Guest guest Posted December 28, 2005 Report Share Posted December 28, 2005 hear its possible the nerve damage in my feet/hands could be due to a multitude of things BUT if its hashi's I have a chance of regaining the feeling once that gets undercontrol.I'd be most interested in others experience.ThanksBest alwaysPatti WHAT ARE THE SYMPTOMS YOU HAVE? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2005 Report Share Posted December 28, 2005 hear its possible the nerve damage in my feet/hands could be due to a multitude of things BUT if its hashi's I have a chance of regaining the feeling once that gets undercontrol.I'd be most interested in others experience.ThanksBest alwaysPatti WHAT ARE THE SYMPTOMS YOU HAVE? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2005 Report Share Posted December 28, 2005 hear its possible the nerve damage in my feet/hands could be due to a multitude of things BUT if its hashi's I have a chance of regaining the feeling once that gets undercontrol.I'd be most interested in others experience.ThanksBest alwaysPatti WHAT ARE THE SYMPTOMS YOU HAVE? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2005 Report Share Posted December 29, 2005 It is actually being hypothryroid that can cause nerve damage, but since many people with Hashimoto's are either undertreated or not dx'd for years "we" are the ones most likely to suffer nerve damage. And yes, according to all the research I have done, if the damage is not to far along, it can at best be reversed and if not, at least stopped from getting any worse. What other auto immune disorders are you dealing with? What are your symptoms for the nerve damage? I do have nerve damage, unfortunately it is still progressing in me.... but then I have only been on thyroid meds about 6 weeks and am still on the initial dose of .1mg. Cody nerve damage? I have hashimoto's as well as a few other auto-immune disorders. I hear its possible the nerve damage in my feet/hands could be due to a multitude of things BUT if its hashi's I have a chance of regaining the feeling once that gets undercontrol.I'd be most interested in others experience.ThanksBest alwaysPatti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2005 Report Share Posted December 29, 2005 The nerve damage?.... its mostly numbness or tingling. There are times though that it is rather electric shock and stabbing pains. For the most part though...its the formerleoloverswife@... wrote: hear its possible the nerve damage in my feet/hands could be due to a multitude of things BUT if its hashi's I have a chance of regaining the feeling once that gets undercontrol.I'd be most interested in others experience.ThanksBest alwaysPatti WHAT ARE THE SYMPTOMS YOU HAVE? Yahoo! Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2005 Report Share Posted December 29, 2005 The nerve damage?.... its mostly numbness or tingling. There are times though that it is rather electric shock and stabbing pains. For the most part though...its the formerleoloverswife@... wrote: hear its possible the nerve damage in my feet/hands could be due to a multitude of things BUT if its hashi's I have a chance of regaining the feeling once that gets undercontrol.I'd be most interested in others experience.ThanksBest alwaysPatti WHAT ARE THE SYMPTOMS YOU HAVE? Yahoo! Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 Hi Im sorry to hear you have nerve damage as well. Its a bi*ch. I have something called cryoglobulinemia. Yeah, never heard of it right?! It is usually associated with hep c but is also found with autoimmune disorders. Cryo is a protein in the blood that is not normally found and parcipitates out of your blood at certain temps. The immune system then attacks it so often their is organ/nerve damage. I also have costocontritis which is a chronic inflammation of the tissues connecting your ribs. Honestly, I have been diagnosed with MCTD but most think its Lupus. I have been shuffled from doc to doc for the last 5 years so lord only knows how long I have had hashi. I was just diagnosed this past June. The nerve damage started a year ago and has progressively gotten worse. I have it in both feet and it is starting in the index fingers. Do you have hashi as well as other autoimmune disorders? Are they contributing your nerve damage to the hashi? 1 mcg of what? Best always patti Cody wrote: It is actually being hypothryroid that can cause nerve damage, but since many people with Hashimoto's are either undertreated or not dx'd for years "we" are the ones most likely to suffer nerve damage. And yes, according to all the research I have done, if the damage is not to far along, it can at best be reversed and if not, at least stopped from getting any worse. What other auto immune disorders are you dealing with? What are your symptoms for the nerve damage? I do have nerve damage, unfortunately it is still progressing in me.... but then I have only been on thyroid meds about 6 weeks and am still on the initial dose of .1mg. Cody nerve damage? I have hashimoto's as well as a few other auto-immune disorders. I hear its possible the nerve damage in my feet/hands could be due to a multitude of things BUT if its hashi's I have a chance of regaining the feeling once that gets undercontrol.I'd be most interested in others experience.ThanksBest alwaysPatti Yahoo! Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 Hi Im sorry to hear you have nerve damage as well. Its a bi*ch. I have something called cryoglobulinemia. Yeah, never heard of it right?! It is usually associated with hep c but is also found with autoimmune disorders. Cryo is a protein in the blood that is not normally found and parcipitates out of your blood at certain temps. The immune system then attacks it so often their is organ/nerve damage. I also have costocontritis which is a chronic inflammation of the tissues connecting your ribs. Honestly, I have been diagnosed with MCTD but most think its Lupus. I have been shuffled from doc to doc for the last 5 years so lord only knows how long I have had hashi. I was just diagnosed this past June. The nerve damage started a year ago and has progressively gotten worse. I have it in both feet and it is starting in the index fingers. Do you have hashi as well as other autoimmune disorders? Are they contributing your nerve damage to the hashi? 1 mcg of what? Best always patti Cody wrote: It is actually being hypothryroid that can cause nerve damage, but since many people with Hashimoto's are either undertreated or not dx'd for years "we" are the ones most likely to suffer nerve damage. And yes, according to all the research I have done, if the damage is not to far along, it can at best be reversed and if not, at least stopped from getting any worse. What other auto immune disorders are you dealing with? What are your symptoms for the nerve damage? I do have nerve damage, unfortunately it is still progressing in me.... but then I have only been on thyroid meds about 6 weeks and am still on the initial dose of .1mg. Cody nerve damage? I have hashimoto's as well as a few other auto-immune disorders. I hear its possible the nerve damage in my feet/hands could be due to a multitude of things BUT if its hashi's I have a chance of regaining the feeling once that gets undercontrol.I'd be most interested in others experience.ThanksBest alwaysPatti Yahoo! Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 Hi Im sorry to hear you have nerve damage as well. Its a bi*ch. I have something called cryoglobulinemia. Yeah, never heard of it right?! It is usually associated with hep c but is also found with autoimmune disorders. Cryo is a protein in the blood that is not normally found and parcipitates out of your blood at certain temps. The immune system then attacks it so often their is organ/nerve damage. I also have costocontritis which is a chronic inflammation of the tissues connecting your ribs. Honestly, I have been diagnosed with MCTD but most think its Lupus. I have been shuffled from doc to doc for the last 5 years so lord only knows how long I have had hashi. I was just diagnosed this past June. The nerve damage started a year ago and has progressively gotten worse. I have it in both feet and it is starting in the index fingers. Do you have hashi as well as other autoimmune disorders? Are they contributing your nerve damage to the hashi? 1 mcg of what? Best always patti Cody wrote: It is actually being hypothryroid that can cause nerve damage, but since many people with Hashimoto's are either undertreated or not dx'd for years "we" are the ones most likely to suffer nerve damage. And yes, according to all the research I have done, if the damage is not to far along, it can at best be reversed and if not, at least stopped from getting any worse. What other auto immune disorders are you dealing with? What are your symptoms for the nerve damage? I do have nerve damage, unfortunately it is still progressing in me.... but then I have only been on thyroid meds about 6 weeks and am still on the initial dose of .1mg. Cody nerve damage? I have hashimoto's as well as a few other auto-immune disorders. I hear its possible the nerve damage in my feet/hands could be due to a multitude of things BUT if its hashi's I have a chance of regaining the feeling once that gets undercontrol.I'd be most interested in others experience.ThanksBest alwaysPatti Yahoo! Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 Patti, Sorry should have said 100mcg of levothyroxine instead of .1 mg. I don't know if I have any other autoimmune disorders... when this stuff first started years ago, I was told I had lupus. It was a clinical dx only as the test results were inconclusive... regardless I was pretty sure I had some auto immune disorder and I was right. Yes, if you have one autoimmune you are likely to have another...could be anyone...especially raynauds...it tends to happen along with any autoimmune disease you may have. I have run into someone else on another list that has had identical symptoms to mine and she said all but some mild pain in her lower back has gone bye bye with treatment. I hope I have as much luck... C, Re: nerve damage? Hi Im sorry to hear you have nerve damage as well. Its a bi*ch. I have something called cryoglobulinemia. Yeah, never heard of it right?! It is usually associated with hep c but is also found with autoimmune disorders. Cryo is a protein in the blood that is not normally found and parcipitates out of your blood at certain temps. The immune system then attacks it so often their is organ/nerve damage. I also have costocontritis which is a chronic inflammation of the tissues connecting your ribs. Honestly, I have been diagnosed with MCTD but most think its Lupus. I have been shuffled from doc to doc for the last 5 years so lord only knows how long I have had hashi. I was just diagnosed this past June. The nerve damage started a year ago and has progressively gotten worse. I have it in both feet and it is starting in the index fingers. Do you have hashi as well as other autoimmune disorders? Are they contributing your nerve damage to the hashi? 1 mcg of what? Best always patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 Patti, Sorry should have said 100mcg of levothyroxine instead of .1 mg. I don't know if I have any other autoimmune disorders... when this stuff first started years ago, I was told I had lupus. It was a clinical dx only as the test results were inconclusive... regardless I was pretty sure I had some auto immune disorder and I was right. Yes, if you have one autoimmune you are likely to have another...could be anyone...especially raynauds...it tends to happen along with any autoimmune disease you may have. I have run into someone else on another list that has had identical symptoms to mine and she said all but some mild pain in her lower back has gone bye bye with treatment. I hope I have as much luck... C, Re: nerve damage? Hi Im sorry to hear you have nerve damage as well. Its a bi*ch. I have something called cryoglobulinemia. Yeah, never heard of it right?! It is usually associated with hep c but is also found with autoimmune disorders. Cryo is a protein in the blood that is not normally found and parcipitates out of your blood at certain temps. The immune system then attacks it so often their is organ/nerve damage. I also have costocontritis which is a chronic inflammation of the tissues connecting your ribs. Honestly, I have been diagnosed with MCTD but most think its Lupus. I have been shuffled from doc to doc for the last 5 years so lord only knows how long I have had hashi. I was just diagnosed this past June. The nerve damage started a year ago and has progressively gotten worse. I have it in both feet and it is starting in the index fingers. Do you have hashi as well as other autoimmune disorders? Are they contributing your nerve damage to the hashi? 1 mcg of what? Best always patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 Patti, Sorry should have said 100mcg of levothyroxine instead of .1 mg. I don't know if I have any other autoimmune disorders... when this stuff first started years ago, I was told I had lupus. It was a clinical dx only as the test results were inconclusive... regardless I was pretty sure I had some auto immune disorder and I was right. Yes, if you have one autoimmune you are likely to have another...could be anyone...especially raynauds...it tends to happen along with any autoimmune disease you may have. I have run into someone else on another list that has had identical symptoms to mine and she said all but some mild pain in her lower back has gone bye bye with treatment. I hope I have as much luck... C, Re: nerve damage? Hi Im sorry to hear you have nerve damage as well. Its a bi*ch. I have something called cryoglobulinemia. Yeah, never heard of it right?! It is usually associated with hep c but is also found with autoimmune disorders. Cryo is a protein in the blood that is not normally found and parcipitates out of your blood at certain temps. The immune system then attacks it so often their is organ/nerve damage. I also have costocontritis which is a chronic inflammation of the tissues connecting your ribs. Honestly, I have been diagnosed with MCTD but most think its Lupus. I have been shuffled from doc to doc for the last 5 years so lord only knows how long I have had hashi. I was just diagnosed this past June. The nerve damage started a year ago and has progressively gotten worse. I have it in both feet and it is starting in the index fingers. Do you have hashi as well as other autoimmune disorders? Are they contributing your nerve damage to the hashi? 1 mcg of what? Best always patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2005 Report Share Posted December 31, 2005 Patti, You mean you were on cytomel only for a while? Why did they do that? And are they just going to give you the synthetic thyroid and no cytomel? C. Re: nerve damage? Hi They are still fussing with my meds but I have to tell you most the worst symptoms I was suffering from have gone away since being one meds (5 mcg of cytomel since June, recently switched to 150 mcg of synthroid) Hopefully in time both of us will be offered relief from the nerve damage. Best always Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2005 Report Share Posted December 31, 2005 Patti, You mean you were on cytomel only for a while? Why did they do that? And are they just going to give you the synthetic thyroid and no cytomel? C. Re: nerve damage? Hi They are still fussing with my meds but I have to tell you most the worst symptoms I was suffering from have gone away since being one meds (5 mcg of cytomel since June, recently switched to 150 mcg of synthroid) Hopefully in time both of us will be offered relief from the nerve damage. Best always Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2005 Report Share Posted December 31, 2005 Patti, You mean you were on cytomel only for a while? Why did they do that? And are they just going to give you the synthetic thyroid and no cytomel? C. Re: nerve damage? Hi They are still fussing with my meds but I have to tell you most the worst symptoms I was suffering from have gone away since being one meds (5 mcg of cytomel since June, recently switched to 150 mcg of synthroid) Hopefully in time both of us will be offered relief from the nerve damage. Best always Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 Yes My out of network DO I was seeing for allergies finally asked how much the docs investigated my high blood pressure. She ran a test and low and behold - hashi. She put me on 5mcg cytomel and I tell ya, I started to feel like my old self again. I have other issues that I addressed with my GP and he ran blood tests and said my levels wer all messed up and he took me off cytomel and put me on synthroid. This was right before the holiday....I go back nex week for more blood work. I have so much to learn about the meds........ Cody wrote: Patti, You mean you were on cytomel only for a while? Why did they do that? And are they just going to give you the synthetic thyroid and no cytomel? C. Re: nerve damage? Hi They are still fussing with my meds but I have to tell you most the worst symptoms I was suffering from have gone away since being one meds (5 mcg of cytomel since June, recently switched to 150 mcg of synthroid) Hopefully in time both of us will be offered relief from the nerve damage. Best always Patti Yahoo! DSL Something to write home about. Just $16.99/mo. or less Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 Yes My out of network DO I was seeing for allergies finally asked how much the docs investigated my high blood pressure. She ran a test and low and behold - hashi. She put me on 5mcg cytomel and I tell ya, I started to feel like my old self again. I have other issues that I addressed with my GP and he ran blood tests and said my levels wer all messed up and he took me off cytomel and put me on synthroid. This was right before the holiday....I go back nex week for more blood work. I have so much to learn about the meds........ Cody wrote: Patti, You mean you were on cytomel only for a while? Why did they do that? And are they just going to give you the synthetic thyroid and no cytomel? C. Re: nerve damage? Hi They are still fussing with my meds but I have to tell you most the worst symptoms I was suffering from have gone away since being one meds (5 mcg of cytomel since June, recently switched to 150 mcg of synthroid) Hopefully in time both of us will be offered relief from the nerve damage. Best always Patti Yahoo! DSL Something to write home about. Just $16.99/mo. or less Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 Yes My out of network DO I was seeing for allergies finally asked how much the docs investigated my high blood pressure. She ran a test and low and behold - hashi. She put me on 5mcg cytomel and I tell ya, I started to feel like my old self again. I have other issues that I addressed with my GP and he ran blood tests and said my levels wer all messed up and he took me off cytomel and put me on synthroid. This was right before the holiday....I go back nex week for more blood work. I have so much to learn about the meds........ Cody wrote: Patti, You mean you were on cytomel only for a while? Why did they do that? And are they just going to give you the synthetic thyroid and no cytomel? C. Re: nerve damage? Hi They are still fussing with my meds but I have to tell you most the worst symptoms I was suffering from have gone away since being one meds (5 mcg of cytomel since June, recently switched to 150 mcg of synthroid) Hopefully in time both of us will be offered relief from the nerve damage. Best always Patti Yahoo! DSL Something to write home about. Just $16.99/mo. or less Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 The doc seems to be doing some weird stuff with you... But I suppose if it is working. As Topper would say are they checking your free t4 and free t3? I am rather impressed he jumped you straight to 150mcg of thyroid... I was started on 100mcg... Anyway, I hope that the worst of my neurological symtoms start going away soon.... C. Re: nerve damage? Hi They are still fussing with my meds but I have to tell you most the worst symptoms I was suffering from have gone away since being one meds (5 mcg of cytomel since June, recently switched to 150 mcg of synthroid) Hopefully in time both of us will be offered relief from the nerve damage. Best always Patti Yahoo! DSL Something to write home about. Just $16.99/mo. or less Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 The doc seems to be doing some weird stuff with you... But I suppose if it is working. As Topper would say are they checking your free t4 and free t3? I am rather impressed he jumped you straight to 150mcg of thyroid... I was started on 100mcg... Anyway, I hope that the worst of my neurological symtoms start going away soon.... C. Re: nerve damage? Hi They are still fussing with my meds but I have to tell you most the worst symptoms I was suffering from have gone away since being one meds (5 mcg of cytomel since June, recently switched to 150 mcg of synthroid) Hopefully in time both of us will be offered relief from the nerve damage. Best always Patti Yahoo! DSL Something to write home about. Just $16.99/mo. or less Quote Link to comment Share on other sites More sharing options...
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