Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Our OT lent us several different " seats " for feeding...and they work great. Perhaps ask them if they have anything? They didn't offer them up until I asked and then it was like we got everything, so you never know until you ask! Good luck! How is Eva doing post op at home? supermama95 wrote: Eva is at the weight and height where she is out growing her bouncy seat and her car seat. I put her in herseats for feeding so she is in an inclined postion and sometimes she sleeps in them while she feeds but she is getting to big for them. Does anyone have any idea on what else I can use that had good head control? I would use her highchair but she sleeps in it and that would not be good and her head control is not that great yet. Thanks, Crystal and Eva (1 year old CHARGEr) CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support group does not constitute membership in the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Crystal, I think I have the exact bouncy seat you have (if I remember right from your pics). My daughter, too, is too big for hers....but we still use it. We just prop the back part (the top, above her head) against a couch , or on top of the ottoman. It won't bounce anymore, but it still works for the feeds. I can't put Meggy in her high chair because it tends to give her facial palsys (DOES ANYONE ELSE HAVE THIS ISSUE????). So, propping the bouncy does the trick for us. I actually still let her bounce in it. It almost touches the floor now, but she still loves it. She weighs 21 pounds, and is 32 inches tall, so you have an idea of how much she has outgrown it. As for the car seat, Meggy in the last couple of months, has been in her big girl car seat. It is a forward facing one, but it has the padded bar that comes down from above her head and stops in front of her chest. This particular car seat works good for us because she is not very strong. The bar allows her to feel in control of her body because if she starts to get a little floppy, she puts her hands on the bar and drums on in and rubs it. Eventually she becomes so engrossed in playing with it, she forgets to be floppy. If she falls asleep, it has the 5 point harness that hold her in place, as well as the bar. It is so padded, that if she barely leans forward it stops her. So, sometimes, I'll look back and she will be ever so slightly forward with her head rested against the padded bar. I hope this helps. The car seat was scary for me....but this particular car seat has been a God send! , mommy to Meagan (CHaRgE) and 18 months, and big brother 3 3/4 years, married to the best daddy in the world for 9 years -- I need some help Eva is at the weight and height where she is out growing her bouncy seat and her car seat. I put her in herseats for feeding so she is in an inclined postion and sometimes she sleeps in them while she feeds but she is getting to big for them. Does anyone have any idea on what else I can use that had good head control? I would use her highchair but she sleeps in it and that would not be good and her head control is not that great yet. Thanks, Crystal and Eva (1 year old CHARGEr) CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support group does not constitute membership in the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Crystal, I think I have the exact bouncy seat you have (if I remember right from your pics). My daughter, too, is too big for hers....but we still use it. We just prop the back part (the top, above her head) against a couch , or on top of the ottoman. It won't bounce anymore, but it still works for the feeds. I can't put Meggy in her high chair because it tends to give her facial palsys (DOES ANYONE ELSE HAVE THIS ISSUE????). So, propping the bouncy does the trick for us. I actually still let her bounce in it. It almost touches the floor now, but she still loves it. She weighs 21 pounds, and is 32 inches tall, so you have an idea of how much she has outgrown it. As for the car seat, Meggy in the last couple of months, has been in her big girl car seat. It is a forward facing one, but it has the padded bar that comes down from above her head and stops in front of her chest. This particular car seat works good for us because she is not very strong. The bar allows her to feel in control of her body because if she starts to get a little floppy, she puts her hands on the bar and drums on in and rubs it. Eventually she becomes so engrossed in playing with it, she forgets to be floppy. If she falls asleep, it has the 5 point harness that hold her in place, as well as the bar. It is so padded, that if she barely leans forward it stops her. So, sometimes, I'll look back and she will be ever so slightly forward with her head rested against the padded bar. I hope this helps. The car seat was scary for me....but this particular car seat has been a God send! , mommy to Meagan (CHaRgE) and 18 months, and big brother 3 3/4 years, married to the best daddy in the world for 9 years -- I need some help Eva is at the weight and height where she is out growing her bouncy seat and her car seat. I put her in herseats for feeding so she is in an inclined postion and sometimes she sleeps in them while she feeds but she is getting to big for them. Does anyone have any idea on what else I can use that had good head control? I would use her highchair but she sleeps in it and that would not be good and her head control is not that great yet. Thanks, Crystal and Eva (1 year old CHARGEr) CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support group does not constitute membership in the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Hi Crystal, Raegan likes to have her tube feeds in the Fisher Price Infant to Toddler Rocker. I purchased it at Target, but I know that Babies R Us and Toys R Us have it as well. It cost between $30 and $40 and it is for infants up to 40 pounds. I love this chair and so does my 3 year old, who weighs 30 lbs so she can sit in it also. Raegan loves it too, she falls asleep in it all the time. Hope this helped. Glad to hear Eva is doing well since her surgery. Judy supermama95 wrote: Eva is at the weight and height where she is out growing her bouncy seat and her car seat. I put her in herseats for feeding so she is in an inclined postion and sometimes she sleeps in them while she feeds but she is getting to big for them. Does anyone have any idea on what else I can use that had good head control? I would use her highchair but she sleeps in it and that would not be good and her head control is not that great yet. Thanks, Crystal and Eva (1 year old CHARGEr) CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support group does not constitute membership in the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Hi Crystal, Raegan likes to have her tube feeds in the Fisher Price Infant to Toddler Rocker. I purchased it at Target, but I know that Babies R Us and Toys R Us have it as well. It cost between $30 and $40 and it is for infants up to 40 pounds. I love this chair and so does my 3 year old, who weighs 30 lbs so she can sit in it also. Raegan loves it too, she falls asleep in it all the time. Hope this helped. Glad to hear Eva is doing well since her surgery. Judy supermama95 wrote: Eva is at the weight and height where she is out growing her bouncy seat and her car seat. I put her in herseats for feeding so she is in an inclined postion and sometimes she sleeps in them while she feeds but she is getting to big for them. Does anyone have any idea on what else I can use that had good head control? I would use her highchair but she sleeps in it and that would not be good and her head control is not that great yet. Thanks, Crystal and Eva (1 year old CHARGEr) CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support group does not constitute membership in the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Amy, Eva is doing awsome since she came home and she is even going to start theropy again next week. They are all excited to see her again. Thanks for your help, Crystal and Eva (1 year old CHARGEr) Eva is at the weight and height where she is out growing her bouncy > seat and her car seat. I put her in herseats for feeding so she is in > an inclined postion and sometimes she sleeps in them while she feeds > but she is getting to big for them. Does anyone have any idea on what > else I can use that had good head control? I would use her highchair > but she sleeps in it and that would not be good and her head control > is not that great yet. > Thanks, > Crystal and Eva (1 year old CHARGEr) > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support group does not constitute membership in the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Amy, Eva is doing awsome since she came home and she is even going to start theropy again next week. They are all excited to see her again. Thanks for your help, Crystal and Eva (1 year old CHARGEr) Eva is at the weight and height where she is out growing her bouncy > seat and her car seat. I put her in herseats for feeding so she is in > an inclined postion and sometimes she sleeps in them while she feeds > but she is getting to big for them. Does anyone have any idea on what > else I can use that had good head control? I would use her highchair > but she sleeps in it and that would not be good and her head control > is not that great yet. > Thanks, > Crystal and Eva (1 year old CHARGEr) > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support group does not constitute membership in the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Crystal I never have to worry about what equipment is next, because thats my OT's problem, do you not have an OT?? they are supposed to check our children every couple of weeks, and then they take things from there, for example, Amelie has a hydraulic chair for sitting in, and every couple of months she re measures her hip and thigh area and modifies the chair accordingly, same for my car seat, bathing aids etc, the only thing we are waiting on is a special cot, hydraulic with tilt for reflux, but because at the moment we have no bedroom for Amelie, we have to manage with the cot situation, but otherwise our OT has been excellent. good luck with Eva, Amelie weighed 12.46kg on the ward this week we were really pleased considering she has diarrohea with her jejunum feeds. love Les and Chanettes x > Eva is at the weight and height where she is out growing her bouncy > seat and her car seat. I put her in herseats for feeding so she is in > an inclined postion and sometimes she sleeps in them while she feeds > but she is getting to big for them. Does anyone have any idea on what > else I can use that had good head control? I would use her highchair > but she sleeps in it and that would not be good and her head control > is not that great yet. > Thanks, > Crystal and Eva (1 year old CHARGEr) > > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support group does not constitute membership in the > CHARGE Syndrome Foundation; for information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
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