Vision/colobomas and growth

[Guest guest]

Michele,

It makes sense to me. I certainly see the fluctuations in Dylan - be it with

tone, ability to eat, bowel regularity, emotions, visual attention........

Kim

> Chantelle-

> This is amazing to hear you say. We have noticed for years that Aubrie's

> hearing seems to fluctuate. I know some is related to sinus congestion, but

> other times it's not necessarily something we can predict or follow. Can

> you describe any reasoning to the " good and bad vision or hearing days " ??

> Do you find the same to be true for speech? We also see that some days

> Aubrie can speak more clearly than others. As if some days the neurological

> functioning to those muscles is working ideally and other days it's

> misfiring. Does that make sense?

>

> Michele W

> mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ

>

>

> Re: vision/colobomas and growth

>

> Quick answer, YES!!!

>

> As for why its uncertain. For me i have no retnal detachment (thank

> goodness!!) but now i have a really decent eye doctor who will

> follow my vision changes.

>

> I would definatly get a third test done. Keep in mind there are good

> vision and bad vision days, very much like good and bad hearing days.

>

>

>

>

> Chantelle

>

>

>

>>

>> Has anyone else had the situation where their childs colobomas

> have gotten bigger and vision gotten worse as they have grown? Nate

> has already lost central vision in one eye. And his " good " eye has

> tested a whole degree worse since Aug. His colobomas have always

> affected his retinas and been big, but I'm a bit concerned about

> them now...

>> Thanks,

>> Barb-mom,(CHARGE)12 next Thursday,Rosie16

>>

>

>

>

>

>

>

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[Guest guest]

, Yes, I thought of this too while driving home from the appointment.

Funny thing is, I asked BOTH the Resident and Doc. Maybe my question to

them was not clear because one said 2 years and the other said 3 years! I

will be following up with your good point. Sally

> From: CHARGE

> Reply-To: CHARGE

> Date: 9 Mar 2006 04:43:09 -0000

> To: CHARGE

> Subject: Digest Number 4124

>

>

> Subject: Re: Re: Vision/colobomas and growth - Sally

>

> I hate contradicting ophthalmologists...but I don't know that I can quite

> agree with what he said regarding eyeballs not growing after age two--and here

> is why: