Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 I wish i could say stuff too. I cant understand why people are so dense some times. I know how it is dealing with ppl like that. Chantelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 I wish i could say stuff too. I cant understand why people are so dense some times. I know how it is dealing with ppl like that. Chantelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 I wish i could say stuff too. I cant understand why people are so dense some times. I know how it is dealing with ppl like that. Chantelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 Amy, I am so sorry you have to go threw this along with everything else you have had to go threw!!! I wish I could be there to give you a big hug!! I know what you mean about having to be home with Max and not able to have a family memeber watch him while you work. My husband is the only one that works since I have to be home with Eva and if anything were to happen with Dan then I would be lost and wouldnt know what to do. Your ex is a big $#%@ I agree take the CHARGE manual with you. Good Luck and I hope he steps up sooner or laster and becomes a man!!! Hugs, Crystal and Eva (13 month old CHARGEr) > > Hello all...I need your help and I think Meg would probably be the best person but if someone has such a document, input or advice, that would be great too! > > My divorce hearing is coming up in a few weeks (June 7th) and my ex is planning to argue that he can only afford " limited " alimony (he can afford more than that) for me to stay at home with Maxwell. He basically belittles my care for Max and believes I should be able to work at least part time. > > As much as I would love to return to the workforce (my career was my life before Max!!!), I don't know how I could do that as a single mom with all of Max's current medical complications. There is not another parent or family member who is able to watch Max while I was at work. And I could hire a nurse, but that would basically equal out my pay at work. Additionally, I am already running ragged being up off and on all night with Maxwell and his needs...and then during the day living on caffeine keeping up with his therapy, insurance calls, doctor appointments, etc. I have no idea how I would fit a job into my life right now...I think I would have a breakdown!!! > > So we have hired a " forensic account " and " life care planner " to assist with the alimony argument. We are putting together MANY, MANY documents to prove how beneficial and necessary it is for me to take care of Maxwell full time - his medical records, information about CHARGE, etc. > > *** But what I was wondering MEG or anyone else interested, do you have any document summarizing CHARGE and the importance of full time intervention in the early years for development and long term success? I know in my heart and mind that a full time parent/caregiver is definitely what Maxwell needs for many years to come (who knows how long) but we need to prove that. Like all of us, I don't want money to interfere with the best possible outcome for my special lil' guy. > > Once he goes to school and hopefully is doing well, I would LOVE to return to work part time or even more! Before Max, my ex and I owned eight CURVES locations in WV and I absolutely loved, loved, loved it! I would soooo enjoy owning my own business again...I was incredibly passionate about helping the women and it brought me wonderful joy every day! > > Anyway, I welcome your input Meg or anyone else...your help would be GREATLY appreciated! Thank you in advance for anything and everything! > > > > > > > > Amy McKinley > Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected) > maxupdate.blogspot.com > > --------------------------------- > Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1 & cent;/min. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 Amy, I am so sorry you have to go threw this along with everything else you have had to go threw!!! I wish I could be there to give you a big hug!! I know what you mean about having to be home with Max and not able to have a family memeber watch him while you work. My husband is the only one that works since I have to be home with Eva and if anything were to happen with Dan then I would be lost and wouldnt know what to do. Your ex is a big $#%@ I agree take the CHARGE manual with you. Good Luck and I hope he steps up sooner or laster and becomes a man!!! Hugs, Crystal and Eva (13 month old CHARGEr) > > Hello all...I need your help and I think Meg would probably be the best person but if someone has such a document, input or advice, that would be great too! > > My divorce hearing is coming up in a few weeks (June 7th) and my ex is planning to argue that he can only afford " limited " alimony (he can afford more than that) for me to stay at home with Maxwell. He basically belittles my care for Max and believes I should be able to work at least part time. > > As much as I would love to return to the workforce (my career was my life before Max!!!), I don't know how I could do that as a single mom with all of Max's current medical complications. There is not another parent or family member who is able to watch Max while I was at work. And I could hire a nurse, but that would basically equal out my pay at work. Additionally, I am already running ragged being up off and on all night with Maxwell and his needs...and then during the day living on caffeine keeping up with his therapy, insurance calls, doctor appointments, etc. I have no idea how I would fit a job into my life right now...I think I would have a breakdown!!! > > So we have hired a " forensic account " and " life care planner " to assist with the alimony argument. We are putting together MANY, MANY documents to prove how beneficial and necessary it is for me to take care of Maxwell full time - his medical records, information about CHARGE, etc. > > *** But what I was wondering MEG or anyone else interested, do you have any document summarizing CHARGE and the importance of full time intervention in the early years for development and long term success? I know in my heart and mind that a full time parent/caregiver is definitely what Maxwell needs for many years to come (who knows how long) but we need to prove that. Like all of us, I don't want money to interfere with the best possible outcome for my special lil' guy. > > Once he goes to school and hopefully is doing well, I would LOVE to return to work part time or even more! Before Max, my ex and I owned eight CURVES locations in WV and I absolutely loved, loved, loved it! I would soooo enjoy owning my own business again...I was incredibly passionate about helping the women and it brought me wonderful joy every day! > > Anyway, I welcome your input Meg or anyone else...your help would be GREATLY appreciated! Thank you in advance for anything and everything! > > > > > > > > Amy McKinley > Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected) > maxupdate.blogspot.com > > --------------------------------- > Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1 & cent;/min. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 Amy, I am so sorry you have to go threw this along with everything else you have had to go threw!!! I wish I could be there to give you a big hug!! I know what you mean about having to be home with Max and not able to have a family memeber watch him while you work. My husband is the only one that works since I have to be home with Eva and if anything were to happen with Dan then I would be lost and wouldnt know what to do. Your ex is a big $#%@ I agree take the CHARGE manual with you. Good Luck and I hope he steps up sooner or laster and becomes a man!!! Hugs, Crystal and Eva (13 month old CHARGEr) > > Hello all...I need your help and I think Meg would probably be the best person but if someone has such a document, input or advice, that would be great too! > > My divorce hearing is coming up in a few weeks (June 7th) and my ex is planning to argue that he can only afford " limited " alimony (he can afford more than that) for me to stay at home with Maxwell. He basically belittles my care for Max and believes I should be able to work at least part time. > > As much as I would love to return to the workforce (my career was my life before Max!!!), I don't know how I could do that as a single mom with all of Max's current medical complications. There is not another parent or family member who is able to watch Max while I was at work. And I could hire a nurse, but that would basically equal out my pay at work. Additionally, I am already running ragged being up off and on all night with Maxwell and his needs...and then during the day living on caffeine keeping up with his therapy, insurance calls, doctor appointments, etc. I have no idea how I would fit a job into my life right now...I think I would have a breakdown!!! > > So we have hired a " forensic account " and " life care planner " to assist with the alimony argument. We are putting together MANY, MANY documents to prove how beneficial and necessary it is for me to take care of Maxwell full time - his medical records, information about CHARGE, etc. > > *** But what I was wondering MEG or anyone else interested, do you have any document summarizing CHARGE and the importance of full time intervention in the early years for development and long term success? I know in my heart and mind that a full time parent/caregiver is definitely what Maxwell needs for many years to come (who knows how long) but we need to prove that. Like all of us, I don't want money to interfere with the best possible outcome for my special lil' guy. > > Once he goes to school and hopefully is doing well, I would LOVE to return to work part time or even more! Before Max, my ex and I owned eight CURVES locations in WV and I absolutely loved, loved, loved it! I would soooo enjoy owning my own business again...I was incredibly passionate about helping the women and it brought me wonderful joy every day! > > Anyway, I welcome your input Meg or anyone else...your help would be GREATLY appreciated! Thank you in advance for anything and everything! > > > > > > > > Amy McKinley > Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected) > maxupdate.blogspot.com > > --------------------------------- > Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1 & cent;/min. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 Amy, You've received some great comments. I know that judge will not read the Manual. He/she won't read anything. But a good lawyer can hold up the Manual and say " this is some of what you need to know and to read and understand in order to parent this child. I presume your kid will be there too as exhibit A. If your lawyer thinks of something else that might help, let us know. Tim Hartshorne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 Amy, You've received some great comments. I know that judge will not read the Manual. He/she won't read anything. But a good lawyer can hold up the Manual and say " this is some of what you need to know and to read and understand in order to parent this child. I presume your kid will be there too as exhibit A. If your lawyer thinks of something else that might help, let us know. Tim Hartshorne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 Amy, Is your ex-husband high? Or just stupid? One thing that should definately be pointed out to the judge is the cost of daycare for a " normal " kid Max's age. Even if he didn't have any other health issues, he would probably require care on a 1:1 or 2:1 child to care-giver ratio simply because he is still a baby. There are laws in Washington state that limit the number of infants a care-giver can attend to at one time. Because of this, the cost of day-care is going to be higher than it would be for an older child. The next thing that should be pointed out is that Max is not normal. Random Betty off the street is probaby not going to be able to attend to his needs in a way that will keep him from getting sick--at least not without some extensive training (during which time she will expect to be paid at least a partial or training wage--again, laws in Washington State dictate how much this is going to cost). How many months did you spend at Max's bedside, slowly learning his care before you left the hospital? We came to the same conclusion you did--in order to obtain the level of care for Evan that we provide and that we would expect a care-giver to provide, we would have to hire a nurse. And they don't work for peanuts. By the time you pay for the care-giver, you may as well have not gone to work in the first place. It's too bad you can't bring Max to the hearing and just give a real-time demonstration of exactly what it is you do for him. (mom to Evan 9.5 mos) Amy McKinley wrote: Tim, Unfortunately the judge will not have time to read that entire manual (but I am planning on bringing one just to illustrate the depth of this syndrome) so I want to put together something " short and sweet " that emphasizes the importance of intervention for the health and development. Thanks! Tim Hartshorne wrote: Amy, I would provide a copy of the CHARGE Syndrome Manual that the Foundation has. Tim Hartshorne (father of , 17) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 have u read soem of the comments on his group i put make him stay with him for a while jsut go dump him take all the stuff show him make him read the blog its really a great place to know whhat u rgoing thourgh i love it and i love u xxxxxxxxxx ellen > > I agree with Tim. Take the manual with you. Even if there isn't time to > read it the amount of information alone is amazing. > > I too couldn't work out of the home due to Patty's health and needs. > Instead I started baby-sitting my sisters children. From there I started > a daycare > out of my home. That was difficult and one of the hardest jobs I have > ever > had. Once Patty got to our home district I got a job outside my > home. Boy > it was like taking a vacation! > > If the guy is fighting so hard then there must be someone out there who > sees > it and will help you. Trust that the right thing will happen. I can't > imagine what you are going through. My husband has been my rock. I > could never > do what I have done had I been a single mother. You must be a very strong > woman. Lean on that knowledge. Also lean on the knowledge that the early > years > are the most formative and important years in anyone's life. They are > ever > more important for our children. > > I wish you all the best. > > Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 have u read soem of the comments on his group i put make him stay with him for a while jsut go dump him take all the stuff show him make him read the blog its really a great place to know whhat u rgoing thourgh i love it and i love u xxxxxxxxxx ellen > > I agree with Tim. Take the manual with you. Even if there isn't time to > read it the amount of information alone is amazing. > > I too couldn't work out of the home due to Patty's health and needs. > Instead I started baby-sitting my sisters children. From there I started > a daycare > out of my home. That was difficult and one of the hardest jobs I have > ever > had. Once Patty got to our home district I got a job outside my > home. Boy > it was like taking a vacation! > > If the guy is fighting so hard then there must be someone out there who > sees > it and will help you. Trust that the right thing will happen. I can't > imagine what you are going through. My husband has been my rock. I > could never > do what I have done had I been a single mother. You must be a very strong > woman. Lean on that knowledge. Also lean on the knowledge that the early > years > are the most formative and important years in anyone's life. They are > ever > more important for our children. > > I wish you all the best. > > Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 have u read soem of the comments on his group i put make him stay with him for a while jsut go dump him take all the stuff show him make him read the blog its really a great place to know whhat u rgoing thourgh i love it and i love u xxxxxxxxxx ellen > > I agree with Tim. Take the manual with you. Even if there isn't time to > read it the amount of information alone is amazing. > > I too couldn't work out of the home due to Patty's health and needs. > Instead I started baby-sitting my sisters children. From there I started > a daycare > out of my home. That was difficult and one of the hardest jobs I have > ever > had. Once Patty got to our home district I got a job outside my > home. Boy > it was like taking a vacation! > > If the guy is fighting so hard then there must be someone out there who > sees > it and will help you. Trust that the right thing will happen. I can't > imagine what you are going through. My husband has been my rock. I > could never > do what I have done had I been a single mother. You must be a very strong > woman. Lean on that knowledge. Also lean on the knowledge that the early > years > are the most formative and important years in anyone's life. They are > ever > more important for our children. > > I wish you all the best. > > Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 Amy I had no idea you have all this to contend with too! I cant help you at all with the legal jargon, its different in the UK, but you sting the pathetic ba...rd (sorry its harsh) for every penny you can, you and max will need it for the long term, caring for him, on your own you shouldnt have to work as well, who does he think he is? he couldnt care for Max thats why he belittles you it makes him feel better! any way thats my twp pennies worth! needed to let off that steam after reading your dilemma. very good luck with this love Les x > Hello all...I need your help and I think Meg would probably be the best > person but if someone has such a document, input or advice, that would be > great too! > > My divorce hearing is coming up in a few weeks (June 7th) and my ex is > planning to argue that he can only afford " limited " alimony (he can afford > more than that) for me to stay at home with Maxwell. He basically belittles > my care for Max and believes I should be able to work at least part time. > > As much as I would love to return to the workforce (my career was my life > before Max!!!), I don't know how I could do that as a single mom with all of > Max's current medical complications. There is not another parent or family > member who is able to watch Max while I was at work. And I could hire a > nurse, but that would basically equal out my pay at work. Additionally, I > am already running ragged being up off and on all night with Maxwell and his > needs...and then during the day living on caffeine keeping up with his > therapy, insurance calls, doctor appointments, etc. I have no idea how I > would fit a job into my life right now...I think I would have a breakdown!!! > > > So we have hired a " forensic account " and " life care planner " to assist > with the alimony argument. We are putting together MANY, MANY documents to > prove how beneficial and necessary it is for me to take care of Maxwell full > time - his medical records, information about CHARGE, etc. > > *** But what I was wondering MEG or anyone else interested, do you have > any document summarizing CHARGE and the importance of full time intervention > in the early years for development and long term success? I know in my > heart and mind that a full time parent/caregiver is definitely what Maxwell > needs for many years to come (who knows how long) but we need to prove that. > Like all of us, I don't want money to interfere with the best possible > outcome for my special lil' guy. > > Once he goes to school and hopefully is doing well, I would LOVE to return > to work part time or even more! Before Max, my ex and I owned eight CURVES > locations in WV and I absolutely loved, loved, loved it! I would soooo > enjoy owning my own business again...I was incredibly passionate about > helping the women and it brought me wonderful joy every day! > > Anyway, I welcome your input Meg or anyone else...your help would be > GREATLY appreciated! Thank you in advance for anything and everything! > > > > > > > > Amy McKinley > Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected) > maxupdate.blogspot.com > > --------------------------------- > Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates > starting at 1 & cent;/min. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 Amy I had no idea you have all this to contend with too! I cant help you at all with the legal jargon, its different in the UK, but you sting the pathetic ba...rd (sorry its harsh) for every penny you can, you and max will need it for the long term, caring for him, on your own you shouldnt have to work as well, who does he think he is? he couldnt care for Max thats why he belittles you it makes him feel better! any way thats my twp pennies worth! needed to let off that steam after reading your dilemma. very good luck with this love Les x > Hello all...I need your help and I think Meg would probably be the best > person but if someone has such a document, input or advice, that would be > great too! > > My divorce hearing is coming up in a few weeks (June 7th) and my ex is > planning to argue that he can only afford " limited " alimony (he can afford > more than that) for me to stay at home with Maxwell. He basically belittles > my care for Max and believes I should be able to work at least part time. > > As much as I would love to return to the workforce (my career was my life > before Max!!!), I don't know how I could do that as a single mom with all of > Max's current medical complications. There is not another parent or family > member who is able to watch Max while I was at work. And I could hire a > nurse, but that would basically equal out my pay at work. Additionally, I > am already running ragged being up off and on all night with Maxwell and his > needs...and then during the day living on caffeine keeping up with his > therapy, insurance calls, doctor appointments, etc. I have no idea how I > would fit a job into my life right now...I think I would have a breakdown!!! > > > So we have hired a " forensic account " and " life care planner " to assist > with the alimony argument. We are putting together MANY, MANY documents to > prove how beneficial and necessary it is for me to take care of Maxwell full > time - his medical records, information about CHARGE, etc. > > *** But what I was wondering MEG or anyone else interested, do you have > any document summarizing CHARGE and the importance of full time intervention > in the early years for development and long term success? I know in my > heart and mind that a full time parent/caregiver is definitely what Maxwell > needs for many years to come (who knows how long) but we need to prove that. > Like all of us, I don't want money to interfere with the best possible > outcome for my special lil' guy. > > Once he goes to school and hopefully is doing well, I would LOVE to return > to work part time or even more! Before Max, my ex and I owned eight CURVES > locations in WV and I absolutely loved, loved, loved it! I would soooo > enjoy owning my own business again...I was incredibly passionate about > helping the women and it brought me wonderful joy every day! > > Anyway, I welcome your input Meg or anyone else...your help would be > GREATLY appreciated! Thank you in advance for anything and everything! > > > > > > > > Amy McKinley > Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected) > maxupdate.blogspot.com > > --------------------------------- > Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates > starting at 1 & cent;/min. > > Quote Link to comment Share on other sites More sharing options...
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