Re: Have you had a colonoscopy?

[Guest guest]

Way to go Narice!!!

That's our message all the way. CCNetwork wants screening to begin at age 20.

Come on. The US government determined that it's cost effect. The American

Cancer Society admits that we could totally eliminate this cancer by screening

alone. We KNOW that people under 50 get it all the time. Nixon declared war on

cancer. Now we finally know how to win one of the battles. (Okay, truthfully

they've known how to beat colon cancer for about 15-20 years now...) There is no

excuse for not ending this cancer. The time is now. The need is now. The

means are here.

-Priscilla

CCNetwork

www.colorectal-cancer.net

_____________

" Snoopy Walks to End Colon Cancer "

October 17th, 2004, Washington DC, 5k Walk/Run

www.colorectal-cancer.net (Information)

https://www.racepacket.com/snoop.html (Online Registration)

>

> From: flipper759@...

> Date: 2004/08/26 Thu AM 10:11:24 EDT

> To: colon_cancer_support

> Subject: Have you had a colonoscopy?

>

>

[Guest guest]

Way to go Narice!!!

That's our message all the way. CCNetwork wants screening to begin at age 20.

Come on. The US government determined that it's cost effect. The American

Cancer Society admits that we could totally eliminate this cancer by screening

alone. We KNOW that people under 50 get it all the time. Nixon declared war on

cancer. Now we finally know how to win one of the battles. (Okay, truthfully

they've known how to beat colon cancer for about 15-20 years now...) There is no

excuse for not ending this cancer. The time is now. The need is now. The

means are here.

-Priscilla

CCNetwork

www.colorectal-cancer.net

_____________

" Snoopy Walks to End Colon Cancer "

October 17th, 2004, Washington DC, 5k Walk/Run

www.colorectal-cancer.net (Information)

https://www.racepacket.com/snoop.html (Online Registration)

>

> From: flipper759@...

> Date: 2004/08/26 Thu AM 10:11:24 EDT

> To: colon_cancer_support

> Subject: Have you had a colonoscopy?

>

>

[Guest guest]

Well said Narice, well said. I can't urge people enough, including

my own son as both his father and grandfather (Bert's dad) are

victims of colon cancer.

Funny thing...for being the so called " most advanced nation " when it

comes to medical procedures, sometimes I wonder why in preventive

care we lag so far behind many other countries. My brother-in-laws,

one over 50, the other under 50 have been getting routine

colonoscopies for years. The doctors never even messed with

sigmonoscopies as both my BIL's were told that sigs don't catch the

whole colon. They live in Europe (Germany) and when the news broke

that their brother Bert was diagnosed stage III, they were appauled

by the fact that Bert had only been getting sigs up until he turned

50 when his insurance company finally okayed the full colonoscopy.

And the rest, as you have all already heard me say at least 100 times

before is history.

Makes me wonder and think if there isn't even a form of a cure out

there but a cure would mean less money for the pharmaceutical

companies...after all, there is no money in cures. Sorry if I sound

a little bitter, but it's just my take.

Monika

>

> As you all know my husband Phil was diagnosed with stage 4 colon

cancer in

> June of 2003.

> He had none of the warning signs until his liver enlarged causing a

large

> lump on his side and sciatic pain.

>

> A colonoscopy earlier MAY have helped but typically colonoscopies

are done

> only on people over 50.

>

> I am writing this to tell you if you are over 50 get your test

ordered and

> even if you are UNDER 50 get a test ordered. The number of people

with stage 4

> colon cancer in their 30's and 40's is steadily increasing. Most if

not all had

> NO SYMPTOMS!!!!

>

> You are at risk if any of these things are true for you:

>

> 1. A parent, sister or brother, or biological child was diagnosed

with colon

> cancer.

>

> 2. A grandparent, 1st cousin, blood aunt or uncle was diagnosed

with colon

> cancer.

>

> 3. Any of the relatives mentioned above or YOU have been diagnosed

with ANY

> cancer but especially:

> ovarian, uterine, and pancreatic.

>

> 4. Anyone in your family has a history of polyps even if they were

BENIGN.

>

>

> I am NOT trying to scare anyone but make you aware.

> A colonoscopy is not the most pleasant of test but IT CAN SAVE YOUR

LIFE

>

> We care about all our family friends and e-mail buddies and so pass

this

> information onto you in hopes that you will get tested and in turn

forward this to

> others in hopes they too will be tested.

>

> Many of you ask what you can do for Phil. If you do NOTHING else

for us GET

> TESTED!

> This disease is curable if caught in time. Testing is the only way

to know.

>

> Thanks for taking the time to read this and thanks in advance for

passing it

> on

> In this way Phil & I hope to help as many people as possible NOT to

go through

> what we are

>

> God Bless You

> Narice

>

>

>

[Guest guest]

Well said Narice, well said. I can't urge people enough, including

my own son as both his father and grandfather (Bert's dad) are

victims of colon cancer.

Funny thing...for being the so called " most advanced nation " when it

comes to medical procedures, sometimes I wonder why in preventive

care we lag so far behind many other countries. My brother-in-laws,

one over 50, the other under 50 have been getting routine

colonoscopies for years. The doctors never even messed with

sigmonoscopies as both my BIL's were told that sigs don't catch the

whole colon. They live in Europe (Germany) and when the news broke

that their brother Bert was diagnosed stage III, they were appauled

by the fact that Bert had only been getting sigs up until he turned

50 when his insurance company finally okayed the full colonoscopy.

And the rest, as you have all already heard me say at least 100 times

before is history.

Makes me wonder and think if there isn't even a form of a cure out

there but a cure would mean less money for the pharmaceutical

companies...after all, there is no money in cures. Sorry if I sound

a little bitter, but it's just my take.

Monika

>

> As you all know my husband Phil was diagnosed with stage 4 colon

cancer in

> June of 2003.

> He had none of the warning signs until his liver enlarged causing a

large

> lump on his side and sciatic pain.

>

> A colonoscopy earlier MAY have helped but typically colonoscopies

are done

> only on people over 50.

>

> I am writing this to tell you if you are over 50 get your test

ordered and

> even if you are UNDER 50 get a test ordered. The number of people

with stage 4

> colon cancer in their 30's and 40's is steadily increasing. Most if

not all had

> NO SYMPTOMS!!!!

>

> You are at risk if any of these things are true for you:

>

> 1. A parent, sister or brother, or biological child was diagnosed

with colon

> cancer.

>

> 2. A grandparent, 1st cousin, blood aunt or uncle was diagnosed

with colon

> cancer.

>

> 3. Any of the relatives mentioned above or YOU have been diagnosed

with ANY

> cancer but especially:

> ovarian, uterine, and pancreatic.

>

> 4. Anyone in your family has a history of polyps even if they were

BENIGN.

>

>

> I am NOT trying to scare anyone but make you aware.

> A colonoscopy is not the most pleasant of test but IT CAN SAVE YOUR

LIFE

>

> We care about all our family friends and e-mail buddies and so pass

this

> information onto you in hopes that you will get tested and in turn

forward this to

> others in hopes they too will be tested.

>

> Many of you ask what you can do for Phil. If you do NOTHING else

for us GET

> TESTED!

> This disease is curable if caught in time. Testing is the only way

to know.

>

> Thanks for taking the time to read this and thanks in advance for

passing it

> on

> In this way Phil & I hope to help as many people as possible NOT to

go through

> what we are

>

> God Bless You

> Narice

>

>

>

[Guest guest]

Well said Narice, well said. I can't urge people enough, including

my own son as both his father and grandfather (Bert's dad) are

victims of colon cancer.

Funny thing...for being the so called " most advanced nation " when it

comes to medical procedures, sometimes I wonder why in preventive

care we lag so far behind many other countries. My brother-in-laws,

one over 50, the other under 50 have been getting routine

colonoscopies for years. The doctors never even messed with

sigmonoscopies as both my BIL's were told that sigs don't catch the

whole colon. They live in Europe (Germany) and when the news broke

that their brother Bert was diagnosed stage III, they were appauled

by the fact that Bert had only been getting sigs up until he turned

50 when his insurance company finally okayed the full colonoscopy.

And the rest, as you have all already heard me say at least 100 times

before is history.

Makes me wonder and think if there isn't even a form of a cure out

there but a cure would mean less money for the pharmaceutical

companies...after all, there is no money in cures. Sorry if I sound

a little bitter, but it's just my take.

Monika

>

> As you all know my husband Phil was diagnosed with stage 4 colon

cancer in

> June of 2003.

> He had none of the warning signs until his liver enlarged causing a

large

> lump on his side and sciatic pain.

>

> A colonoscopy earlier MAY have helped but typically colonoscopies

are done

> only on people over 50.

>

> I am writing this to tell you if you are over 50 get your test

ordered and

> even if you are UNDER 50 get a test ordered. The number of people

with stage 4

> colon cancer in their 30's and 40's is steadily increasing. Most if

not all had

> NO SYMPTOMS!!!!

>

> You are at risk if any of these things are true for you:

>

> 1. A parent, sister or brother, or biological child was diagnosed

with colon

> cancer.

>

> 2. A grandparent, 1st cousin, blood aunt or uncle was diagnosed

with colon

> cancer.

>

> 3. Any of the relatives mentioned above or YOU have been diagnosed

with ANY

> cancer but especially:

> ovarian, uterine, and pancreatic.

>

> 4. Anyone in your family has a history of polyps even if they were

BENIGN.

>

>

> I am NOT trying to scare anyone but make you aware.

> A colonoscopy is not the most pleasant of test but IT CAN SAVE YOUR

LIFE

>

> We care about all our family friends and e-mail buddies and so pass

this

> information onto you in hopes that you will get tested and in turn

forward this to

> others in hopes they too will be tested.

>

> Many of you ask what you can do for Phil. If you do NOTHING else

for us GET

> TESTED!

> This disease is curable if caught in time. Testing is the only way

to know.

>

> Thanks for taking the time to read this and thanks in advance for

passing it

> on

> In this way Phil & I hope to help as many people as possible NOT to

go through

> what we are

>

> God Bless You

> Narice

>

>

>

[Guest guest]

>

> I also can't stress enough the importance of

> colonoscopies.

Not to undermine the importance of what you all are saying, but I had

a colonoscopy less than two months before I was diagnosed. I still

believe the tests are vitally important, but it is not a magic wand.

Cancer can strike at any time.

Cheri

[Guest guest]

>

> I also can't stress enough the importance of

> colonoscopies.

Not to undermine the importance of what you all are saying, but I had

a colonoscopy less than two months before I was diagnosed. I still

believe the tests are vitally important, but it is not a magic wand.

Cancer can strike at any time.

Cheri

[Guest guest]

>

> I also can't stress enough the importance of

> colonoscopies.

Not to undermine the importance of what you all are saying, but I had

a colonoscopy less than two months before I was diagnosed. I still

believe the tests are vitally important, but it is not a magic wand.

Cancer can strike at any time.

Cheri

[Guest guest]

Amen, but,

As unfortunate as it is, doctors are probably more culpable than

anybody, and THEY need to be targeted with the most zeal. I think

that if doctors paid attention to the current criteria for

screening, things would be a lot better. They are the ones who are

going to be most effective, also, at passing on the screening

message. If you look at the current criteria for screening, they

actually cover the cases that we talk about.

Part II. Before people yell at me for what I am about to say, I'm

trying to be objective. I have Stage IV, am 40, and was

MISDIAGNOSED 8 months before I had a colonscopy, even though I had

the classic symptoms and the doctor failed to see a 6 cm tumor with

a protoscope that was only 6 cm into my rectum. Fact is that even

if it is on the incline, CRC at below 50 is much less likely than

above for all populations. Within the population below 50, the risk

is 5-6 times greater for people with a family history (NOT just

HNPCC or FAP, but any familial link). For economic and practical

purposes, I think, we need to stick to what the current guidelines

are and not go too far beyond; if we don't, the argument starts

become baseless and we are in effect saying that we should start

screening people for a lot of other diseases that they might get.

We also run the risk of delaying screening for those whom the lack

of a 3-5 month wait would be beneficial, even life saving. For

example, screening at 20 for people that have no history probably

puts an undue strain on what is becoming a very strained system.

And, it will take a couple of years to get enough physicians trained

to fill in for the demand.

Does that mean that nobody in their 20's should be screened? No.

People with FAP or HNPCC or (sticking to the guidelines) had a

relative(s) who got it or even a related cancer (i.e. ovarian,

uterin, cervical, or another GI cancer) in their 30's should. And

that is what the guidelines say - 10 years before the earliest

diagnosis. And, certainly, anybody who shows any of the classic

symtoms should; I think the guidelines support that as well. My

nephew, 30 had bleeding and had one done. My other nephew, just

barely 30, is also having one done preemptively because I got it,

his great grandfather had it, and other first cousins and uncles had

polyps. To put it in other words, if one fits the screening

criteria, they should be screened; this more often than not includes

the people at risk who are under 50.

Joe

>

> As you all know my husband Phil was diagnosed with stage 4 colon

cancer in

> June of 2003.

> He had none of the warning signs until his liver enlarged causing

a large

> lump on his side and sciatic pain.

>

> A colonoscopy earlier MAY have helped but typically colonoscopies

are done

> only on people over 50.

>

> I am writing this to tell you if you are over 50 get your test

ordered and

> even if you are UNDER 50 get a test ordered. The number of people

with stage 4

> colon cancer in their 30's and 40's is steadily increasing. Most

if not all had

> NO SYMPTOMS!!!!

>

> You are at risk if any of these things are true for you:

>

> 1. A parent, sister or brother, or biological child was diagnosed

with colon

> cancer.

>

> 2. A grandparent, 1st cousin, blood aunt or uncle was diagnosed

with colon

> cancer.

>

> 3. Any of the relatives mentioned above or YOU have been diagnosed

with ANY

> cancer but especially:

> ovarian, uterine, and pancreatic.

>

> 4. Anyone in your family has a history of polyps even if they were

BENIGN.

>

>

> I am NOT trying to scare anyone but make you aware.

> A colonoscopy is not the most pleasant of test but IT CAN SAVE

YOUR LIFE

>

> We care about all our family friends and e-mail buddies and so

pass this

> information onto you in hopes that you will get tested and in turn

forward this to

> others in hopes they too will be tested.

>

> Many of you ask what you can do for Phil. If you do NOTHING else

for us GET

> TESTED!

> This disease is curable if caught in time. Testing is the only way

to know.

>

> Thanks for taking the time to read this and thanks in advance for

passing it

> on

> In this way Phil & I hope to help as many people as possible NOT

to go through

> what we are

>

> God Bless You

> Narice

>

>

>

[Guest guest]

Amen, but,

As unfortunate as it is, doctors are probably more culpable than

anybody, and THEY need to be targeted with the most zeal. I think

that if doctors paid attention to the current criteria for

screening, things would be a lot better. They are the ones who are

going to be most effective, also, at passing on the screening

message. If you look at the current criteria for screening, they

actually cover the cases that we talk about.

Part II. Before people yell at me for what I am about to say, I'm

trying to be objective. I have Stage IV, am 40, and was

MISDIAGNOSED 8 months before I had a colonscopy, even though I had

the classic symptoms and the doctor failed to see a 6 cm tumor with

a protoscope that was only 6 cm into my rectum. Fact is that even

if it is on the incline, CRC at below 50 is much less likely than

above for all populations. Within the population below 50, the risk

is 5-6 times greater for people with a family history (NOT just

HNPCC or FAP, but any familial link). For economic and practical

purposes, I think, we need to stick to what the current guidelines

are and not go too far beyond; if we don't, the argument starts

become baseless and we are in effect saying that we should start

screening people for a lot of other diseases that they might get.

We also run the risk of delaying screening for those whom the lack

of a 3-5 month wait would be beneficial, even life saving. For

example, screening at 20 for people that have no history probably

puts an undue strain on what is becoming a very strained system.

And, it will take a couple of years to get enough physicians trained

to fill in for the demand.

Does that mean that nobody in their 20's should be screened? No.

People with FAP or HNPCC or (sticking to the guidelines) had a

relative(s) who got it or even a related cancer (i.e. ovarian,

uterin, cervical, or another GI cancer) in their 30's should. And

that is what the guidelines say - 10 years before the earliest

diagnosis. And, certainly, anybody who shows any of the classic

symtoms should; I think the guidelines support that as well. My

nephew, 30 had bleeding and had one done. My other nephew, just

barely 30, is also having one done preemptively because I got it,

his great grandfather had it, and other first cousins and uncles had

polyps. To put it in other words, if one fits the screening

criteria, they should be screened; this more often than not includes

the people at risk who are under 50.

Joe

>

> As you all know my husband Phil was diagnosed with stage 4 colon

cancer in

> June of 2003.

> He had none of the warning signs until his liver enlarged causing

a large

> lump on his side and sciatic pain.

>

> A colonoscopy earlier MAY have helped but typically colonoscopies

are done

> only on people over 50.

>

> I am writing this to tell you if you are over 50 get your test

ordered and

> even if you are UNDER 50 get a test ordered. The number of people

with stage 4

> colon cancer in their 30's and 40's is steadily increasing. Most

if not all had

> NO SYMPTOMS!!!!

>

> You are at risk if any of these things are true for you:

>

> 1. A parent, sister or brother, or biological child was diagnosed

with colon

> cancer.

>

> 2. A grandparent, 1st cousin, blood aunt or uncle was diagnosed

with colon

> cancer.

>

> 3. Any of the relatives mentioned above or YOU have been diagnosed

with ANY

> cancer but especially:

> ovarian, uterine, and pancreatic.

>

> 4. Anyone in your family has a history of polyps even if they were

BENIGN.

>

>

> I am NOT trying to scare anyone but make you aware.

> A colonoscopy is not the most pleasant of test but IT CAN SAVE

YOUR LIFE

>

> We care about all our family friends and e-mail buddies and so

pass this

> information onto you in hopes that you will get tested and in turn

forward this to

> others in hopes they too will be tested.

>

> Many of you ask what you can do for Phil. If you do NOTHING else

for us GET

> TESTED!

> This disease is curable if caught in time. Testing is the only way

to know.

>

> Thanks for taking the time to read this and thanks in advance for

passing it

> on

> In this way Phil & I hope to help as many people as possible NOT

to go through

> what we are

>

> God Bless You

> Narice

>

>

>

[Guest guest]

my problem with the current guidelines is that the doctors too often use them

to ignore abject symptoms of disease, since it is supposedly such a low

occurance in those under 50. It seems that the numbers have surely changed

since

those guidelines were conceived. I was misdiagnosed all along...I would have

been 28 if it had been properly diagnosed..and I'm 42 now just getting rad and

chemo. Don't know why, but it stayed local for me..and only involves one

lymph node. The PA sending me for the colonoscopy joke and said if it was

cancer

I would have been dead by now. How true that could have been!

[Guest guest]

That is the problem. They don't take this seriously case after case after case.

And so largely if you are under 50 you are going to die because by the time they

take it seriously it is too late. Sometimes it is like talking to the White

Rabbit in Alice in Wonderland. There actions, attitudes and responses have no

sense to them.

So, start a CCNetwork Chapter in your area and beat these folks into submission.

-Priscilla

CCNetwork

____________

" Snoopy Walks to End Colon Cancer "

October 17th, 2004, Washington DC, 5k Walk/Run

www.colorectal-cancer.net (Information)

https://www.racepacket.com/snoop.html (Online Registration)

>

> From: msheila7@...

> Date: 2004/08/26 Thu PM 07:26:04 EDT

> To: colon_cancer_support

> Subject: Re: Re: Have you had a colonoscopy?

>

>

[Guest guest]

That is the problem. They don't take this seriously case after case after case.

And so largely if you are under 50 you are going to die because by the time they

take it seriously it is too late. Sometimes it is like talking to the White

Rabbit in Alice in Wonderland. There actions, attitudes and responses have no

sense to them.

So, start a CCNetwork Chapter in your area and beat these folks into submission.

-Priscilla

CCNetwork

____________

" Snoopy Walks to End Colon Cancer "

October 17th, 2004, Washington DC, 5k Walk/Run

www.colorectal-cancer.net (Information)

https://www.racepacket.com/snoop.html (Online Registration)

>

> From: msheila7@...

> Date: 2004/08/26 Thu PM 07:26:04 EDT

> To: colon_cancer_support

> Subject: Re: Re: Have you had a colonoscopy?

>

>

[Guest guest]

That is the problem. They don't take this seriously case after case after case.

And so largely if you are under 50 you are going to die because by the time they

take it seriously it is too late. Sometimes it is like talking to the White

Rabbit in Alice in Wonderland. There actions, attitudes and responses have no

sense to them.

So, start a CCNetwork Chapter in your area and beat these folks into submission.

-Priscilla

CCNetwork

____________

" Snoopy Walks to End Colon Cancer "

October 17th, 2004, Washington DC, 5k Walk/Run

www.colorectal-cancer.net (Information)

https://www.racepacket.com/snoop.html (Online Registration)

>

> From: msheila7@...

> Date: 2004/08/26 Thu PM 07:26:04 EDT

> To: colon_cancer_support

> Subject: Re: Re: Have you had a colonoscopy?

>

>

[Guest guest]

Narice,

I wish with all my heart that I could give Phil back to you.

There is no blame on your shoulders.

I am completely with you on the miracle of the mission. I was lucky. My sister

survived this. But since I started doing this I have lost so many " friends " who

never should have died so young. And never from this cancer.

Joining our efforts together will make a difference. We can make this happen.

If we stand up and fight hard enough.

-Priscilla

CCNetwork

___________

" Snoopy Walks to End Colon Cancer "

October 17th, 2004, Washington DC, 5k Walk/Run

www.colorectal-cancer.net (Information)

https://www.racepacket.com/snoop.html (Online Registration)

>

> From: flipper759@...

> Date: 2004/08/26 Thu PM 01:40:16 EDT

> To: colon_cancer_support

> Subject: Re: Re: Have you had a colonoscopy?

>

>

[Guest guest]

Narice,

I wish with all my heart that I could give Phil back to you.

There is no blame on your shoulders.

I am completely with you on the miracle of the mission. I was lucky. My sister

survived this. But since I started doing this I have lost so many " friends " who

never should have died so young. And never from this cancer.

Joining our efforts together will make a difference. We can make this happen.

If we stand up and fight hard enough.

-Priscilla

CCNetwork

___________

" Snoopy Walks to End Colon Cancer "

October 17th, 2004, Washington DC, 5k Walk/Run

www.colorectal-cancer.net (Information)

https://www.racepacket.com/snoop.html (Online Registration)

>

> From: flipper759@...

> Date: 2004/08/26 Thu PM 01:40:16 EDT

> To: colon_cancer_support

> Subject: Re: Re: Have you had a colonoscopy?

>

>

[Guest guest]

Narice,

I wish with all my heart that I could give Phil back to you.

There is no blame on your shoulders.

I am completely with you on the miracle of the mission. I was lucky. My sister

survived this. But since I started doing this I have lost so many " friends " who

never should have died so young. And never from this cancer.

Joining our efforts together will make a difference. We can make this happen.

If we stand up and fight hard enough.

-Priscilla

CCNetwork

___________

" Snoopy Walks to End Colon Cancer "

October 17th, 2004, Washington DC, 5k Walk/Run

www.colorectal-cancer.net (Information)

https://www.racepacket.com/snoop.html (Online Registration)

>

> From: flipper759@...

> Date: 2004/08/26 Thu PM 01:40:16 EDT

> To: colon_cancer_support

> Subject: Re: Re: Have you had a colonoscopy?

>

>

[Guest guest]

Lynette,

Could you/would you share more details about your Dad's situation with getting a

colonoscopy 5 years earlier?

I know of several cases like this and there isn't anything in the literature

that covers them and so I'm curious and trying to find out something from

someone so that CCNetwork can be of more help with these situations that don't

fit anyone's scenario.

-Priscilla

CCNetwork

____________

" Snoopy Walks to End Colon Cancer "

October 17th, 2004, Washington DC, 5k Walk/Run

www.colorectal-cancer.net (Information)

https://www.racepacket.com/snoop.html (Online Registration)

>

>

> Date: 2004/08/26 Thu PM 12:55:13 EDT

> To: colon_cancer_support

> Subject: Re: Have you had a colonoscopy?

>

>

[Guest guest]

Lynette,

Could you/would you share more details about your Dad's situation with getting a

colonoscopy 5 years earlier?

I know of several cases like this and there isn't anything in the literature

that covers them and so I'm curious and trying to find out something from

someone so that CCNetwork can be of more help with these situations that don't

fit anyone's scenario.

-Priscilla

CCNetwork

____________

" Snoopy Walks to End Colon Cancer "

October 17th, 2004, Washington DC, 5k Walk/Run

www.colorectal-cancer.net (Information)

https://www.racepacket.com/snoop.html (Online Registration)

>

>

> Date: 2004/08/26 Thu PM 12:55:13 EDT

> To: colon_cancer_support

> Subject: Re: Have you had a colonoscopy?

>

>

[Guest guest]

Lynette,

Could you/would you share more details about your Dad's situation with getting a

colonoscopy 5 years earlier?

I know of several cases like this and there isn't anything in the literature

that covers them and so I'm curious and trying to find out something from

someone so that CCNetwork can be of more help with these situations that don't

fit anyone's scenario.

-Priscilla

CCNetwork

____________

" Snoopy Walks to End Colon Cancer "

October 17th, 2004, Washington DC, 5k Walk/Run

www.colorectal-cancer.net (Information)

https://www.racepacket.com/snoop.html (Online Registration)

>

>

> Date: 2004/08/26 Thu PM 12:55:13 EDT

> To: colon_cancer_support

> Subject: Re: Have you had a colonoscopy?

>

>

[Guest guest]

Thank you

I know that It's damned heredity but it was one of the things I had to get

past to cope. The thing is that at least one of the boys has the gene. I do want

to see what this doctor will say about a genetic test. He did say currently

they are only available in larger cities in our case Pittsburgh or Cleveland.

He didn't say what he'd recommend if the boys have the gene. My guess from

his attitude is THEN he'd lower the colonoscopy at 30 for them and start them

younger.

[Guest guest]

not a bad thought Priscilla...will be doing something once I get through this

myself. They need that and they need way more help with patient

advocacy...guess that covers it all anyways (Patient advocacy). I've certainly

met a

number of others around this area that have cancer so I know I would have help

and

support as well with activities.

[Guest guest]

not a bad thought Priscilla...will be doing something once I get through this

myself. They need that and they need way more help with patient

advocacy...guess that covers it all anyways (Patient advocacy). I've certainly

met a

number of others around this area that have cancer so I know I would have help

and

support as well with activities.

[Guest guest]

not a bad thought Priscilla...will be doing something once I get through this

myself. They need that and they need way more help with patient

advocacy...guess that covers it all anyways (Patient advocacy). I've certainly

met a

number of others around this area that have cancer so I know I would have help

and

support as well with activities.

[Guest guest]

Narice,

You are right on the money with this warning. No, don't be scared, just be aware

and be insistant on the testing. I said it before and I will say it again..

don't let any Dr dictate to you when you should be tested.

When my mom was first taken sick.. I ran to a Gastro dr. I tild her thaat my mom

was sick with stage III cc at the time and that I did not want this to be come a

family disease. I was 30 at the time. I ASKED for the test. Although its not the

protocol or whatever ( lets take a good look at what the " protocol " has done

for us so far huh? )

I had my first colonoscopy at age 30. I have another appointment in September, 2

years later and after losing my mom is March. This disease is a killer, plain

and simple.. GET A COLONOSCOPY and then get another one.... don't let this

disease continue to rob us of wonderful people.

a

flipper759@... wrote:

As you all know my husband Phil was diagnosed with stage 4 colon cancer in

June of 2003.

He had none of the warning signs until his liver enlarged causing a large

lump on his side and sciatic pain.

A colonoscopy earlier MAY have helped but typically colonoscopies are done

only on people over 50.

I am writing this to tell you if you are over 50 get your test ordered and

even if you are UNDER 50 get a test ordered. The number of people with stage 4

colon cancer in their 30's and 40's is steadily increasing. Most if not all had

NO SYMPTOMS!!!!

You are at risk if any of these things are true for you:

1. A parent, sister or brother, or biological child was diagnosed with colon

cancer.

2. A grandparent, 1st cousin, blood aunt or uncle was diagnosed with colon

cancer.

3. Any of the relatives mentioned above or YOU have been diagnosed with ANY

cancer but especially:

ovarian, uterine, and pancreatic.

4. Anyone in your family has a history of polyps even if they were BENIGN.

I am NOT trying to scare anyone but make you aware.

A colonoscopy is not the most pleasant of test but IT CAN SAVE YOUR LIFE

We care about all our family friends and e-mail buddies and so pass this

information onto you in hopes that you will get tested and in turn forward this

to

others in hopes they too will be tested.

Many of you ask what you can do for Phil. If you do NOTHING else for us GET

TESTED!

This disease is curable if caught in time. Testing is the only way to know.

Thanks for taking the time to read this and thanks in advance for passing it

on

In this way Phil & I hope to help as many people as possible NOT to go through

what we are

God Bless You

Narice