Re: starting the diet tomorrow

[Guest guest]

Hi,

Try Miralax powder mixed with water for constipation - works great!!

I found that the diet's not that hard. It just seems intimidating the first

few weeks, then you'll get used to it and find a routine.

Good luck,

Heidi, future occupational therapist and single mom to (IS,

Severely/Multiply Impaired) and twin brother, (4 years), and big sis

Madison (6).

[Guest guest]

Hi,

Try Miralax powder mixed with water for constipation - works great!!

I found that the diet's not that hard. It just seems intimidating the first

few weeks, then you'll get used to it and find a routine.

Good luck,

Heidi, future occupational therapist and single mom to (IS,

Severely/Multiply Impaired) and twin brother, (4 years), and big sis

Madison (6).

[Guest guest]

This is our 3rd week on the diet for our son (18 months). I wished

that someone had told me to expect real problems with his blood

sugar. The first night he dropped to 27. If he had dropped two more

points they would have to go into emergency protocol with juice which

would have ruined ketosis. There is alot of blood work and

urinanalysis in the hospital. even had an EKG which we had

never had before. I wish all tests were that simple. Then of course

there are the tiny meals. The first few meals is 1/3 of the meal

plans and boy are they tiny. I thought I was prepared to see them,

but I was not. They are tiny and as a mother I really feel every day

like I am starving my son. He was always a good eater. Even on full

meal plan at 3:1 ratio he still is not eating 1/8 of the bulk that he

had before (calories maybe but not bulk). This is hard to accept for

me, but I am getting used to it. Also be prepared to have to explain

to everyone that " no " under no uncertain terms can you cheat on the

diet. Everyone from grandparents to nursery workers are all very

interested and shocked to see what he eats (or rather what he doesn't

eat).

went toxic on meds the first week. We have already lowered

quite a bit of the meds so that is much better. We went through

constipation, dehydration, having to force meals down him, and then

of course there is the toxicity which caused him to be so drunken and

wobbly that he couldn't walk or play. It all has worked out. We

still have to force some of the cream especially the whipped cream we

use to give meds, but all the other items worked their way out. We

are starting to see a difference. We had a wonderful day on Saturday

for the Easter Egg Hunt. He had 95% seizure control that day.

Praise God. Hopefully with some more work we'll get there or better

than that every day. Good luck to you. Be prepared but don't be

afraid. They'll watch over closely and you'll leave the hospital

ready to do it.

Tina Buckner (mother to 17 months with generalized myoclonic

seizures - 1 every 2 minutes pre diet, tonic clonic, and focal

seizures)

> Hi every one

> Were taking our daughter into hospital tomorrow to begin the

> diet, (assuming a bed's available). Neither of us is looking

> forward to the next 5 days but we are quietly hoping for some

> success. We haven't had any control with the meds as yet dispite

> over a year of trying.

> I've been reading the various keto and epilepsy books kindly

> suggested by several members on the list but find little

> feedback on the diets effectivness with infantile spasms does

> the diet have an effect on this condition?

> Also does anyone have any tips on starting, we're going on to the

> classic diet , we've got the scales and a few recipies but feel

like

> were leaping into a very big unknown. What should we be

> prepared for? I believe the diet can cause constipation and

> Amelie normally has lactulose for this but I guess thats no good

> on the diet ,any ideas on other options?

> best wishes to all

> adam

[Guest guest]

Just a small correction: Giving a small bit of juice when blood sugars

drop, does not ruin ketosis. It is not an emergency, just a support for

the transition period of starting the diet.

Bill

Tina Buckner wrote:

> This is our 3rd week on the diet for our son (18 months). I wished

> that someone had told me to expect real problems with his blood

> sugar. The first night he dropped to 27. If he had dropped two more

> points they would have to go into emergency protocol with juice which

> would have ruined ketosis.