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Oh Crystal-

I remember at the end of the eighth week in the NICU I had completely lost

my sense of humour, and I was firmly into the " shoot the messenger " phase

:o) People who needed to tell me why couldn't go home quite yet were

emotionally held at fault in my heart. People who were performing more

procedures were now seen as doing things " to " him rather than " for " him.

Chiding myself or shaming myself for my clearly negative attitude only made

me more stuck.

I am so sorry Eva has another day to stay. I hope sharing with you how

" black " my mood once became helps you see yourself in a glorious white

light! :o)

Along time ago I was told " an upset is an unmet expectation. " For me this

is always intensely true. :o)

with love-

Yuka

NO GO!!!

> Well we are not going home her white blood count cells are alittle high

> and she has a slight fever so they want to keep her one more night.

> POOP!! I am so upset I was ready to go home and Dan needs to go back to

> work and so I am here alone I hate that feeling!!

>

> Crystal and Eva

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Oh Crystal-

I remember at the end of the eighth week in the NICU I had completely lost

my sense of humour, and I was firmly into the " shoot the messenger " phase

:o) People who needed to tell me why couldn't go home quite yet were

emotionally held at fault in my heart. People who were performing more

procedures were now seen as doing things " to " him rather than " for " him.

Chiding myself or shaming myself for my clearly negative attitude only made

me more stuck.

I am so sorry Eva has another day to stay. I hope sharing with you how

" black " my mood once became helps you see yourself in a glorious white

light! :o)

Along time ago I was told " an upset is an unmet expectation. " For me this

is always intensely true. :o)

with love-

Yuka

NO GO!!!

> Well we are not going home her white blood count cells are alittle high

> and she has a slight fever so they want to keep her one more night.

> POOP!! I am so upset I was ready to go home and Dan needs to go back to

> work and so I am here alone I hate that feeling!!

>

> Crystal and Eva

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Well we are not going home her white blood count cells are alittle high

and she has a slight fever so they want to keep her one more night.

POOP!! I am so upset I was ready to go home and Dan needs to go back to

work and so I am here alone I hate that feeling!!

Crystal and Eva

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Oh dear, I should have read on before my first post, oh well wont be

much longer, hang in there,

Les

> Well we are not going home her white blood count cells are alittle high

> and she has a slight fever so they want to keep her one more night.

> POOP!! I am so upset I was ready to go home and Dan needs to go back to

> work and so I am here alone I hate that feeling!!

>

> Crystal and Eva

>

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in the

> CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

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Guest guest

Oh dear, I should have read on before my first post, oh well wont be

much longer, hang in there,

Les

> Well we are not going home her white blood count cells are alittle high

> and she has a slight fever so they want to keep her one more night.

> POOP!! I am so upset I was ready to go home and Dan needs to go back to

> work and so I am here alone I hate that feeling!!

>

> Crystal and Eva

>

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in the

> CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

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Guest guest

Oh dear, I should have read on before my first post, oh well wont be

much longer, hang in there,

Les

> Well we are not going home her white blood count cells are alittle high

> and she has a slight fever so they want to keep her one more night.

> POOP!! I am so upset I was ready to go home and Dan needs to go back to

> work and so I am here alone I hate that feeling!!

>

> Crystal and Eva

>

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in the

> CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

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Guest guest

Hope you're home tomorrow - fingers crossed!

>

> Well we are not going home her white blood count cells are alittle high

> and she has a slight fever so they want to keep her one more night.

> POOP!! I am so upset I was ready to go home and Dan needs to go back to

> work and so I am here alone I hate that feeling!!

>

> Crystal and Eva

>

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Guest guest

Hope you're home tomorrow - fingers crossed!

>

> Well we are not going home her white blood count cells are alittle high

> and she has a slight fever so they want to keep her one more night.

> POOP!! I am so upset I was ready to go home and Dan needs to go back to

> work and so I am here alone I hate that feeling!!

>

> Crystal and Eva

>

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Thanks Yuka! I know they are doing whats best for her I just am so

over tired and sick of the hopsital. I just want to go in my own bed.

Also I am sick of Hospital food!!

Crystal

>

> Oh Crystal-

>

> I remember at the end of the eighth week in the NICU I had

completely lost

> my sense of humour, and I was firmly into the " shoot the messenger "

phase

> :o) People who needed to tell me why couldn't go home quite

yet were

> emotionally held at fault in my heart. People who were performing

more

> procedures were now seen as doing things " to " him rather than " for "

him.

> Chiding myself or shaming myself for my clearly negative attitude

only made

> me more stuck.

>

> I am so sorry Eva has another day to stay. I hope sharing with you

how

> " black " my mood once became helps you see yourself in a glorious

white

> light! :o)

>

> Along time ago I was told " an upset is an unmet expectation. " For

me this

> is always intensely true. :o)

>

> with love-

>

> Yuka

>

>

> NO GO!!!

>

>

> > Well we are not going home her white blood count cells are

alittle high

> > and she has a slight fever so they want to keep her one more

night.

> > POOP!! I am so upset I was ready to go home and Dan needs to go

back to

> > work and so I am here alone I hate that feeling!!

> >

> > Crystal and Eva

>

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Thanks Yuka! I know they are doing whats best for her I just am so

over tired and sick of the hopsital. I just want to go in my own bed.

Also I am sick of Hospital food!!

Crystal

>

> Oh Crystal-

>

> I remember at the end of the eighth week in the NICU I had

completely lost

> my sense of humour, and I was firmly into the " shoot the messenger "

phase

> :o) People who needed to tell me why couldn't go home quite

yet were

> emotionally held at fault in my heart. People who were performing

more

> procedures were now seen as doing things " to " him rather than " for "

him.

> Chiding myself or shaming myself for my clearly negative attitude

only made

> me more stuck.

>

> I am so sorry Eva has another day to stay. I hope sharing with you

how

> " black " my mood once became helps you see yourself in a glorious

white

> light! :o)

>

> Along time ago I was told " an upset is an unmet expectation. " For

me this

> is always intensely true. :o)

>

> with love-

>

> Yuka

>

>

> NO GO!!!

>

>

> > Well we are not going home her white blood count cells are

alittle high

> > and she has a slight fever so they want to keep her one more

night.

> > POOP!! I am so upset I was ready to go home and Dan needs to go

back to

> > work and so I am here alone I hate that feeling!!

> >

> > Crystal and Eva

>

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Guest guest

oh im like les LOL read oen and not the other i do that with amelie all the

time so shes used to it:P

>

> Crystal,

>

> Oh I am so sorry for that disappointment.

>

>

>

>

> Bonnie, Mom to Kris 23, Patty CHARGE 21, and wife to

>

>

>

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oh im like les LOL read oen and not the other i do that with amelie all the

time so shes used to it:P

>

> Crystal,

>

> Oh I am so sorry for that disappointment.

>

>

>

>

> Bonnie, Mom to Kris 23, Patty CHARGE 21, and wife to

>

>

>

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Guest guest

oh im like les LOL read oen and not the other i do that with amelie all the

time so shes used to it:P

>

> Crystal,

>

> Oh I am so sorry for that disappointment.

>

>

>

>

> Bonnie, Mom to Kris 23, Patty CHARGE 21, and wife to

>

>

>

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