Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 That is great news!!! Hugs, Crystal and Eva (13 month old CHARGEr) > > Hi all. I wanted to share the Good News. 's neurosurgeon agreed > that now is not the time for surgery for 's chiari malformation > (scheduled for June 7th)as she's managed to stay asymptomatic. (Glory > to God!) > Many thanks to all who helped me learn and cope with this latest > challenge. She's going to take the summer off from school after many > years of 11 month school terms, and then will return to Perkins for her > senior year. We have many things to do. She began meditating in > March, and we want to strengthen and deepen that experience. And we > need to spend time establishing new eating habits! > Would we have ever dreamed that the little blond peanut would someday > need a diet-LOL. Too many admonishions (?)to EAT! in her formative > years, apparently. As she is going to remain on some movement > restrictions, we'll try tai chi first as a means to improve her balance. > (Kim-smiles). > And I've been trying to think outside the box for career direction for > her. As earnings are not necessarily an issue, I've been trying to > think of craft type professions-pottery, stained glass-somthing like > that, that she might like to persue-she's not interested in college > right now(academic burn-out). Any ideas would be greatly appreciated! > We also saw Dr. Glaser in April, and he Rx'd certain herbs for her that > are designed to strengthen and rejuvenate the nerves. I'm waiting till > she's home from school to begin the herbs, but I will certainly report > on their efficacy as we go along. > Peace and love to you all, > in Massachusetts > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 That is great news!!! Hugs, Crystal and Eva (13 month old CHARGEr) > > Hi all. I wanted to share the Good News. 's neurosurgeon agreed > that now is not the time for surgery for 's chiari malformation > (scheduled for June 7th)as she's managed to stay asymptomatic. (Glory > to God!) > Many thanks to all who helped me learn and cope with this latest > challenge. She's going to take the summer off from school after many > years of 11 month school terms, and then will return to Perkins for her > senior year. We have many things to do. She began meditating in > March, and we want to strengthen and deepen that experience. And we > need to spend time establishing new eating habits! > Would we have ever dreamed that the little blond peanut would someday > need a diet-LOL. Too many admonishions (?)to EAT! in her formative > years, apparently. As she is going to remain on some movement > restrictions, we'll try tai chi first as a means to improve her balance. > (Kim-smiles). > And I've been trying to think outside the box for career direction for > her. As earnings are not necessarily an issue, I've been trying to > think of craft type professions-pottery, stained glass-somthing like > that, that she might like to persue-she's not interested in college > right now(academic burn-out). Any ideas would be greatly appreciated! > We also saw Dr. Glaser in April, and he Rx'd certain herbs for her that > are designed to strengthen and rejuvenate the nerves. I'm waiting till > she's home from school to begin the herbs, but I will certainly report > on their efficacy as we go along. > Peace and love to you all, > in Massachusetts > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 That is great news!!! Hugs, Crystal and Eva (13 month old CHARGEr) > > Hi all. I wanted to share the Good News. 's neurosurgeon agreed > that now is not the time for surgery for 's chiari malformation > (scheduled for June 7th)as she's managed to stay asymptomatic. (Glory > to God!) > Many thanks to all who helped me learn and cope with this latest > challenge. She's going to take the summer off from school after many > years of 11 month school terms, and then will return to Perkins for her > senior year. We have many things to do. She began meditating in > March, and we want to strengthen and deepen that experience. And we > need to spend time establishing new eating habits! > Would we have ever dreamed that the little blond peanut would someday > need a diet-LOL. Too many admonishions (?)to EAT! in her formative > years, apparently. As she is going to remain on some movement > restrictions, we'll try tai chi first as a means to improve her balance. > (Kim-smiles). > And I've been trying to think outside the box for career direction for > her. As earnings are not necessarily an issue, I've been trying to > think of craft type professions-pottery, stained glass-somthing like > that, that she might like to persue-she's not interested in college > right now(academic burn-out). Any ideas would be greatly appreciated! > We also saw Dr. Glaser in April, and he Rx'd certain herbs for her that > are designed to strengthen and rejuvenate the nerves. I'm waiting till > she's home from school to begin the herbs, but I will certainly report > on their efficacy as we go along. > Peace and love to you all, > in Massachusetts > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 That's good news ... > > Hi all. I wanted to share the Good News. 's neurosurgeon agreed > that now is not the time for surgery for 's chiari malformation > (scheduled for June 7th)as she's managed to stay asymptomatic. (Glory > to God!) > Many thanks to all who helped me learn and cope with this latest > challenge. She's going to take the summer off from school after many > years of 11 month school terms, and then will return to Perkins for her > senior year. We have many things to do. She began meditating in > March, and we want to strengthen and deepen that experience. And we > need to spend time establishing new eating habits! > Would we have ever dreamed that the little blond peanut would someday > need a diet-LOL. Too many admonishions (?)to EAT! in her formative > years, apparently. As she is going to remain on some movement > restrictions, we'll try tai chi first as a means to improve her balance. > (Kim-smiles). > And I've been trying to think outside the box for career direction for > her. As earnings are not necessarily an issue, I've been trying to > think of craft type professions-pottery, stained glass-somthing like > that, that she might like to persue-she's not interested in college > right now(academic burn-out). Any ideas would be greatly appreciated! > We also saw Dr. Glaser in April, and he Rx'd certain herbs for her that > are designed to strengthen and rejuvenate the nerves. I'm waiting till > she's home from school to begin the herbs, but I will certainly report > on their efficacy as we go along. > Peace and love to you all, > in Massachusetts > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support group does not constitute membership in > the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 That's good news ... > > Hi all. I wanted to share the Good News. 's neurosurgeon agreed > that now is not the time for surgery for 's chiari malformation > (scheduled for June 7th)as she's managed to stay asymptomatic. (Glory > to God!) > Many thanks to all who helped me learn and cope with this latest > challenge. She's going to take the summer off from school after many > years of 11 month school terms, and then will return to Perkins for her > senior year. We have many things to do. She began meditating in > March, and we want to strengthen and deepen that experience. And we > need to spend time establishing new eating habits! > Would we have ever dreamed that the little blond peanut would someday > need a diet-LOL. Too many admonishions (?)to EAT! in her formative > years, apparently. As she is going to remain on some movement > restrictions, we'll try tai chi first as a means to improve her balance. > (Kim-smiles). > And I've been trying to think outside the box for career direction for > her. As earnings are not necessarily an issue, I've been trying to > think of craft type professions-pottery, stained glass-somthing like > that, that she might like to persue-she's not interested in college > right now(academic burn-out). Any ideas would be greatly appreciated! > We also saw Dr. Glaser in April, and he Rx'd certain herbs for her that > are designed to strengthen and rejuvenate the nerves. I'm waiting till > she's home from school to begin the herbs, but I will certainly report > on their efficacy as we go along. > Peace and love to you all, > in Massachusetts > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support group does not constitute membership in > the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 , Yea about the surgery. How wonderful for her. I love the topic of having to watch 's weight. We do too! Never in a million years would I have guessed we'd need to focus on that. Patty does tia chi and loves it. We only have the videos but they are wonderful. They put her in such a good place. Thinking outside the box have you thought of her being a masseuse? Also, we are going to look into having Patty take a photography course this summer. That'll be just a hobby for her. I know you want to think outside the box (hey that's where we live) but when you do make sure whatever you are doing leads her down the road to being able to find work. You know, supply and demand! By the way, I went to a Transition workshop at Perkins last weekend. It was phenomenal. Have you signed and put through the last page titled " 688 " ? If not do it RIGHT NOW!!!!!!! Best wishes. Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 , Yea about the surgery. How wonderful for her. I love the topic of having to watch 's weight. We do too! Never in a million years would I have guessed we'd need to focus on that. Patty does tia chi and loves it. We only have the videos but they are wonderful. They put her in such a good place. Thinking outside the box have you thought of her being a masseuse? Also, we are going to look into having Patty take a photography course this summer. That'll be just a hobby for her. I know you want to think outside the box (hey that's where we live) but when you do make sure whatever you are doing leads her down the road to being able to find work. You know, supply and demand! By the way, I went to a Transition workshop at Perkins last weekend. It was phenomenal. Have you signed and put through the last page titled " 688 " ? If not do it RIGHT NOW!!!!!!! Best wishes. Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 , Yea about the surgery. How wonderful for her. I love the topic of having to watch 's weight. We do too! Never in a million years would I have guessed we'd need to focus on that. Patty does tia chi and loves it. We only have the videos but they are wonderful. They put her in such a good place. Thinking outside the box have you thought of her being a masseuse? Also, we are going to look into having Patty take a photography course this summer. That'll be just a hobby for her. I know you want to think outside the box (hey that's where we live) but when you do make sure whatever you are doing leads her down the road to being able to find work. You know, supply and demand! By the way, I went to a Transition workshop at Perkins last weekend. It was phenomenal. Have you signed and put through the last page titled " 688 " ? If not do it RIGHT NOW!!!!!!! Best wishes. Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 Great news . Pleased for and good to hear from you again. I have been wondering where you were. Missed your deep deep posts. Very good luck in trying to work out a career. Sorry, can't help. It took me forever to come up with one for myself! What is interested in? I am guessing something arty from your suggestions so far? Hope the meditation continues to go well. It can only do her good. And tai chi? I am nuts about martial arts so a very biased " go for it " from this corner. Can't wait till can do some too. Flo Mum to - 6 next week and Elly - 4. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 Great news . Pleased for and good to hear from you again. I have been wondering where you were. Missed your deep deep posts. Very good luck in trying to work out a career. Sorry, can't help. It took me forever to come up with one for myself! What is interested in? I am guessing something arty from your suggestions so far? Hope the meditation continues to go well. It can only do her good. And tai chi? I am nuts about martial arts so a very biased " go for it " from this corner. Can't wait till can do some too. Flo Mum to - 6 next week and Elly - 4. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 Great news . Pleased for and good to hear from you again. I have been wondering where you were. Missed your deep deep posts. Very good luck in trying to work out a career. Sorry, can't help. It took me forever to come up with one for myself! What is interested in? I am guessing something arty from your suggestions so far? Hope the meditation continues to go well. It can only do her good. And tai chi? I am nuts about martial arts so a very biased " go for it " from this corner. Can't wait till can do some too. Flo Mum to - 6 next week and Elly - 4. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 Hey , I'm glad to hear how is doing! I haven't heard from her in a long time! She has been a busy girl, hasen't she? I hope that she would go back to school, and find which majors she would really like to do. Hey, does she still like animals? She can do what I did before I graduated from highschool. Find a nice community colleges, that got agriculture/animal science programs, so she can major in any kinds of animal related field she want, cool huh? Or, there are some dog grooming training school, and she can learn how to groom and bathe the dogs. I went to Mt Sac (San College in Walnut, I used to take 3 buses to get there), and I major in Pet Science. Then, I transfered to an Adult Ed Training School, and majored in Pet Grooming! Cool huh? Tell her what I said, and let her know that I encourage her to take some animal related classes, okay-dokey? You metioned the balancing part here, right? HHMM...does she knows/like karate? Cuz, that could help out to improve her balance a lot! It work for me, and look at me now! 1st white belt, 2nd yellow belt, now I'm an orange belt! Cool man! And, it did improved my balance better too! She should enrolled in some special ed karate class ya know, to help her with her balancing problms. That's all for now, tell her I said 'hiya' alright? Oh Yeah, I wanna remind you and that my b'day is next month (june 16), cool man! Adios Amigo! Ol' Chipper > summertimetowne wrote: Hi all. I wanted to share the Good News. 's neurosurgeon agreed that now is not the time for surgery for 's chiari malformation (scheduled for June 7th)as she's managed to stay asymptomatic. (Glory to God!) Many thanks to all who helped me learn and cope with this latest challenge. She's going to take the summer off from school after many years of 11 month school terms, and then will return to Perkins for her senior year. We have many things to do. She began meditating in March, and we want to strengthen and deepen that experience. And we need to spend time establishing new eating habits! Would we have ever dreamed that the little blond peanut would someday need a diet-LOL. Too many admonishions (?)to EAT! in her formative years, apparently. As she is going to remain on some movement restrictions, we'll try tai chi first as a means to improve her balance. (Kim-smiles). And I've been trying to think outside the box for career direction for her. As earnings are not necessarily an issue, I've been trying to think of craft type professions-pottery, stained glass-somthing like that, that she might like to persue-she's not interested in college right now(academic burn-out). Any ideas would be greatly appreciated! We also saw Dr. Glaser in April, and he Rx'd certain herbs for her that are designed to strengthen and rejuvenate the nerves. I'm waiting till she's home from school to begin the herbs, but I will certainly report on their efficacy as we go along. Peace and love to you all, in Massachusetts CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support group does not constitute membership in the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 Hey , I'm glad to hear how is doing! I haven't heard from her in a long time! She has been a busy girl, hasen't she? I hope that she would go back to school, and find which majors she would really like to do. Hey, does she still like animals? She can do what I did before I graduated from highschool. Find a nice community colleges, that got agriculture/animal science programs, so she can major in any kinds of animal related field she want, cool huh? Or, there are some dog grooming training school, and she can learn how to groom and bathe the dogs. I went to Mt Sac (San College in Walnut, I used to take 3 buses to get there), and I major in Pet Science. Then, I transfered to an Adult Ed Training School, and majored in Pet Grooming! Cool huh? Tell her what I said, and let her know that I encourage her to take some animal related classes, okay-dokey? You metioned the balancing part here, right? HHMM...does she knows/like karate? Cuz, that could help out to improve her balance a lot! It work for me, and look at me now! 1st white belt, 2nd yellow belt, now I'm an orange belt! Cool man! And, it did improved my balance better too! She should enrolled in some special ed karate class ya know, to help her with her balancing problms. That's all for now, tell her I said 'hiya' alright? Oh Yeah, I wanna remind you and that my b'day is next month (june 16), cool man! Adios Amigo! Ol' Chipper > summertimetowne wrote: Hi all. I wanted to share the Good News. 's neurosurgeon agreed that now is not the time for surgery for 's chiari malformation (scheduled for June 7th)as she's managed to stay asymptomatic. (Glory to God!) Many thanks to all who helped me learn and cope with this latest challenge. She's going to take the summer off from school after many years of 11 month school terms, and then will return to Perkins for her senior year. We have many things to do. She began meditating in March, and we want to strengthen and deepen that experience. And we need to spend time establishing new eating habits! Would we have ever dreamed that the little blond peanut would someday need a diet-LOL. Too many admonishions (?)to EAT! in her formative years, apparently. As she is going to remain on some movement restrictions, we'll try tai chi first as a means to improve her balance. (Kim-smiles). And I've been trying to think outside the box for career direction for her. As earnings are not necessarily an issue, I've been trying to think of craft type professions-pottery, stained glass-somthing like that, that she might like to persue-she's not interested in college right now(academic burn-out). Any ideas would be greatly appreciated! We also saw Dr. Glaser in April, and he Rx'd certain herbs for her that are designed to strengthen and rejuvenate the nerves. I'm waiting till she's home from school to begin the herbs, but I will certainly report on their efficacy as we go along. Peace and love to you all, in Massachusetts CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support group does not constitute membership in the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
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