Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 Hello Group, here Beginning my second day of the elimination diet. I was expecting to have a bad day, meaning more possible swelling and/or flu like symptoms. Not. That's good on one hand and a little disappointing on another. It would indicate I do indeed have some allergy problems. However, I'm still quite positive and optimistic. Eating is not too much fun, especially when I had to grill rib eyes for the rest of my family last nite. Oh well, I sure want to see my ankles again! If anyone has knowledge about how you prepare turnips, rutabagas and parsnips I would be grateful to hear. This is a new experience for me. I will only be able to use mineral or sea salt on them. I think I notice certain things happening, but, my imagination could be getting ahead of reality so I will hold off on stating those for the time being. I do feel really really well. I am also suspecting I have a certain amount of colon blockage, which is a surprise to me. Amazing the sorts of things you can discover. I am beginning to feel that I am an agriculturalist rather than hunter/gatherer, and I wish I knew my blood type. Had it typed several years ago, but lost the slip that gave me the information. Not real sure I want to go and give any blood at this point, which is the only way I know to get the information cheaply. I thank all of you for the email response. I remain certain of the idea of antibiotics to treat arthritis if needed. I only want to clear some of the other problems and see what I have remaining. I feel like my rheumy sabotaged my chances at the very beginning. I accepted the doxy he gave me as I had read of it being used, but I did not ever get any indication of a herx and I still wonder why not? Any answers or thoughts? After reading all the posts on nodules, I am anxious to see what happens in the near future and then may certainly entertain the idea of AP to deal with them. Hope you each have a good day Houston TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2007 Report Share Posted April 12, 2007 Hi Effiya, Search casehealth.com.au for PPMS, SPMS, and LDN. Regards, Cris I have RRMS...this episode I am in now has been going on since Jan...and now I am finding relief. > > > > > --------------------------------- > See what's free at AOL.com. > > > > > > --------------------------------- > 8:00? 8:25? 8:40? Find a flick in no time > with the Search movie showtime shortcut. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2008 Report Share Posted November 11, 2008 That broth does sound very good. The book says onions are a common food sensitivity so I would be hesitant to add them. However, potatoes are listed as very common as well yet they are in the broth recipe listed in her book. Day 2 Was very hard, energy levels are low. I've been extremely hungry all day and so far the only thing I've noticed is my hands are getting more inflamed. They are actually stiffening up worse than they have ever been and getting quite painful. I don't know if this is because I was on the plaquenil and now that I have stopped the herxing is going into full effect from the minocin or what. It's so hard to troubleshoot this disease when no one really knows anything for sure and everything seems inter-related. I did stop taking the minocin before the fast so I would think the herxing would not be as bad based on some reports from others on this group. However I never noticed the herxing before when I was on the plaquenil. I'm having second thoughts on the fast simply because my hands are getting worse, that is not something I was expecting. I mean if I have a food sensitivity one would think they would be getting better not worse... One thing is for certain, if my hands continue to get worse I don't believe I can only take the minocin exclusively and still have any quality of life. I'll be forced to try some sort of medication that is more traditional such as the plaquenil while taking the minocin. I'm definitely against the plaquenil though, as I'm convinced it caused my spaciness. I can only hope another medication will not space me out and give the minocin time to kick in. What do you guys think? Have any of you had success on the minocin while at the same time taking something to help your RA symptoms? I know someone suggested I try Quinacrine and that person also said going off plaquenil could induce flares. *sigh* maybe that is what is happening. I just know my current rheumy is going to be opposed to quinacrine but I need to try it I suppose. Any advice would be appreciated > > > > > > Hi Tom, Let me clarify a bit. I was talking to someone who seems to > > not be able to make up it's mind on anything and this person has been > > jumping from one thing to another rather quickly and wonders why > > nothing is working. This person (to my knowledge) has been on this > > site for about two years saying the same thing. I was on Minocin for > > 18 months before I went into remission. I continued as my doctor, at > > that time had no other idea than to continue. But I felt I still > > needed to step up. So after several months of research I started on > > the Marshall Protocol and am still on it after 13 months and will > > continue until I am passed phase 3. Time line, I figure will be > > around year # 4. I have scleroderma. One Doctor said he thought I > > had R/A and/or MCTD in addition to S/D. Another said I had CREST. > > Only problem with these diagnosis is that I had some of the symptoms > > but not all. So, I decided that Scleroderma was what I should treat > > as they > > > all agreed on that. It was the deadliest and it definitely had > > attacked my lungs. I was in Pulmonary Fibrosis, and for a short time, > > Pulmonary Arterial Hypertension. My disease began regressing within 6 > > weeks after starting the Minocin. (The Raynauds was the first to go) > > and this continued until all symptoms were stablized and began > > healing. That is when I decided to advance my treatment. I chose > > Marshall because it also included Minocin and added Clindamycin and > > Zithromycin at different levels and different dosages. Much more > > complicated, but with great explanation and follow up from the team at > > MP. I was warned that this protocol would make me feel worse at times > > and experience herxheimer symptoms. It did. But I treated the > > symptoms with info from the protocol and concentrated on wiping out > > the micoplasmas. To go on to this long term protocol, I had to stop > > the high doses of Minocin I was on and once free of the medication, my > > > body could then start the new protocol. Since micoplasmas are slow > > growing, I didn't feel that a 6 week absence would make a difference. > > And it didn't. It is the starting and stopping and jumping from one > > thing to another and not seeing any positive results that makes me > > think doing that is contrary to long term remission. People who jump > > around constantly are just looking for instant relief and not focusing > > on the cause. Maybe they don't believe in the Infectious Theory or > > maybe it doesn't apply to their disease. So, the answer is if you are > > not in immediate danger like I was with my lungs, go for the food > > process. A few weeks off will not make micoplasmas grow fast enough > > to cause further damage. After you have found out what foods work, you > > can go back on the Minocin and omit the foods that cause you > > problems. But never lose sight of the cure while treating the > > symptoms. Good luck with your food regimen and let us know how you > > > make out. I am writing a book on how people with these so-called > > auto immune diseases cope. I am one who does not believe that the body > > is programmed to attack itself. There has to be a cause of a foreign > > substance invading the immune cells to cause the healthy immune cells > > to attack the infected immune cells. That is their job! There are so > > many stories, I found so fascinating that I was prompted to start this > > book. I have been researching and writing for almost two years and > > have learned so much. I would like to put in a chapter about foods > > and how they react with and without medication. I would like to use > > your input and the story of others like you who are trying different > > diets. So far, I have noticed that Gluten free diets are the most > > successful. So now when I go to different supermarkets, I check out > > the shelves and notice more and more products being made are gluten > > free. So someone out there must be doing some research > > > as the gluten free foods are getting tastier and increasing in > > numbers. Starting a fast has been done for as long as there has been > > mankind. There are many references to fasting in the scriptures. > > Starting back on foods that are simple and one at a time is what we do > > with babies once they start weaning. Looking for foods that cause > > trouble that way is easy and not confusing. Once you can find and > > eliminate the foods that cause you trouble, I'm sure you will feel > > better, but to kill the toxic bacteria will take going back on the > > antibiotic. There is no reason why we can't eliminate foods that are > > harmful and continue taking the antibiotic. After all, we still must > > eat to remain alive. Thank you for the opportunity to clarify. Best > > to all of you who are fasting and or changing diets. And thank you to > > the moderators of this site for giving us all the opportunities to > > learn from each other. Our best, Dolores & Mike > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 If you think going off plaquenil may be the culprit, you could always try that up again. I went to a fruit & veggie fast place where you get nothing but two glasses per day of veggie juice with a bit of fruit in it. It was a five day fast. I lost a lot of weight. I was so sure that this diet would give me the help I needed and was amazed that I still had pain. I didn't get worse as you seem to be noting, but I still had nearly the same symptoms. I didn't know what to make of it. Later, I found that most of my pain was related to a malfunctioning thyroid. I was thin & no one considered this. I still react to certain foods strongly (glycoproteins such as gluten, casseintate). I also have noticed a reaction to certain minerals. So, my RA is impacted by a variety of issues. Currently, I am asymptomatic. Amy Petty wrote: > > That broth does sound very good. The book says onions are a common > food sensitivity so I would be hesitant to add them. However, > potatoes are listed as very common as well yet they are in the broth > recipe listed in her book. > > Day 2 Was very hard, energy levels are low. I've been extremely > hungry all day and so far the only thing I've noticed is my hands are > getting more inflamed. They are actually stiffening up worse than > they have ever been and getting quite painful. I don't know if this > is because I was on the plaquenil and now that I have stopped the > herxing is going into full effect from the minocin or what. It's so > hard to troubleshoot this disease when no one really knows anything > for sure and everything seems inter-related. I did stop taking the > minocin before the fast so I would think the herxing would not be as > bad based on some reports from others on this group. However I never > noticed the herxing before when I was on the plaquenil. I'm having > second thoughts on the fast simply because my hands are getting worse, > that is not something I was expecting. I mean if I have a food > sensitivity one would think they would be getting better not worse... > > One thing is for certain, if my hands continue to get worse I don't > believe I can only take the minocin exclusively and still have any > quality of life. I'll be forced to try some sort of medication that > is more traditional such as the plaquenil while taking the minocin. > I'm definitely against the plaquenil though, as I'm convinced it > caused my spaciness. I can only hope another medication will not > space me out and give the minocin time to kick in. > > What do you guys think? Have any of you had success on the minocin > while at the same time taking something to help your RA symptoms? I > know someone suggested I try Quinacrine and that person also said > going off plaquenil could induce flares. *sigh* maybe that is what is > happening. I just know my current rheumy is going to be opposed to > quinacrine but I need to try it I suppose. > > Any advice would be appreciated > > > > > > > > > > > Hi Tom, Let me clarify a bit. I was talking to someone who seems to > > > not be able to make up it's mind on anything and this person has been > > > jumping from one thing to another rather quickly and wonders why > > > nothing is working. This person (to my knowledge) has been on this > > > site for about two years saying the same thing. I was on Minocin for > > > 18 months before I went into remission. I continued as my doctor, at > > > that time had no other idea than to continue. But I felt I still > > > needed to step up. So after several months of research I started on > > > the Marshall Protocol and am still on it after 13 months and will > > > continue until I am passed phase 3. Time line, I figure will be > > > around year # 4. I have scleroderma. One Doctor said he thought I > > > had R/A and/or MCTD in addition to S/D. Another said I had CREST. > > > Only problem with these diagnosis is that I had some of the symptoms > > > but not all. So, I decided that Scleroderma was what I should treat > > > as they > > > > all agreed on that. It was the deadliest and it definitely had > > > attacked my lungs. I was in Pulmonary Fibrosis, and for a short time, > > > Pulmonary Arterial Hypertension. My disease began regressing within 6 > > > weeks after starting the Minocin. (The Raynauds was the first to go) > > > and this continued until all symptoms were stablized and began > > > healing. That is when I decided to advance my treatment. I chose > > > Marshall because it also included Minocin and added Clindamycin and > > > Zithromycin at different levels and different dosages. Much more > > > complicated, but with great explanation and follow up from the team at > > > MP. I was warned that this protocol would make me feel worse at times > > > and experience herxheimer symptoms. It did. But I treated the > > > symptoms with info from the protocol and concentrated on wiping out > > > the micoplasmas. To go on to this long term protocol, I had to stop > > > the high doses of Minocin I was on and once free of the medication, my > > > > body could then start the new protocol. Since micoplasmas are slow > > > growing, I didn't feel that a 6 week absence would make a difference. > > > And it didn't. It is the starting and stopping and jumping from one > > > thing to another and not seeing any positive results that makes me > > > think doing that is contrary to long term remission. People who jump > > > around constantly are just looking for instant relief and not focusing > > > on the cause. Maybe they don't believe in the Infectious Theory or > > > maybe it doesn't apply to their disease. So, the answer is if you are > > > not in immediate danger like I was with my lungs, go for the food > > > process. A few weeks off will not make micoplasmas grow fast enough > > > to cause further damage. After you have found out what foods work, you > > > can go back on the Minocin and omit the foods that cause you > > > problems. But never lose sight of the cure while treating the > > > symptoms. Good luck with your food regimen and let us know how you > > > > make out. I am writing a book on how people with these so-called > > > auto immune diseases cope. I am one who does not believe that the body > > > is programmed to attack itself. There has to be a cause of a foreign > > > substance invading the immune cells to cause the healthy immune cells > > > to attack the infected immune cells. That is their job! There are so > > > many stories, I found so fascinating that I was prompted to start this > > > book. I have been researching and writing for almost two years and > > > have learned so much. I would like to put in a chapter about foods > > > and how they react with and without medication. I would like to use > > > your input and the story of others like you who are trying different > > > diets. So far, I have noticed that Gluten free diets are the most > > > successful. So now when I go to different supermarkets, I check out > > > the shelves and notice more and more products being made are gluten > > > free. So someone out there must be doing some research > > > > as the gluten free foods are getting tastier and increasing in > > > numbers. Starting a fast has been done for as long as there has been > > > mankind. There are many references to fasting in the scriptures. > > > Starting back on foods that are simple and one at a time is what we do > > > with babies once they start weaning. Looking for foods that cause > > > trouble that way is easy and not confusing. Once you can find and > > > eliminate the foods that cause you trouble, I'm sure you will feel > > > better, but to kill the toxic bacteria will take going back on the > > > antibiotic. There is no reason why we can't eliminate foods that are > > > harmful and continue taking the antibiotic. After all, we still must > > > eat to remain alive. Thank you for the opportunity to clarify. Best > > > to all of you who are fasting and or changing diets. And thank you to > > > the moderators of this site for giving us all the opportunities to > > > learn from each other. Our best, Dolores & Mike > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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