Guest guest Posted June 20, 2001 Report Share Posted June 20, 2001 Hi all! I just got back from seeing my rheumatologist. I brought a lot of articles regarding the benefits of AP (or specifically minocycline treatment) for her to look at. I tried to convince her to let me try AP (I have had seronegative RA, Reiter's Syndrome or Ankylosing Sponlytis since November 1999). She just shook her head and with a knowing grin told me that there is not much clinical data proving that Minocin is beneficial. She says a few of her patients are on it, usually this is a last resort since nothing else has worked, and they don't seem to be making any significant improvements. She says the negative effects (initiating the onset of Lupus!!!!, slow results >6 months, and skin discoloration) make this antibiotic an unacceptable choice unless nothing else works. She did agree to give me a prescription for sulfasalazine. I didn't know enough about it to push for AP further. She says I should be able to tell within 6 weeks whether this is working for me and I have to get blood work done 2-3 weeks after beginning to take it. I haven't filled the prescription yet. I would like to get the groups opinion on this. Should I give the sulfasalazine a try or find a doctor experienced in AP? Currently I am taking 200mg of Celebrex twice a day and am having just occasional flare ups in my feet, ankles, hips, back and ribs. Thanks for you help. Karan Quote Link to comment Share on other sites More sharing options...
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