Dropping lamictal tonight: still daily seizures

[Guest guest]

Tonight we give Ethan his last dose of lamictal. We have decreased

37.5mg in about 10 days. The seizures have not improved, not have

they worsened. HE has now been home from school 4 weeks because of

these long seizures. Can we expect miracles? I must admit, I am not

expecting the seizures to cease with this wean finally over, but I

am expecting them to decrease, and I am certainly hoping that they

will cease. We still have .25mg of clonipin on board. The wean has

been difficult. He had initial seizure control when the diet

started 2 months ago, but we lost it as we started weaning

lamictal. WHile the seizures have worsened, his cognitive

functioning is so much better. He is lucid, funny,and able to read

and write well again. It is wonderful to see. The only one who

doesn't see these improvements is Ethan, himself. He still hopes

the diet doesn't work so he can get off of it. I must say, I am

cheering against him on this one.

, I was reading through postings from 2002 and noticed many

from you about . I didn't realize you had been at this so

long. YOu know so much about the issues discussed here, that I

always read your postings with great interest. But, I don't quite

remember where things are with right now. Have you been on

the diet this whole time? I'm thinking you are in the process of

weaning some medications. It sounds like you have been through a

lot, as we all have. But I found myself thinking of you guys in

particular and hoping that you are seeing improvements.

Gretchen