Re: Langan is Back in the Hospital = (

[Guest guest]

Sorry to hear of your hospitalization

Was the follow-up Bicarb level high?

Was the 11 lab error?

Was the level of " 11 " after a further spaced meal than the " 17 " ?

I know we, as parents question everything

Best to you

Sandi

[Guest guest]

Sorry to hear of your hospitalization

Was the follow-up Bicarb level high?

Was the 11 lab error?

Was the level of " 11 " after a further spaced meal than the " 17 " ?

I know we, as parents question everything

Best to you

Sandi

[Guest guest]

Sorry to hear of your hospitalization

Was the follow-up Bicarb level high?

Was the 11 lab error?

Was the level of " 11 " after a further spaced meal than the " 17 " ?

I know we, as parents question everything

Best to you

Sandi

[Guest guest]

, have they talked about putting her on a system alkalyzer, like Bicitra or

Polycitra? I wonder what would make her bicarb fluctuate so much? Is she well

hydrated?

Sorry to hear you're back in, but sounds like you can make some headway while

you're there, w/ the VEEG, etc.

Barb Swoyer, Jake's mom

Langan is Back in the Hospital = (

Hello all. Just wanted to give an update. After being released on Sunday and

having her best day since the diet started, Langan's bicarb levels went down

Monday to 11. We talked to our neuro here in Cincinnati and she wanted us here

to treat. Soooo we packed the car and here we are- got in late last night.

They took a bicarb level when we got here and it was at 17???? Not sure what to

think about that. It might have something to do with how she ate yesterday.

She ate her breakfast but screamed through her second meal and wouldn't eat it

(at 11, as scheduled) so her nanny gave it to her when she woke up at 2:30.

Then she was screaming for her next meal at 4 (she usually has it at 3:30) so we

gave it to her. And she had her dinner on the road at 7:30 (normal time). So I

am wondering if 3 meals in 5 hours pushed up her bicarbs. Hmmm. I wish her

nanny had just thrown out that meal and waited for her next meal time but she

didn't know b/c that never happened before, so here we are. We're waiting to

see the bicarb level from this morning and to see if they can get us in early

for the VEEG (we were supposed to be here Monday). Just wanted to give an

update. Please keep Langan in your thoughts!

, mom to Langan, 21 months old and keto kid since 11/03 (med free since

4/2/04 and getting close to taking care of those seizures!!)

[Guest guest]

Hello ,

Oh dear.....at least I'm glad you are where you are. Hopefully

they can get this figured out quickly and take care of all the other

stuff while you are there. Do they think her current levels on the

diet (ratio and cals) are making her walk too fine of a line with the

bicarb? How have her ketones been? That " best day since starting

the diet " sure sounds encouraging, doesn't it?

Wishing you all the very best.....please keep us updated. Dina and

Sydney from this group (and Doose) are there starting keto right

now. Maybe you'll bump into them in the hallway! Say hi to Dr. H

and Sue for us!

Take good care,

Glenna

> Hello all. Just wanted to give an update. After being released on

Sunday and having her best day since the diet started, Langan's

bicarb levels went down Monday to 11. We talked to our neuro here in

Cincinnati and she wanted us here to treat. Soooo we packed the car

and here we are- got in late last night. They took a bicarb level

when we got here and it was at 17???? Not sure what to think about

that. It might have something to do with how she ate yesterday. She

ate her breakfast but screamed through her second meal and wouldn't

eat it (at 11, as scheduled) so her nanny gave it to her when she

woke up at 2:30. Then she was screaming for her next meal at 4 (she

usually has it at 3:30) so we gave it to her. And she had her dinner

on the road at 7:30 (normal time). So I am wondering if 3 meals in 5

hours pushed up her bicarbs. Hmmm. I wish her nanny had just thrown

out that meal and waited for her next meal time but she didn't know

b/c that never happened before, so here we are. We're waiting to see

the bicarb level from this morning and to see if they can get us in

early for the VEEG (we were supposed to be here Monday). Just

wanted to give an update. Please keep Langan in your thoughts!

>

> , mom to Langan, 21 months old and keto kid since 11/03 (med

free since 4/2/04 and getting close to taking care of those

seizures!!)

>

>

>

[Guest guest]

Hello ,

Oh dear.....at least I'm glad you are where you are. Hopefully

they can get this figured out quickly and take care of all the other

stuff while you are there. Do they think her current levels on the

diet (ratio and cals) are making her walk too fine of a line with the

bicarb? How have her ketones been? That " best day since starting

the diet " sure sounds encouraging, doesn't it?

Wishing you all the very best.....please keep us updated. Dina and

Sydney from this group (and Doose) are there starting keto right

now. Maybe you'll bump into them in the hallway! Say hi to Dr. H

and Sue for us!

Take good care,

Glenna

> Hello all. Just wanted to give an update. After being released on

Sunday and having her best day since the diet started, Langan's

bicarb levels went down Monday to 11. We talked to our neuro here in

Cincinnati and she wanted us here to treat. Soooo we packed the car

and here we are- got in late last night. They took a bicarb level

when we got here and it was at 17???? Not sure what to think about

that. It might have something to do with how she ate yesterday. She

ate her breakfast but screamed through her second meal and wouldn't

eat it (at 11, as scheduled) so her nanny gave it to her when she

woke up at 2:30. Then she was screaming for her next meal at 4 (she

usually has it at 3:30) so we gave it to her. And she had her dinner

on the road at 7:30 (normal time). So I am wondering if 3 meals in 5

hours pushed up her bicarbs. Hmmm. I wish her nanny had just thrown

out that meal and waited for her next meal time but she didn't know

b/c that never happened before, so here we are. We're waiting to see

the bicarb level from this morning and to see if they can get us in

early for the VEEG (we were supposed to be here Monday). Just

wanted to give an update. Please keep Langan in your thoughts!

>

> , mom to Langan, 21 months old and keto kid since 11/03 (med

free since 4/2/04 and getting close to taking care of those

seizures!!)

>

>

>

[Guest guest]

Hello ,

Oh dear.....at least I'm glad you are where you are. Hopefully

they can get this figured out quickly and take care of all the other

stuff while you are there. Do they think her current levels on the

diet (ratio and cals) are making her walk too fine of a line with the

bicarb? How have her ketones been? That " best day since starting

the diet " sure sounds encouraging, doesn't it?

Wishing you all the very best.....please keep us updated. Dina and

Sydney from this group (and Doose) are there starting keto right

now. Maybe you'll bump into them in the hallway! Say hi to Dr. H

and Sue for us!

Take good care,

Glenna

> Hello all. Just wanted to give an update. After being released on

Sunday and having her best day since the diet started, Langan's

bicarb levels went down Monday to 11. We talked to our neuro here in

Cincinnati and she wanted us here to treat. Soooo we packed the car

and here we are- got in late last night. They took a bicarb level

when we got here and it was at 17???? Not sure what to think about

that. It might have something to do with how she ate yesterday. She

ate her breakfast but screamed through her second meal and wouldn't

eat it (at 11, as scheduled) so her nanny gave it to her when she

woke up at 2:30. Then she was screaming for her next meal at 4 (she

usually has it at 3:30) so we gave it to her. And she had her dinner

on the road at 7:30 (normal time). So I am wondering if 3 meals in 5

hours pushed up her bicarbs. Hmmm. I wish her nanny had just thrown

out that meal and waited for her next meal time but she didn't know

b/c that never happened before, so here we are. We're waiting to see

the bicarb level from this morning and to see if they can get us in

early for the VEEG (we were supposed to be here Monday). Just

wanted to give an update. Please keep Langan in your thoughts!

>

> , mom to Langan, 21 months old and keto kid since 11/03 (med

free since 4/2/04 and getting close to taking care of those

seizures!!)

>

>

>

[Guest guest]

, sorry to hear that, I hope everything gets better soon.

Satnam

> Hello all. Just wanted to give an update. After being released on

Sunday and having her best day since the diet started, Langan's

bicarb levels went down Monday to 11. We talked to our neuro here in

Cincinnati and she wanted us here to treat. Soooo we packed the car

and here we are- got in late last night. They took a bicarb level

when we got here and it was at 17???? Not sure what to think about

that. It might have something to do with how she ate yesterday. She

ate her breakfast but screamed through her second meal and wouldn't

eat it (at 11, as scheduled) so her nanny gave it to her when she

woke up at 2:30. Then she was screaming for her next meal at 4 (she

usually has it at 3:30) so we gave it to her. And she had her dinner

on the road at 7:30 (normal time). So I am wondering if 3 meals in 5

hours pushed up her bicarbs. Hmmm. I wish her nanny had just thrown

out that meal and waited for her next meal time but she didn't know

b/c that never happened before, so here we are. We're waiting to see

the bicarb level from this morning and to see if they can get us in

early for the VEEG (we were supposed to be here Monday). Just

wanted to give an update. Please keep Langan in your thoughts!

>

> , mom to Langan, 21 months old and keto kid since 11/03 (med

free since 4/2/04 and getting close to taking care of those

seizures!!)

>

>

>

[Guest guest]

, sorry to hear that, I hope everything gets better soon.

Satnam

> Hello all. Just wanted to give an update. After being released on

Sunday and having her best day since the diet started, Langan's

bicarb levels went down Monday to 11. We talked to our neuro here in

Cincinnati and she wanted us here to treat. Soooo we packed the car

and here we are- got in late last night. They took a bicarb level

when we got here and it was at 17???? Not sure what to think about

that. It might have something to do with how she ate yesterday. She

ate her breakfast but screamed through her second meal and wouldn't

eat it (at 11, as scheduled) so her nanny gave it to her when she

woke up at 2:30. Then she was screaming for her next meal at 4 (she

usually has it at 3:30) so we gave it to her. And she had her dinner

on the road at 7:30 (normal time). So I am wondering if 3 meals in 5

hours pushed up her bicarbs. Hmmm. I wish her nanny had just thrown

out that meal and waited for her next meal time but she didn't know

b/c that never happened before, so here we are. We're waiting to see

the bicarb level from this morning and to see if they can get us in

early for the VEEG (we were supposed to be here Monday). Just

wanted to give an update. Please keep Langan in your thoughts!

>

> , mom to Langan, 21 months old and keto kid since 11/03 (med

free since 4/2/04 and getting close to taking care of those

seizures!!)

>

>

>

[Guest guest]

, sorry to hear that, I hope everything gets better soon.

Satnam

> Hello all. Just wanted to give an update. After being released on

Sunday and having her best day since the diet started, Langan's

bicarb levels went down Monday to 11. We talked to our neuro here in

Cincinnati and she wanted us here to treat. Soooo we packed the car

and here we are- got in late last night. They took a bicarb level

when we got here and it was at 17???? Not sure what to think about

that. It might have something to do with how she ate yesterday. She

ate her breakfast but screamed through her second meal and wouldn't

eat it (at 11, as scheduled) so her nanny gave it to her when she

woke up at 2:30. Then she was screaming for her next meal at 4 (she

usually has it at 3:30) so we gave it to her. And she had her dinner

on the road at 7:30 (normal time). So I am wondering if 3 meals in 5

hours pushed up her bicarbs. Hmmm. I wish her nanny had just thrown

out that meal and waited for her next meal time but she didn't know

b/c that never happened before, so here we are. We're waiting to see

the bicarb level from this morning and to see if they can get us in

early for the VEEG (we were supposed to be here Monday). Just

wanted to give an update. Please keep Langan in your thoughts!

>

> , mom to Langan, 21 months old and keto kid since 11/03 (med

free since 4/2/04 and getting close to taking care of those

seizures!!)

>

>

>

[Guest guest]

,

So sorry to hear that you are back in - BUT like several others have

said maybe this is really a good thing- if you/they can solve the

acidity thing - it may be the missing piece of the puzzle so to speak.

Sounds like you have an EXCELLENT team there.

Hang in there!

[Guest guest]

,

So sorry to hear that you are back in - BUT like several others have

said maybe this is really a good thing- if you/they can solve the

acidity thing - it may be the missing piece of the puzzle so to speak.

Sounds like you have an EXCELLENT team there.

Hang in there!

[Guest guest]

,

So sorry to hear that you are back in - BUT like several others have

said maybe this is really a good thing- if you/they can solve the

acidity thing - it may be the missing piece of the puzzle so to speak.

Sounds like you have an EXCELLENT team there.

Hang in there!

[Guest guest]

They have her stabilized at 16 now so we're going to stay on the sodium bicarb

and see what happens with that. They think that she was acidotic for so long

that it will take a few weeks for it to level off completely. We're FINALLY

heading home- hopefully it'll be a while before we're in the hospital again.

Thanks!

Langan is Back in the Hospital = (

Hello all. Just wanted to give an update. After being released on Sunday

and having her best day since the diet started, Langan's bicarb levels went down

Monday to 11. We talked to our neuro here in Cincinnati and she wanted us here

to treat. Soooo we packed the car and here we are- got in late last night.

They took a bicarb level when we got here and it was at 17???? Not sure what to

think about that. It might have something to do with how she ate yesterday.

She ate her breakfast but screamed through her second meal and wouldn't eat it

(at 11, as scheduled) so her nanny gave it to her when she woke up at 2:30.

Then she was screaming for her next meal at 4 (she usually has it at 3:30) so we

gave it to her. And she had her dinner on the road at 7:30 (normal time). So I

am wondering if 3 meals in 5 hours pushed up her bicarbs. Hmmm. I wish her

nanny had just thrown out that meal and waited for her next meal time but she

didn't know b/c that never happened before, so here we are. We're waiting to

see the bicarb level from this morning and to see if they can get us in early

for the VEEG (we were supposed to be here Monday). Just wanted to give an

update. Please keep Langan in your thoughts!

, mom to Langan, 21 months old and keto kid since 11/03 (med free since

4/2/04 and getting close to taking care of those seizures!!)

[Guest guest]

They have her stabilized at 16 now so we're going to stay on the sodium bicarb

and see what happens with that. They think that she was acidotic for so long

that it will take a few weeks for it to level off completely. We're FINALLY

heading home- hopefully it'll be a while before we're in the hospital again.

Thanks!

Langan is Back in the Hospital = (

Hello all. Just wanted to give an update. After being released on Sunday

and having her best day since the diet started, Langan's bicarb levels went down

Monday to 11. We talked to our neuro here in Cincinnati and she wanted us here

to treat. Soooo we packed the car and here we are- got in late last night.

They took a bicarb level when we got here and it was at 17???? Not sure what to

think about that. It might have something to do with how she ate yesterday.

She ate her breakfast but screamed through her second meal and wouldn't eat it

(at 11, as scheduled) so her nanny gave it to her when she woke up at 2:30.

Then she was screaming for her next meal at 4 (she usually has it at 3:30) so we

gave it to her. And she had her dinner on the road at 7:30 (normal time). So I

am wondering if 3 meals in 5 hours pushed up her bicarbs. Hmmm. I wish her

nanny had just thrown out that meal and waited for her next meal time but she

didn't know b/c that never happened before, so here we are. We're waiting to

see the bicarb level from this morning and to see if they can get us in early

for the VEEG (we were supposed to be here Monday). Just wanted to give an

update. Please keep Langan in your thoughts!

, mom to Langan, 21 months old and keto kid since 11/03 (med free since

4/2/04 and getting close to taking care of those seizures!!)

[Guest guest]

They have her stabilized at 16 now so we're going to stay on the sodium bicarb

and see what happens with that. They think that she was acidotic for so long

that it will take a few weeks for it to level off completely. We're FINALLY

heading home- hopefully it'll be a while before we're in the hospital again.

Thanks!

Langan is Back in the Hospital = (

Hello all. Just wanted to give an update. After being released on Sunday

and having her best day since the diet started, Langan's bicarb levels went down

Monday to 11. We talked to our neuro here in Cincinnati and she wanted us here

to treat. Soooo we packed the car and here we are- got in late last night.

They took a bicarb level when we got here and it was at 17???? Not sure what to

think about that. It might have something to do with how she ate yesterday.

She ate her breakfast but screamed through her second meal and wouldn't eat it

(at 11, as scheduled) so her nanny gave it to her when she woke up at 2:30.

Then she was screaming for her next meal at 4 (she usually has it at 3:30) so we

gave it to her. And she had her dinner on the road at 7:30 (normal time). So I

am wondering if 3 meals in 5 hours pushed up her bicarbs. Hmmm. I wish her

nanny had just thrown out that meal and waited for her next meal time but she

didn't know b/c that never happened before, so here we are. We're waiting to

see the bicarb level from this morning and to see if they can get us in early

for the VEEG (we were supposed to be here Monday). Just wanted to give an

update. Please keep Langan in your thoughts!

, mom to Langan, 21 months old and keto kid since 11/03 (med free since

4/2/04 and getting close to taking care of those seizures!!)

[Guest guest]

Hi , glad to hear your heading home and Langan is better.

Satnam

> They have her stabilized at 16 now so we're going to stay on the

sodium bicarb and see what happens with that. They think that she

was acidotic for so long that it will take a few weeks for it to

level off completely. We're FINALLY heading home- hopefully it'll be

a while before we're in the hospital again.

>

> Thanks!

>

>

> Langan is Back in the Hospital = (

>

>

> Hello all. Just wanted to give an update. After being

released on Sunday and having her best day since the diet started,

Langan's bicarb levels went down Monday to 11. We talked to our

neuro here in Cincinnati and she wanted us here to treat. Soooo we

packed the car and here we are- got in late last night. They took a

bicarb level when we got here and it was at 17???? Not sure what to

think about that. It might have something to do with how she ate

yesterday. She ate her breakfast but screamed through her second

meal and wouldn't eat it (at 11, as scheduled) so her nanny gave it

to her when she woke up at 2:30. Then she was screaming for her next

meal at 4 (she usually has it at 3:30) so we gave it to her. And she

had her dinner on the road at 7:30 (normal time). So I am wondering

if 3 meals in 5 hours pushed up her bicarbs. Hmmm. I wish her nanny

had just thrown out that meal and waited for her next meal time but

she didn't know b/c that never happened before, so here we are.

We're waiting to see the bicarb level from this morning and to see if

they can get us in early for the VEEG (we were supposed to be here

Monday). Just wanted to give an update. Please keep Langan in your

thoughts!

>

> , mom to Langan, 21 months old and keto kid since 11/03

(med free since 4/2/04 and getting close to taking care of those

seizures!!)

>

>

>

[Guest guest]

Hi , glad to hear your heading home and Langan is better.

Satnam

> They have her stabilized at 16 now so we're going to stay on the

sodium bicarb and see what happens with that. They think that she

was acidotic for so long that it will take a few weeks for it to

level off completely. We're FINALLY heading home- hopefully it'll be

a while before we're in the hospital again.

>

> Thanks!

>

>

> Langan is Back in the Hospital = (

>

>

> Hello all. Just wanted to give an update. After being

released on Sunday and having her best day since the diet started,

Langan's bicarb levels went down Monday to 11. We talked to our

neuro here in Cincinnati and she wanted us here to treat. Soooo we

packed the car and here we are- got in late last night. They took a

bicarb level when we got here and it was at 17???? Not sure what to

think about that. It might have something to do with how she ate

yesterday. She ate her breakfast but screamed through her second

meal and wouldn't eat it (at 11, as scheduled) so her nanny gave it

to her when she woke up at 2:30. Then she was screaming for her next

meal at 4 (she usually has it at 3:30) so we gave it to her. And she

had her dinner on the road at 7:30 (normal time). So I am wondering

if 3 meals in 5 hours pushed up her bicarbs. Hmmm. I wish her nanny

had just thrown out that meal and waited for her next meal time but

she didn't know b/c that never happened before, so here we are.

We're waiting to see the bicarb level from this morning and to see if

they can get us in early for the VEEG (we were supposed to be here

Monday). Just wanted to give an update. Please keep Langan in your

thoughts!

>

> , mom to Langan, 21 months old and keto kid since 11/03

(med free since 4/2/04 and getting close to taking care of those

seizures!!)

>

>

>

[Guest guest]

Hi ,

I'm glad to see your posting. I was getting worried, knowing that

you had gone to the hospital, and then we didn't hear anything.

You're hoping not to go back for a long time. Does that mean that

they did not do the VEEG? Or is Langan just doing so well seizure-

wise that it is no longer warrented? My only dissapointment is that

I wanted to come visit but couldn't get away until the weekend. But

then, better that you are home, so my complaint is really just a

moot point. I know you have written about it before, but it must

have gone over my head. In very simple terms, could you explain

what made Langan's blood acidic and for so long?

Gretchen

> They have her stabilized at 16 now so we're going to stay on the

sodium bicarb and see what happens with that. They think that she

was acidotic for so long that it will take a few weeks for it to

level off completely. We're FINALLY heading home- hopefully it'll

be a while before we're in the hospital again.

>

> Thanks!

>

>

> Langan is Back in the Hospital = (

>

>

> Hello all. Just wanted to give an update. After being

released on Sunday and having her best day since the diet started,

Langan's bicarb levels went down Monday to 11. We talked to our

neuro here in Cincinnati and she wanted us here to treat. Soooo we

packed the car and here we are- got in late last night. They took a

bicarb level when we got here and it was at 17???? Not sure what to

think about that. It might have something to do with how she ate

yesterday. She ate her breakfast but screamed through her second

meal and wouldn't eat it (at 11, as scheduled) so her nanny gave it

to her when she woke up at 2:30. Then she was screaming for her

next meal at 4 (she usually has it at 3:30) so we gave it to her.

And she had her dinner on the road at 7:30 (normal time). So I am

wondering if 3 meals in 5 hours pushed up her bicarbs. Hmmm. I

wish her nanny had just thrown out that meal and waited for her next

meal time but she didn't know b/c that never happened before, so

here we are. We're waiting to see the bicarb level from this

morning and to see if they can get us in early for the VEEG (we were

supposed to be here Monday). Just wanted to give an update.

Please keep Langan in your thoughts!

>

> , mom to Langan, 21 months old and keto kid since 11/03

(med free since 4/2/04 and getting close to taking care of those

seizures!!)

>

>

>

[Guest guest]

Hi ,

I'm glad to see your posting. I was getting worried, knowing that

you had gone to the hospital, and then we didn't hear anything.

You're hoping not to go back for a long time. Does that mean that

they did not do the VEEG? Or is Langan just doing so well seizure-

wise that it is no longer warrented? My only dissapointment is that

I wanted to come visit but couldn't get away until the weekend. But

then, better that you are home, so my complaint is really just a

moot point. I know you have written about it before, but it must

have gone over my head. In very simple terms, could you explain

what made Langan's blood acidic and for so long?

Gretchen

> They have her stabilized at 16 now so we're going to stay on the

sodium bicarb and see what happens with that. They think that she

was acidotic for so long that it will take a few weeks for it to

level off completely. We're FINALLY heading home- hopefully it'll

be a while before we're in the hospital again.

>

> Thanks!

>

>

> Langan is Back in the Hospital = (

>

>

> Hello all. Just wanted to give an update. After being

released on Sunday and having her best day since the diet started,

Langan's bicarb levels went down Monday to 11. We talked to our

neuro here in Cincinnati and she wanted us here to treat. Soooo we

packed the car and here we are- got in late last night. They took a

bicarb level when we got here and it was at 17???? Not sure what to

think about that. It might have something to do with how she ate

yesterday. She ate her breakfast but screamed through her second

meal and wouldn't eat it (at 11, as scheduled) so her nanny gave it

to her when she woke up at 2:30. Then she was screaming for her

next meal at 4 (she usually has it at 3:30) so we gave it to her.

And she had her dinner on the road at 7:30 (normal time). So I am

wondering if 3 meals in 5 hours pushed up her bicarbs. Hmmm. I

wish her nanny had just thrown out that meal and waited for her next

meal time but she didn't know b/c that never happened before, so

here we are. We're waiting to see the bicarb level from this

morning and to see if they can get us in early for the VEEG (we were

supposed to be here Monday). Just wanted to give an update.

Please keep Langan in your thoughts!

>

> , mom to Langan, 21 months old and keto kid since 11/03

(med free since 4/2/04 and getting close to taking care of those

seizures!!)

>

>

>

[Guest guest]

Hi ,

I'm glad to see your posting. I was getting worried, knowing that

you had gone to the hospital, and then we didn't hear anything.

You're hoping not to go back for a long time. Does that mean that

they did not do the VEEG? Or is Langan just doing so well seizure-

wise that it is no longer warrented? My only dissapointment is that

I wanted to come visit but couldn't get away until the weekend. But

then, better that you are home, so my complaint is really just a

moot point. I know you have written about it before, but it must

have gone over my head. In very simple terms, could you explain

what made Langan's blood acidic and for so long?

Gretchen

> They have her stabilized at 16 now so we're going to stay on the

sodium bicarb and see what happens with that. They think that she

was acidotic for so long that it will take a few weeks for it to

level off completely. We're FINALLY heading home- hopefully it'll

be a while before we're in the hospital again.

>

> Thanks!

>

>

> Langan is Back in the Hospital = (

>

>

> Hello all. Just wanted to give an update. After being

released on Sunday and having her best day since the diet started,

Langan's bicarb levels went down Monday to 11. We talked to our

neuro here in Cincinnati and she wanted us here to treat. Soooo we

packed the car and here we are- got in late last night. They took a

bicarb level when we got here and it was at 17???? Not sure what to

think about that. It might have something to do with how she ate

yesterday. She ate her breakfast but screamed through her second

meal and wouldn't eat it (at 11, as scheduled) so her nanny gave it

to her when she woke up at 2:30. Then she was screaming for her

next meal at 4 (she usually has it at 3:30) so we gave it to her.

And she had her dinner on the road at 7:30 (normal time). So I am

wondering if 3 meals in 5 hours pushed up her bicarbs. Hmmm. I

wish her nanny had just thrown out that meal and waited for her next

meal time but she didn't know b/c that never happened before, so

here we are. We're waiting to see the bicarb level from this

morning and to see if they can get us in early for the VEEG (we were

supposed to be here Monday). Just wanted to give an update.

Please keep Langan in your thoughts!

>

> , mom to Langan, 21 months old and keto kid since 11/03

(med free since 4/2/04 and getting close to taking care of those

seizures!!)

>

>

>

[Guest guest]

, so glad Langan's out of hospital.

Hope things will be OK from now on.

Saro.....Rohan's mum

Tucker wrote:

> They have her stabilized at 16 now so we're going to stay on the

> sodium bicarb and see what happens with that. They think that she was

> acidotic for so long that it will take a few weeks for it to level off

> completely. We're FINALLY heading home- hopefully it'll be a while

> before we're in the hospital again.

>

> Thanks!

>

>

[Guest guest]

, so glad Langan's out of hospital.

Hope things will be OK from now on.

Saro.....Rohan's mum

Tucker wrote:

> They have her stabilized at 16 now so we're going to stay on the

> sodium bicarb and see what happens with that. They think that she was

> acidotic for so long that it will take a few weeks for it to level off

> completely. We're FINALLY heading home- hopefully it'll be a while

> before we're in the hospital again.

>

> Thanks!

>

>

[Guest guest]

, so glad Langan's out of hospital.

Hope things will be OK from now on.

Saro.....Rohan's mum

Tucker wrote:

> They have her stabilized at 16 now so we're going to stay on the

> sodium bicarb and see what happens with that. They think that she was

> acidotic for so long that it will take a few weeks for it to level off

> completely. We're FINALLY heading home- hopefully it'll be a while

> before we're in the hospital again.

>

> Thanks!

>

>