Re: Does anyone else have these symptoms?

[Guest guest]

Yes, I get those muscle twitches. I think they are fairly common in hypo people. When it is one of the large muscles I can see the darned thing jumping up and down underneath the flesh. My big toe does it too, it actually wiggles from side to side all on its own - fascinating to look at it (or maybe I'm easily entertained??)

Lynda

Does anyone else have these symptoms?

I was just curious to see if any of you had these same symptoms at all. I have muscle twitches in my legs, and it feels like i have sore muscles like you get when you walk long distances.(which I have not lol) and sometimes I get them in my shoulder? I can get them and sometimes look at where its twitching and i can see it jumping! It is freaking me out.

[Guest guest]

Yes, I get those muscle twitches. I think they are fairly common in hypo people. When it is one of the large muscles I can see the darned thing jumping up and down underneath the flesh. My big toe does it too, it actually wiggles from side to side all on its own - fascinating to look at it (or maybe I'm easily entertained??)

Lynda

Does anyone else have these symptoms?

I was just curious to see if any of you had these same symptoms at all. I have muscle twitches in my legs, and it feels like i have sore muscles like you get when you walk long distances.(which I have not lol) and sometimes I get them in my shoulder? I can get them and sometimes look at where its twitching and i can see it jumping! It is freaking me out.

[Guest guest]

you are a trip! I was reading your reply and your

sense of humor is just like mine LOL!!

--- Lynda wrote:

> Yes, I get those muscle twitches. I think they are

> fairly common in hypo people. When it is one of

> the large muscles I can see the darned thing jumping

> up and down underneath the flesh. My big toe does

> it too, it actually wiggles from side to side all on

> its own - fascinating to look at it (or maybe I'm

> easily entertained??)

> Lynda

> Does anyone

> else have these symptoms?

>

>

> I was just curious to see if any of you had these

> same symptoms at

> all. I have muscle twitches in my legs, and it

> feels like i have

> sore muscles like you get when you walk long

> distances.(which I have

> not lol) and sometimes I get them in my shoulder?

> I can get them and

> sometimes look at where its twitching and i can

> see it jumping! It

> is freaking me out.

Don't believe everything you see It is all done with smoke and

mirrors..........And push up bras......LOL, Jen

__________________________________________________

[Guest guest]

you are a trip! I was reading your reply and your

sense of humor is just like mine LOL!!

--- Lynda wrote:

> Yes, I get those muscle twitches. I think they are

> fairly common in hypo people. When it is one of

> the large muscles I can see the darned thing jumping

> up and down underneath the flesh. My big toe does

> it too, it actually wiggles from side to side all on

> its own - fascinating to look at it (or maybe I'm

> easily entertained??)

> Lynda

> Does anyone

> else have these symptoms?

>

>

> I was just curious to see if any of you had these

> same symptoms at

> all. I have muscle twitches in my legs, and it

> feels like i have

> sore muscles like you get when you walk long

> distances.(which I have

> not lol) and sometimes I get them in my shoulder?

> I can get them and

> sometimes look at where its twitching and i can

> see it jumping! It

> is freaking me out.

Don't believe everything you see It is all done with smoke and

mirrors..........And push up bras......LOL, Jen

__________________________________________________

[Guest guest]

> -----Original Message-----

> From: The_Thyroid_Support_Group

> [mailto:The_Thyroid_Support_Group ]On Behalf Of

> simplistic_fantasia

> I was just curious to see if any of you had these same symptoms at

> all. I have muscle twitches in my legs, and it feels like i have

> sore muscles like you get when you walk long distances.(which I have

> not lol) and sometimes I get them in my shoulder? I can get them and

> sometimes look at where its twitching and i can see it jumping! It

> is freaking me out. It hurts to sit for long periods but if I try to

> exercise or something I feel like I am too sore (and I have not even

> been doing anything) I need to get back on a regular schedule but

> only those with insomnia will understand this!

I don't have the twitching but I do have the muscle soreness. I

was diagnosed with fibro in 2001. My own research says that thyroid

problems can definitely be related to muscle pain. Perhaps I should

share a little about my situation.

I'm early into this whole thyroid problem and I came to it in a

weird way. I donated my kidney in 2000 so I had full blood workups

then. No physical issues except migraines. Fibro does run in

the family but, at that point, I hadn't had any symptoms. My

brother lost his kidney due to IgA nephropathy (an autoimmune

disease that can cause kidney failure--it's believed to be related

to celiac since that also causes IgA antibodies). They tested

me for IgA problems then as well as the generic ANA testing.

In 2001, I started having problems with pain and energy problems.

I was also having depression problems then (which I didn't get

treatment for until 2003). After basic testing, they eliminated

everything else and I got the fibro diagnosis (kind of a default

one). In 2003, I finally decided to deal with the depression

(I had lost my MIL in Sept 2002 to cancer--she lived with us

for the last 2 years of her life and we were very close). Effexor

helped the depression and the exhaustion symptoms of the

fibro but didn't do that much for the pain.

Then my body betrayed me again (you all know what I mean). My

cycles went all over the place--I was having periods close together

as 17 days and lasting as long as 14 days. I even had one

that lasted 24 days. At the same time, my blood pressure starting

going up. Effexor can cause increases in bp (rare occurance) but

my whole family has the problem so we figured it was either my

increasing weight (no exercise) or the wild hormone ride. I

was also having some pain but that wasn't my major complaint.

They did an ultra sound and I had a giant cyst on my ovary which

was bleeding. They removed that and my left ovary in November.

Then in February, my regular blood work showed an increase in

cholesterol. My body pain was getting worse all this time and

I sure didn't want to take statins because I would never be

sure if my pain was fibro or a reaction to the medication. My

doctor asked if I wanted to go back to the rhematologist (hadn't

seen her since 2002). I guess she didn't realize until then

just how bad the body pain was (I'm not a big time complainer

but I ended up crying in her office). We did new blood work

before the rhemy visit. Now, my ANA was raised (but not high

enough to consider lupus). So we did the full workup to see

what was going on. Turns out I have raised thryoid microsomal

antibodies (and another one I can't remember that's related).

My TSH levels are still normal but she wants to do testing

every 3 months to watch them. Well, I did my own on-line

research--turns out many women with normal TSH levels but

raised antibody levels have body pain and end up with the

fibro diagnosis. They can also have cholesterol problems.

This brings up and important point--do I see an endocrinologist

or a rhematologist? I have an autoimmune disorder which

would imply a rhemy. But thyroid issues are the endos

area. Of course, rhematologists see people with all matter

of issues--my brother sees a rhematologist in addition to

his nephrologist (kidney) doctor.

Georgia

[Guest guest]

> -----Original Message-----

> From: The_Thyroid_Support_Group

> [mailto:The_Thyroid_Support_Group ]On Behalf Of

> simplistic_fantasia

> I was just curious to see if any of you had these same symptoms at

> all. I have muscle twitches in my legs, and it feels like i have

> sore muscles like you get when you walk long distances.(which I have

> not lol) and sometimes I get them in my shoulder? I can get them and

> sometimes look at where its twitching and i can see it jumping! It

> is freaking me out. It hurts to sit for long periods but if I try to

> exercise or something I feel like I am too sore (and I have not even

> been doing anything) I need to get back on a regular schedule but

> only those with insomnia will understand this!

I don't have the twitching but I do have the muscle soreness. I

was diagnosed with fibro in 2001. My own research says that thyroid

problems can definitely be related to muscle pain. Perhaps I should

share a little about my situation.

I'm early into this whole thyroid problem and I came to it in a

weird way. I donated my kidney in 2000 so I had full blood workups

then. No physical issues except migraines. Fibro does run in

the family but, at that point, I hadn't had any symptoms. My

brother lost his kidney due to IgA nephropathy (an autoimmune

disease that can cause kidney failure--it's believed to be related

to celiac since that also causes IgA antibodies). They tested

me for IgA problems then as well as the generic ANA testing.

In 2001, I started having problems with pain and energy problems.

I was also having depression problems then (which I didn't get

treatment for until 2003). After basic testing, they eliminated

everything else and I got the fibro diagnosis (kind of a default

one). In 2003, I finally decided to deal with the depression

(I had lost my MIL in Sept 2002 to cancer--she lived with us

for the last 2 years of her life and we were very close). Effexor

helped the depression and the exhaustion symptoms of the

fibro but didn't do that much for the pain.

Then my body betrayed me again (you all know what I mean). My

cycles went all over the place--I was having periods close together

as 17 days and lasting as long as 14 days. I even had one

that lasted 24 days. At the same time, my blood pressure starting

going up. Effexor can cause increases in bp (rare occurance) but

my whole family has the problem so we figured it was either my

increasing weight (no exercise) or the wild hormone ride. I

was also having some pain but that wasn't my major complaint.

They did an ultra sound and I had a giant cyst on my ovary which

was bleeding. They removed that and my left ovary in November.

Then in February, my regular blood work showed an increase in

cholesterol. My body pain was getting worse all this time and

I sure didn't want to take statins because I would never be

sure if my pain was fibro or a reaction to the medication. My

doctor asked if I wanted to go back to the rhematologist (hadn't

seen her since 2002). I guess she didn't realize until then

just how bad the body pain was (I'm not a big time complainer

but I ended up crying in her office). We did new blood work

before the rhemy visit. Now, my ANA was raised (but not high

enough to consider lupus). So we did the full workup to see

what was going on. Turns out I have raised thryoid microsomal

antibodies (and another one I can't remember that's related).

My TSH levels are still normal but she wants to do testing

every 3 months to watch them. Well, I did my own on-line

research--turns out many women with normal TSH levels but

raised antibody levels have body pain and end up with the

fibro diagnosis. They can also have cholesterol problems.

This brings up and important point--do I see an endocrinologist

or a rhematologist? I have an autoimmune disorder which

would imply a rhemy. But thyroid issues are the endos

area. Of course, rhematologists see people with all matter

of issues--my brother sees a rhematologist in addition to

his nephrologist (kidney) doctor.

Georgia

[Guest guest]

> -----Original Message-----

> From: The_Thyroid_Support_Group

> [mailto:The_Thyroid_Support_Group ]On Behalf Of

> simplistic_fantasia

> I was just curious to see if any of you had these same symptoms at

> all. I have muscle twitches in my legs, and it feels like i have

> sore muscles like you get when you walk long distances.(which I have

> not lol) and sometimes I get them in my shoulder? I can get them and

> sometimes look at where its twitching and i can see it jumping! It

> is freaking me out. It hurts to sit for long periods but if I try to

> exercise or something I feel like I am too sore (and I have not even

> been doing anything) I need to get back on a regular schedule but

> only those with insomnia will understand this!

I don't have the twitching but I do have the muscle soreness. I

was diagnosed with fibro in 2001. My own research says that thyroid

problems can definitely be related to muscle pain. Perhaps I should

share a little about my situation.

I'm early into this whole thyroid problem and I came to it in a

weird way. I donated my kidney in 2000 so I had full blood workups

then. No physical issues except migraines. Fibro does run in

the family but, at that point, I hadn't had any symptoms. My

brother lost his kidney due to IgA nephropathy (an autoimmune

disease that can cause kidney failure--it's believed to be related

to celiac since that also causes IgA antibodies). They tested

me for IgA problems then as well as the generic ANA testing.

In 2001, I started having problems with pain and energy problems.

I was also having depression problems then (which I didn't get

treatment for until 2003). After basic testing, they eliminated

everything else and I got the fibro diagnosis (kind of a default

one). In 2003, I finally decided to deal with the depression

(I had lost my MIL in Sept 2002 to cancer--she lived with us

for the last 2 years of her life and we were very close). Effexor

helped the depression and the exhaustion symptoms of the

fibro but didn't do that much for the pain.

Then my body betrayed me again (you all know what I mean). My

cycles went all over the place--I was having periods close together

as 17 days and lasting as long as 14 days. I even had one

that lasted 24 days. At the same time, my blood pressure starting

going up. Effexor can cause increases in bp (rare occurance) but

my whole family has the problem so we figured it was either my

increasing weight (no exercise) or the wild hormone ride. I

was also having some pain but that wasn't my major complaint.

They did an ultra sound and I had a giant cyst on my ovary which

was bleeding. They removed that and my left ovary in November.

Then in February, my regular blood work showed an increase in

cholesterol. My body pain was getting worse all this time and

I sure didn't want to take statins because I would never be

sure if my pain was fibro or a reaction to the medication. My

doctor asked if I wanted to go back to the rhematologist (hadn't

seen her since 2002). I guess she didn't realize until then

just how bad the body pain was (I'm not a big time complainer

but I ended up crying in her office). We did new blood work

before the rhemy visit. Now, my ANA was raised (but not high

enough to consider lupus). So we did the full workup to see

what was going on. Turns out I have raised thryoid microsomal

antibodies (and another one I can't remember that's related).

My TSH levels are still normal but she wants to do testing

every 3 months to watch them. Well, I did my own on-line

research--turns out many women with normal TSH levels but

raised antibody levels have body pain and end up with the

fibro diagnosis. They can also have cholesterol problems.

This brings up and important point--do I see an endocrinologist

or a rhematologist? I have an autoimmune disorder which

would imply a rhemy. But thyroid issues are the endos

area. Of course, rhematologists see people with all matter

of issues--my brother sees a rhematologist in addition to

his nephrologist (kidney) doctor.

Georgia

[Guest guest]

Sometimes I get twitches in my upper/right abdominal muscles. Charlie

Does anyone else have these symptoms?

I was just curious to see if any of you had these same symptoms at all. I have muscle twitches in my legs, and it feels like i have sore muscles like you get when you walk long distances.(which I have not lol) and sometimes I get them in my shoulder? I can get them and sometimes look at where its twitching and i can see it jumping! It is freaking me out.

Start your day with Yahoo! - make it your home page

[Guest guest]

Sometimes I get twitches in my upper/right abdominal muscles. Charlie

Does anyone else have these symptoms?

I was just curious to see if any of you had these same symptoms at all. I have muscle twitches in my legs, and it feels like i have sore muscles like you get when you walk long distances.(which I have not lol) and sometimes I get them in my shoulder? I can get them and sometimes look at where its twitching and i can see it jumping! It is freaking me out.

Start your day with Yahoo! - make it your home page

[Guest guest]

Hi - it sounds like some of your symptoms like

the muscle soreness may be fibromyalgia related which

is often a low thyroid syndrome. As far as the ovarian

cysts -- I just read that that can be due to low

progesterone. A good book is " feeling fat, fuzzy, or

frazzled? " It addresses thyroid, adrenal, and

reproductive hormone imbalances.

Marlena

--- simplistic_fantasia

wrote:

> I was just curious to see if any of you had these

> same symptoms at

> all. I have muscle twitches in my legs, and it feels

> like i have

> sore muscles like you get when you walk long

> distances.(which I have

> not lol) and sometimes I get them in my shoulder? I

> can get them and

> sometimes look at where its twitching and i can see

> it jumping! It

> is freaking me out. It hurts to sit for long periods

> but if I try to

> exercise or something I feel like I am too sore (and

> I have not even

> been doing anything) I need to get back on a regular

> schedule but

> only those with insomnia will understand this! I

> have been on

> synthroid 75mg since the 2nd of july and i had a

> week of 100mg

> before that. I still have most of the symptoms. I

> seem to get

> hotflashes and headaches alot more though! Also is

> there anyone in

> this group who also suffers from polycystic ovarian

> syndrome? I am

> curious to see if there is a connection between the

> two! THank you

> all so much you have been a great help and comfort

> to me during this

> crazy time! I finally got in touch with the dr I

> posted about the

> last time and i have to fill out a paper they are

> sending me just

> for thyroid problems the lady said it is to for the

> dr to see what

> he needs to focus on and what kinds of tests he

> needs to run! I have

> been visiting with my niece for the past 2 weeks, I

> have not seen

> her since she was 3 she is 11 now it has been a true

> blessing for

> me, but she has been keeping me up til 6 a.m some

> mornings lOL but

> it has been great!

>

> Love and prayers,

>

>

>

>

____________________________________________________

Start your day with Yahoo! - make it your home page

http://www.yahoo.com/r/hs

[Guest guest]

Hi - it sounds like some of your symptoms like

the muscle soreness may be fibromyalgia related which

is often a low thyroid syndrome. As far as the ovarian

cysts -- I just read that that can be due to low

progesterone. A good book is " feeling fat, fuzzy, or

frazzled? " It addresses thyroid, adrenal, and

reproductive hormone imbalances.

Marlena

--- simplistic_fantasia

wrote:

> I was just curious to see if any of you had these

> same symptoms at

> all. I have muscle twitches in my legs, and it feels

> like i have

> sore muscles like you get when you walk long

> distances.(which I have

> not lol) and sometimes I get them in my shoulder? I

> can get them and

> sometimes look at where its twitching and i can see

> it jumping! It

> is freaking me out. It hurts to sit for long periods

> but if I try to

> exercise or something I feel like I am too sore (and

> I have not even

> been doing anything) I need to get back on a regular

> schedule but

> only those with insomnia will understand this! I

> have been on

> synthroid 75mg since the 2nd of july and i had a

> week of 100mg

> before that. I still have most of the symptoms. I

> seem to get

> hotflashes and headaches alot more though! Also is

> there anyone in

> this group who also suffers from polycystic ovarian

> syndrome? I am

> curious to see if there is a connection between the

> two! THank you

> all so much you have been a great help and comfort

> to me during this

> crazy time! I finally got in touch with the dr I

> posted about the

> last time and i have to fill out a paper they are

> sending me just

> for thyroid problems the lady said it is to for the

> dr to see what

> he needs to focus on and what kinds of tests he

> needs to run! I have

> been visiting with my niece for the past 2 weeks, I

> have not seen

> her since she was 3 she is 11 now it has been a true

> blessing for

> me, but she has been keeping me up til 6 a.m some

> mornings lOL but

> it has been great!

>

> Love and prayers,

>

>

>

>

____________________________________________________

Start your day with Yahoo! - make it your home page

http://www.yahoo.com/r/hs

[Guest guest]

Hi - it sounds like some of your symptoms like

the muscle soreness may be fibromyalgia related which

is often a low thyroid syndrome. As far as the ovarian

cysts -- I just read that that can be due to low

progesterone. A good book is " feeling fat, fuzzy, or

frazzled? " It addresses thyroid, adrenal, and

reproductive hormone imbalances.

Marlena

--- simplistic_fantasia

wrote:

> I was just curious to see if any of you had these

> same symptoms at

> all. I have muscle twitches in my legs, and it feels

> like i have

> sore muscles like you get when you walk long

> distances.(which I have

> not lol) and sometimes I get them in my shoulder? I

> can get them and

> sometimes look at where its twitching and i can see

> it jumping! It

> is freaking me out. It hurts to sit for long periods

> but if I try to

> exercise or something I feel like I am too sore (and

> I have not even

> been doing anything) I need to get back on a regular

> schedule but

> only those with insomnia will understand this! I

> have been on

> synthroid 75mg since the 2nd of july and i had a

> week of 100mg

> before that. I still have most of the symptoms. I

> seem to get

> hotflashes and headaches alot more though! Also is

> there anyone in

> this group who also suffers from polycystic ovarian

> syndrome? I am

> curious to see if there is a connection between the

> two! THank you

> all so much you have been a great help and comfort

> to me during this

> crazy time! I finally got in touch with the dr I

> posted about the

> last time and i have to fill out a paper they are

> sending me just

> for thyroid problems the lady said it is to for the

> dr to see what

> he needs to focus on and what kinds of tests he

> needs to run! I have

> been visiting with my niece for the past 2 weeks, I

> have not seen

> her since she was 3 she is 11 now it has been a true

> blessing for

> me, but she has been keeping me up til 6 a.m some

> mornings lOL but

> it has been great!

>

> Love and prayers,

>

>

>

>

____________________________________________________

Start your day with Yahoo! - make it your home page

http://www.yahoo.com/r/hs

[Guest guest]

----- Original Message -----

From: simplistic_fantasia

I was just curious to see if any of you had these same symptoms at all. I have muscle twitches in my legs, and it feels like i have sore muscles like you get when you walk long distances.(which I have not lol) and sometimes I get them in my shoulder? I can get them and sometimes look at where its twitching and i can see it jumping! It is freaking me out.

From: The_Thyroid_Support_Group [mailto:The_Thyroid_Support_Group ] On Behalf Of Lynda

Yes, I get those muscle twitches. I think they are fairly common in hypo people. When it is one of the large muscles I can see the darned thing jumping up and down underneath the flesh. My big toe does it too, it actually wiggles from side to side all on its own - fascinating to look at it (or maybe I'm easily entertained??)

Lynda

---------------------------------------------

My little toe seems to like to do its own dance! The other day, I had an ongoing spasm in my right forearm that was so huge that my hand flew off the computer keyboard. The worst -- instead of "restless leg syndrome," I seem to have "restless hand syndrome." When I'm dozing off to sleep, I'll experience my hands turning and moving and jumping -- it is all too odd.

Actually, it was these twitches or spasms that have caused me such grief. Fortunately, a number of you have said you have this symptom as part of your thyroid disease. However, shouldn't the medicine be squelching this problem?

All the stress of the neurology visit, the upcoming MRI and the worry about what they will find has caused a severe episode of the spasms/twitches and the paresthesia (that annoying pins and needles or feeling of ants running up and down my arm).

These glandular diseases seem to be so variable for people. Some people say they experience spasms and paresthesia with HypoT, but then my endo says they are not symptoms! Then my neurologist suggests that patience with HypoT do experience them. However, these are also the symptoms of potential other problems -- including the pituitary gland or MS.

I'm not expert, but I sure seem to be learning a lot lately . . . during research, I came across information about how a misbehaving pituitary gland can cause the overproduction of some hormones, such as "aldosterone," which can lead to muscle aches, spasms and weakness. Then, of course, there' Cushing's syndrome, which is an overproduction of corticosteroids.

I've been going around in circles for months about these symptoms, but I just feel like I need to know more about why my body is still producing them. Why isn't the thyroid medicine controlling them? Am I simply under dosed? Is there another endocrinologist in my area who will be able to work with me? Is there something else going on in my body?

I read somewhere that if you have paresthesia and twitching muscles they are signs that there is a potential neurological problem. Although my HypoT symptoms -- brain fog, joint pain, foot pain, sciatica pain, fatigue and all those other things we experience -- seem to respond to thyroid medicine, the twitches and paresthesia are only partially corrected. They are also the symptoms that occurred last. Where the other symptoms have haunted me for years, the twitching and paresthesia became an issue last fall.

So I just had to know . . . that's why I'll have the MRI tomorrow and pay a $250 deductible. Yikes!

Sorry I ramble, but I'm feeling so frustrated and sick of being sick. the teawife

[Guest guest]

----- Original Message -----

From: simplistic_fantasia

I was just curious to see if any of you had these same symptoms at all. I have muscle twitches in my legs, and it feels like i have sore muscles like you get when you walk long distances.(which I have not lol) and sometimes I get them in my shoulder? I can get them and sometimes look at where its twitching and i can see it jumping! It is freaking me out.

From: The_Thyroid_Support_Group [mailto:The_Thyroid_Support_Group ] On Behalf Of Lynda

Yes, I get those muscle twitches. I think they are fairly common in hypo people. When it is one of the large muscles I can see the darned thing jumping up and down underneath the flesh. My big toe does it too, it actually wiggles from side to side all on its own - fascinating to look at it (or maybe I'm easily entertained??)

Lynda

---------------------------------------------

My little toe seems to like to do its own dance! The other day, I had an ongoing spasm in my right forearm that was so huge that my hand flew off the computer keyboard. The worst -- instead of "restless leg syndrome," I seem to have "restless hand syndrome." When I'm dozing off to sleep, I'll experience my hands turning and moving and jumping -- it is all too odd.

Actually, it was these twitches or spasms that have caused me such grief. Fortunately, a number of you have said you have this symptom as part of your thyroid disease. However, shouldn't the medicine be squelching this problem?

All the stress of the neurology visit, the upcoming MRI and the worry about what they will find has caused a severe episode of the spasms/twitches and the paresthesia (that annoying pins and needles or feeling of ants running up and down my arm).

These glandular diseases seem to be so variable for people. Some people say they experience spasms and paresthesia with HypoT, but then my endo says they are not symptoms! Then my neurologist suggests that patience with HypoT do experience them. However, these are also the symptoms of potential other problems -- including the pituitary gland or MS.

I'm not expert, but I sure seem to be learning a lot lately . . . during research, I came across information about how a misbehaving pituitary gland can cause the overproduction of some hormones, such as "aldosterone," which can lead to muscle aches, spasms and weakness. Then, of course, there' Cushing's syndrome, which is an overproduction of corticosteroids.

I've been going around in circles for months about these symptoms, but I just feel like I need to know more about why my body is still producing them. Why isn't the thyroid medicine controlling them? Am I simply under dosed? Is there another endocrinologist in my area who will be able to work with me? Is there something else going on in my body?

I read somewhere that if you have paresthesia and twitching muscles they are signs that there is a potential neurological problem. Although my HypoT symptoms -- brain fog, joint pain, foot pain, sciatica pain, fatigue and all those other things we experience -- seem to respond to thyroid medicine, the twitches and paresthesia are only partially corrected. They are also the symptoms that occurred last. Where the other symptoms have haunted me for years, the twitching and paresthesia became an issue last fall.

So I just had to know . . . that's why I'll have the MRI tomorrow and pay a $250 deductible. Yikes!

Sorry I ramble, but I'm feeling so frustrated and sick of being sick. the teawife

[Guest guest]

----- Original Message -----

From: simplistic_fantasia

I was just curious to see if any of you had these same symptoms at all. I have muscle twitches in my legs, and it feels like i have sore muscles like you get when you walk long distances.(which I have not lol) and sometimes I get them in my shoulder? I can get them and sometimes look at where its twitching and i can see it jumping! It is freaking me out.

From: The_Thyroid_Support_Group [mailto:The_Thyroid_Support_Group ] On Behalf Of Lynda

Yes, I get those muscle twitches. I think they are fairly common in hypo people. When it is one of the large muscles I can see the darned thing jumping up and down underneath the flesh. My big toe does it too, it actually wiggles from side to side all on its own - fascinating to look at it (or maybe I'm easily entertained??)

Lynda

---------------------------------------------

My little toe seems to like to do its own dance! The other day, I had an ongoing spasm in my right forearm that was so huge that my hand flew off the computer keyboard. The worst -- instead of "restless leg syndrome," I seem to have "restless hand syndrome." When I'm dozing off to sleep, I'll experience my hands turning and moving and jumping -- it is all too odd.

Actually, it was these twitches or spasms that have caused me such grief. Fortunately, a number of you have said you have this symptom as part of your thyroid disease. However, shouldn't the medicine be squelching this problem?

All the stress of the neurology visit, the upcoming MRI and the worry about what they will find has caused a severe episode of the spasms/twitches and the paresthesia (that annoying pins and needles or feeling of ants running up and down my arm).

These glandular diseases seem to be so variable for people. Some people say they experience spasms and paresthesia with HypoT, but then my endo says they are not symptoms! Then my neurologist suggests that patience with HypoT do experience them. However, these are also the symptoms of potential other problems -- including the pituitary gland or MS.

I'm not expert, but I sure seem to be learning a lot lately . . . during research, I came across information about how a misbehaving pituitary gland can cause the overproduction of some hormones, such as "aldosterone," which can lead to muscle aches, spasms and weakness. Then, of course, there' Cushing's syndrome, which is an overproduction of corticosteroids.

I've been going around in circles for months about these symptoms, but I just feel like I need to know more about why my body is still producing them. Why isn't the thyroid medicine controlling them? Am I simply under dosed? Is there another endocrinologist in my area who will be able to work with me? Is there something else going on in my body?

I read somewhere that if you have paresthesia and twitching muscles they are signs that there is a potential neurological problem. Although my HypoT symptoms -- brain fog, joint pain, foot pain, sciatica pain, fatigue and all those other things we experience -- seem to respond to thyroid medicine, the twitches and paresthesia are only partially corrected. They are also the symptoms that occurred last. Where the other symptoms have haunted me for years, the twitching and paresthesia became an issue last fall.

So I just had to know . . . that's why I'll have the MRI tomorrow and pay a $250 deductible. Yikes!

Sorry I ramble, but I'm feeling so frustrated and sick of being sick. the teawife

[Guest guest]

Hi ,

A great many of us have discovered that adding Calcium along with

Magnesium and Zinc to our bedtime pill popping regiem really helped

the the night time twitches and for me the day time facial twitches

as well. I also found that by adding more of the B complex vitamins

really helped with the muscle pain...is the pain all gone, no,

however it is less than before.

I also take my last dosage of my Thyorid meds as I climb into bed to

sleep. This, for some reason helps me get a deeper sleep, more

refreshing sleep.

Gossimer

> I was just curious to see if any of you had these same symptoms at

> all. I have muscle twitches in my legs, and it feels like i have

> sore muscles like you get when you walk long distances.(which I

have

> not lol) and sometimes I get them in my shoulder? I can get them

and

> sometimes look at where its twitching and i can see it jumping! It

> is freaking me out. It hurts to sit for long periods but if I try

to

> exercise or something I feel like I am too sore (and I have not

even

> been doing anything) I need to get back on a regular schedule but

> only those with insomnia will understand this! I have been on

> synthroid 75mg since the 2nd of july and i had a week of 100mg

> before that. I still have most of the symptoms. I seem to get

> hotflashes and headaches alot more though! Also is there anyone in

> this group who also suffers from polycystic ovarian syndrome? I am

> curious to see if there is a connection between the two! THank you

> all so much you have been a great help and comfort to me during

this

> crazy time! I finally got in touch with the dr I posted about the

> last time and i have to fill out a paper they are sending me just

> for thyroid problems the lady said it is to for the dr to see what

> he needs to focus on and what kinds of tests he needs to run! I

have

> been visiting with my niece for the past 2 weeks, I have not seen

> her since she was 3 she is 11 now it has been a true blessing for

> me, but she has been keeping me up til 6 a.m some mornings lOL but

> it has been great!

>

> Love and prayers,

>

[Guest guest]

Hi ,

A great many of us have discovered that adding Calcium along with

Magnesium and Zinc to our bedtime pill popping regiem really helped

the the night time twitches and for me the day time facial twitches

as well. I also found that by adding more of the B complex vitamins

really helped with the muscle pain...is the pain all gone, no,

however it is less than before.

I also take my last dosage of my Thyorid meds as I climb into bed to

sleep. This, for some reason helps me get a deeper sleep, more

refreshing sleep.

Gossimer

> I was just curious to see if any of you had these same symptoms at

> all. I have muscle twitches in my legs, and it feels like i have

> sore muscles like you get when you walk long distances.(which I

have

> not lol) and sometimes I get them in my shoulder? I can get them

and

> sometimes look at where its twitching and i can see it jumping! It

> is freaking me out. It hurts to sit for long periods but if I try

to

> exercise or something I feel like I am too sore (and I have not

even

> been doing anything) I need to get back on a regular schedule but

> only those with insomnia will understand this! I have been on

> synthroid 75mg since the 2nd of july and i had a week of 100mg

> before that. I still have most of the symptoms. I seem to get

> hotflashes and headaches alot more though! Also is there anyone in

> this group who also suffers from polycystic ovarian syndrome? I am

> curious to see if there is a connection between the two! THank you

> all so much you have been a great help and comfort to me during

this

> crazy time! I finally got in touch with the dr I posted about the

> last time and i have to fill out a paper they are sending me just

> for thyroid problems the lady said it is to for the dr to see what

> he needs to focus on and what kinds of tests he needs to run! I

have

> been visiting with my niece for the past 2 weeks, I have not seen

> her since she was 3 she is 11 now it has been a true blessing for

> me, but she has been keeping me up til 6 a.m some mornings lOL but

> it has been great!

>

> Love and prayers,

>

[Guest guest]

Hi ,

A great many of us have discovered that adding Calcium along with

Magnesium and Zinc to our bedtime pill popping regiem really helped

the the night time twitches and for me the day time facial twitches

as well. I also found that by adding more of the B complex vitamins

really helped with the muscle pain...is the pain all gone, no,

however it is less than before.

I also take my last dosage of my Thyorid meds as I climb into bed to

sleep. This, for some reason helps me get a deeper sleep, more

refreshing sleep.

Gossimer

> I was just curious to see if any of you had these same symptoms at

> all. I have muscle twitches in my legs, and it feels like i have

> sore muscles like you get when you walk long distances.(which I

have

> not lol) and sometimes I get them in my shoulder? I can get them

and

> sometimes look at where its twitching and i can see it jumping! It

> is freaking me out. It hurts to sit for long periods but if I try

to

> exercise or something I feel like I am too sore (and I have not

even

> been doing anything) I need to get back on a regular schedule but

> only those with insomnia will understand this! I have been on

> synthroid 75mg since the 2nd of july and i had a week of 100mg

> before that. I still have most of the symptoms. I seem to get

> hotflashes and headaches alot more though! Also is there anyone in

> this group who also suffers from polycystic ovarian syndrome? I am

> curious to see if there is a connection between the two! THank you

> all so much you have been a great help and comfort to me during

this

> crazy time! I finally got in touch with the dr I posted about the

> last time and i have to fill out a paper they are sending me just

> for thyroid problems the lady said it is to for the dr to see what

> he needs to focus on and what kinds of tests he needs to run! I

have

> been visiting with my niece for the past 2 weeks, I have not seen

> her since she was 3 she is 11 now it has been a true blessing for

> me, but she has been keeping me up til 6 a.m some mornings lOL but

> it has been great!

>

> Love and prayers,

>

[Guest guest]

My husband (who does not have Thyroid issues) has major foot issues. So I have done a lot of research on the internet. I saw an article about how pediatrist can examine the foot and find correctable problems with tendons, muscles, and such. Maybe you should make an appt with a podiatrist and see. It might be he could create a uplift for your shoes that relieves pressure on a leg nerve. I know it will not help thyroid/muscle issues, but it might make it a lot better!

Re: Does anyone else have these symptoms?

Same here to some extent. A LOT of things have improved for me too, brain fog, fatigue, memory issues even the foot pain - until yesterday! This morning I am hobbling around again. This is what I don't understand, how a symptom can go away for ages only to reappear. I think I've had the muscle twitching for as long as the other symptoms but what was new for me about 2 years ago I developed peripheral neuropathy. Again, sometimes the rxd med takes care of it, sometimes not.

Like you, I am concerned about a fairly new symptom which seems to me to be neurological. If I put any pressure on the balls of my feet (the part just back from the toes) my legs start to jerk up and down. Can't stand on tip-toe, same thing happens. My doc says it's muscle fatigue - he says that without even examining me never mind testing!!

Lynda

----- Original Message -----

From: McAllister

I read somewhere that if you have paresthesia and twitching muscles they are signs that there is a potential neurological problem. Although my HypoT symptoms -- brain fog, joint pain, foot pain, sciatica pain, fatigue and all those other things we experience -- seem to respond to thyroid medicine, the twitches and paresthesia are only partially corrected. They are also the symptoms that occurred last. Where the other symptoms have haunted me for years, the twitching and paresthesia became an issue last fall.

[Guest guest]

Lynda.... the day or two before the pain started... did you do any extra walking, standing... anything like that? Or were you short on sleep? I'm not saying that it MUST be something as simple as muscle fatigue but the symptoms that you describe are not uncommon for me when I've been over doing it... or when I skip meals and the heat is intolerably high for me.

You should be tested, yes... to be sure of what it going on... the questions/comments that I have made are out of my own curiosity... how many others may feel these symptoms as a signal that they need to slow a bit and give the body more time to heal and gain strength and endurance.

I've been very weak the last few days and I'm having a lot of trouble with 'shakes' for lack of a better term. I'll be standing at the sink, just about finished with the dishes and my knees start to get all wobbly and I need to sit RIGHT NOW.. my hands have be really unhappy about doing a lot of typing.. that started last Sunday... they didn't cramp up.. they just got really sluggish and weren't doing the stuff I was telling them to do... yep... I know that when your body is dealing with a sick that you do get weak and tire easily.. it's the body using it's resources to fight the invader.... but it's got me thinking about how small our windows/margins/leeway is when we are injured or ill beyond the issues with the thyroid and adrenal hormones... how quickly we are knocked down during recovery....

I haven't been doing much physically at all this last week... but my brain has been busy!!!! hehehehehe

Topper ()

On Thu, 14 Jul 2005 08:16:43 +0100 "Lynda" writes:

Same here to some extent. A LOT of things have improved for me too, brain fog, fatigue, memory issues even the foot pain - until yesterday! This morning I am hobbling around again. This is what I don't understand, how a symptom can go away for ages only to reappear. I think I've had the muscle twitching for as long as the other symptoms but what was new for me about 2 years ago I developed peripheral neuropathy. Again, sometimes the rxd med takes care of it, sometimes not.

Like you, I am concerned about a fairly new symptom which seems to me to be neurological. If I put any pressure on the balls of my feet (the part just back from the toes) my legs start to jerk up and down. Can't stand on tip-toe, same thing happens. My doc says it's muscle fatigue - he says that without even examining me never mind testing!!

Lynda

[Guest guest]

Lynda.... the day or two before the pain started... did you do any extra walking, standing... anything like that? Or were you short on sleep? I'm not saying that it MUST be something as simple as muscle fatigue but the symptoms that you describe are not uncommon for me when I've been over doing it... or when I skip meals and the heat is intolerably high for me.

You should be tested, yes... to be sure of what it going on... the questions/comments that I have made are out of my own curiosity... how many others may feel these symptoms as a signal that they need to slow a bit and give the body more time to heal and gain strength and endurance.

I've been very weak the last few days and I'm having a lot of trouble with 'shakes' for lack of a better term. I'll be standing at the sink, just about finished with the dishes and my knees start to get all wobbly and I need to sit RIGHT NOW.. my hands have be really unhappy about doing a lot of typing.. that started last Sunday... they didn't cramp up.. they just got really sluggish and weren't doing the stuff I was telling them to do... yep... I know that when your body is dealing with a sick that you do get weak and tire easily.. it's the body using it's resources to fight the invader.... but it's got me thinking about how small our windows/margins/leeway is when we are injured or ill beyond the issues with the thyroid and adrenal hormones... how quickly we are knocked down during recovery....

I haven't been doing much physically at all this last week... but my brain has been busy!!!! hehehehehe

Topper ()

On Thu, 14 Jul 2005 08:16:43 +0100 "Lynda" writes:

Same here to some extent. A LOT of things have improved for me too, brain fog, fatigue, memory issues even the foot pain - until yesterday! This morning I am hobbling around again. This is what I don't understand, how a symptom can go away for ages only to reappear. I think I've had the muscle twitching for as long as the other symptoms but what was new for me about 2 years ago I developed peripheral neuropathy. Again, sometimes the rxd med takes care of it, sometimes not.

Like you, I am concerned about a fairly new symptom which seems to me to be neurological. If I put any pressure on the balls of my feet (the part just back from the toes) my legs start to jerk up and down. Can't stand on tip-toe, same thing happens. My doc says it's muscle fatigue - he says that without even examining me never mind testing!!

Lynda

[Guest guest]

Hi Lynda,

here come the questions....

How long have you been on your current dosage?

Are you taking a calcium/magnesium/zinc supplement? Potasium? Folic

acid? Super B complex?

Hummmm, ?have you ever been checked out for plantar fa...(sp?)

Gossimer

> Same here to some extent. A LOT of things have improved for me

too, brain fog, fatigue, memory issues even the foot pain - until

yesterday! This morning I am hobbling around again. This is what

I don't understand, how a symptom can go away for ages only to

reappear. I think I've had the muscle twitching for as long as the

other symptoms but what was new for me about 2 years ago I developed

peripheral neuropathy. Again, sometimes the rxd med takes care of

it, sometimes not.

> Like you, I am concerned about a fairly new symptom which seems to

me to be neurological. If I put any pressure on the balls of my

feet (the part just back from the toes) my legs start to jerk up and

down. Can't stand on tip-toe, same thing happens. My doc says

it's muscle fatigue - he says that without even examining me never

mind testing!!

> Lynda

> ----- Original Message -----

> From: McAllister

> I read somewhere that if you have paresthesia and twitching

muscles they are signs that there is a potential neurological

problem. Although my HypoT symptoms -- brain fog, joint pain, foot

pain, sciatica pain, fatigue and all those other things we

experience -- seem to respond to thyroid medicine, the twitches and

paresthesia are only partially corrected. They are also the symptoms

that occurred last. Where the other symptoms have haunted me for

years, the twitching and paresthesia became an issue last fall.

[Guest guest]

Hi Lynda,

here come the questions....

How long have you been on your current dosage?

Are you taking a calcium/magnesium/zinc supplement? Potasium? Folic

acid? Super B complex?

Hummmm, ?have you ever been checked out for plantar fa...(sp?)

Gossimer

> Same here to some extent. A LOT of things have improved for me

too, brain fog, fatigue, memory issues even the foot pain - until

yesterday! This morning I am hobbling around again. This is what

I don't understand, how a symptom can go away for ages only to

reappear. I think I've had the muscle twitching for as long as the

other symptoms but what was new for me about 2 years ago I developed

peripheral neuropathy. Again, sometimes the rxd med takes care of

it, sometimes not.

> Like you, I am concerned about a fairly new symptom which seems to

me to be neurological. If I put any pressure on the balls of my

feet (the part just back from the toes) my legs start to jerk up and

down. Can't stand on tip-toe, same thing happens. My doc says

it's muscle fatigue - he says that without even examining me never

mind testing!!

> Lynda

> ----- Original Message -----

> From: McAllister

> I read somewhere that if you have paresthesia and twitching

muscles they are signs that there is a potential neurological

problem. Although my HypoT symptoms -- brain fog, joint pain, foot

pain, sciatica pain, fatigue and all those other things we

experience -- seem to respond to thyroid medicine, the twitches and

paresthesia are only partially corrected. They are also the symptoms

that occurred last. Where the other symptoms have haunted me for

years, the twitching and paresthesia became an issue last fall.

[Guest guest]

Hi Lynda,

here come the questions....

How long have you been on your current dosage?

Are you taking a calcium/magnesium/zinc supplement? Potasium? Folic

acid? Super B complex?

Hummmm, ?have you ever been checked out for plantar fa...(sp?)

Gossimer

> Same here to some extent. A LOT of things have improved for me

too, brain fog, fatigue, memory issues even the foot pain - until

yesterday! This morning I am hobbling around again. This is what

I don't understand, how a symptom can go away for ages only to

reappear. I think I've had the muscle twitching for as long as the

other symptoms but what was new for me about 2 years ago I developed

peripheral neuropathy. Again, sometimes the rxd med takes care of

it, sometimes not.

> Like you, I am concerned about a fairly new symptom which seems to

me to be neurological. If I put any pressure on the balls of my

feet (the part just back from the toes) my legs start to jerk up and

down. Can't stand on tip-toe, same thing happens. My doc says

it's muscle fatigue - he says that without even examining me never

mind testing!!

> Lynda

> ----- Original Message -----

> From: McAllister

> I read somewhere that if you have paresthesia and twitching

muscles they are signs that there is a potential neurological

problem. Although my HypoT symptoms -- brain fog, joint pain, foot

pain, sciatica pain, fatigue and all those other things we

experience -- seem to respond to thyroid medicine, the twitches and

paresthesia are only partially corrected. They are also the symptoms

that occurred last. Where the other symptoms have haunted me for

years, the twitching and paresthesia became an issue last fall.

[Guest guest]

Hi Gossimer

I've been on 3.75 grains for 3 weeks and I am planning to wait another 3 weeks before I increase to 4 grains.

Yes, I do take everything that you mentioned although I started taking potassium just a few days ago. We are having very hot weather and my feet and lower legs swell up a lot in the heat.

Lynda

Re: Does anyone else have these symptoms?

Hi Lynda,here come the questions....How long have you been on your current dosage?Are you taking a calcium/magnesium/zinc supplement? Potasium? Folic acid? Super B complex?Hummmm, ?have you ever been checked out for plantar fa...(sp?) Gossimer