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hi and welcome to our group. I didn't catch your name but wanted you to know

that i am sorry for your losses and that you have found a wonderful bunch of

women here who will support you. Without them, I would have lost my mind

months ago!

I had an ep on 8/31/00 and also lost my right tube. It was my first pg and

took me over a year and half or so to get pg... I wasn't told what my baby

was but believe it was a girl. I named her Sara Ann... not a name I would

have ordinarily picked but it just felt right. On 1/26/01 I had a m/c and

surgery again... I felt it was a boy and named him Jonathon ....

I KNOW exaactly how you feel.... since my m/c I feel like i have hope too

for another uterine pg. In fact, it took me like 2 years with 2 tubes to

get pg and this time it took me 2 months with one tube and I actually

ovulated from the side w/o the tube... lots of positives and hope for me....

Share as long as you like and need to. That IS what we are here for... I am

also long-winded as you can see...

I look forward to hearing from you again.

lisa r

T.T.F.N.

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Hi! I don't know your name (you may have forgotten to mention that), but I

definitely do understand what you're feeling!

I had laparscopic surgery for an ep on 12/7/00. During surgery they removed

both fallopian tubes (the right was damaged from the pregnancy, and the left

was malformed due to DES exposure).

I too struggled with the uncertainty of whether to name my child or not. I

had a very strong feeling that the baby was a girl, and didn't know whether

I should use the name we chose for a baby girl. It took me a few weeks,

praying over it, and God showed me the name of my child, Hope. Which is

amazing because that's exactly what our child was to our marriage. We were

having difficulties because of a high level of external pressure/stress;

the ep brought us much closer together.

I'm sorry that you had to find us, but feel confident that you will receive

the support and understanding you're looking for.

maria

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Hi! I don't know your name (you may have forgotten to mention that), but I

definitely do understand what you're feeling!

I had laparscopic surgery for an ep on 12/7/00. During surgery they removed

both fallopian tubes (the right was damaged from the pregnancy, and the left

was malformed due to DES exposure).

I too struggled with the uncertainty of whether to name my child or not. I

had a very strong feeling that the baby was a girl, and didn't know whether

I should use the name we chose for a baby girl. It took me a few weeks,

praying over it, and God showed me the name of my child, Hope. Which is

amazing because that's exactly what our child was to our marriage. We were

having difficulties because of a high level of external pressure/stress;

the ep brought us much closer together.

I'm sorry that you had to find us, but feel confident that you will receive

the support and understanding you're looking for.

maria

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Hi,

Welcome to the group, and you will soon realize that no matter your

experiences or questions, here there is always somebody that has " been there

done that " . My EP was in July,00 and I lost my right tube. I have been trying

(unsuccessfully so far) to get pg since October. SO, we are here to share

your struggles and your accomplishments or listen to your concerns. I am

sorry you had the reason to find us, but since you did, I am glad you were

able to.

Dana

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Hi,

Welcome to the group, and you will soon realize that no matter your

experiences or questions, here there is always somebody that has " been there

done that " . My EP was in July,00 and I lost my right tube. I have been trying

(unsuccessfully so far) to get pg since October. SO, we are here to share

your struggles and your accomplishments or listen to your concerns. I am

sorry you had the reason to find us, but since you did, I am glad you were

able to.

Dana

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Guest guest

Hi,

Welcome to the group, and you will soon realize that no matter your

experiences or questions, here there is always somebody that has " been there

done that " . My EP was in July,00 and I lost my right tube. I have been trying

(unsuccessfully so far) to get pg since October. SO, we are here to share

your struggles and your accomplishments or listen to your concerns. I am

sorry you had the reason to find us, but since you did, I am glad you were

able to.

Dana

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Hi! Welcome to the group! All the girls here are wonderful, and I hope we

can be helpful, anytime you need us! I am very sorry for your losses, I

suffered one loss in January from an EP. We all share many of the same

feelings, and any one of us know exactly what you mean.

I always felt from the moment I found out I was pg that my baby was a boy. I

didn't give him a name for a while, but reading all the other girls and

feeling that my baby deserved a name, we recently named him. I am not sure

if I have yet shared this with the group, but in case I didn't, I will now.

Counting back to figure out when I became pg with my EP, I figured it was on

or very close to Nov. 17, a week before Thanksgiving. I had my EP surgery on

Jan. 4. I decided that since my entire pregnancy was around the Christmas

season, I named my child Nicky after St. , for I will always remember

him, and I am sure I will always get that special feeling of him around

Christmastime in the future. While Santa Claus will not be able to bring him

gifts to our house every Dec. 25, I know in my heart that St. and

God will treat him well.

Again, welcome to the group, and feel free to post whenever you need to.

Jen

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Guest guest

YOu didn't leave a name but I would like to welcome

you to the group. I am sorry that you had to find us.

I know what you mean when you say that it is hard to

find people to talk to about our

eps(ectopicpregnancies). It isn't the same as a m/c.

Ep are rare and this group of ladies has had the

misfortune of experiencing this rare event. My husband

(dh) is my rock too. My ep was Nov 9th, 2000 and I

know how long the healing process is. I have my good

days and bad days. Fortunately, my good days are

increasing. Take care - we are all here for you.

Darci

_______________________________________________________

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Guest guest

YOu didn't leave a name but I would like to welcome

you to the group. I am sorry that you had to find us.

I know what you mean when you say that it is hard to

find people to talk to about our

eps(ectopicpregnancies). It isn't the same as a m/c.

Ep are rare and this group of ladies has had the

misfortune of experiencing this rare event. My husband

(dh) is my rock too. My ep was Nov 9th, 2000 and I

know how long the healing process is. I have my good

days and bad days. Fortunately, my good days are

increasing. Take care - we are all here for you.

Darci

_______________________________________________________

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Guest guest

YOu didn't leave a name but I would like to welcome

you to the group. I am sorry that you had to find us.

I know what you mean when you say that it is hard to

find people to talk to about our

eps(ectopicpregnancies). It isn't the same as a m/c.

Ep are rare and this group of ladies has had the

misfortune of experiencing this rare event. My husband

(dh) is my rock too. My ep was Nov 9th, 2000 and I

know how long the healing process is. I have my good

days and bad days. Fortunately, my good days are

increasing. Take care - we are all here for you.

Darci

_______________________________________________________

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Guest guest

Hello,

I am so sorry for your loss. I hope that you will find support and

comfort in this group. They truly are a great bunch of people which

I'm sure you will soon find for yourself.

-AmyR

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Hello,

I am so sorry for your loss. I hope that you will find support and

comfort in this group. They truly are a great bunch of people which

I'm sure you will soon find for yourself.

-AmyR

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Guest guest

Hello,

I am so sorry for your loss. I hope that you will find support and

comfort in this group. They truly are a great bunch of people which

I'm sure you will soon find for yourself.

-AmyR

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Guest guest

Hi there. Welcome to the group. I am so sorry to here

about your losses and I hope things slowly get alittle

easier for you. This is a great place you will come to

find out I am sure. There are alot of great caring

women here and though we all have stories that differ

somewhat we all can relate in some way or another. I

am fairly new here also. I had my ep Dec. 00 and had

my rt tube removed. It was our first time trying.

You just never think about having something like this

happen. The only way I can describe it is having a

dream come true turn into a nightmare, it seems like

over night!! You are right, the hormones so crazy!! I

thought I was going crazy actually until I found this

site and began to realize my feelings were normal.

Sometimes I would see a baby or pg person and feel so

sad or sometimes even jealous. I didn't want to, I

just couldn't help it. I still can't sometimes. My dh

has tried to be helpful though men and women usually

handle things differently. He has been great but like

you said unless you have been through an ep it is hard

to fully understand all the emotions. In my case,

though everyone has been nice, since I was not that

far along (only about 7 weeks) that some don't really

relate that I have sufffered a loss or that since it

has been a couple of months, I have " moved on " but as

you know, it just doesn't work that way.

I have had some problems since the surgery (with my

bladder) so I am patiently (ok, sometimes not so

patiently) for the ok so I can have the hsg done. I

would like to try again and I definitely would like

some kind of reassurance that the other tube is " ok. "

I am hoping to have the test done my next af.

There is not a day that goes by that I don't think

about my baby. Yes, I do think it was a little girl.

Though I was not that far along, I definitely knew I

was pg RIGHT away. I always heard friends say, " you

will just know. " and boy were they right!!lol! Hot

flashes, like you wouldn't believe, nausea, tired!! It

is so hard to get back to normal!!

This group has helped alot. Not only is there alot of

great support and understand, but lots of info and

amazing stories of others who have been through an ep

and went on to get pg again!! Though I have not been

here long myself, just hearing the great success

stories has given me hope that things will get easier.

...Wow, ok, now who is being long winded? Again

welcome.

--- laurfie1@... wrote:

> Hi, Im new here, my ectopic was october 18 2000, My

> body is a mess

> and so are my hormones! Im sure you can all relate!

> Bare with me I

> tend to cope with humor...not always good humor so i

> am told (sorry)

> Does anyone ever feel like they know what their baby

> was even if they

> were never told? I keep thinking it was a boy, but

> I dont know that

> I want to name him the name we had picked out

> because I still might

> want to use it...yes I plan on trying

> again....later! I recently had

> a miscarriage because it was too soon after the

> ectopic, Do you

> believe something good can come from something bad?

> Before I

> miscarried I didnt think I would ever be willing to

> try again for

> another baby, the ectopic was too traumatic, But

> since I miscarried a

> uterine pregnancy it has given me hope that I can

> have a normal

> pregnancy, only now I keep thinking about that baby,

> the ectopic

> Illcall him Angel because that s what he is! I keep

> thinking about

> him and dreaming about him...anyone else relate? I

> can talk forever

> and type forever so I will try to keep my postings

> short but am

> feeling a need to talk to someone who has been

> there, done that....I

> dont know anyone in my area and there are no support

> groups for

> anything in this area so I talk to myself alittle to

> often... My

> husband is a rock and listens and adds for me on a

> continual basis so

> I do have suport but I guess I want more, my dr and

> his staff are

> also great, but none of them have had an ectopic its

> not the same,

> Anyhow, pleasae feel free to write me I warn you I

> tend to be long

> winded!

> mom to 3 angels in Heaven and 2 here on earth

> Hugs and blessings to all!

>

>

__________________________________________________

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Guest guest

Hi there. Welcome to the group. I am so sorry to here

about your losses and I hope things slowly get alittle

easier for you. This is a great place you will come to

find out I am sure. There are alot of great caring

women here and though we all have stories that differ

somewhat we all can relate in some way or another. I

am fairly new here also. I had my ep Dec. 00 and had

my rt tube removed. It was our first time trying.

You just never think about having something like this

happen. The only way I can describe it is having a

dream come true turn into a nightmare, it seems like

over night!! You are right, the hormones so crazy!! I

thought I was going crazy actually until I found this

site and began to realize my feelings were normal.

Sometimes I would see a baby or pg person and feel so

sad or sometimes even jealous. I didn't want to, I

just couldn't help it. I still can't sometimes. My dh

has tried to be helpful though men and women usually

handle things differently. He has been great but like

you said unless you have been through an ep it is hard

to fully understand all the emotions. In my case,

though everyone has been nice, since I was not that

far along (only about 7 weeks) that some don't really

relate that I have sufffered a loss or that since it

has been a couple of months, I have " moved on " but as

you know, it just doesn't work that way.

I have had some problems since the surgery (with my

bladder) so I am patiently (ok, sometimes not so

patiently) for the ok so I can have the hsg done. I

would like to try again and I definitely would like

some kind of reassurance that the other tube is " ok. "

I am hoping to have the test done my next af.

There is not a day that goes by that I don't think

about my baby. Yes, I do think it was a little girl.

Though I was not that far along, I definitely knew I

was pg RIGHT away. I always heard friends say, " you

will just know. " and boy were they right!!lol! Hot

flashes, like you wouldn't believe, nausea, tired!! It

is so hard to get back to normal!!

This group has helped alot. Not only is there alot of

great support and understand, but lots of info and

amazing stories of others who have been through an ep

and went on to get pg again!! Though I have not been

here long myself, just hearing the great success

stories has given me hope that things will get easier.

...Wow, ok, now who is being long winded? Again

welcome.

--- laurfie1@... wrote:

> Hi, Im new here, my ectopic was october 18 2000, My

> body is a mess

> and so are my hormones! Im sure you can all relate!

> Bare with me I

> tend to cope with humor...not always good humor so i

> am told (sorry)

> Does anyone ever feel like they know what their baby

> was even if they

> were never told? I keep thinking it was a boy, but

> I dont know that

> I want to name him the name we had picked out

> because I still might

> want to use it...yes I plan on trying

> again....later! I recently had

> a miscarriage because it was too soon after the

> ectopic, Do you

> believe something good can come from something bad?

> Before I

> miscarried I didnt think I would ever be willing to

> try again for

> another baby, the ectopic was too traumatic, But

> since I miscarried a

> uterine pregnancy it has given me hope that I can

> have a normal

> pregnancy, only now I keep thinking about that baby,

> the ectopic

> Illcall him Angel because that s what he is! I keep

> thinking about

> him and dreaming about him...anyone else relate? I

> can talk forever

> and type forever so I will try to keep my postings

> short but am

> feeling a need to talk to someone who has been

> there, done that....I

> dont know anyone in my area and there are no support

> groups for

> anything in this area so I talk to myself alittle to

> often... My

> husband is a rock and listens and adds for me on a

> continual basis so

> I do have suport but I guess I want more, my dr and

> his staff are

> also great, but none of them have had an ectopic its

> not the same,

> Anyhow, pleasae feel free to write me I warn you I

> tend to be long

> winded!

> mom to 3 angels in Heaven and 2 here on earth

> Hugs and blessings to all!

>

>

__________________________________________________

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  • 3 years later...
Guest guest

Hi - welcome to the list!

and I met over a skiing accident (Tom's). She was x-raying Tommy's leg

and doing such a great job talking with him so he could understand - then she

told me she has a child with hearing loss!

What others have said is true - hearing aids amplify everything. Do you have a

listening stethoscope (you maybe got it when you received jacob's hearing

aids?). Use that in a noisy setting - put the hearing aid in one end of the

stethoscope - you'll be amazed at all the noise the aids pick up! That in

itself would be too much stimulation! That's why it's essential that any kid

with hearing aids have an FM system. 's only 4 too....

I remember taking Sam, our younger son, to Montshire museum (it's a children's

science museum in Norwich VT) just after he got his hearing aids. He was

overwhelmed - just stood there and looked around! (stupid of me - I know - to

have done that - we all learn!). It was way too much noise after never hearing.

Tom - as I believe you know - also has ADHD so it can exist side by side with

hearing loss. But I think it's important to make sure is properly

amplified and has an FM system in school and then take it from there.

Welcome - I'm so glad you're here!

Barbara

--- You wrote:

We just had their preschool graduation the other night and it was in a large

gym with a very poor microphone for the speaker. We all had a hard time

understanding her. My son was also placed six students away from the speaker in

the same row so he had no chance of hearing her or seeing her speaking. This

was poor planning for the only hearing impaired child in the class. But my

question is with 's behaivor. He was off the wall! He seemed so

distracted and climbing all over his chair. I went to him several times to tell

him to sit still or to let him know what was going on. I spoke right into his

hearing aid but his eyes were looking all over and I didn't know if all the

sounds around him were overwhelming to him. I was thinking about this after and

it seems that whenever we are in large group settings this happens to him. He

seems so overstimulated and can't sit still. I am just wondering if this

happens to anyone else or if I should be looking to see if h!

--- end of quote ---

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