born 16 weeks early. Just before hospital discharge (he was 4 months 1 week old), they did a hearing test, which Christian failed. They followed that up about a week later with an abr test. The results showed moderate-severe hearing loss. After discharge, we saw and audiologist for further testing. Christian had another abr test about 1 1/2 months ago. The results were Profound hearing loss. That day we received his hearing aids. Obviously they aren't doing any good. He should get the ci in about 5 months. I'm here to help as I can and to receive help as needed! > > www.geocities.com/s_lynne_flores/Christian.html > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Sorry to bother you, but what is that? Colleen Guth wrote: Sensorineural Hearing loss. Re: Newbie! > > Thanks Debbie. I'm still getting familiarized with all the " hearing loss " talk. I'm used to nicu talk. LOL! What, exactly, is SNHL? > > > Deb DiAnni wrote: > Hi , > > Nice to meet you. My name is Debbie and I'm mom to who is 5 and who is 2. has a moderate sloping to severe bilateral SNHL that was discovered when she was 2 1/2. We all believe that she was born with this loss. She currently attends kindergarten in a mainstreamed classroom, and is the only child with a hearing loss at her school. > > Welcome to the group! > Debbie > > wrote: > Hi all! My name is and I'm mother to 8 month old Christian. He was born 16 weeks early. Just before hospital discharge (he was 4 months 1 week old), they did a hearing test, which Christian failed. They followed that up about a week later with an abr test. The results showed moderate-severe hearing loss. After discharge, we saw and audiologist for further testing. Christian had another abr test about 1 1/2 months ago. The results were Profound hearing loss. That day we received his hearing aids. Obviously they aren't doing any good. He should get the ci in about 5 months. I'm here to help as I can and to receive help as needed! > > www.geocities.com/s_lynne_flores/Christian.html > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Sorry to bother you, but what is that? Colleen Guth wrote: Sensorineural Hearing loss. Re: Newbie! > > Thanks Debbie. I'm still getting familiarized with all the " hearing loss " talk. I'm used to nicu talk. LOL! What, exactly, is SNHL? > > > Deb DiAnni wrote: > Hi , > > Nice to meet you. My name is Debbie and I'm mom to who is 5 and who is 2. has a moderate sloping to severe bilateral SNHL that was discovered when she was 2 1/2. We all believe that she was born with this loss. She currently attends kindergarten in a mainstreamed classroom, and is the only child with a hearing loss at her school. > > Welcome to the group! > Debbie > > wrote: > Hi all! My name is and I'm mother to 8 month old Christian. He was born 16 weeks early. Just before hospital discharge (he was 4 months 1 week old), they did a hearing test, which Christian failed. They followed that up about a week later with an abr test. The results showed moderate-severe hearing loss. After discharge, we saw and audiologist for further testing. Christian had another abr test about 1 1/2 months ago. The results were Profound hearing loss. That day we received his hearing aids. Obviously they aren't doing any good. He should get the ci in about 5 months. I'm here to help as I can and to receive help as needed! > > www.geocities.com/s_lynne_flores/Christian.html > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Hi , Welcome to this wonderful list of support and help. I have a 6 year old daughter who was born 7 weeks early, and also failed the newborn hearing screening in both ears. We had conflicting ABR's up to 7 months old and wasn't aided until 7 months old due to that. She has a moderate to severe conductive hearing loss. She gets great benefit from her aids. Her speech and articulation were slow going. For the longest time only family members understood what she says. Around 3 1/2 years old her speech and language really took off and now she talks non-stop. She has some articulation issues which she was finally diagnosed with VPI (velopharyngeal dysfunction) and will be having surgery on November 3 to correct the nasal emissions. She has always had a love for music and loves to sing and loves to be read to. She just entered Kindergarten and is doing well so far. Since she has been born, we have been on a wild rollercoaster ride. That goes up and down and sometimes stops for a while. She has other issues besides hearing loss, however with her strong will and the desire to do the things she loves she continues to shock the professionals and even us. We have had many tears, but there has been and enormous amount of joy that comes with them. She is so happy and full of life and nothing stops her. She has been a true blessing to us. This list is full of wonderful people who have all been there and understand what your going through and feeling. Welcome to the list where you will find an enormous amount of wisdom and knowledge. Take Care Mom to le 6 (mod.to sev loss,asthma,scoliosis,'s Anomaly Left eye, etc) 10 (hearing, asthma and allergies) Newbie! > > Hi all! My name is and I'm mother to 8 month old Christian. He was born 16 weeks early. Just before hospital discharge (he was 4 months 1 week old), they did a hearing test, which Christian failed. They followed that up about a week later with an abr test. The results showed moderate-severe hearing loss. After discharge, we saw and audiologist for further testing. Christian had another abr test about 1 1/2 months ago. The results were Profound hearing loss. That day we received his hearing aids. Obviously they aren't doing any good. He should get the ci in about 5 months. I'm here to help as I can and to receive help as needed! > > www.geocities.com/s_lynne_flores/Christian.html > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Hi , Welcome to this wonderful list of support and help. I have a 6 year old daughter who was born 7 weeks early, and also failed the newborn hearing screening in both ears. We had conflicting ABR's up to 7 months old and wasn't aided until 7 months old due to that. She has a moderate to severe conductive hearing loss. She gets great benefit from her aids. Her speech and articulation were slow going. For the longest time only family members understood what she says. Around 3 1/2 years old her speech and language really took off and now she talks non-stop. She has some articulation issues which she was finally diagnosed with VPI (velopharyngeal dysfunction) and will be having surgery on November 3 to correct the nasal emissions. She has always had a love for music and loves to sing and loves to be read to. She just entered Kindergarten and is doing well so far. Since she has been born, we have been on a wild rollercoaster ride. That goes up and down and sometimes stops for a while. She has other issues besides hearing loss, however with her strong will and the desire to do the things she loves she continues to shock the professionals and even us. We have had many tears, but there has been and enormous amount of joy that comes with them. She is so happy and full of life and nothing stops her. She has been a true blessing to us. This list is full of wonderful people who have all been there and understand what your going through and feeling. Welcome to the list where you will find an enormous amount of wisdom and knowledge. Take Care Mom to le 6 (mod.to sev loss,asthma,scoliosis,'s Anomaly Left eye, etc) 10 (hearing, asthma and allergies) Newbie! > > Hi all! My name is and I'm mother to 8 month old Christian. He was born 16 weeks early. Just before hospital discharge (he was 4 months 1 week old), they did a hearing test, which Christian failed. They followed that up about a week later with an abr test. The results showed moderate-severe hearing loss. After discharge, we saw and audiologist for further testing. Christian had another abr test about 1 1/2 months ago. The results were Profound hearing loss. That day we received his hearing aids. Obviously they aren't doing any good. He should get the ci in about 5 months. I'm here to help as I can and to receive help as needed! > > www.geocities.com/s_lynne_flores/Christian.html > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Sensorineural Hearing loss. Re: Newbie! > > Thanks Debbie. I'm still getting familiarized with all the " hearing loss " talk. I'm used to nicu talk. LOL! What, exactly, is SNHL? > > > Deb DiAnni wrote: > Hi , > > Nice to meet you. My name is Debbie and I'm mom to who is 5 and who is 2. has a moderate sloping to severe bilateral SNHL that was discovered when she was 2 1/2. We all believe that she was born with this loss. She currently attends kindergarten in a mainstreamed classroom, and is the only child with a hearing loss at her school. > > Welcome to the group! > Debbie > > wrote: > Hi all! My name is and I'm mother to 8 month old Christian. He was born 16 weeks early. Just before hospital discharge (he was 4 months 1 week old), they did a hearing test, which Christian failed. They followed that up about a week later with an abr test. The results showed moderate-severe hearing loss. After discharge, we saw and audiologist for further testing. Christian had another abr test about 1 1/2 months ago. The results were Profound hearing loss. That day we received his hearing aids. Obviously they aren't doing any good. He should get the ci in about 5 months. I'm here to help as I can and to receive help as needed! > > www.geocities.com/s_lynne_flores/Christian.html > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Sensorineural Hearing loss. Re: Newbie! > > Thanks Debbie. I'm still getting familiarized with all the " hearing loss " talk. I'm used to nicu talk. LOL! What, exactly, is SNHL? > > > Deb DiAnni wrote: > Hi , > > Nice to meet you. My name is Debbie and I'm mom to who is 5 and who is 2. has a moderate sloping to severe bilateral SNHL that was discovered when she was 2 1/2. We all believe that she was born with this loss. She currently attends kindergarten in a mainstreamed classroom, and is the only child with a hearing loss at her school. > > Welcome to the group! > Debbie > > wrote: > Hi all! My name is and I'm mother to 8 month old Christian. He was born 16 weeks early. Just before hospital discharge (he was 4 months 1 week old), they did a hearing test, which Christian failed. They followed that up about a week later with an abr test. The results showed moderate-severe hearing loss. After discharge, we saw and audiologist for further testing. Christian had another abr test about 1 1/2 months ago. The results were Profound hearing loss. That day we received his hearing aids. Obviously they aren't doing any good. He should get the ci in about 5 months. I'm here to help as I can and to receive help as needed! > > www.geocities.com/s_lynne_flores/Christian.html > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 , No bother at all. There are different types of hearing loss, here they are: Sensorineural hearing loss occurs when there is damage to the inner ear (cochlea) or to the nerve pathways from the inner ear (retrocochlear pathway of the acoustic nerve) to the brain. Sensorineural hearing loss not only involves a reduction in sound level, or ability to hear faint sounds, but also affects speech understanding or ability to hear clearly. Conductive hearing loss occurs when sound is not conducted efficiently through the outer and middle ears, including the ear canal, eardrum, and the tiny bones, or ossicles, of the middle ear. Conductive hearing loss usually involves a reduction in sound level, or the ability to hear faint sounds. Absence or malformation of the pinna, ear canal, or ossicles can cause a conductive hearing loss. Presence of a foreign body; impacted ear wax (cerumen); fluid in the ear associated with colds, allergies, ear infections (otitis media); or a poorly functioning eustachian tube are all examples of conditions that may cause a conductive hearing loss. Sometimes a conductive hearing loss occurs in combination with a sensorineural hearing loss. In other words, there may be damage in the outer or middle ear and in the cochlea or auditory nerve. When this occurs, the hearing loss is referred to as a mixed hearing loss. Mixed Loss is when there may be damage in the outer or middle ear and in the cochlea or auditory nerve. When this occurs, the hearing loss is referred to as a mixed hearing loss. Hope this helps. Colleen Re: Newbie! > > > > > > Thanks Debbie. I'm still getting familiarized with all the " hearing loss " > talk. I'm used to nicu talk. LOL! What, exactly, is SNHL? > > > > > > Deb DiAnni wrote: > > Hi , > > > > Nice to meet you. My name is Debbie and I'm mom to who is 5 and > who is 2. has a moderate sloping to severe bilateral SNHL > that was discovered when she was 2 1/2. We all believe that she was born > with this loss. She currently attends kindergarten in a mainstreamed > classroom, and is the only child with a hearing loss at her school. > > > > Welcome to the group! > > Debbie > > > > wrote: > > Hi all! My name is and I'm mother to 8 month old Christian. He > was born 16 weeks early. Just before hospital discharge (he was 4 months 1 > week old), they did a hearing test, which Christian failed. They followed > that up about a week later with an abr test. The results showed > moderate-severe hearing loss. After discharge, we saw and audiologist for > further testing. Christian had another abr test about 1 1/2 months ago. > The results were Profound hearing loss. That day we received his hearing > aids. Obviously they aren't doing any good. He should get the ci in about > 5 months. I'm here to help as I can and to receive help as needed! > > > > www.geocities.com/s_lynne_flores/Christian.html > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 , No bother at all. There are different types of hearing loss, here they are: Sensorineural hearing loss occurs when there is damage to the inner ear (cochlea) or to the nerve pathways from the inner ear (retrocochlear pathway of the acoustic nerve) to the brain. Sensorineural hearing loss not only involves a reduction in sound level, or ability to hear faint sounds, but also affects speech understanding or ability to hear clearly. Conductive hearing loss occurs when sound is not conducted efficiently through the outer and middle ears, including the ear canal, eardrum, and the tiny bones, or ossicles, of the middle ear. Conductive hearing loss usually involves a reduction in sound level, or the ability to hear faint sounds. Absence or malformation of the pinna, ear canal, or ossicles can cause a conductive hearing loss. Presence of a foreign body; impacted ear wax (cerumen); fluid in the ear associated with colds, allergies, ear infections (otitis media); or a poorly functioning eustachian tube are all examples of conditions that may cause a conductive hearing loss. Sometimes a conductive hearing loss occurs in combination with a sensorineural hearing loss. In other words, there may be damage in the outer or middle ear and in the cochlea or auditory nerve. When this occurs, the hearing loss is referred to as a mixed hearing loss. Mixed Loss is when there may be damage in the outer or middle ear and in the cochlea or auditory nerve. When this occurs, the hearing loss is referred to as a mixed hearing loss. Hope this helps. Colleen Re: Newbie! > > > > > > Thanks Debbie. I'm still getting familiarized with all the " hearing loss " > talk. I'm used to nicu talk. LOL! What, exactly, is SNHL? > > > > > > Deb DiAnni wrote: > > Hi , > > > > Nice to meet you. My name is Debbie and I'm mom to who is 5 and > who is 2. has a moderate sloping to severe bilateral SNHL > that was discovered when she was 2 1/2. We all believe that she was born > with this loss. She currently attends kindergarten in a mainstreamed > classroom, and is the only child with a hearing loss at her school. > > > > Welcome to the group! > > Debbie > > > > wrote: > > Hi all! My name is and I'm mother to 8 month old Christian. He > was born 16 weeks early. Just before hospital discharge (he was 4 months 1 > week old), they did a hearing test, which Christian failed. They followed > that up about a week later with an abr test. The results showed > moderate-severe hearing loss. After discharge, we saw and audiologist for > further testing. Christian had another abr test about 1 1/2 months ago. > The results were Profound hearing loss. That day we received his hearing > aids. Obviously they aren't doing any good. He should get the ci in about > 5 months. I'm here to help as I can and to receive help as needed! > > > > www.geocities.com/s_lynne_flores/Christian.html > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 , Lol, I remember that first year too well. But it's amazing how fast we move on. le was on the apnea monitor for the first 8 months. She has alot of different issues, but the hearing loss is all we concentrate on now. It seemed like it took forever for us to get to that point, but it was well worth it. She was big she was 4lbs 7oz's. She sure isn't a preemie anymore, I think she is going to tower over my son. Your son is adorable, happy as can be. I have always wanted to make a site and never took the time to learn how to do it. Maybe since both are in school all day I will look into learning how to do that. If you ever feel like rambling feel free to email me off the list. I am still learning ton's on this journey. There's still tons I am learning every day. That is what makes this list so nice. There's always someone out there that has already been at that stage and is on to the next. You will no sooner get all of this down pat and then you will be moving on to the school issues and start all over again educating yourself on more things. Trust me you will have many, many more questions and abbreviations that you don't know, just ask and someone will be sure to answer. On the Listen-Up website Kay has tons of information and help available for everyone, it's especially nice when your just starting out and you what to learn all you can, before the next appointment comes along. Tons of valuable information on that site.( www.listen-up.org ). Another thing that was extremely helpful in the beginning was the free correspondence courses from the Clinc www.jtc.org , it's a free correspondence course sent right to your home with helpful ideas and games to play with your child, they send you videos and all the correspondence free of charge. Also look into getting Early Intervention Services in your area. In PA they came right to your home from birth to three, they sent a TOD (teacher of the deaf) and AV (auditory verbal therapist) through the county. Hope this helps. Take Care, Colleen Newbie! > > > > > > Hi all! My name is and I'm mother to 8 month old Christian. He > was born 16 weeks early. Just before hospital discharge (he was 4 months 1 > week old), they did a hearing test, which Christian failed. They followed > that up about a week later with an abr test. The results showed > moderate-severe hearing loss. After discharge, we saw and audiologist for > further testing. Christian had another abr test about 1 1/2 months ago. > The results were Profound hearing loss. That day we received his hearing > aids. Obviously they aren't doing any good. He should get the ci in about > 5 months. I'm here to help as I can and to receive help as needed! > > > > www.geocities.com/s_lynne_flores/Christian.html > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 Thanks Colleen, it does. I remember they said that Christian has the bilateral conductive hearing loss. He has no damage to any of the nerves. I'm sure I'll be asking tons of questions and down the road, I'm sure I'll be answering tons of questions (for other newbies). I sure appreciate all of your help! Colleen Guth wrote: , No bother at all. There are different types of hearing loss, here they are: Sensorineural hearing loss occurs when there is damage to the inner ear (cochlea) or to the nerve pathways from the inner ear (retrocochlear pathway of the acoustic nerve) to the brain. Sensorineural hearing loss not only involves a reduction in sound level, or ability to hear faint sounds, but also affects speech understanding or ability to hear clearly. Conductive hearing loss occurs when sound is not conducted efficiently through the outer and middle ears, including the ear canal, eardrum, and the tiny bones, or ossicles, of the middle ear. Conductive hearing loss usually involves a reduction in sound level, or the ability to hear faint sounds. Absence or malformation of the pinna, ear canal, or ossicles can cause a conductive hearing loss. Presence of a foreign body; impacted ear wax (cerumen); fluid in the ear associated with colds, allergies, ear infections (otitis media); or a poorly functioning eustachian tube are all examples of conditions that may cause a conductive hearing loss. Sometimes a conductive hearing loss occurs in combination with a sensorineural hearing loss. In other words, there may be damage in the outer or middle ear and in the cochlea or auditory nerve. When this occurs, the hearing loss is referred to as a mixed hearing loss. Mixed Loss is when there may be damage in the outer or middle ear and in the cochlea or auditory nerve. When this occurs, the hearing loss is referred to as a mixed hearing loss. Hope this helps. Colleen Re: Newbie! > > > > > > Thanks Debbie. I'm still getting familiarized with all the " hearing loss " > talk. I'm used to nicu talk. LOL! What, exactly, is SNHL? > > > > > > Deb DiAnni wrote: > > Hi , > > > > Nice to meet you. My name is Debbie and I'm mom to who is 5 and > who is 2. has a moderate sloping to severe bilateral SNHL > that was discovered when she was 2 1/2. We all believe that she was born > with this loss. She currently attends kindergarten in a mainstreamed > classroom, and is the only child with a hearing loss at her school. > > > > Welcome to the group! > > Debbie > > > > wrote: > > Hi all! My name is and I'm mother to 8 month old Christian. He > was born 16 weeks early. Just before hospital discharge (he was 4 months 1 > week old), they did a hearing test, which Christian failed. They followed > that up about a week later with an abr test. The results showed > moderate-severe hearing loss. After discharge, we saw and audiologist for > further testing. Christian had another abr test about 1 1/2 months ago. > The results were Profound hearing loss. That day we received his hearing > aids. Obviously they aren't doing any good. He should get the ci in about > 5 months. I'm here to help as I can and to receive help as needed! > > > > www.geocities.com/s_lynne_flores/Christian.html > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 Hi , Leyla was 12 months old when she was implanted, actually 9 days after her birthday. AV Is short for Auditory/Verbal Therapy. Basically speech therapy with exercises designed to " teach " them how to listen. As far as the signals he will recieve, I guess the easiest way to explain it would be to say that he is going to hear electronically. The electronic signals his brain will recieve from his processor that will be interpreted by the brain as sound. Sort of like any electronic device (TV, radio) that relies on signals to operate. Does that make sense? wrote: Thanks . How old was she when she had the implant? Christian will be 13 months old. It should be done in March/April of next year. And what is AV therapy. Never heard of it. I hope the preschool helps her! Can you explain the " signals " they said he would " receive " . I don't quite understand what that means! Thanks again ! B wrote: Welcome ! I'm the mother of 2 year old Leyla Jo and we have done the same thing you're doing now. She has been implanted and turned on for a year now and is doing OK. Not great, not bad, but OK. We are hoping to change that to great soon by enrolling her in a new preschool where she will recieve AV therapy every day. Currently we are only going once a week, and she doesn't " work " well with me at home. I think a lot of that has to do with her age... Anyway, I look forward to getting to know you! B. Mom to Leyla Jo, age 2, profound sensorineual bilaterally, CI 9/17/03 Stepmom to Chase, age 8, hearing wrote: Hi all! My name is and I'm mother to 8 month old Christian. He was born 16 weeks early. Just before hospital discharge (he was 4 months 1 week old), they did a hearing test, which Christian failed. They followed that up about a week later with an abr test. The results showed moderate-severe hearing loss. After discharge, we saw and audiologist for further testing. Christian had another abr test about 1 1/2 months ago. The results were Profound hearing loss. That day we received his hearing aids. Obviously they aren't doing any good. He should get the ci in about 5 months. I'm here to help as I can and to receive help as needed! www.geocities.com/s_lynne_flores/Christian.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 Hi , Leyla was 12 months old when she was implanted, actually 9 days after her birthday. AV Is short for Auditory/Verbal Therapy. Basically speech therapy with exercises designed to " teach " them how to listen. As far as the signals he will recieve, I guess the easiest way to explain it would be to say that he is going to hear electronically. The electronic signals his brain will recieve from his processor that will be interpreted by the brain as sound. Sort of like any electronic device (TV, radio) that relies on signals to operate. Does that make sense? wrote: Thanks . How old was she when she had the implant? Christian will be 13 months old. It should be done in March/April of next year. And what is AV therapy. Never heard of it. I hope the preschool helps her! Can you explain the " signals " they said he would " receive " . I don't quite understand what that means! Thanks again ! B wrote: Welcome ! I'm the mother of 2 year old Leyla Jo and we have done the same thing you're doing now. She has been implanted and turned on for a year now and is doing OK. Not great, not bad, but OK. We are hoping to change that to great soon by enrolling her in a new preschool where she will recieve AV therapy every day. Currently we are only going once a week, and she doesn't " work " well with me at home. I think a lot of that has to do with her age... Anyway, I look forward to getting to know you! B. Mom to Leyla Jo, age 2, profound sensorineual bilaterally, CI 9/17/03 Stepmom to Chase, age 8, hearing wrote: Hi all! My name is and I'm mother to 8 month old Christian. He was born 16 weeks early. Just before hospital discharge (he was 4 months 1 week old), they did a hearing test, which Christian failed. They followed that up about a week later with an abr test. The results showed moderate-severe hearing loss. After discharge, we saw and audiologist for further testing. Christian had another abr test about 1 1/2 months ago. The results were Profound hearing loss. That day we received his hearing aids. Obviously they aren't doing any good. He should get the ci in about 5 months. I'm here to help as I can and to receive help as needed! www.geocities.com/s_lynne_flores/Christian.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 Hi , Leyla was 12 months old when she was implanted, actually 9 days after her birthday. AV Is short for Auditory/Verbal Therapy. Basically speech therapy with exercises designed to " teach " them how to listen. As far as the signals he will recieve, I guess the easiest way to explain it would be to say that he is going to hear electronically. The electronic signals his brain will recieve from his processor that will be interpreted by the brain as sound. Sort of like any electronic device (TV, radio) that relies on signals to operate. Does that make sense? wrote: Thanks . How old was she when she had the implant? Christian will be 13 months old. It should be done in March/April of next year. And what is AV therapy. Never heard of it. I hope the preschool helps her! Can you explain the " signals " they said he would " receive " . I don't quite understand what that means! Thanks again ! B wrote: Welcome ! I'm the mother of 2 year old Leyla Jo and we have done the same thing you're doing now. She has been implanted and turned on for a year now and is doing OK. Not great, not bad, but OK. We are hoping to change that to great soon by enrolling her in a new preschool where she will recieve AV therapy every day. Currently we are only going once a week, and she doesn't " work " well with me at home. I think a lot of that has to do with her age... Anyway, I look forward to getting to know you! B. Mom to Leyla Jo, age 2, profound sensorineual bilaterally, CI 9/17/03 Stepmom to Chase, age 8, hearing wrote: Hi all! My name is and I'm mother to 8 month old Christian. He was born 16 weeks early. Just before hospital discharge (he was 4 months 1 week old), they did a hearing test, which Christian failed. They followed that up about a week later with an abr test. The results showed moderate-severe hearing loss. After discharge, we saw and audiologist for further testing. Christian had another abr test about 1 1/2 months ago. The results were Profound hearing loss. That day we received his hearing aids. Obviously they aren't doing any good. He should get the ci in about 5 months. I'm here to help as I can and to receive help as needed! www.geocities.com/s_lynne_flores/Christian.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 Thanks . It kinda makes sense. I'm sure as we go along and get closer to implant date, we'll understand better! Was Leyla put under geneneral for the procedure? B wrote: Hi , Leyla was 12 months old when she was implanted, actually 9 days after her birthday. AV Is short for Auditory/Verbal Therapy. Basically speech therapy with exercises designed to " teach " them how to listen. As far as the signals he will recieve, I guess the easiest way to explain it would be to say that he is going to hear electronically. The electronic signals his brain will recieve from his processor that will be interpreted by the brain as sound. Sort of like any electronic device (TV, radio) that relies on signals to operate. Does that make sense? wrote: Thanks . How old was she when she had the implant? Christian will be 13 months old. It should be done in March/April of next year. And what is AV therapy. Never heard of it. I hope the preschool helps her! Can you explain the " signals " they said he would " receive " . I don't quite understand what that means! Thanks again ! B wrote: Welcome ! I'm the mother of 2 year old Leyla Jo and we have done the same thing you're doing now. She has been implanted and turned on for a year now and is doing OK. Not great, not bad, but OK. We are hoping to change that to great soon by enrolling her in a new preschool where she will recieve AV therapy every day. Currently we are only going once a week, and she doesn't " work " well with me at home. I think a lot of that has to do with her age... Anyway, I look forward to getting to know you! B. Mom to Leyla Jo, age 2, profound sensorineual bilaterally, CI 9/17/03 Stepmom to Chase, age 8, hearing wrote: Hi all! My name is and I'm mother to 8 month old Christian. He was born 16 weeks early. Just before hospital discharge (he was 4 months 1 week old), they did a hearing test, which Christian failed. They followed that up about a week later with an abr test. The results showed moderate-severe hearing loss. After discharge, we saw and audiologist for further testing. Christian had another abr test about 1 1/2 months ago. The results were Profound hearing loss. That day we received his hearing aids. Obviously they aren't doing any good. He should get the ci in about 5 months. I'm here to help as I can and to receive help as needed! www.geocities.com/s_lynne_flores/Christian.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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