Guest guest Posted June 27, 2004 Report Share Posted June 27, 2004 Hello All, I discovered this group while searching the internet for information on focal ablation (PVA) and I'm glad I did! My journey as an afib patient began in March 1996 when I was awakened by the " quivering' heart. To the ER I went and was admitted and diagnosed with afib, something I knew nothing about. After a battery of tests to rule out thyroid problems, faulty heart valves, etc., I was placed on procanamide and advised to see my GP, who I'd just seen the week before for my annual physical. He then referred me to a cardiologist, who immediately removed me from the high dose of procanamide I'd been given. He conducted further tests to see if there were any heart structural problems and also put me on a Holter. He concluded I should go on amiodarone. This did a good job of regulating my rhythm, BUT, the longer I was on it, the more photo sensitive I became. It got to the point that being in the sun for a mere 10 minutes made my skin feel like I was inches away from a roaring bonfire! I went back to him saying this stuff is poison and I wanted something else. I've been on flecanide since. Even after being off the amiodarone for over 3 years, my ophthalmologist can still see trace crystals of it in my eyes. Bad stuff that amiodarone! Although I began with afib, three years ago it went to atrial flutter and my cardio said that's a good thing because there is a procedure to correct that. He referred me to an EP at s Hopkins in Baltimore and I had a catheter ablation performed which corrected the problem and put me back to NSR. In January of this year, I started having brief episodes of afib, which became more frequent and longer in duration. I was again referred to my EP, who told me about PVA. With little hesitation, I elected to pursue PVA. I was given an excellent information packet about the procedure, which spelled out the risks and potential gains. It was at that point I started having second thoughts and started my internet search for more information. Thankfully, I found this group and have been pouring over the personal accounts of others who have preceded me along this path. My PVA is scheduled for next month and I approach it with much more calm and expectations of a positive outcome than I did prior to finding this group. I noted with considerable interest some have reported laying on their left side seemed to trigger an afib episode. I too had that experience and my cardio didn't saying anything one way or the other about it. I know in my case, caffeine and alcohol are triggers as is stress and fatigue. I have never smoked and for nearly 20 years, I was a long distance runner so when afib appeared in my life, I was really thrown for a loop. I've never been debilitated by my afib episodes, more annoyed and frightened if anything. I'm looking forward to post PVA and hoping for a long time in NSR. I'll provide an update. Best to all, Bob Quote Link to comment Share on other sites More sharing options...
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