Re: Questions from a new club foot mom

[Guest guest]

Sounds like you doctor is modifying the Ponseti method and that may be very

well why he isn't on the approved list. We went to a doc that trained with

Ponseti but chose to modify the DBB as well. We ended up switching doctors

at that point. Are your son's club feet at the 70 degree angle?

> "

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Questions from a new club foot mom

>Date: Mon, 20 Jan 2003 05:06:14 -0000

>

>My son got his DBB on Dec. 26th. Today when I gave him a bath his

>feet looked purple and almost bruised. I don't think I am putting

>the shoes on too tight. In fact sometimes I think they are a little

>loose. Has anyone else had this problem?

>

>Also I referred to the list of providers that is on the Ponsetti

>website and my doctor is not there. He says he studied in Iowa a

>couple of summers ago. I know atleast one person out there also has

>Dr. Latz in Kansas City. How do doctors get on the " approved "

>list and if you are seeing Dr. Latz do you know why he is not on the

>list. Also he told us to start wearing the bar for 18-20 hrs a day

>from the very beginning. From what I've been reading everyone else

>was instructed to wear the shoes a lot longer in the beginning, I'm

>starting to think maybe I heard the doctor wrong!

>

>Well I hope you guys can answer my questions. Just concerned.

>

> and Ethan 11-2-02 (left club foot)

>

_________________________________________________________________

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[Guest guest]

, We go to Dr.Bonar in Kansas City, Dr.Ponsetti recommended

her. She did her residency with him for 3 years. She Has Isabella in

her DBB for 23 hours a day for 3 months. It sounds to me like your

doctor is modifying the ponsetti method and that isn't good. There

are two doctors in kansas city who does the ponsetti method and that

is Dr.Bonar and Dr.Jarkin. They are on ponsetti's list. I really

don't know how they get on the list, i think they have to submit

paperwork on their progress with the ponsetti method on their

patients. Personally i would be very leary of your doctor for only

putting the dbb on for 18-20 hours a day. It is very crucial that

you do exactly what dr.ponsetti has instructed about clubbed feet so

there isn't a relapse. Isabella did have some purplish color almost

looking blue for the first few weeks in the dbb but now her feet are

the right color. I would email Dr.Ponsetti about your doctor and

your concerns. They always get back to you right away. If you need

any info on Dr.Bonar just email me i will be glad to give it to you,

she is a great doctor.

(Isabella 10-12-02, bilateral clubbed feet)

> My son got his DBB on Dec. 26th. Today when I gave him a bath his

> feet looked purple and almost bruised. I don't think I am putting

> the shoes on too tight. In fact sometimes I think they are a

little

> loose. Has anyone else had this problem?

>

> Also I referred to the list of providers that is on the Ponsetti

> website and my doctor is not there. He says he studied in Iowa a

> couple of summers ago. I know atleast one person out there also

has

> Dr. Latz in Kansas City. How do doctors get on

the " approved "

> list and if you are seeing Dr. Latz do you know why he is not on

the

> list. Also he told us to start wearing the bar for 18-20 hrs a day

> from the very beginning. From what I've been reading everyone else

> was instructed to wear the shoes a lot longer in the beginning, I'm

> starting to think maybe I heard the doctor wrong!

>

> Well I hope you guys can answer my questions. Just concerned.

>

> and Ethan 11-2-02 (left club foot)

[Guest guest]

, We go to Dr.Bonar in Kansas City, Dr.Ponsetti recommended

her. She did her residency with him for 3 years. She Has Isabella in

her DBB for 23 hours a day for 3 months. It sounds to me like your

doctor is modifying the ponsetti method and that isn't good. There

are two doctors in kansas city who does the ponsetti method and that

is Dr.Bonar and Dr.Jarkin. They are on ponsetti's list. I really

don't know how they get on the list, i think they have to submit

paperwork on their progress with the ponsetti method on their

patients. Personally i would be very leary of your doctor for only

putting the dbb on for 18-20 hours a day. It is very crucial that

you do exactly what dr.ponsetti has instructed about clubbed feet so

there isn't a relapse. Isabella did have some purplish color almost

looking blue for the first few weeks in the dbb but now her feet are

the right color. I would email Dr.Ponsetti about your doctor and

your concerns. They always get back to you right away. If you need

any info on Dr.Bonar just email me i will be glad to give it to you,

she is a great doctor.

(Isabella 10-12-02, bilateral clubbed feet)

> My son got his DBB on Dec. 26th. Today when I gave him a bath his

> feet looked purple and almost bruised. I don't think I am putting

> the shoes on too tight. In fact sometimes I think they are a

little

> loose. Has anyone else had this problem?

>

> Also I referred to the list of providers that is on the Ponsetti

> website and my doctor is not there. He says he studied in Iowa a

> couple of summers ago. I know atleast one person out there also

has

> Dr. Latz in Kansas City. How do doctors get on

the " approved "

> list and if you are seeing Dr. Latz do you know why he is not on

the

> list. Also he told us to start wearing the bar for 18-20 hrs a day

> from the very beginning. From what I've been reading everyone else

> was instructed to wear the shoes a lot longer in the beginning, I'm

> starting to think maybe I heard the doctor wrong!

>

> Well I hope you guys can answer my questions. Just concerned.

>

> and Ethan 11-2-02 (left club foot)

[Guest guest]

, We go to Dr.Bonar in Kansas City, Dr.Ponsetti recommended

her. She did her residency with him for 3 years. She Has Isabella in

her DBB for 23 hours a day for 3 months. It sounds to me like your

doctor is modifying the ponsetti method and that isn't good. There

are two doctors in kansas city who does the ponsetti method and that

is Dr.Bonar and Dr.Jarkin. They are on ponsetti's list. I really

don't know how they get on the list, i think they have to submit

paperwork on their progress with the ponsetti method on their

patients. Personally i would be very leary of your doctor for only

putting the dbb on for 18-20 hours a day. It is very crucial that

you do exactly what dr.ponsetti has instructed about clubbed feet so

there isn't a relapse. Isabella did have some purplish color almost

looking blue for the first few weeks in the dbb but now her feet are

the right color. I would email Dr.Ponsetti about your doctor and

your concerns. They always get back to you right away. If you need

any info on Dr.Bonar just email me i will be glad to give it to you,

she is a great doctor.

(Isabella 10-12-02, bilateral clubbed feet)

> My son got his DBB on Dec. 26th. Today when I gave him a bath his

> feet looked purple and almost bruised. I don't think I am putting

> the shoes on too tight. In fact sometimes I think they are a

little

> loose. Has anyone else had this problem?

>

> Also I referred to the list of providers that is on the Ponsetti

> website and my doctor is not there. He says he studied in Iowa a

> couple of summers ago. I know atleast one person out there also

has

> Dr. Latz in Kansas City. How do doctors get on

the " approved "

> list and if you are seeing Dr. Latz do you know why he is not on

the

> list. Also he told us to start wearing the bar for 18-20 hrs a day

> from the very beginning. From what I've been reading everyone else

> was instructed to wear the shoes a lot longer in the beginning, I'm

> starting to think maybe I heard the doctor wrong!

>

> Well I hope you guys can answer my questions. Just concerned.

>

> and Ethan 11-2-02 (left club foot)

[Guest guest]

I checked his club foot today and it is at a 70 degree angle. The

other which is not club is at 45 degrees. Someone suggested writing

Dr. Ponseti, how do I do that?

> Sounds like you doctor is modifying the Ponseti method and that

may be very

> well why he isn't on the approved list. We went to a doc that

trained with

> Ponseti but chose to modify the DBB as well. We ended up switching

doctors

> at that point. Are your son's club feet at the 70 degree angle?

>

>

>

>

>

>

>

> >From: " lifeinoz <lifeinoz@y...> " <lifeinoz@y...>

> >Reply-To: nosurgery4clubfoot

> >To: nosurgery4clubfoot

> >Subject: Questions from a new club foot mom

> >Date: Mon, 20 Jan 2003 05:06:14 -0000

> >

> >My son got his DBB on Dec. 26th. Today when I gave him a bath his

> >feet looked purple and almost bruised. I don't think I am putting

> >the shoes on too tight. In fact sometimes I think they are a

little

> >loose. Has anyone else had this problem?

> >

> >Also I referred to the list of providers that is on the Ponsetti

> >website and my doctor is not there. He says he studied in Iowa a

> >couple of summers ago. I know atleast one person out there also

has

> >Dr. Latz in Kansas City. How do doctors get on

the " approved "

> >list and if you are seeing Dr. Latz do you know why he is not on

the

> >list. Also he told us to start wearing the bar for 18-20 hrs a

day

> >from the very beginning. From what I've been reading everyone

else

> >was instructed to wear the shoes a lot longer in the beginning,

I'm

> >starting to think maybe I heard the doctor wrong!

> >

> >Well I hope you guys can answer my questions. Just concerned.

> >

> > and Ethan 11-2-02 (left club foot)

> >

>

>

> _________________________________________________________________

> The new MSN 8 is here: Try it free* for 2 months

> http://join.msn.com/?page=dept/dialup

[Guest guest]

I checked his club foot today and it is at a 70 degree angle. The

other which is not club is at 45 degrees. Someone suggested writing

Dr. Ponseti, how do I do that?

> Sounds like you doctor is modifying the Ponseti method and that

may be very

> well why he isn't on the approved list. We went to a doc that

trained with

> Ponseti but chose to modify the DBB as well. We ended up switching

doctors

> at that point. Are your son's club feet at the 70 degree angle?

>

>

>

>

>

>

>

> >From: " lifeinoz <lifeinoz@y...> " <lifeinoz@y...>

> >Reply-To: nosurgery4clubfoot

> >To: nosurgery4clubfoot

> >Subject: Questions from a new club foot mom

> >Date: Mon, 20 Jan 2003 05:06:14 -0000

> >

> >My son got his DBB on Dec. 26th. Today when I gave him a bath his

> >feet looked purple and almost bruised. I don't think I am putting

> >the shoes on too tight. In fact sometimes I think they are a

little

> >loose. Has anyone else had this problem?

> >

> >Also I referred to the list of providers that is on the Ponsetti

> >website and my doctor is not there. He says he studied in Iowa a

> >couple of summers ago. I know atleast one person out there also

has

> >Dr. Latz in Kansas City. How do doctors get on

the " approved "

> >list and if you are seeing Dr. Latz do you know why he is not on

the

> >list. Also he told us to start wearing the bar for 18-20 hrs a

day

> >from the very beginning. From what I've been reading everyone

else

> >was instructed to wear the shoes a lot longer in the beginning,

I'm

> >starting to think maybe I heard the doctor wrong!

> >

> >Well I hope you guys can answer my questions. Just concerned.

> >

> > and Ethan 11-2-02 (left club foot)

> >

>

>

> _________________________________________________________________

> The new MSN 8 is here: Try it free* for 2 months

> http://join.msn.com/?page=dept/dialup

[Guest guest]

Thanks for the advice. How do I contact Dr. Ponsetti? Does he do

anything different for children who's feet are pretty flexible?

> > My son got his DBB on Dec. 26th. Today when I gave him a bath

his

> > feet looked purple and almost bruised. I don't think I am

putting

> > the shoes on too tight. In fact sometimes I think they are a

> little

> > loose. Has anyone else had this problem?

> >

> > Also I referred to the list of providers that is on the Ponsetti

> > website and my doctor is not there. He says he studied in Iowa

a

> > couple of summers ago. I know atleast one person out there also

> has

> > Dr. Latz in Kansas City. How do doctors get on

> the " approved "

> > list and if you are seeing Dr. Latz do you know why he is not on

> the

> > list. Also he told us to start wearing the bar for 18-20 hrs a

day

> > from the very beginning. From what I've been reading everyone

else

> > was instructed to wear the shoes a lot longer in the beginning,

I'm

> > starting to think maybe I heard the doctor wrong!

> >

> > Well I hope you guys can answer my questions. Just concerned.

> >

> > and Ethan 11-2-02 (left club foot)

[Guest guest]

Thanks for the advice. How do I contact Dr. Ponsetti? Does he do

anything different for children who's feet are pretty flexible?

> > My son got his DBB on Dec. 26th. Today when I gave him a bath

his

> > feet looked purple and almost bruised. I don't think I am

putting

> > the shoes on too tight. In fact sometimes I think they are a

> little

> > loose. Has anyone else had this problem?

> >

> > Also I referred to the list of providers that is on the Ponsetti

> > website and my doctor is not there. He says he studied in Iowa

a

> > couple of summers ago. I know atleast one person out there also

> has

> > Dr. Latz in Kansas City. How do doctors get on

> the " approved "

> > list and if you are seeing Dr. Latz do you know why he is not on

> the

> > list. Also he told us to start wearing the bar for 18-20 hrs a

day

> > from the very beginning. From what I've been reading everyone

else

> > was instructed to wear the shoes a lot longer in the beginning,

I'm

> > starting to think maybe I heard the doctor wrong!

> >

> > Well I hope you guys can answer my questions. Just concerned.

> >

> > and Ethan 11-2-02 (left club foot)

[Guest guest]

,

Here is how you can email Dr.Ponsetti

http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html

Dr.Ponsetti's method is the same for all clubbed feet. Even if their

feet are pretty flexible. Dr.Bonar said Isabella's feet were stiff

but not severly stiff as some children she has treated had. I would

email him with all your questions and see what he tells you. He has

told me, the same thing Dr.Bonar said. Isabella wears the DBB for

3months straight 23 hours a day. Then for 16-18 hours a day until she

starts walking. Then nightly after she walks. My daughter has

bilateral clubbed feet and her shoes are both at 70 degrees. She has

the red adjustable dbb with regular tennis shoes attached to it.

(Isabella 10-12-02 with bilateral clubbed feet)

> > > My son got his DBB on Dec. 26th. Today when I gave him a bath

> his

> > > feet looked purple and almost bruised. I don't think I am

> putting

> > > the shoes on too tight. In fact sometimes I think they are a

> > little

> > > loose. Has anyone else had this problem?

> > >

> > > Also I referred to the list of providers that is on the

Ponsetti

> > > website and my doctor is not there. He says he studied in Iowa

> a

> > > couple of summers ago. I know atleast one person out there

also

> > has

> > > Dr. Latz in Kansas City. How do doctors get on

> > the " approved "

> > > list and if you are seeing Dr. Latz do you know why he is not

on

> > the

> > > list. Also he told us to start wearing the bar for 18-20 hrs a

> day

> > > from the very beginning. From what I've been reading everyone

> else

> > > was instructed to wear the shoes a lot longer in the beginning,

> I'm

> > > starting to think maybe I heard the doctor wrong!

> > >

> > > Well I hope you guys can answer my questions. Just concerned.

> > >

> > > and Ethan 11-2-02 (left club foot)

[Guest guest]

,

Here is how you can email Dr.Ponsetti

http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html

Dr.Ponsetti's method is the same for all clubbed feet. Even if their

feet are pretty flexible. Dr.Bonar said Isabella's feet were stiff

but not severly stiff as some children she has treated had. I would

email him with all your questions and see what he tells you. He has

told me, the same thing Dr.Bonar said. Isabella wears the DBB for

3months straight 23 hours a day. Then for 16-18 hours a day until she

starts walking. Then nightly after she walks. My daughter has

bilateral clubbed feet and her shoes are both at 70 degrees. She has

the red adjustable dbb with regular tennis shoes attached to it.

(Isabella 10-12-02 with bilateral clubbed feet)

> > > My son got his DBB on Dec. 26th. Today when I gave him a bath

> his

> > > feet looked purple and almost bruised. I don't think I am

> putting

> > > the shoes on too tight. In fact sometimes I think they are a

> > little

> > > loose. Has anyone else had this problem?

> > >

> > > Also I referred to the list of providers that is on the

Ponsetti

> > > website and my doctor is not there. He says he studied in Iowa

> a

> > > couple of summers ago. I know atleast one person out there

also

> > has

> > > Dr. Latz in Kansas City. How do doctors get on

> > the " approved "

> > > list and if you are seeing Dr. Latz do you know why he is not

on

> > the

> > > list. Also he told us to start wearing the bar for 18-20 hrs a

> day

> > > from the very beginning. From what I've been reading everyone

> else

> > > was instructed to wear the shoes a lot longer in the beginning,

> I'm

> > > starting to think maybe I heard the doctor wrong!

> > >

> > > Well I hope you guys can answer my questions. Just concerned.

> > >

> > > and Ethan 11-2-02 (left club foot)

[Guest guest]

We see Dr. Latz. In fact we have an appointment today. We were

initially referred to him by our pediatrician. We did not know

had clubbed feet until he arrived. We knew nothing about the Ponsetti

method and saw Dr. Latz as a professional who knew more than us.

Luckily for us he did practice the Ponseti method but did have

deviation. We did casting below the knees for weeks 3-7. The DBB we

wore 20 hours for 3 months and then 12 hours for 7 months. We

discontinued because he never became accustomed to sleeping with it. Up

5, 6, 7 time a night. Dr. Latz thought it was an anomoly with his foot

in particular and sent us to Dr. Ponseti himself at 18 months. Dr.

Ponseti thought his feet were ok and said don't make him wear the brace

any more. We just went back (34 months) and Dr. Ponseti still says

everything looks great. We told him that we see Dr. Latz every three

months and that he wants to do a ATTT. Dr. Ponseti said DO NOT do the

ATTT, it will damage the correction already achieved. He chuckled at

the frequency of our visits and said he makes a lot of money from you.

We sincerely appreciate Dr. Latz, however, it is apparent he is not a

true Ponseti doctor. After what I have learned we are grateful that

's feet are OK

Amy and (BL CF 03-25-00)

>>> lifeinoz@... 01/19/03 11:06PM >>>

My son got his DBB on Dec. 26th. Today when I gave him a bath his

feet looked purple and almost bruised. I don't think I am putting

the shoes on too tight. In fact sometimes I think they are a little

loose. Has anyone else had this problem?

Also I referred to the list of providers that is on the Ponsetti

website and my doctor is not there. He says he studied in Iowa a

couple of summers ago. I know atleast one person out there also has

Dr. Latz in Kansas City. How do doctors get on the " approved "

list and if you are seeing Dr. Latz do you know why he is not on the

list. Also he told us to start wearing the bar for 18-20 hrs a day

from the very beginning. From what I've been reading everyone else

was instructed to wear the shoes a lot longer in the beginning, I'm

starting to think maybe I heard the doctor wrong!

Well I hope you guys can answer my questions. Just concerned.

and Ethan 11-2-02 (left club foot)