Re: New Here....prayers needed

[Guest guest]

> Well...the long story - Back on Christmas Eve day he went to a

local

> hospital with severe stomach pain, they performed a colonoscopy and

> found 9 polyps, each were malignent. Having a family that truly

> enjoys christmas (he has 5 grandchildren that he cherishes) he

wanted

> to be home so he signed himself out at 5:00 on Christmas Eve. By

6:00

> the next morning (yes, Christmas Day) he woke my mother to ask her

to

> take a walk with him, as he was having serious pain in his abdomen.

> The pain continued and by 11:00 that morning he was back over at the

> ER. By the next day they moved him to the ICU with thoughts that he

> may be suffering from a blood disorder referred to as TTP. They

> decided to move him to Tufts New England Medical center in Boston

> where they continued to monitor him and began treating him for TTP

> (which required blood transfusions, platetlettes, fresh frozen

plasma)

> It was awful watching him go through that as his platelette count

> dropped so low that we were lucky he survived that. AFter they

> 'determined' that he did not have TTP (he was not improving) they

> determined that he had Disseminated Intravascular Coagulation which

is

> caused by an underlying condition - come to find out his condition

was

> Adenocarcinoma of the Unknown Primary - Colon Cancer, Stage four,

> found also in his hips, his bone marrow, his intestines as well as

> numerous lymphnodes.

>

> By the end of January this year he began his treatments for 5fu,

> leucovorin and oxaliplatin and continued for 8 sessions (every 2

weeks

> for 48 hours). The doctors were amazed at his response and had a

cat

> scan that showed significant improvement. They took him off the

chemo

> and have conducted blood tests and cat scans continually through the

> spring and so far the first portion of the summer.

>

> Well over the past 2 weeks his condition has deteriorated - he is

> bruising very easily, sleeping all the time and not eating much of

> anything. He bought a brand new boat in March to enjoy at their

> summer home this summer and he has not been able to enjoy it much

> lately due to his feeling ill. He has an appoint tomorrow for blood

> work and then with his doctor immediately after. I am so scared to

> loose him that my heart aches so badly - he is only 55 and loves

life

> so much. I just cannot imagine him not being around anymore. Just

> last week he suggested getting back on chemo to feel better - he

also

> talked about herbal medicines and asked me to try to find out

> information about them - (i am the internet guru in my family). If

> anyone has information regarding any herbal medicines or other

> thoughts that we can bring forth to the doctor i would greatly

> appreciate it.

>

> I am so glad that i found this website - prayers to all that are

> figting colo cancer and to those families that are fighting right

> alongside a loved one!

>

>

Hi ,

My mom has cc too...We have had a very rough year....welcome to our

group, but sorry you have to be here.....You will find so much info

here..and a lot of wonderful friend's....And when you need to vent we

are all here to listen....I have not posted here in a

while...Sometime's you just have to get away from it all....I will

keep you and your family in my prayer's....I am on a prayer website

too that has really helped me and has so many wonderful people please

visit us for prayer and friendship the add is : www.urcctc.com there

is a wonderful message board and great people...tell them Jana sent

you.....God bless and (((((hugs to you)))))))) Jana

[Guest guest]

> Well...the long story - Back on Christmas Eve day he went to a

local

> hospital with severe stomach pain, they performed a colonoscopy and

> found 9 polyps, each were malignent. Having a family that truly

> enjoys christmas (he has 5 grandchildren that he cherishes) he

wanted

> to be home so he signed himself out at 5:00 on Christmas Eve. By

6:00

> the next morning (yes, Christmas Day) he woke my mother to ask her

to

> take a walk with him, as he was having serious pain in his abdomen.

> The pain continued and by 11:00 that morning he was back over at the

> ER. By the next day they moved him to the ICU with thoughts that he

> may be suffering from a blood disorder referred to as TTP. They

> decided to move him to Tufts New England Medical center in Boston

> where they continued to monitor him and began treating him for TTP

> (which required blood transfusions, platetlettes, fresh frozen

plasma)

> It was awful watching him go through that as his platelette count

> dropped so low that we were lucky he survived that. AFter they

> 'determined' that he did not have TTP (he was not improving) they

> determined that he had Disseminated Intravascular Coagulation which

is

> caused by an underlying condition - come to find out his condition

was

> Adenocarcinoma of the Unknown Primary - Colon Cancer, Stage four,

> found also in his hips, his bone marrow, his intestines as well as

> numerous lymphnodes.

>

> By the end of January this year he began his treatments for 5fu,

> leucovorin and oxaliplatin and continued for 8 sessions (every 2

weeks

> for 48 hours). The doctors were amazed at his response and had a

cat

> scan that showed significant improvement. They took him off the

chemo

> and have conducted blood tests and cat scans continually through the

> spring and so far the first portion of the summer.

>

> Well over the past 2 weeks his condition has deteriorated - he is

> bruising very easily, sleeping all the time and not eating much of

> anything. He bought a brand new boat in March to enjoy at their

> summer home this summer and he has not been able to enjoy it much

> lately due to his feeling ill. He has an appoint tomorrow for blood

> work and then with his doctor immediately after. I am so scared to

> loose him that my heart aches so badly - he is only 55 and loves

life

> so much. I just cannot imagine him not being around anymore. Just

> last week he suggested getting back on chemo to feel better - he

also

> talked about herbal medicines and asked me to try to find out

> information about them - (i am the internet guru in my family). If

> anyone has information regarding any herbal medicines or other

> thoughts that we can bring forth to the doctor i would greatly

> appreciate it.

>

> I am so glad that i found this website - prayers to all that are

> figting colo cancer and to those families that are fighting right

> alongside a loved one!

>

>

Hi ,

My mom has cc too...We have had a very rough year....welcome to our

group, but sorry you have to be here.....You will find so much info

here..and a lot of wonderful friend's....And when you need to vent we

are all here to listen....I have not posted here in a

while...Sometime's you just have to get away from it all....I will

keep you and your family in my prayer's....I am on a prayer website

too that has really helped me and has so many wonderful people please

visit us for prayer and friendship the add is : www.urcctc.com there

is a wonderful message board and great people...tell them Jana sent

you.....God bless and (((((hugs to you)))))))) Jana

[Guest guest]

> Well...the long story - Back on Christmas Eve day he went to a

local

> hospital with severe stomach pain, they performed a colonoscopy and

> found 9 polyps, each were malignent. Having a family that truly

> enjoys christmas (he has 5 grandchildren that he cherishes) he

wanted

> to be home so he signed himself out at 5:00 on Christmas Eve. By

6:00

> the next morning (yes, Christmas Day) he woke my mother to ask her

to

> take a walk with him, as he was having serious pain in his abdomen.

> The pain continued and by 11:00 that morning he was back over at the

> ER. By the next day they moved him to the ICU with thoughts that he

> may be suffering from a blood disorder referred to as TTP. They

> decided to move him to Tufts New England Medical center in Boston

> where they continued to monitor him and began treating him for TTP

> (which required blood transfusions, platetlettes, fresh frozen

plasma)

> It was awful watching him go through that as his platelette count

> dropped so low that we were lucky he survived that. AFter they

> 'determined' that he did not have TTP (he was not improving) they

> determined that he had Disseminated Intravascular Coagulation which

is

> caused by an underlying condition - come to find out his condition

was

> Adenocarcinoma of the Unknown Primary - Colon Cancer, Stage four,

> found also in his hips, his bone marrow, his intestines as well as

> numerous lymphnodes.

>

> By the end of January this year he began his treatments for 5fu,

> leucovorin and oxaliplatin and continued for 8 sessions (every 2

weeks

> for 48 hours). The doctors were amazed at his response and had a

cat

> scan that showed significant improvement. They took him off the

chemo

> and have conducted blood tests and cat scans continually through the

> spring and so far the first portion of the summer.

>

> Well over the past 2 weeks his condition has deteriorated - he is

> bruising very easily, sleeping all the time and not eating much of

> anything. He bought a brand new boat in March to enjoy at their

> summer home this summer and he has not been able to enjoy it much

> lately due to his feeling ill. He has an appoint tomorrow for blood

> work and then with his doctor immediately after. I am so scared to

> loose him that my heart aches so badly - he is only 55 and loves

life

> so much. I just cannot imagine him not being around anymore. Just

> last week he suggested getting back on chemo to feel better - he

also

> talked about herbal medicines and asked me to try to find out

> information about them - (i am the internet guru in my family). If

> anyone has information regarding any herbal medicines or other

> thoughts that we can bring forth to the doctor i would greatly

> appreciate it.

>

> I am so glad that i found this website - prayers to all that are

> figting colo cancer and to those families that are fighting right

> alongside a loved one!

>

>

Hi ,

My mom has cc too...We have had a very rough year....welcome to our

group, but sorry you have to be here.....You will find so much info

here..and a lot of wonderful friend's....And when you need to vent we

are all here to listen....I have not posted here in a

while...Sometime's you just have to get away from it all....I will

keep you and your family in my prayer's....I am on a prayer website

too that has really helped me and has so many wonderful people please

visit us for prayer and friendship the add is : www.urcctc.com there

is a wonderful message board and great people...tell them Jana sent

you.....God bless and (((((hugs to you)))))))) Jana

[Guest guest]

Hi . Glad you found us but so sorry that you have the need to

be here. We all wish we were some place else too.

I am caregiver to my husband Bert, age 50 at diagnosis last year

stage III right colon cancer, four nodes positive. I am very happy

to hear that there has been good response and agree with a previous

post that what you are reporting is related to blood problems that

can be caused by treatments and not necessarily the cancer itself.

Once they do the blood work, there are methods that can be used to

help control these side effects. I'm sure that all will be well in a

few days.

This road is a hard, hard road to travel with many ups and downs

along the way. I know your family is grateful for your support, hard

as it may be for you to keep the " stiff upper lip. "

My mom has inoperable lung cancer and I too am the " internet guru " in

our family with both my mom and husband counting on me. Stay strong

and supportive and know that God is with you at all times. You and

your family will be in my prayers.

Monika

> Well...the long story - Back on Christmas Eve day he went to a

local

> hospital with severe stomach pain, they performed a colonoscopy and

> found 9 polyps, each were malignent. Having a family that truly

> enjoys christmas (he has 5 grandchildren that he cherishes) he

wanted

> to be home so he signed himself out at 5:00 on Christmas Eve. By

6:00

> the next morning (yes, Christmas Day) he woke my mother to ask her

to

> take a walk with him, as he was having serious pain in his abdomen.

> The pain continued and by 11:00 that morning he was back over at the

> ER. By the next day they moved him to the ICU with thoughts that he

> may be suffering from a blood disorder referred to as TTP. They

> decided to move him to Tufts New England Medical center in Boston

> where they continued to monitor him and began treating him for TTP

> (which required blood transfusions, platetlettes, fresh frozen

plasma)

> It was awful watching him go through that as his platelette count

> dropped so low that we were lucky he survived that. AFter they

> 'determined' that he did not have TTP (he was not improving) they

> determined that he had Disseminated Intravascular Coagulation which

is

> caused by an underlying condition - come to find out his condition

was

> Adenocarcinoma of the Unknown Primary - Colon Cancer, Stage four,

> found also in his hips, his bone marrow, his intestines as well as

> numerous lymphnodes.

>

> By the end of January this year he began his treatments for 5fu,

> leucovorin and oxaliplatin and continued for 8 sessions (every 2

weeks

> for 48 hours). The doctors were amazed at his response and had a

cat

> scan that showed significant improvement. They took him off the

chemo

> and have conducted blood tests and cat scans continually through the

> spring and so far the first portion of the summer.

>

> Well over the past 2 weeks his condition has deteriorated - he is

> bruising very easily, sleeping all the time and not eating much of

> anything. He bought a brand new boat in March to enjoy at their

> summer home this summer and he has not been able to enjoy it much

> lately due to his feeling ill. He has an appoint tomorrow for blood

> work and then with his doctor immediately after. I am so scared to

> loose him that my heart aches so badly - he is only 55 and loves

life

> so much. I just cannot imagine him not being around anymore. Just

> last week he suggested getting back on chemo to feel better - he

also

> talked about herbal medicines and asked me to try to find out

> information about them - (i am the internet guru in my family). If

> anyone has information regarding any herbal medicines or other

> thoughts that we can bring forth to the doctor i would greatly

> appreciate it.

>

> I am so glad that i found this website - prayers to all that are

> figting colo cancer and to those families that are fighting right

> alongside a loved one!

>

>

[Guest guest]

Hi . Glad you found us but so sorry that you have the need to

be here. We all wish we were some place else too.

I am caregiver to my husband Bert, age 50 at diagnosis last year

stage III right colon cancer, four nodes positive. I am very happy

to hear that there has been good response and agree with a previous

post that what you are reporting is related to blood problems that

can be caused by treatments and not necessarily the cancer itself.

Once they do the blood work, there are methods that can be used to

help control these side effects. I'm sure that all will be well in a

few days.

This road is a hard, hard road to travel with many ups and downs

along the way. I know your family is grateful for your support, hard

as it may be for you to keep the " stiff upper lip. "

My mom has inoperable lung cancer and I too am the " internet guru " in

our family with both my mom and husband counting on me. Stay strong

and supportive and know that God is with you at all times. You and

your family will be in my prayers.

Monika

> Well...the long story - Back on Christmas Eve day he went to a

local

> hospital with severe stomach pain, they performed a colonoscopy and

> found 9 polyps, each were malignent. Having a family that truly

> enjoys christmas (he has 5 grandchildren that he cherishes) he

wanted

> to be home so he signed himself out at 5:00 on Christmas Eve. By

6:00

> the next morning (yes, Christmas Day) he woke my mother to ask her

to

> take a walk with him, as he was having serious pain in his abdomen.

> The pain continued and by 11:00 that morning he was back over at the

> ER. By the next day they moved him to the ICU with thoughts that he

> may be suffering from a blood disorder referred to as TTP. They

> decided to move him to Tufts New England Medical center in Boston

> where they continued to monitor him and began treating him for TTP

> (which required blood transfusions, platetlettes, fresh frozen

plasma)

> It was awful watching him go through that as his platelette count

> dropped so low that we were lucky he survived that. AFter they

> 'determined' that he did not have TTP (he was not improving) they

> determined that he had Disseminated Intravascular Coagulation which

is

> caused by an underlying condition - come to find out his condition

was

> Adenocarcinoma of the Unknown Primary - Colon Cancer, Stage four,

> found also in his hips, his bone marrow, his intestines as well as

> numerous lymphnodes.

>

> By the end of January this year he began his treatments for 5fu,

> leucovorin and oxaliplatin and continued for 8 sessions (every 2

weeks

> for 48 hours). The doctors were amazed at his response and had a

cat

> scan that showed significant improvement. They took him off the

chemo

> and have conducted blood tests and cat scans continually through the

> spring and so far the first portion of the summer.

>

> Well over the past 2 weeks his condition has deteriorated - he is

> bruising very easily, sleeping all the time and not eating much of

> anything. He bought a brand new boat in March to enjoy at their

> summer home this summer and he has not been able to enjoy it much

> lately due to his feeling ill. He has an appoint tomorrow for blood

> work and then with his doctor immediately after. I am so scared to

> loose him that my heart aches so badly - he is only 55 and loves

life

> so much. I just cannot imagine him not being around anymore. Just

> last week he suggested getting back on chemo to feel better - he

also

> talked about herbal medicines and asked me to try to find out

> information about them - (i am the internet guru in my family). If

> anyone has information regarding any herbal medicines or other

> thoughts that we can bring forth to the doctor i would greatly

> appreciate it.

>

> I am so glad that i found this website - prayers to all that are

> figting colo cancer and to those families that are fighting right

> alongside a loved one!

>

>

[Guest guest]

: I can't thing of any thing to say excpet that God does work in

mysterious

ways. You had a gift when he beat the first rap,don't give up. belive,pray

and

take each day as a gift.Life is precious. I hope you get some answers. New

England

is a good place,Mass. has a number of exceedingly fine sites. Go on the

net,check

them out and see who in your area can recommend what. I was born in

Arlington,lived in Stoneham,Everett, Watertown and Gloucester. I have been in

Miami 45

+ years.

I have a sister in Gloucester and a sister in law both with cancer. I will

pray that

someone responds, and that you will receive a great respnes. hugs,prayers and

love

Jane