Guest guest Posted September 2, 2002 Report Share Posted September 2, 2002 Thats a low TSH so your idea that its the dosage is probably right. When I'm that suppressed, i get SVT (tachycardia) and skipped beats.. it only took a small dose adjustment to make them stop and for my TSH to come up just a pinch barb > Thank you for the replies. I've decided not to start on the Paxil for the time being but instead will call my endo as suggested for lab values. I did take Buspar in the past after being under a lot of stress and it did help a great deal. I'm no longer under stress so it has to be the dosage of Synthroid that needs to be lowered. My TSH at the present time is .03 > > Joan > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2002 Report Share Posted September 2, 2002 Thats a low TSH so your idea that its the dosage is probably right. When I'm that suppressed, i get SVT (tachycardia) and skipped beats.. it only took a small dose adjustment to make them stop and for my TSH to come up just a pinch barb > Thank you for the replies. I've decided not to start on the Paxil for the time being but instead will call my endo as suggested for lab values. I did take Buspar in the past after being under a lot of stress and it did help a great deal. I'm no longer under stress so it has to be the dosage of Synthroid that needs to be lowered. My TSH at the present time is .03 > > Joan > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2002 Report Share Posted December 27, 2002 , It's worth it to check into AN since they were preemies with jaundice. Relatively low levels of bilirubin can cause it in preemies. You are in a good area to find out about it being in Lafayette. My sons AN has no known cause but many on my listserv have preemies that had jaundice. I'm off to Slidell in a few minutes to buy grocery items we love that they don't have in NC, sigh. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2002 Report Share Posted December 27, 2002 , It's worth it to check into AN since they were preemies with jaundice. Relatively low levels of bilirubin can cause it in preemies. You are in a good area to find out about it being in Lafayette. My sons AN has no known cause but many on my listserv have preemies that had jaundice. I'm off to Slidell in a few minutes to buy grocery items we love that they don't have in NC, sigh. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2002 Report Share Posted December 27, 2002 , It's worth it to check into AN since they were preemies with jaundice. Relatively low levels of bilirubin can cause it in preemies. You are in a good area to find out about it being in Lafayette. My sons AN has no known cause but many on my listserv have preemies that had jaundice. I'm off to Slidell in a few minutes to buy grocery items we love that they don't have in NC, sigh. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2002 Report Share Posted December 27, 2002 I haven't asked about AN, we haven't really had any testing done other than the regular things they do during an audiogram. The boys were 6 weeks premature and weighed 5 pounds each, no significant problems- just mild apnea and jaundice. By the way, we are in Lafayette. Thanks again, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2002 Report Share Posted December 27, 2002 I haven't asked about AN, we haven't really had any testing done other than the regular things they do during an audiogram. The boys were 6 weeks premature and weighed 5 pounds each, no significant problems- just mild apnea and jaundice. By the way, we are in Lafayette. Thanks again, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2002 Report Share Posted December 27, 2002 I haven't asked about AN, we haven't really had any testing done other than the regular things they do during an audiogram. The boys were 6 weeks premature and weighed 5 pounds each, no significant problems- just mild apnea and jaundice. By the way, we are in Lafayette. Thanks again, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 The problem sometimes with getting a second opinion or just switching to another neph is just the one you may be experiencing: no other nephrologists in the area. Nephrologists tend to be concentrated in the big cities, and many smaller centres or areas don't even have one. There are not enough to go around. Can your family doctor refer you to one, perhaps? The idea of a second opinion is that, no surgery is really minor, so there had better be a good reason to do it. Pierre thanks > Just a general note to say thank you to everyone for their warm welcome. :-) > > Also, I had mentioned in my original email that my neph wanted me to get my tonsils out, and the general consensus seems to be that a second opinion would be a good idea. I've been thinking a lot about that; I don't know if I'm completely comfortable with my current nephrologist. Question is, what's the best way to go about looking for another one? I was recommended to this one by my urologist, and according to the phone book they're the only ones local. Is this a matter of just going on-line and finding one relatively close, or are there any types of resources for this? > > Thanks again! > Kristi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 The problem sometimes with getting a second opinion or just switching to another neph is just the one you may be experiencing: no other nephrologists in the area. Nephrologists tend to be concentrated in the big cities, and many smaller centres or areas don't even have one. There are not enough to go around. Can your family doctor refer you to one, perhaps? The idea of a second opinion is that, no surgery is really minor, so there had better be a good reason to do it. Pierre thanks > Just a general note to say thank you to everyone for their warm welcome. :-) > > Also, I had mentioned in my original email that my neph wanted me to get my tonsils out, and the general consensus seems to be that a second opinion would be a good idea. I've been thinking a lot about that; I don't know if I'm completely comfortable with my current nephrologist. Question is, what's the best way to go about looking for another one? I was recommended to this one by my urologist, and according to the phone book they're the only ones local. Is this a matter of just going on-line and finding one relatively close, or are there any types of resources for this? > > Thanks again! > Kristi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 The problem sometimes with getting a second opinion or just switching to another neph is just the one you may be experiencing: no other nephrologists in the area. Nephrologists tend to be concentrated in the big cities, and many smaller centres or areas don't even have one. There are not enough to go around. Can your family doctor refer you to one, perhaps? The idea of a second opinion is that, no surgery is really minor, so there had better be a good reason to do it. Pierre thanks > Just a general note to say thank you to everyone for their warm welcome. :-) > > Also, I had mentioned in my original email that my neph wanted me to get my tonsils out, and the general consensus seems to be that a second opinion would be a good idea. I've been thinking a lot about that; I don't know if I'm completely comfortable with my current nephrologist. Question is, what's the best way to go about looking for another one? I was recommended to this one by my urologist, and according to the phone book they're the only ones local. Is this a matter of just going on-line and finding one relatively close, or are there any types of resources for this? > > Thanks again! > Kristi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Thanks - I did call my GP for a recommendation. Turns out there's nobody else local that he would recommend - but at least I know who not to go to! :-) I'll probably just start looking in some of the bigger cities that are relatively close. Kristi Martha wrote: When I moved to Texas I looked up in the phone book for my new neph doctor. When I moved back to Maine I went to the same place I went before I moved. And found my currant one when I fired the old doctors and got myself a bunch of news that had so clue and a heart. my currant neph was recommond by my new doctor, but I had already seen him once at the begining of my disorder when I went to get a second opinion. So you can look around or ask your primary doctor for help. Martha > Just a general note to say thank you to everyone for their warm welcome. :-) > > Also, I had mentioned in my original email that my neph wanted me to get my tonsils out, and the general consensus seems to be that a second opinion would be a good idea. I've been thinking a lot about that; I don't know if I'm completely comfortable with my current nephrologist. Question is, what's the best way to go about looking for another one? I was recommended to this one by my urologist, and according to the phone book they're the only ones local. Is this a matter of just going on-line and finding one relatively close, or are there any types of resources for this? > > Thanks again! > Kristi > > > > --------------------------------- > Do you Yahoo!? > Friends. Fun. Try the all-new Yahoo! Messenger > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Thanks - I did call my GP for a recommendation. Turns out there's nobody else local that he would recommend - but at least I know who not to go to! :-) I'll probably just start looking in some of the bigger cities that are relatively close. Kristi Martha wrote: When I moved to Texas I looked up in the phone book for my new neph doctor. When I moved back to Maine I went to the same place I went before I moved. And found my currant one when I fired the old doctors and got myself a bunch of news that had so clue and a heart. my currant neph was recommond by my new doctor, but I had already seen him once at the begining of my disorder when I went to get a second opinion. So you can look around or ask your primary doctor for help. Martha > Just a general note to say thank you to everyone for their warm welcome. :-) > > Also, I had mentioned in my original email that my neph wanted me to get my tonsils out, and the general consensus seems to be that a second opinion would be a good idea. I've been thinking a lot about that; I don't know if I'm completely comfortable with my current nephrologist. Question is, what's the best way to go about looking for another one? I was recommended to this one by my urologist, and according to the phone book they're the only ones local. Is this a matter of just going on-line and finding one relatively close, or are there any types of resources for this? > > Thanks again! > Kristi > > > > --------------------------------- > Do you Yahoo!? > Friends. Fun. Try the all-new Yahoo! Messenger > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 Hi , Other than during my crisis last year, I have stayed at about 22-23 GFR for around 2 years. When it decided to drop from one appointment to the next then went to 16 GFR, It was like the big OUCH. Since I have have only seen my new Neph, probably 3 times, he hasn't discussed dialysis or transplant yet. I figure that if he doesn't take action by the time I have a s. creatinine of 4.0 then I'll take the ball into my own hands and coax him along a little. I'm a firm believer in having a strong voice in one's care. I know what a 5.2 s creatinine feels like and I don't want to get close to that again without being prepared. I felt like I was coming unglued from the inside out. I do still suffer from exhaustion and have to catch up over the weekend. I try to do everything that I've always done, I work full time, travel and have a very busy social life. I guess that I'm afraid that someday I probably won't have the energy, so I think I overdo it all the time now. But right now, I can hardly move, I'm bruised and battered. Over the weekend, I decided to water ski, and haven't been on skis for 4 years. It was all I could do to get this almost 50 year old butt out of the water. Today I feel a hundred and it has nothing to do with IgAN. But, thanks for asking, I know that you and I stay rather close with our numbers, I will pray that you can stay at that 20GFR. It's a little disheartening to go under the 20 GFR mark. Also I know that you're much thinner than I am and you will probably not be able to tolerate a very high s creatinine either. Love Connie Re: nephron website Hey Connie, I am with you on being grateful that I am at 20 on my GFR. 's rapid decline was certainly a wake up call for me. You are still inspiring to me with your example of going strong and working full time at 16%. Has your doctor talked to you about dialysis/transplant options yet? n a message dated 7/16/2004 12:29:58 PM Pacific Daylight Time, csink@... writes: > In the last few months I fell under the 20% mark to 16% and holding I > hope...but I've decided that after 's landslide this week, I'm going > to be thankful for the 16%. > > Connie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 Hi , Other than during my crisis last year, I have stayed at about 22-23 GFR for around 2 years. When it decided to drop from one appointment to the next then went to 16 GFR, It was like the big OUCH. Since I have have only seen my new Neph, probably 3 times, he hasn't discussed dialysis or transplant yet. I figure that if he doesn't take action by the time I have a s. creatinine of 4.0 then I'll take the ball into my own hands and coax him along a little. I'm a firm believer in having a strong voice in one's care. I know what a 5.2 s creatinine feels like and I don't want to get close to that again without being prepared. I felt like I was coming unglued from the inside out. I do still suffer from exhaustion and have to catch up over the weekend. I try to do everything that I've always done, I work full time, travel and have a very busy social life. I guess that I'm afraid that someday I probably won't have the energy, so I think I overdo it all the time now. But right now, I can hardly move, I'm bruised and battered. Over the weekend, I decided to water ski, and haven't been on skis for 4 years. It was all I could do to get this almost 50 year old butt out of the water. Today I feel a hundred and it has nothing to do with IgAN. But, thanks for asking, I know that you and I stay rather close with our numbers, I will pray that you can stay at that 20GFR. It's a little disheartening to go under the 20 GFR mark. Also I know that you're much thinner than I am and you will probably not be able to tolerate a very high s creatinine either. Love Connie Re: nephron website Hey Connie, I am with you on being grateful that I am at 20 on my GFR. 's rapid decline was certainly a wake up call for me. You are still inspiring to me with your example of going strong and working full time at 16%. Has your doctor talked to you about dialysis/transplant options yet? n a message dated 7/16/2004 12:29:58 PM Pacific Daylight Time, csink@... writes: > In the last few months I fell under the 20% mark to 16% and holding I > hope...but I've decided that after 's landslide this week, I'm going > to be thankful for the 16%. > > Connie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 Hi , Other than during my crisis last year, I have stayed at about 22-23 GFR for around 2 years. When it decided to drop from one appointment to the next then went to 16 GFR, It was like the big OUCH. Since I have have only seen my new Neph, probably 3 times, he hasn't discussed dialysis or transplant yet. I figure that if he doesn't take action by the time I have a s. creatinine of 4.0 then I'll take the ball into my own hands and coax him along a little. I'm a firm believer in having a strong voice in one's care. I know what a 5.2 s creatinine feels like and I don't want to get close to that again without being prepared. I felt like I was coming unglued from the inside out. I do still suffer from exhaustion and have to catch up over the weekend. I try to do everything that I've always done, I work full time, travel and have a very busy social life. I guess that I'm afraid that someday I probably won't have the energy, so I think I overdo it all the time now. But right now, I can hardly move, I'm bruised and battered. Over the weekend, I decided to water ski, and haven't been on skis for 4 years. It was all I could do to get this almost 50 year old butt out of the water. Today I feel a hundred and it has nothing to do with IgAN. But, thanks for asking, I know that you and I stay rather close with our numbers, I will pray that you can stay at that 20GFR. It's a little disheartening to go under the 20 GFR mark. Also I know that you're much thinner than I am and you will probably not be able to tolerate a very high s creatinine either. Love Connie Re: nephron website Hey Connie, I am with you on being grateful that I am at 20 on my GFR. 's rapid decline was certainly a wake up call for me. You are still inspiring to me with your example of going strong and working full time at 16%. Has your doctor talked to you about dialysis/transplant options yet? n a message dated 7/16/2004 12:29:58 PM Pacific Daylight Time, csink@... writes: > In the last few months I fell under the 20% mark to 16% and holding I > hope...but I've decided that after 's landslide this week, I'm going > to be thankful for the 16%. > > Connie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2004 Report Share Posted July 20, 2004 Hi Connie, Does it hurt to bend your arms to brush your teeth or hurt to bend over and tie your shoes? Water-skiing takes a definite toll on muscles that you don't otherwise use and boy do you pay for the fun. We went water-skiing this past weekend too, but I stayed and napped while the others went out so I have no soreness. It is encouraging to me that you have stayed at the 22-23 mark for a couple of years. That means I can make it until my youngest finishes her undergraduate work and that is my goal. I know what you mean about the exhaustion and needing to recover on the weekends. Sometimes I am not good for much of anything on weekends other than just my chores around the house and resting to build up for the coming week. I am sorry you have dropped below 20. I just hope you can stay stable where you are for a long time. Love In a message dated 7/19/2004 12:51:43 PM Pacific Daylight Time, csink@... writes: > Hi , > Other than during my crisis last year, I have stayed at about 22-23 GFR for > around 2 years. When it decided to drop from one appointment to the next > then went to 16 GFR, It was like the big OUCH. > > Since I have have only seen my new Neph, probably 3 times, he hasn't > discussed dialysis or transplant yet. I figure that if he doesn't take > action by the time I have a s. creatinine of 4.0 then I'll take the ball > into my own hands and coax him along a little. I'm a firm believer in > having a strong voice in one's care. I know what a 5.2 s creatinine feels > like and I don't want to get close to that again without being prepared. I > felt like I was coming unglued from the inside out. > > I do still suffer from exhaustion and have to catch up over the weekend. I > try to do everything that I've always done, I work full time, travel and > have a very busy social life. I guess that I'm afraid that someday I > probably won't have the energy, so I think I overdo it all the time now. > > But right now, I can hardly move, I'm bruised and battered. Over the > weekend, I decided to water ski, and haven't been on skis for 4 years. It > was all I could do to get this almost 50 year old butt out of the water. > Today I feel a hundred and it has nothing to do with IgAN. > > But, thanks for asking, I know that you and I stay rather close with our > numbers, I will pray that you can stay at that 20GFR. It's a little > disheartening to go under the 20 GFR mark. Also I know that you're much > thinner than I am and you will probably not be able to tolerate a very high > s creatinine either. > > > Love > Connie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2005 Report Share Posted June 30, 2005 Good for you .....glad to read you are in a better frame of mind. We want you healthy. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2005 Report Share Posted June 30, 2005 Good for you .....glad to read you are in a better frame of mind. We want you healthy. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 , I'm so glad to hear your attitude has changed and things are looking brighter for you. Just keep that positive attitude going and you'll be just fine. Hugs, Deanna Thanks Thanks to all of you who responded to my e-mail yesterday about my doctor visit....... Today is another day, another outlook on it. I am still depressed over it all but will not eat myself to an earlier grave because of it. I will go back to my 1500 calories and stay there. I hope I didn't do to much damage yesterday but guess that darn old scale will tell the tell Tuesday. I have an amazing bunch of on-line friends and please know I care about you the same way you care about me. love y'all, EMAIL SUPPORT TEXAS-STYLE!!THE CRAZIEST BUNCH OF "LOSERS" ON THE 'NET'!!Visit us on the web: http://www.texastops.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 , I'm so glad to hear your attitude has changed and things are looking brighter for you. Just keep that positive attitude going and you'll be just fine. Hugs, Deanna Thanks Thanks to all of you who responded to my e-mail yesterday about my doctor visit....... Today is another day, another outlook on it. I am still depressed over it all but will not eat myself to an earlier grave because of it. I will go back to my 1500 calories and stay there. I hope I didn't do to much damage yesterday but guess that darn old scale will tell the tell Tuesday. I have an amazing bunch of on-line friends and please know I care about you the same way you care about me. love y'all, EMAIL SUPPORT TEXAS-STYLE!!THE CRAZIEST BUNCH OF "LOSERS" ON THE 'NET'!!Visit us on the web: http://www.texastops.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 , I'm so glad to hear your attitude has changed and things are looking brighter for you. Just keep that positive attitude going and you'll be just fine. Hugs, Deanna Thanks Thanks to all of you who responded to my e-mail yesterday about my doctor visit....... Today is another day, another outlook on it. I am still depressed over it all but will not eat myself to an earlier grave because of it. I will go back to my 1500 calories and stay there. I hope I didn't do to much damage yesterday but guess that darn old scale will tell the tell Tuesday. I have an amazing bunch of on-line friends and please know I care about you the same way you care about me. love y'all, EMAIL SUPPORT TEXAS-STYLE!!THE CRAZIEST BUNCH OF "LOSERS" ON THE 'NET'!!Visit us on the web: http://www.texastops.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 ~~ I'm so happy that you have a different outlook now !!! You are DEFINITELY loved !!! Not only on this loop -- but your family -- PLEASE take care of yourself !!! I do pray that the specialists will be able to help you !!! Love back to ya, Randie Thanks Thanks to all of you who responded to my e-mail yesterday about my doctor visit....... Today is another day, another outlook on it. I am still depressed over it all but will not eat myself to an earlier grave because of it. I will go back to my 1500 calories and stay there. I hope I didn't do to much damage yesterday but guess that darn old scale will tell the tell Tuesday. I have an amazing bunch of on-line friends and please know I care about you the same way you care about me. love y'all, EMAIL SUPPORT TEXAS-STYLE!!THE CRAZIEST BUNCH OF "LOSERS" ON THE 'NET'!!Visit us on the web: http://www.texastops.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 ~~ I'm so happy that you have a different outlook now !!! You are DEFINITELY loved !!! Not only on this loop -- but your family -- PLEASE take care of yourself !!! I do pray that the specialists will be able to help you !!! Love back to ya, Randie Thanks Thanks to all of you who responded to my e-mail yesterday about my doctor visit....... Today is another day, another outlook on it. I am still depressed over it all but will not eat myself to an earlier grave because of it. I will go back to my 1500 calories and stay there. I hope I didn't do to much damage yesterday but guess that darn old scale will tell the tell Tuesday. I have an amazing bunch of on-line friends and please know I care about you the same way you care about me. love y'all, EMAIL SUPPORT TEXAS-STYLE!!THE CRAZIEST BUNCH OF "LOSERS" ON THE 'NET'!!Visit us on the web: http://www.texastops.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2005 Report Share Posted October 21, 2005 congrats June. ren Quote Link to comment Share on other sites More sharing options...
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