Guest guest Posted October 4, 2002 Report Share Posted October 4, 2002 Dear , Welcome to the group!!! I personally feel that you have great chances of conceiving after you have had the surgery. I had no problems conceiving my daughter 6 years prior to WLS and was not overweight at that time. The year or so before I had WLS I gained a lot of weight due to illness, and my cycles were like non-existent, so therefore had trouble conceiving. We didnt try for the first year and a half after surgery due to complications brought on by surgery. Then the first month I decided I wanted to try, we were successful. So, my point is, I have had no infertility trouble with the exception of being overweight and therefor no regular cycles, until after surgery, then once I was stabilized after my complications, and to goal weight, I was able to conceive very easily. Good luck to you, and keep us posted!!! Marcy Wallis lap rny 06/15/00 edd 12/08/02 Baby Boy!!! Mom to a beautiful 8 yr old daughter (PRE WLS) new to group Hello, My name is & I am new to yahoo groups, so I don't really know how it works--forgive me if I have trouble replying or something. I have my first consult with Dr. Naaman on Oct. 15, 2002 & hope I can get a surgery date soon after. I am 33 yrs old & BMI is 43 & I have tried many weight loss attempts over the last decade & have lost a lot of weight only to gain it all back plus some. I am really motivated to lose this excess weight not only for health reasons, but also to help with infertility. My husband & I have been tested & found to be healthy except for my excess weight. I am hoping after I'm 18 months post-op, my chances of conceiving will be better. I know it isn't a sure thing & some people just have unexplained infertility, but at least I will know I tried. If any one has a fertility success story I would love to hear about it. Take care & God Bless(-: prince6511@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 Hi, a- I'm glad you've joined our board! I've been posting to you over on the Parentsplace board too (I'm kellynicolesmom over there). I'm so sorry to hear that Carston cries during his casting sessions. I do hope that he's just crying because he doesn't like them touching his leg. If they are manipulating his foot and causing him pain, please know that this is *not* necessary. The manipulations for clubfoot should not be painful. The Ponseti method is very gentle in their manipulations (no matter how severe the foot is). Some babies do cry during casting sessions, but it's more from frustration from having their leg held, not usually from pain. Ask any parent who has been to Dr. Ponseti and they'll tell you that he gets very upset when the babies cry. The Ponseti method doctors don't practice rough manipulations- ever. They don't try to force the foot into neutral- they " untwist it " like a complicated puzzle by gently moving the bones in a specific order during each casting session and holding them in place with a cast. I realize from your posts on PP that you don't think you can stay away from home for the duration of treatment due to missing work. Have you looked into Dr. Jarka in Overland Park, KS or Dr. Dobbs in St. Louis (shriners) for one-day trips? Is this possible for you? I hope that we can help you come up with some ideas for getting Carston the best possible treatment. I know how worried you must be. I really do think that if you can get to a Ponseti doctor, you would be amazed at how quickly the treatment progresses. It usually takes only 5-7 casts to fix the foot and only 9 in the most severe of cases according to Dr. Ponseti. Treatment of Carston's foot shouldn't take years- just weeks. Maintenance (keeping the correction by wearing a brace) may take years, but to achieve a corrected foot shouldn't take that long. Anyway, I hope that we can help support you here, please feel free to post any questions and vent any concerns! And don't worry about " losing time " . Carston is still very young- my own daughter didn't start seeing Dr. Ponseti until she was 4 months old (we started out with " traditional " casting and were facing surgery, then we switched). In my own opinion, it's better to see if you've got some alternatives to treatment and go without a cast for a short period versus going to a doctor that may not be doing the best course of treatment for Carston, if indeed that is what you're concerned about. Big hugs to you and your family- & > Hello! My name is a. I am the proud mother of Carston who was > born December 1, 2002 w/a clubfoot. My husband & I were told that > our son had a clubfoot during an ultrasound in July. We had 2 more > ultrasounds there after to confirm the results. On December 6th, > Carston had his first cast put on. Carston's orthopaedic surgeon > said that Carston's left foot is very stiff & will require several > years of treatment. Surgery was discussed briefly and if necessary > we will travel to Shreveport, LA to the Shriner's Hospital. By the > way, we live in Tulsa, OK. I knew that treatment would be long- term, > but to hear it from the doctor was heartbreaking. I cried when we > left the office. He's had 4 other casts since then. Poor Carston > screams his head off every time we go back. It still breaks my heart > each time & I refuse to go alone. His last cast was put on December > 23rd, but he managed to kick it partially off. That cast had to be > cut off in the ER on December 29th. So far another cast has not been > put back on because his doctor has been out of town. We have an > appointment tomorrow morning for his 6th casting. The casts go up to > the groin area & are plaster. Carston's doctor said that he was > making a lot of progress, but I'm afraid that w/the cast being off > since Sunday he's lost a lot of the correction. That really makes me > angry & sad. Well, I look forward to hearing from other parent's on > this board. I will appreciate all the info I can get. > > a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 Hi, a- I'm glad you've joined our board! I've been posting to you over on the Parentsplace board too (I'm kellynicolesmom over there). I'm so sorry to hear that Carston cries during his casting sessions. I do hope that he's just crying because he doesn't like them touching his leg. If they are manipulating his foot and causing him pain, please know that this is *not* necessary. The manipulations for clubfoot should not be painful. The Ponseti method is very gentle in their manipulations (no matter how severe the foot is). Some babies do cry during casting sessions, but it's more from frustration from having their leg held, not usually from pain. Ask any parent who has been to Dr. Ponseti and they'll tell you that he gets very upset when the babies cry. The Ponseti method doctors don't practice rough manipulations- ever. They don't try to force the foot into neutral- they " untwist it " like a complicated puzzle by gently moving the bones in a specific order during each casting session and holding them in place with a cast. I realize from your posts on PP that you don't think you can stay away from home for the duration of treatment due to missing work. Have you looked into Dr. Jarka in Overland Park, KS or Dr. Dobbs in St. Louis (shriners) for one-day trips? Is this possible for you? I hope that we can help you come up with some ideas for getting Carston the best possible treatment. I know how worried you must be. I really do think that if you can get to a Ponseti doctor, you would be amazed at how quickly the treatment progresses. It usually takes only 5-7 casts to fix the foot and only 9 in the most severe of cases according to Dr. Ponseti. Treatment of Carston's foot shouldn't take years- just weeks. Maintenance (keeping the correction by wearing a brace) may take years, but to achieve a corrected foot shouldn't take that long. Anyway, I hope that we can help support you here, please feel free to post any questions and vent any concerns! And don't worry about " losing time " . Carston is still very young- my own daughter didn't start seeing Dr. Ponseti until she was 4 months old (we started out with " traditional " casting and were facing surgery, then we switched). In my own opinion, it's better to see if you've got some alternatives to treatment and go without a cast for a short period versus going to a doctor that may not be doing the best course of treatment for Carston, if indeed that is what you're concerned about. Big hugs to you and your family- & > Hello! My name is a. I am the proud mother of Carston who was > born December 1, 2002 w/a clubfoot. My husband & I were told that > our son had a clubfoot during an ultrasound in July. We had 2 more > ultrasounds there after to confirm the results. On December 6th, > Carston had his first cast put on. Carston's orthopaedic surgeon > said that Carston's left foot is very stiff & will require several > years of treatment. Surgery was discussed briefly and if necessary > we will travel to Shreveport, LA to the Shriner's Hospital. By the > way, we live in Tulsa, OK. I knew that treatment would be long- term, > but to hear it from the doctor was heartbreaking. I cried when we > left the office. He's had 4 other casts since then. Poor Carston > screams his head off every time we go back. It still breaks my heart > each time & I refuse to go alone. His last cast was put on December > 23rd, but he managed to kick it partially off. That cast had to be > cut off in the ER on December 29th. So far another cast has not been > put back on because his doctor has been out of town. We have an > appointment tomorrow morning for his 6th casting. The casts go up to > the groin area & are plaster. Carston's doctor said that he was > making a lot of progress, but I'm afraid that w/the cast being off > since Sunday he's lost a lot of the correction. That really makes me > angry & sad. Well, I look forward to hearing from other parent's on > this board. I will appreciate all the info I can get. > > a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 Hi, a- I'm glad you've joined our board! I've been posting to you over on the Parentsplace board too (I'm kellynicolesmom over there). I'm so sorry to hear that Carston cries during his casting sessions. I do hope that he's just crying because he doesn't like them touching his leg. If they are manipulating his foot and causing him pain, please know that this is *not* necessary. The manipulations for clubfoot should not be painful. The Ponseti method is very gentle in their manipulations (no matter how severe the foot is). Some babies do cry during casting sessions, but it's more from frustration from having their leg held, not usually from pain. Ask any parent who has been to Dr. Ponseti and they'll tell you that he gets very upset when the babies cry. The Ponseti method doctors don't practice rough manipulations- ever. They don't try to force the foot into neutral- they " untwist it " like a complicated puzzle by gently moving the bones in a specific order during each casting session and holding them in place with a cast. I realize from your posts on PP that you don't think you can stay away from home for the duration of treatment due to missing work. Have you looked into Dr. Jarka in Overland Park, KS or Dr. Dobbs in St. Louis (shriners) for one-day trips? Is this possible for you? I hope that we can help you come up with some ideas for getting Carston the best possible treatment. I know how worried you must be. I really do think that if you can get to a Ponseti doctor, you would be amazed at how quickly the treatment progresses. It usually takes only 5-7 casts to fix the foot and only 9 in the most severe of cases according to Dr. Ponseti. Treatment of Carston's foot shouldn't take years- just weeks. Maintenance (keeping the correction by wearing a brace) may take years, but to achieve a corrected foot shouldn't take that long. Anyway, I hope that we can help support you here, please feel free to post any questions and vent any concerns! And don't worry about " losing time " . Carston is still very young- my own daughter didn't start seeing Dr. Ponseti until she was 4 months old (we started out with " traditional " casting and were facing surgery, then we switched). In my own opinion, it's better to see if you've got some alternatives to treatment and go without a cast for a short period versus going to a doctor that may not be doing the best course of treatment for Carston, if indeed that is what you're concerned about. Big hugs to you and your family- & > Hello! My name is a. I am the proud mother of Carston who was > born December 1, 2002 w/a clubfoot. My husband & I were told that > our son had a clubfoot during an ultrasound in July. We had 2 more > ultrasounds there after to confirm the results. On December 6th, > Carston had his first cast put on. Carston's orthopaedic surgeon > said that Carston's left foot is very stiff & will require several > years of treatment. Surgery was discussed briefly and if necessary > we will travel to Shreveport, LA to the Shriner's Hospital. By the > way, we live in Tulsa, OK. I knew that treatment would be long- term, > but to hear it from the doctor was heartbreaking. I cried when we > left the office. He's had 4 other casts since then. Poor Carston > screams his head off every time we go back. It still breaks my heart > each time & I refuse to go alone. His last cast was put on December > 23rd, but he managed to kick it partially off. That cast had to be > cut off in the ER on December 29th. So far another cast has not been > put back on because his doctor has been out of town. We have an > appointment tomorrow morning for his 6th casting. The casts go up to > the groin area & are plaster. Carston's doctor said that he was > making a lot of progress, but I'm afraid that w/the cast being off > since Sunday he's lost a lot of the correction. That really makes me > angry & sad. Well, I look forward to hearing from other parent's on > this board. I will appreciate all the info I can get. > > a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 a, Welcome to the board. My daughter Isabella was born with bilateral clubbed feet in october. We got to Dr.Bonar in Kansas City MO. I don't know how far she is from you and there is also Dr.Jarka as said. Yes it takes years only in the bar but like said the correction part don't take long at all. When i talked to Dr.Ponsetti he told me if any doctor even mentions surgery then to find another doctor because most clubbed foot kids don't need surgery. Try not to be to upset, i was the same way. Isabella cried to with every casting but it was just because she was over sensitive to the touch. You should see her feet now when we take the shoes off her, she wiggles her toes and moves her ankles. Its great. I would definately email Dr.Ponsetti and talk to him. His assistant answers right away and they are fantastic people. (Isabella born 10-12-02 bilateral clubbed feet) > > Hello! My name is a. I am the proud mother of Carston who was > > born December 1, 2002 w/a clubfoot. My husband & I were told that > > our son had a clubfoot during an ultrasound in July. We had 2 more > > ultrasounds there after to confirm the results. On December 6th, > > Carston had his first cast put on. Carston's orthopaedic surgeon > > said that Carston's left foot is very stiff & will require several > > years of treatment. Surgery was discussed briefly and if necessary > > we will travel to Shreveport, LA to the Shriner's Hospital. By the > > way, we live in Tulsa, OK. I knew that treatment would be long- > term, > > but to hear it from the doctor was heartbreaking. I cried when we > > left the office. He's had 4 other casts since then. Poor Carston > > screams his head off every time we go back. It still breaks my > heart > > each time & I refuse to go alone. His last cast was put on > December > > 23rd, but he managed to kick it partially off. That cast had to be > > cut off in the ER on December 29th. So far another cast has not > been > > put back on because his doctor has been out of town. We have an > > appointment tomorrow morning for his 6th casting. The casts go up > to > > the groin area & are plaster. Carston's doctor said that he was > > making a lot of progress, but I'm afraid that w/the cast being off > > since Sunday he's lost a lot of the correction. That really makes > me > > angry & sad. Well, I look forward to hearing from other parent's > on > > this board. I will appreciate all the info I can get. > > > > a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 a, Welcome to the board. My daughter Isabella was born with bilateral clubbed feet in october. We got to Dr.Bonar in Kansas City MO. I don't know how far she is from you and there is also Dr.Jarka as said. Yes it takes years only in the bar but like said the correction part don't take long at all. When i talked to Dr.Ponsetti he told me if any doctor even mentions surgery then to find another doctor because most clubbed foot kids don't need surgery. Try not to be to upset, i was the same way. Isabella cried to with every casting but it was just because she was over sensitive to the touch. You should see her feet now when we take the shoes off her, she wiggles her toes and moves her ankles. Its great. I would definately email Dr.Ponsetti and talk to him. His assistant answers right away and they are fantastic people. (Isabella born 10-12-02 bilateral clubbed feet) > > Hello! My name is a. I am the proud mother of Carston who was > > born December 1, 2002 w/a clubfoot. My husband & I were told that > > our son had a clubfoot during an ultrasound in July. We had 2 more > > ultrasounds there after to confirm the results. On December 6th, > > Carston had his first cast put on. Carston's orthopaedic surgeon > > said that Carston's left foot is very stiff & will require several > > years of treatment. Surgery was discussed briefly and if necessary > > we will travel to Shreveport, LA to the Shriner's Hospital. By the > > way, we live in Tulsa, OK. I knew that treatment would be long- > term, > > but to hear it from the doctor was heartbreaking. I cried when we > > left the office. He's had 4 other casts since then. Poor Carston > > screams his head off every time we go back. It still breaks my > heart > > each time & I refuse to go alone. His last cast was put on > December > > 23rd, but he managed to kick it partially off. That cast had to be > > cut off in the ER on December 29th. So far another cast has not > been > > put back on because his doctor has been out of town. We have an > > appointment tomorrow morning for his 6th casting. The casts go up > to > > the groin area & are plaster. Carston's doctor said that he was > > making a lot of progress, but I'm afraid that w/the cast being off > > since Sunday he's lost a lot of the correction. That really makes > me > > angry & sad. Well, I look forward to hearing from other parent's > on > > this board. I will appreciate all the info I can get. > > > > a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2003 Report Share Posted March 8, 2003 Hi. My name is Jill, my son, Brodie, is 3 months old with bi-lateral clubfoot. He is supposed to be wearing the Dennis Brown Bar, well, he doesnt. I was wondering if anyone else here goes to The Nemours Childrens Clinic in Pensacola, Fl. More specifically to see Dr. Leah Pike. I am concerned something is not right with the bar. He has been casted since birth and had the tendon surgery already. But, he will not wear the shoes. I am looking to get some ideas on what to do, his feet are already turning back in, he has been out of his last cast for 3 weeks. Thanks. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2004 Report Share Posted April 24, 2004 Ron, Sorry to hear about the cancer; glad to hear the prognosis is good. Everyone that you talk to here, even ones on the same chemo plan, will have different side effects. Some people might be able to provide a little more info if you know how your going to get it - i.e. two days infusion + two weeks off or whatever. Having said that, I think that most people on 5 FU alone mostly complain of fatigue and g.i. stuff. If you are like most, you will get fatigued for a couple of days after they disconnect you, and you may get diarrehea or nausea as well. You also may get none. For planning purposes, what I would do is block a week or so after the initial treatment, so you can rest and fully evaluate how the side effects are going. Take a detailed log for you doc, because he can help you deal with most of them, even if they seem miniscule to you. You will probably not need to block as much, maybe even no time, after the first treatment because of two phenonmena - 1) You will know what to expect and develop tricks for dealing with it. 2) You will figure out that certain things are finite in nature, and whether confortable or not, you'll know that you can more or less " brute force " through them, as the discomfort will go away sooner, rather than later, relatively speaking. Irregardless, drink lots of fluid. What my onc nurse suggested and what I do is down at least three quart bottles of gatorade a day while being infused and 3 or 4 days after. Hope this helps Joe > Hi everyone, > > My name is Ron - I'm a 63 yr old man who was diagnosed in 1/04 with > Stage 3 c.c. and operated on March 4th. I had an adenocarcinoma of > the transverse colon (walnut size) and 8/14 lymph nodes that were > positive were removed. There was also a carcinoid tumor present in > the terminal ileum, 1.c cm in size (3 of 8 lymph nodes involved). I > had my surgery in Florida (I winter here) and I'm feeling fine - > eating well, walking a lot, etc. My post-op scans showed no other > malignancies present, and my onc here was quite positive about my > future. > > I am due to start 6 months of " wipe-up " chemo - 5 FU - in Chicago in > a couple of weeks. I have an appointment with Dr. Al B. Benson. Of > course I have many questions. First, does anyone have any comments > regarding Dr. Benson? Second, what can I expect when I start > chemotherapy? > > I look forward to hearing from all of you. > > Best wishes, > Ron M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2004 Report Share Posted April 24, 2004 Ron, Sorry to hear about the cancer; glad to hear the prognosis is good. Everyone that you talk to here, even ones on the same chemo plan, will have different side effects. Some people might be able to provide a little more info if you know how your going to get it - i.e. two days infusion + two weeks off or whatever. Having said that, I think that most people on 5 FU alone mostly complain of fatigue and g.i. stuff. If you are like most, you will get fatigued for a couple of days after they disconnect you, and you may get diarrehea or nausea as well. You also may get none. For planning purposes, what I would do is block a week or so after the initial treatment, so you can rest and fully evaluate how the side effects are going. Take a detailed log for you doc, because he can help you deal with most of them, even if they seem miniscule to you. You will probably not need to block as much, maybe even no time, after the first treatment because of two phenonmena - 1) You will know what to expect and develop tricks for dealing with it. 2) You will figure out that certain things are finite in nature, and whether confortable or not, you'll know that you can more or less " brute force " through them, as the discomfort will go away sooner, rather than later, relatively speaking. Irregardless, drink lots of fluid. What my onc nurse suggested and what I do is down at least three quart bottles of gatorade a day while being infused and 3 or 4 days after. Hope this helps Joe > Hi everyone, > > My name is Ron - I'm a 63 yr old man who was diagnosed in 1/04 with > Stage 3 c.c. and operated on March 4th. I had an adenocarcinoma of > the transverse colon (walnut size) and 8/14 lymph nodes that were > positive were removed. There was also a carcinoid tumor present in > the terminal ileum, 1.c cm in size (3 of 8 lymph nodes involved). I > had my surgery in Florida (I winter here) and I'm feeling fine - > eating well, walking a lot, etc. My post-op scans showed no other > malignancies present, and my onc here was quite positive about my > future. > > I am due to start 6 months of " wipe-up " chemo - 5 FU - in Chicago in > a couple of weeks. I have an appointment with Dr. Al B. Benson. Of > course I have many questions. First, does anyone have any comments > regarding Dr. Benson? Second, what can I expect when I start > chemotherapy? > > I look forward to hearing from all of you. > > Best wishes, > Ron M. Quote Link to comment Share on other sites More sharing options...
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