Guest guest Posted May 10, 2004 Report Share Posted May 10, 2004 Hi! My name is Amy and my 20 month old son, Jake, started the keto diet this week! We are excited, nervous and scared and I'm hoping to get lots of good information from this site. I know one Mom already (hi !) and look forward to getting to know other parents - maybe even those who started the diet with us at Hopkins this week!! Jake was born 8 weeks premature and had multiple complications, which resulted in severe developmental delay, hypothyroidism, vision delays, hearing loss and, of course, seizures. He spent the first year of his life on phenobarbitol and tegretol and we became interested in the diet after we started weaning the pheno and noticed the difference in his alertness and development. He has a g- tube and that has actually made starting the diet easier for us. He is on a ratio of 3:1, 750ml of fluid, 800 calories. In a couple of weeks, we will try introducing some meals in place of the formula because he did eat by mouth quite a bit before starting keto. The first couple of days have been rough. Jake has been lethargic and was doing quite a bit of gagging and dry heaving after each feeding. He has a nissen, a surgical procedure which prevents him from vomiting, otherwise I think we would have lost most of the formula. I will end this for now, but wanted to say hello and I am very excited about getting to know you all! Take care, Amy, mom to Jake Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Hi Amy, Welcome! I'm always happy when someone decides to give the diet a try. I hope it will help Jake. The diet is a miracle for us. I am mom to , 7yrs. old, who has been a keto kid for nine months. She had her last seizure 2 days before we were admitted to the hospital to begin the diet. She was diagnosed at age 6 with idiopathic generalized epilepsy. She started out with absence and tonic-clonic seizures. It seemed like every time we tried a new drug, a new seizure type appeared. I will always wonder if there is a connection there. She had myoclonics, ataxics and the dreaded atonic " drops " --several per day. She was having a terrible time in school and we were at our wits end. The diet allowed HER to come back. Life has been great this year. There are some very caring and knowledgable folks here. I'm sure you will find helpful info. Please do join in the discussion and keep us posted on Jake's progress! Cammie > Hi! > My name is Amy and my 20 month old son, Jake, started the keto diet > this week! We are excited, nervous and scared and I'm hoping to get > lots of good information from this site. I know one Mom already (hi > !) and look forward to getting to know other parents - maybe > even those who started the diet with us at Hopkins this week!! Jake > was born 8 weeks premature and had multiple complications, which > resulted in severe developmental delay, hypothyroidism, vision > delays, hearing loss and, of course, seizures. He spent the first > year of his life on phenobarbitol and tegretol and we became > interested in the diet after we started weaning the pheno and > noticed the difference in his alertness and development. He has a g- > tube and that has actually made starting the diet easier for us. He > is on a ratio of 3:1, 750ml of fluid, 800 calories. In a couple of > weeks, we will try introducing some meals in place of the formula > because he did eat by mouth quite a bit before starting keto. The > first couple of days have been rough. Jake has been lethargic and > was doing quite a bit of gagging and dry heaving after each > feeding. He has a nissen, a surgical procedure which prevents him > from vomiting, otherwise I think we would have lost most of the > formula. > > I will end this for now, but wanted to say hello and I am very > excited about getting to know you all! > > Take care, > Amy, mom to Jake Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Hi Amy, Welcome! I'm always happy when someone decides to give the diet a try. I hope it will help Jake. The diet is a miracle for us. I am mom to , 7yrs. old, who has been a keto kid for nine months. She had her last seizure 2 days before we were admitted to the hospital to begin the diet. She was diagnosed at age 6 with idiopathic generalized epilepsy. She started out with absence and tonic-clonic seizures. It seemed like every time we tried a new drug, a new seizure type appeared. I will always wonder if there is a connection there. She had myoclonics, ataxics and the dreaded atonic " drops " --several per day. She was having a terrible time in school and we were at our wits end. The diet allowed HER to come back. Life has been great this year. There are some very caring and knowledgable folks here. I'm sure you will find helpful info. Please do join in the discussion and keep us posted on Jake's progress! Cammie > Hi! > My name is Amy and my 20 month old son, Jake, started the keto diet > this week! We are excited, nervous and scared and I'm hoping to get > lots of good information from this site. I know one Mom already (hi > !) and look forward to getting to know other parents - maybe > even those who started the diet with us at Hopkins this week!! Jake > was born 8 weeks premature and had multiple complications, which > resulted in severe developmental delay, hypothyroidism, vision > delays, hearing loss and, of course, seizures. He spent the first > year of his life on phenobarbitol and tegretol and we became > interested in the diet after we started weaning the pheno and > noticed the difference in his alertness and development. He has a g- > tube and that has actually made starting the diet easier for us. He > is on a ratio of 3:1, 750ml of fluid, 800 calories. In a couple of > weeks, we will try introducing some meals in place of the formula > because he did eat by mouth quite a bit before starting keto. The > first couple of days have been rough. Jake has been lethargic and > was doing quite a bit of gagging and dry heaving after each > feeding. He has a nissen, a surgical procedure which prevents him > from vomiting, otherwise I think we would have lost most of the > formula. > > I will end this for now, but wanted to say hello and I am very > excited about getting to know you all! > > Take care, > Amy, mom to Jake Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Hi Amy, Welcome! I'm always happy when someone decides to give the diet a try. I hope it will help Jake. The diet is a miracle for us. I am mom to , 7yrs. old, who has been a keto kid for nine months. She had her last seizure 2 days before we were admitted to the hospital to begin the diet. She was diagnosed at age 6 with idiopathic generalized epilepsy. She started out with absence and tonic-clonic seizures. It seemed like every time we tried a new drug, a new seizure type appeared. I will always wonder if there is a connection there. She had myoclonics, ataxics and the dreaded atonic " drops " --several per day. She was having a terrible time in school and we were at our wits end. The diet allowed HER to come back. Life has been great this year. There are some very caring and knowledgable folks here. I'm sure you will find helpful info. Please do join in the discussion and keep us posted on Jake's progress! Cammie > Hi! > My name is Amy and my 20 month old son, Jake, started the keto diet > this week! We are excited, nervous and scared and I'm hoping to get > lots of good information from this site. I know one Mom already (hi > !) and look forward to getting to know other parents - maybe > even those who started the diet with us at Hopkins this week!! Jake > was born 8 weeks premature and had multiple complications, which > resulted in severe developmental delay, hypothyroidism, vision > delays, hearing loss and, of course, seizures. He spent the first > year of his life on phenobarbitol and tegretol and we became > interested in the diet after we started weaning the pheno and > noticed the difference in his alertness and development. He has a g- > tube and that has actually made starting the diet easier for us. He > is on a ratio of 3:1, 750ml of fluid, 800 calories. In a couple of > weeks, we will try introducing some meals in place of the formula > because he did eat by mouth quite a bit before starting keto. The > first couple of days have been rough. Jake has been lethargic and > was doing quite a bit of gagging and dry heaving after each > feeding. He has a nissen, a surgical procedure which prevents him > from vomiting, otherwise I think we would have lost most of the > formula. > > I will end this for now, but wanted to say hello and I am very > excited about getting to know you all! > > Take care, > Amy, mom to Jake Quote Link to comment Share on other sites More sharing options...
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