Re: Dr's visit

[Guest guest]

Is she talking about RAI to kill the gland... or RAI to scan the gland?

I'm still not having a good feeling about her. What is causing you to be hyper DOES make a difference, treatment is different depending on the cause... If you are hyper cuz of Hashi's, using RAI to kill the gland, in my PERSONAL opinion is criminal. It's not that much better if it's Grave's... if there is NO other way, if you are in thyroid storm and can't have surgery..... if you are dealing with cancer, the surgery should be done first and then a LOWer dose of RAI can be used after to kill off remaining tissue.....

But... my opinion here... to say RAI is the only option, that surgery is out, and that it doesn't matter what is causing the gland to over produce AND top that off with not understanding how to use tapazole.....

My eyes see a doc that just wants to prescribe pills, the least effort to her....

That all said.... if RAI ablation (killing the gland) does turn out to be your only option (and I don't think it is on the info so far) I have a page at our website that runs through some things that are handy to know before you have RAI.

www.thyrophoenix.com/rai.htm

Topper () *15 years post RAI, now have lymphedema as a sideaffect*

On Mon, 9 Jan 2006 18:13:51 -0800 (PST) carol sobczak writes:

Hi

I just went to the dr today. She is pressing me to have the radioactive iodine tx. I asked her what caused my thyroid to become overactive and she said it didn't matter. She is also still insistent that I can't take tapazole for more than 18 months. I asked her about the surgery and she said that I am not a candidate for surgery but that she could give me a referal to a surgeon if I really want one. I am starting to feel pushed into a corner and I'm not sure what to do. I still can't believe that it is a good idea to kill off part of my body and I can't be away from my baby for any period of time and I think that is required for the radioactive tx. She's only 16 months old. I do want see if I can find a naturopath but I am feeling overwhelmed. She also said that my blood pressure was unbelievably high. She wanted to give me meds for it but I asked her to give me a few weeks to get it down with diet. I take so much medication now that I don't want to take anymore. I'm only 43 and I feel like I'm falling apart. Any advice would be appreciated. Thanks

Carol Sobczak

[Guest guest]

Is she talking about RAI to kill the gland... or RAI to scan the gland?

I'm still not having a good feeling about her. What is causing you to be hyper DOES make a difference, treatment is different depending on the cause... If you are hyper cuz of Hashi's, using RAI to kill the gland, in my PERSONAL opinion is criminal. It's not that much better if it's Grave's... if there is NO other way, if you are in thyroid storm and can't have surgery..... if you are dealing with cancer, the surgery should be done first and then a LOWer dose of RAI can be used after to kill off remaining tissue.....

But... my opinion here... to say RAI is the only option, that surgery is out, and that it doesn't matter what is causing the gland to over produce AND top that off with not understanding how to use tapazole.....

My eyes see a doc that just wants to prescribe pills, the least effort to her....

That all said.... if RAI ablation (killing the gland) does turn out to be your only option (and I don't think it is on the info so far) I have a page at our website that runs through some things that are handy to know before you have RAI.

www.thyrophoenix.com/rai.htm

Topper () *15 years post RAI, now have lymphedema as a sideaffect*

On Mon, 9 Jan 2006 18:13:51 -0800 (PST) carol sobczak writes:

Hi

I just went to the dr today. She is pressing me to have the radioactive iodine tx. I asked her what caused my thyroid to become overactive and she said it didn't matter. She is also still insistent that I can't take tapazole for more than 18 months. I asked her about the surgery and she said that I am not a candidate for surgery but that she could give me a referal to a surgeon if I really want one. I am starting to feel pushed into a corner and I'm not sure what to do. I still can't believe that it is a good idea to kill off part of my body and I can't be away from my baby for any period of time and I think that is required for the radioactive tx. She's only 16 months old. I do want see if I can find a naturopath but I am feeling overwhelmed. She also said that my blood pressure was unbelievably high. She wanted to give me meds for it but I asked her to give me a few weeks to get it down with diet. I take so much medication now that I don't want to take anymore. I'm only 43 and I feel like I'm falling apart. Any advice would be appreciated. Thanks

Carol Sobczak

[Guest guest]

>

> Is she talking about RAI to kill the gland... or RAI to scan the

gland?

>

> I'm still not having a good feeling about her. What is causing you

to be

> hyper DOES make a difference, treatment is different depending on

the

> cause... If you are hyper cuz of Hashi's, using RAI to kill the

gland, in

> my PERSONAL opinion is criminal. It's not that much better if it's

> Grave's... if there is NO other way, if you are in thyroid storm

and

> can't have surgery..... if you are dealing with cancer, the surgery

> should be done first and then a LOWer dose of RAI can be used

after to

> kill off remaining tissue.....

>

> But... my opinion here... to say RAI is the only option, that

surgery is

> out, and that it doesn't matter what is causing the gland to over

produce

> AND top that off with not understanding how to use tapazole.....

>

> My eyes see a doc that just wants to prescribe pills, the least

effort to

> her....

>

> That all said.... if RAI ablation (killing the gland) does turn

out to be

> your only option (and I don't think it is on the info so far) I

have a

> page at our website that runs through some things that are handy

to know

> before you have RAI.

>

> www.thyrophoenix.com/rai.htm

>

> Topper () *15 years post RAI, now have lymphedema as a

sideaffect*

>

> On Mon, 9 Jan 2006 18:13:51 -0800 (PST) carol sobczak

> <cpsobczak@y...> writes:

> Hi

> I just went to the dr today. She is pressing me to have the

radioactive

> iodine tx. I asked her what caused my thyroid to become

overactive and

> she said it didn't matter. She is also still insistent that I

can't take

> tapazole for more than 18 months. I asked her about the surgery

and she

> said that I am not a candidate for surgery but that she could give

me a

> referal to a surgeon if I really want one. I am starting to feel

pushed

> into a corner and I'm not sure what to do. I still can't believe

that it

> is a good idea to kill off part of my body and I can't be away

from my

> baby for any period of time and I think that is required for the

> radioactive tx. She's only 16 months old. I do want see if I can

find a

> naturopath but I am feeling overwhelmed. She also said that my

blood

> pressure was unbelievably high. She wanted to give me meds for it

but I

> asked her to give me a few weeks to get it down with diet. I take

so

> much medication now that I don't want to take anymore. I'm only

43 and I

> feel like I'm falling apart. Any advice would be appreciated.

Thanks

>

>

>

>

> Carol Sobczak

>

Your pulse is usually high while you are hyper..taking a beta

blocker to help might be a good idea for a few weeks until you

figure out what to do about being hyper..a lot of hypers take a beta

blocker the first month while waiting for ATD's to kick in before

weaning off of them.

I agree with Topper though..you can not treat hyper properly with

out finding out the reason why first..

Being hyper is just a symptom..your thyroid is producing too much

thyroid hormone..

Grave's

Hashimoto's

Genetics

TSH producing pituarynoma.

Ovarian Strumillis ( an ovarian cyst with thyroid makeup that

actually produces a form of TSH stimulating the thyroid gland)

A toxic thyroid nodule.

Cancer( rare in hyper but possible)

Each one of these has a different treatment plan..RAI will destroy

the thyroid and solve the symptom of hyper but it will not solve the

problem..and although RAI is a viable option under certain

conditions it is not a treatment plan.

Grave's..ATD, surgery or RAI..ATD's should be the first line of

defense..RAi is usually reserved for those who fail to respond to

ATD's or are unable to take ATD's and for who Surgery is not an

option.

Hashimoto's..Synthroid or other thyroid replacement hormones. The

idea even if hyper is to give high enough dose to supress the gland

so the antibody's do not stimulate the gland..TSH stimulates the

gland so the TSH needs to be kept suppressed under 1.0.

Genetics..Surgical removal of the gland or RAI when surgery is not

possible..ATD's can be used but would depend on how the person

resonds to ATD's.

Removal of the TSH secreting noma will usually result in normal

thyroid function/ same goes for Ovarian Strumillis.

Toxic nodule..this really depends on the size, location and how many

nodules there is..it is possible to remove a single nodule and have

a patient return to normal thyroid function..

Cancer..surgical removal of the thyroid followed up by RAI to

destroy any thyroid tissue remaining in the body. Full replacement

dose of thyroid hormones to keep the TSH suppressed and under 1.0.

With this list and I am sure I missed a few other resons you can see

why you need to know why first?

Kats3boys

[Guest guest]

I don't normally say this, but if you're waiting to bring your blood pressure down with diet, you're waiting too long. It's good measure to have a good diet, but with dangerously high blood pressure, it needs to come down as of right now, not a month or two or six months from now. Why would you not be a good candidate for surgery, has she told you? What are your thyroid lab values on the Free values of the thyroid hormones, or did I miss this? Never accept a verbal rundown of your lab values as "high", "normal", or "low, look at them for yourself. The TSH is not the indicator for this, especially if the pituitary itself is sick, and it will get sick with chronic hypo. It IS important for you to know the cause, and, if she's going by the TSH only, then who knows if you're even hyper or not. I would find another doctor, since she told you it wasn't important to find this out. This shows that she's not respecting you as a patient, if she thinks you don't need to know these things.

Dr's visit

Hi

I just went to the dr today. She is pressing me to have the radioactive iodine tx. I asked her what caused my thyroid to become overactive and she said it didn't matter. She is also still insistent that I can't take tapazole for more than 18 months. I asked her about the surgery and she said that I am not a candidate for surgery but that she could give me a referal to a surgeon if I really want one. I am starting to feel pushed into a corner and I'm not sure what to do. I still can't believe that it is a good idea to kill off part of my body and I can't be away from my baby for any period of time and I think that is required for the radioactive tx. She's only 16 months old. I do want see if I can find a naturopath but I am feeling overwhelmed. She also said that my blood pressure was unbelievably high. She wanted to give me meds for it but I asked her to give me a few weeks to get it down with diet. I take so much medication now that I don't want to take anymore. I'm only 43 and I feel like I'm falling apart. Any advice would be appreciated. Thanks

Carol Sobczak

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