Re: e-stim for swallowing - Jody

May 9, 2006

Hi Jody,

I would be really interested to hear how your feeding clinic visit goes. My

son is 2 and 1/2, we haven't tried Vital Stim, and haven't found

anyone offering it in the UK yet. Is Ethan's problem mainly aspiration?

That is the issue with , aspiration and swallowing dis-cordination.

Most of the feeding clinics I read up on seemed to be focused on the

psychological aspect of feeding once the child was safe to feed and no

longer suffering aspiration...is Milwaukee different?

is Wolfe

Mum to (UK)

>

> Meg - We did e-stim for Ethan for about 12 months from about 2 1/2 yrs to

> 3 1/2 yrs. We saw good results with the vital stim on, but not a lot of

> carryover when it was off. We also did it during that time for 4 x week for

> 3 weeks and then went for a swallow study. He didn't aspirate at first, but

> after 3-4 swallows, he had residual in his throat. After that point, he

> seemed disinterested in eating food so we stopped the vitalstim. In the

> next month, we are going to Milwaukee Feeding Clinic to see what they

> suggest we do next.

>

> Jody - mom to Ethan (almost 4 yrs - ChARGE)

>

> r wrote:

> I got a call today from an OT who had questions about e-stim therapy for

> swallowing in kids with CHARGE. She wondered at what age children were

> treated. That hasn't been a topic on the list for quite a while. If

> any of you did e-stim for your kids, could you let me know how old your

> child was at the time and how successful you thought it was (completely,

> it helped, not at all)? You can either reply to the list or to me

> privately meg@...

> Thanks!

> Meg

>

May 9, 2006

Hi Jody,

I would be really interested to hear how your feeding clinic visit goes. My

son is 2 and 1/2, we haven't tried Vital Stim, and haven't found

anyone offering it in the UK yet. Is Ethan's problem mainly aspiration?

That is the issue with , aspiration and swallowing dis-cordination.

Most of the feeding clinics I read up on seemed to be focused on the

psychological aspect of feeding once the child was safe to feed and no

longer suffering aspiration...is Milwaukee different?

is Wolfe

Mum to (UK)

>

> Meg - We did e-stim for Ethan for about 12 months from about 2 1/2 yrs to

> 3 1/2 yrs. We saw good results with the vital stim on, but not a lot of

> carryover when it was off. We also did it during that time for 4 x week for

> 3 weeks and then went for a swallow study. He didn't aspirate at first, but

> after 3-4 swallows, he had residual in his throat. After that point, he

> seemed disinterested in eating food so we stopped the vitalstim. In the

> next month, we are going to Milwaukee Feeding Clinic to see what they

> suggest we do next.

>

> Jody - mom to Ethan (almost 4 yrs - ChARGE)

>

> r wrote:

> I got a call today from an OT who had questions about e-stim therapy for

> swallowing in kids with CHARGE. She wondered at what age children were

> treated. That hasn't been a topic on the list for quite a while. If

> any of you did e-stim for your kids, could you let me know how old your

> child was at the time and how successful you thought it was (completely,

> it helped, not at all)? You can either reply to the list or to me

> privately meg@...

> Thanks!

> Meg

>

May 9, 2006

Hi Jody,

I would be really interested to hear how your feeding clinic visit goes. My

son is 2 and 1/2, we haven't tried Vital Stim, and haven't found

anyone offering it in the UK yet. Is Ethan's problem mainly aspiration?

That is the issue with , aspiration and swallowing dis-cordination.

Most of the feeding clinics I read up on seemed to be focused on the

psychological aspect of feeding once the child was safe to feed and no

longer suffering aspiration...is Milwaukee different?

is Wolfe

Mum to (UK)

>

> Meg - We did e-stim for Ethan for about 12 months from about 2 1/2 yrs to

> 3 1/2 yrs. We saw good results with the vital stim on, but not a lot of

> carryover when it was off. We also did it during that time for 4 x week for

> 3 weeks and then went for a swallow study. He didn't aspirate at first, but

> after 3-4 swallows, he had residual in his throat. After that point, he

> seemed disinterested in eating food so we stopped the vitalstim. In the

> next month, we are going to Milwaukee Feeding Clinic to see what they

> suggest we do next.

>

> Jody - mom to Ethan (almost 4 yrs - ChARGE)

>

> r wrote:

> I got a call today from an OT who had questions about e-stim therapy for

> swallowing in kids with CHARGE. She wondered at what age children were

> treated. That hasn't been a topic on the list for quite a while. If

> any of you did e-stim for your kids, could you let me know how old your

> child was at the time and how successful you thought it was (completely,

> it helped, not at all)? You can either reply to the list or to me

> privately meg@...

> Thanks!

> Meg

>

May 9, 2006

is

I am still waiting to hear what it is exactly? some sort of therapy?

can you elaborate?

Could amelie try this?

cheers Les

> Hi Jody,

>

> I would be really interested to hear how your feeding clinic visit goes. My

> son is 2 and 1/2, we haven't tried Vital Stim, and haven't found

> anyone offering it in the UK yet. Is Ethan's problem mainly aspiration?

> That is the issue with , aspiration and swallowing dis-cordination.

> Most of the feeding clinics I read up on seemed to be focused on the

> psychological aspect of feeding once the child was safe to feed and no

> longer suffering aspiration...is Milwaukee different?

>

> is Wolfe

> Mum to (UK)

>

> >

> > Meg - We did e-stim for Ethan for about 12 months from about 2 1/2 yrs to

> > 3 1/2 yrs. We saw good results with the vital stim on, but not a lot of

> > carryover when it was off. We also did it during that time for 4 x week

> for

> > 3 weeks and then went for a swallow study. He didn't aspirate at first,

> but

> > after 3-4 swallows, he had residual in his throat. After that point, he

> > seemed disinterested in eating food so we stopped the vitalstim. In the

> > next month, we are going to Milwaukee Feeding Clinic to see what they

> > suggest we do next.

> >

> > Jody - mom to Ethan (almost 4 yrs - ChARGE)

> >

> > r wrote:

> > I got a call today from an OT who had questions about e-stim therapy for

> > swallowing in kids with CHARGE. She wondered at what age children were

> > treated. That hasn't been a topic on the list for quite a while. If

> > any of you did e-stim for your kids, could you let me know how old your

> > child was at the time and how successful you thought it was (completely,

> > it helped, not at all)? You can either reply to the list or to me

> > privately meg@...

> > Thanks!

> > Meg

> >

May 9, 2006

is

I am still waiting to hear what it is exactly? some sort of therapy?

can you elaborate?

Could amelie try this?

cheers Les

> Hi Jody,

>

> I would be really interested to hear how your feeding clinic visit goes. My

> son is 2 and 1/2, we haven't tried Vital Stim, and haven't found

> anyone offering it in the UK yet. Is Ethan's problem mainly aspiration?

> That is the issue with , aspiration and swallowing dis-cordination.

> Most of the feeding clinics I read up on seemed to be focused on the

> psychological aspect of feeding once the child was safe to feed and no

> longer suffering aspiration...is Milwaukee different?

>

> is Wolfe

> Mum to (UK)

>

> >

> > Meg - We did e-stim for Ethan for about 12 months from about 2 1/2 yrs to

> > 3 1/2 yrs. We saw good results with the vital stim on, but not a lot of

> > carryover when it was off. We also did it during that time for 4 x week

> for

> > 3 weeks and then went for a swallow study. He didn't aspirate at first,

> but

> > after 3-4 swallows, he had residual in his throat. After that point, he

> > seemed disinterested in eating food so we stopped the vitalstim. In the

> > next month, we are going to Milwaukee Feeding Clinic to see what they

> > suggest we do next.

> >

> > Jody - mom to Ethan (almost 4 yrs - ChARGE)

> >

> > r wrote:

> > I got a call today from an OT who had questions about e-stim therapy for

> > swallowing in kids with CHARGE. She wondered at what age children were

> > treated. That hasn't been a topic on the list for quite a while. If

> > any of you did e-stim for your kids, could you let me know how old your

> > child was at the time and how successful you thought it was (completely,

> > it helped, not at all)? You can either reply to the list or to me

> > privately meg@...

> > Thanks!

> > Meg

> >

May 10, 2006

Hi is

I have not heard of vital stim being done over here but I have heard of

something that uses similar principles here. I'll rack my brains but ask

's SLT (or is that is a foolish suggestion?).

Simon

May 10, 2006

Hi is

I have not heard of vital stim being done over here but I have heard of

something that uses similar principles here. I'll rack my brains but ask

's SLT (or is that is a foolish suggestion?).

Simon

May 10, 2006

Hi is

I have not heard of vital stim being done over here but I have heard of

something that uses similar principles here. I'll rack my brains but ask

's SLT (or is that is a foolish suggestion?).

Simon

May 10, 2006

This is a therapy that involves stimulating the muscles in the neck area. To do

this they attach electrodes to the neck to make the muscles contract. For a

child that does not know how to contract these muscles means that they have a

swallowing disorder.

This is a short version of what this is and what it does.

, Randy & Garland Goodwin

---- Amelie Chan wrote:

=============

is

I am still waiting to hear what it is exactly? some sort of therapy?

can you elaborate?

Could amelie try this?

cheers Les

> Hi Jody,

>

> I would be really interested to hear how your feeding clinic visit goes. My

> son is 2 and 1/2, we haven't tried Vital Stim, and haven't found

> anyone offering it in the UK yet. Is Ethan's problem mainly aspiration?

> That is the issue with , aspiration and swallowing dis-cordination.

> Most of the feeding clinics I read up on seemed to be focused on the

> psychological aspect of feeding once the child was safe to feed and no

> longer suffering aspiration...is Milwaukee different?

>

> is Wolfe

> Mum to (UK)

>

> >

> > Meg - We did e-stim for Ethan for about 12 months from about 2 1/2 yrs to

> > 3 1/2 yrs. We saw good results with the vital stim on, but not a lot of

> > carryover when it was off. We also did it during that time for 4 x week

> for

> > 3 weeks and then went for a swallow study. He didn't aspirate at first,

> but

> > after 3-4 swallows, he had residual in his throat. After that point, he

> > seemed disinterested in eating food so we stopped the vitalstim. In the

> > next month, we are going to Milwaukee Feeding Clinic to see what they

> > suggest we do next.

> >

> > Jody - mom to Ethan (almost 4 yrs - ChARGE)

> >

> > r wrote:

> > I got a call today from an OT who had questions about e-stim therapy for

> > swallowing in kids with CHARGE. She wondered at what age children were

> > treated. That hasn't been a topic on the list for quite a while. If

> > any of you did e-stim for your kids, could you let me know how old your

> > child was at the time and how successful you thought it was (completely,

> > it helped, not at all)? You can either reply to the list or to me

> > privately meg@...

> > Thanks!

> > Meg

> >

May 10, 2006

This is a therapy that involves stimulating the muscles in the neck area. To do

this they attach electrodes to the neck to make the muscles contract. For a

child that does not know how to contract these muscles means that they have a

swallowing disorder.

This is a short version of what this is and what it does.

, Randy & Garland Goodwin

---- Amelie Chan wrote:

=============

is

I am still waiting to hear what it is exactly? some sort of therapy?

can you elaborate?

Could amelie try this?

cheers Les

> Hi Jody,

>

> I would be really interested to hear how your feeding clinic visit goes. My

> son is 2 and 1/2, we haven't tried Vital Stim, and haven't found

> anyone offering it in the UK yet. Is Ethan's problem mainly aspiration?

> That is the issue with , aspiration and swallowing dis-cordination.

> Most of the feeding clinics I read up on seemed to be focused on the

> psychological aspect of feeding once the child was safe to feed and no

> longer suffering aspiration...is Milwaukee different?

>

> is Wolfe

> Mum to (UK)

>

> >

> > Meg - We did e-stim for Ethan for about 12 months from about 2 1/2 yrs to

> > 3 1/2 yrs. We saw good results with the vital stim on, but not a lot of

> > carryover when it was off. We also did it during that time for 4 x week

> for

> > 3 weeks and then went for a swallow study. He didn't aspirate at first,

> but

> > after 3-4 swallows, he had residual in his throat. After that point, he

> > seemed disinterested in eating food so we stopped the vitalstim. In the

> > next month, we are going to Milwaukee Feeding Clinic to see what they

> > suggest we do next.

> >

> > Jody - mom to Ethan (almost 4 yrs - ChARGE)

> >

> > r wrote:

> > I got a call today from an OT who had questions about e-stim therapy for

> > swallowing in kids with CHARGE. She wondered at what age children were

> > treated. That hasn't been a topic on the list for quite a while. If

> > any of you did e-stim for your kids, could you let me know how old your

> > child was at the time and how successful you thought it was (completely,

> > it helped, not at all)? You can either reply to the list or to me

> > privately meg@...

> > Thanks!

> > Meg

> >

May 10, 2006

This is a therapy that involves stimulating the muscles in the neck area. To do

this they attach electrodes to the neck to make the muscles contract. For a

child that does not know how to contract these muscles means that they have a

swallowing disorder.

This is a short version of what this is and what it does.

, Randy & Garland Goodwin

---- Amelie Chan wrote:

=============

is

I am still waiting to hear what it is exactly? some sort of therapy?

can you elaborate?

Could amelie try this?

cheers Les

> Hi Jody,

>

> I would be really interested to hear how your feeding clinic visit goes. My

> son is 2 and 1/2, we haven't tried Vital Stim, and haven't found

> anyone offering it in the UK yet. Is Ethan's problem mainly aspiration?

> That is the issue with , aspiration and swallowing dis-cordination.

> Most of the feeding clinics I read up on seemed to be focused on the

> psychological aspect of feeding once the child was safe to feed and no

> longer suffering aspiration...is Milwaukee different?

>

> is Wolfe

> Mum to (UK)

>

> >

> > Meg - We did e-stim for Ethan for about 12 months from about 2 1/2 yrs to

> > 3 1/2 yrs. We saw good results with the vital stim on, but not a lot of

> > carryover when it was off. We also did it during that time for 4 x week

> for

> > 3 weeks and then went for a swallow study. He didn't aspirate at first,

> but

> > after 3-4 swallows, he had residual in his throat. After that point, he

> > seemed disinterested in eating food so we stopped the vitalstim. In the

> > next month, we are going to Milwaukee Feeding Clinic to see what they

> > suggest we do next.

> >

> > Jody - mom to Ethan (almost 4 yrs - ChARGE)

> >

> > r wrote:

> > I got a call today from an OT who had questions about e-stim therapy for

> > swallowing in kids with CHARGE. She wondered at what age children were

> > treated. That hasn't been a topic on the list for quite a while. If

> > any of you did e-stim for your kids, could you let me know how old your

> > child was at the time and how successful you thought it was (completely,

> > it helped, not at all)? You can either reply to the list or to me

> > privately meg@...

> > Thanks!

> > Meg

> >

May 10, 2006

Hi Les,

Have a look at http://www.vitalstim.com/indexflash.asp which explains more,

but haven't heard of anyone in the UK getting it.

Simon - I asked SALT at Great Ormond St and they had heard of it but said it

wasn't approved for use in the UK or proven to be highly successful in their

view and therefore wasn't something they explored using at the current time.

The local SALT had not heard of it - not a hope!

I guess it would be a go to the States and pay for it yourself thing....

is

>

> is

>

> I am still waiting to hear what it is exactly? some sort of therapy?

> can you elaborate?

> Could amelie try this?

>

> cheers Les

>

> > Hi Jody,

> >

> > I would be really interested to hear how your feeding clinic visit goes.

> My

> > son is 2 and 1/2, we haven't tried Vital Stim, and haven't found

> > anyone offering it in the UK yet. Is Ethan's problem mainly aspiration?

> > That is the issue with , aspiration and swallowing dis-cordination.

> > Most of the feeding clinics I read up on seemed to be focused on the

> > psychological aspect of feeding once the child was safe to feed and no

> > longer suffering aspiration...is Milwaukee different?

> >

> > is Wolfe

> > Mum to (UK)

> >

> > >

> > > Meg - We did e-stim for Ethan for about 12 months from about 2 1/2 yrs

> to

> > > 3 1/2 yrs. We saw good results with the vital stim on, but not a lot

> of

> > > carryover when it was off. We also did it during that time for 4 x

> week

> > for

> > > 3 weeks and then went for a swallow study. He didn't aspirate at

> first,

> > but

> > > after 3-4 swallows, he had residual in his throat. After that point,

> he

> > > seemed disinterested in eating food so we stopped the vitalstim. In

> the

> > > next month, we are going to Milwaukee Feeding Clinic to see what they

> > > suggest we do next.

> > >

> > > Jody - mom to Ethan (almost 4 yrs - ChARGE)

> > >

> > > r wrote:

> > > I got a call today from an OT who had questions about e-stim therapy

> for

> > > swallowing in kids with CHARGE. She wondered at what age children

> were

> > > treated. That hasn't been a topic on the list for quite a while. If

> > > any of you did e-stim for your kids, could you let me know how old

> your

> > > child was at the time and how successful you thought it was

> (completely,

> > > it helped, not at all)? You can either reply to the list or to me

> > > privately meg@...

> > > Thanks!

> > > Meg

> > >

May 10, 2006

Hi Les,

Have a look at http://www.vitalstim.com/indexflash.asp which explains more,

but haven't heard of anyone in the UK getting it.

Simon - I asked SALT at Great Ormond St and they had heard of it but said it

wasn't approved for use in the UK or proven to be highly successful in their

view and therefore wasn't something they explored using at the current time.

The local SALT had not heard of it - not a hope!

I guess it would be a go to the States and pay for it yourself thing....

is

>

> is

>

> I am still waiting to hear what it is exactly? some sort of therapy?

> can you elaborate?

> Could amelie try this?

>

> cheers Les

>

> > Hi Jody,

> >

> > I would be really interested to hear how your feeding clinic visit goes.

> My

> > son is 2 and 1/2, we haven't tried Vital Stim, and haven't found

> > anyone offering it in the UK yet. Is Ethan's problem mainly aspiration?

> > That is the issue with , aspiration and swallowing dis-cordination.

> > Most of the feeding clinics I read up on seemed to be focused on the

> > psychological aspect of feeding once the child was safe to feed and no

> > longer suffering aspiration...is Milwaukee different?

> >

> > is Wolfe

> > Mum to (UK)

> >

> > >

> > > Meg - We did e-stim for Ethan for about 12 months from about 2 1/2 yrs

> to

> > > 3 1/2 yrs. We saw good results with the vital stim on, but not a lot

> of

> > > carryover when it was off. We also did it during that time for 4 x

> week

> > for

> > > 3 weeks and then went for a swallow study. He didn't aspirate at

> first,

> > but

> > > after 3-4 swallows, he had residual in his throat. After that point,

> he

> > > seemed disinterested in eating food so we stopped the vitalstim. In

> the

> > > next month, we are going to Milwaukee Feeding Clinic to see what they

> > > suggest we do next.

> > >

> > > Jody - mom to Ethan (almost 4 yrs - ChARGE)

> > >

> > > r wrote:

> > > I got a call today from an OT who had questions about e-stim therapy

> for

> > > swallowing in kids with CHARGE. She wondered at what age children

> were

> > > treated. That hasn't been a topic on the list for quite a while. If

> > > any of you did e-stim for your kids, could you let me know how old

> your

> > > child was at the time and how successful you thought it was

> (completely,

> > > it helped, not at all)? You can either reply to the list or to me

> > > privately meg@...

> > > Thanks!

> > > Meg

> > >

May 10, 2006

Hi Les,

Have a look at http://www.vitalstim.com/indexflash.asp which explains more,

but haven't heard of anyone in the UK getting it.

Simon - I asked SALT at Great Ormond St and they had heard of it but said it

wasn't approved for use in the UK or proven to be highly successful in their

view and therefore wasn't something they explored using at the current time.

The local SALT had not heard of it - not a hope!

I guess it would be a go to the States and pay for it yourself thing....

is

>

> is

>

> I am still waiting to hear what it is exactly? some sort of therapy?

> can you elaborate?

> Could amelie try this?

>

> cheers Les

>

> > Hi Jody,

> >

> > I would be really interested to hear how your feeding clinic visit goes.

> My

> > son is 2 and 1/2, we haven't tried Vital Stim, and haven't found

> > anyone offering it in the UK yet. Is Ethan's problem mainly aspiration?

> > That is the issue with , aspiration and swallowing dis-cordination.

> > Most of the feeding clinics I read up on seemed to be focused on the

> > psychological aspect of feeding once the child was safe to feed and no

> > longer suffering aspiration...is Milwaukee different?

> >

> > is Wolfe

> > Mum to (UK)

> >

> > >

> > > Meg - We did e-stim for Ethan for about 12 months from about 2 1/2 yrs

> to

> > > 3 1/2 yrs. We saw good results with the vital stim on, but not a lot

> of

> > > carryover when it was off. We also did it during that time for 4 x

> week

> > for

> > > 3 weeks and then went for a swallow study. He didn't aspirate at

> first,

> > but

> > > after 3-4 swallows, he had residual in his throat. After that point,

> he

> > > seemed disinterested in eating food so we stopped the vitalstim. In

> the

> > > next month, we are going to Milwaukee Feeding Clinic to see what they

> > > suggest we do next.

> > >

> > > Jody - mom to Ethan (almost 4 yrs - ChARGE)

> > >

> > > r wrote:

> > > I got a call today from an OT who had questions about e-stim therapy

> for

> > > swallowing in kids with CHARGE. She wondered at what age children

> were

> > > treated. That hasn't been a topic on the list for quite a while. If

> > > any of you did e-stim for your kids, could you let me know how old

> your

> > > child was at the time and how successful you thought it was

> (completely,

> > > it helped, not at all)? You can either reply to the list or to me

> > > privately meg@...

> > > Thanks!

> > > Meg

> > >

May 11, 2006

mmm a project to save up for for u

>

> Hi Les,

>

> Have a look at http://www.vitalstim.com/indexflash.asp which explains

> more,

> but haven't heard of anyone in the UK getting it.

>

> Simon - I asked SALT at Great Ormond St and they had heard of it but said

> it

> wasn't approved for use in the UK or proven to be highly successful in

> their

> view and therefore wasn't something they explored using at the current

> time.

> The local SALT had not heard of it - not a hope!

>

> I guess it would be a go to the States and pay for it yourself thing....

> is

>

> >

> > is

> >

> > I am still waiting to hear what it is exactly? some sort of therapy?

> > can you elaborate?

> > Could amelie try this?

> >

> > cheers Les

> >

> > > Hi Jody,

> > >

> > > I would be really interested to hear how your feeding clinic visit

> goes.

> > My

> > > son is 2 and 1/2, we haven't tried Vital Stim, and haven't found

> > > anyone offering it in the UK yet. Is Ethan's problem mainly

> aspiration?

> > > That is the issue with , aspiration and swallowing

> dis-cordination.

> > > Most of the feeding clinics I read up on seemed to be focused on the

> > > psychological aspect of feeding once the child was safe to feed and no

> > > longer suffering aspiration...is Milwaukee different?

> > >

> > > is Wolfe

> > > Mum to (UK)

> > >

> > > >

> > > > Meg - We did e-stim for Ethan for about 12 months from about 2 1/2

> yrs

> > to

> > > > 3 1/2 yrs. We saw good results with the vital stim on, but not a

> lot

> > of

> > > > carryover when it was off. We also did it during that time for 4 x

> > week

> > > for

> > > > 3 weeks and then went for a swallow study. He didn't aspirate at

> > first,

> > > but

> > > > after 3-4 swallows, he had residual in his throat. After that

> point,

> > he

> > > > seemed disinterested in eating food so we stopped the vitalstim. In

> > the

> > > > next month, we are going to Milwaukee Feeding Clinic to see what

> they

> > > > suggest we do next.

> > > >

> > > > Jody - mom to Ethan (almost 4 yrs - ChARGE)

> > > >

> > > > r wrote:

> > > > I got a call today from an OT who had questions about e-stim therapy

> > for

> > > > swallowing in kids with CHARGE. She wondered at what age children

> > were

> > > > treated. That hasn't been a topic on the list for quite a

> while. If

> > > > any of you did e-stim for your kids, could you let me know how old

> > your

> > > > child was at the time and how successful you thought it was

> > (completely,

> > > > it helped, not at all)? You can either reply to the list or to me

> > > > privately meg@...

> > > > Thanks!

> > > > Meg

> > > >

May 11, 2006

mmm a project to save up for for u

>

> Hi Les,

>

> Have a look at http://www.vitalstim.com/indexflash.asp which explains

> more,

> but haven't heard of anyone in the UK getting it.

>

> Simon - I asked SALT at Great Ormond St and they had heard of it but said

> it

> wasn't approved for use in the UK or proven to be highly successful in

> their

> view and therefore wasn't something they explored using at the current

> time.

> The local SALT had not heard of it - not a hope!

>

> I guess it would be a go to the States and pay for it yourself thing....

> is

>

> >

> > is

> >

> > I am still waiting to hear what it is exactly? some sort of therapy?

> > can you elaborate?

> > Could amelie try this?

> >

> > cheers Les

> >

> > > Hi Jody,

> > >

> > > I would be really interested to hear how your feeding clinic visit

> goes.

> > My

> > > son is 2 and 1/2, we haven't tried Vital Stim, and haven't found

> > > anyone offering it in the UK yet. Is Ethan's problem mainly

> aspiration?

> > > That is the issue with , aspiration and swallowing

> dis-cordination.

> > > Most of the feeding clinics I read up on seemed to be focused on the

> > > psychological aspect of feeding once the child was safe to feed and no

> > > longer suffering aspiration...is Milwaukee different?

> > >

> > > is Wolfe

> > > Mum to (UK)

> > >

> > > >

> > > > Meg - We did e-stim for Ethan for about 12 months from about 2 1/2

> yrs

> > to

> > > > 3 1/2 yrs. We saw good results with the vital stim on, but not a

> lot

> > of

> > > > carryover when it was off. We also did it during that time for 4 x

> > week

> > > for

> > > > 3 weeks and then went for a swallow study. He didn't aspirate at

> > first,

> > > but

> > > > after 3-4 swallows, he had residual in his throat. After that

> point,

> > he

> > > > seemed disinterested in eating food so we stopped the vitalstim. In

> > the

> > > > next month, we are going to Milwaukee Feeding Clinic to see what

> they

> > > > suggest we do next.

> > > >

> > > > Jody - mom to Ethan (almost 4 yrs - ChARGE)

> > > >

> > > > r wrote:

> > > > I got a call today from an OT who had questions about e-stim therapy

> > for

> > > > swallowing in kids with CHARGE. She wondered at what age children

> > were

> > > > treated. That hasn't been a topic on the list for quite a

> while. If

> > > > any of you did e-stim for your kids, could you let me know how old

> > your

> > > > child was at the time and how successful you thought it was

> > (completely,

> > > > it helped, not at all)? You can either reply to the list or to me

> > > > privately meg@...

> > > > Thanks!

> > > > Meg

> > > >

May 12, 2006

is, I will let you know how it goes after our June appt. Our ST recommended

us to Milwaukee as she has had other (non CHARGE) clients go there. Yes,

Ethan's problems are all of that, aspiration, etc. He had a swallow study last

fall and was able to eat a few spoonfuls of pureed foods, but after a few, he

had residual in his trach. I know it may be years before he eats orally so I'm

going to see what else they may have to offer. They do a total person approach

and have a GI doctor, nutritionist, ST and psychologist evaluate your child. I

do believe part of Ethan's problem is behavioral, but most of it is medical.

Jody

is Wolfe wrote:

Hi Jody,

I would be really interested to hear how your feeding clinic visit goes. My

son is 2 and 1/2, we haven't tried Vital Stim, and haven't found

anyone offering it in the UK yet. Is Ethan's problem mainly aspiration?

That is the issue with , aspiration and swallowing dis-cordination.

Most of the feeding clinics I read up on seemed to be focused on the

psychological aspect of feeding once the child was safe to feed and no

longer suffering aspiration...is Milwaukee different?

is Wolfe

Mum to (UK)

>

> Meg - We did e-stim for Ethan for about 12 months from about 2 1/2 yrs to

> 3 1/2 yrs. We saw good results with the vital stim on, but not a lot of

> carryover when it was off. We also did it during that time for 4 x week for

> 3 weeks and then went for a swallow study. He didn't aspirate at first, but

> after 3-4 swallows, he had residual in his throat. After that point, he

> seemed disinterested in eating food so we stopped the vitalstim. In the

> next month, we are going to Milwaukee Feeding Clinic to see what they

> suggest we do next.

>

> Jody - mom to Ethan (almost 4 yrs - ChARGE)

>

> r wrote:

> I got a call today from an OT who had questions about e-stim therapy for

> swallowing in kids with CHARGE. She wondered at what age children were

> treated. That hasn't been a topic on the list for quite a while. If

> any of you did e-stim for your kids, could you let me know how old your

> child was at the time and how successful you thought it was (completely,

> it helped, not at all)? You can either reply to the list or to me

> privately meg@...

> Thanks!

> Meg

>

May 12, 2006