Re: Ketones all over the place

[Guest guest]

Tina it could be related to calories, either too many (he would be burning

carbs rather than fat) or too few (running out of 'fuel' in the early

morning). Has he gained or lost weight? The large ketones in the am may be

a red herring as the urine is probably a mix of the very high from the

night before and the very weak from the early morning. What is his morning

blood sugar like? The use of a blood ketone testing kit could really help

you sort this out as it is a much more reliable method than testing urine.

Jill

At 10:44 AM 1/05/2004, you wrote:

>'s ketones are all over the map. They usually register lare in

>the AM (and I know that is unreliable), but he seems to have good

>mornings and then by afternoon his ketones hit small to moderate and

>his seizures are worse. Then the evenings bring very large ketones

>(stick turns dark purple immediately) and his seizures get some

>better.

>

>What can I do to get them more consistent. He is at 3.2:1 now and we

>go back May 18th when they may raise it again. Aside from raising

>the ratio what else can I do?

>

>Tina Buckner (mom to 18 months with generalized myoclonic

>seizures - 5th week on diet)

>

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a last

> resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a

> professional keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

>

>

[Guest guest]

Tina it could be related to calories, either too many (he would be burning

carbs rather than fat) or too few (running out of 'fuel' in the early

morning). Has he gained or lost weight? The large ketones in the am may be

a red herring as the urine is probably a mix of the very high from the

night before and the very weak from the early morning. What is his morning

blood sugar like? The use of a blood ketone testing kit could really help

you sort this out as it is a much more reliable method than testing urine.

Jill

At 10:44 AM 1/05/2004, you wrote:

>'s ketones are all over the map. They usually register lare in

>the AM (and I know that is unreliable), but he seems to have good

>mornings and then by afternoon his ketones hit small to moderate and

>his seizures are worse. Then the evenings bring very large ketones

>(stick turns dark purple immediately) and his seizures get some

>better.

>

>What can I do to get them more consistent. He is at 3.2:1 now and we

>go back May 18th when they may raise it again. Aside from raising

>the ratio what else can I do?

>

>Tina Buckner (mom to 18 months with generalized myoclonic

>seizures - 5th week on diet)

>

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a last

> resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a

> professional keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

>

>

[Guest guest]

Tina it could be related to calories, either too many (he would be burning

carbs rather than fat) or too few (running out of 'fuel' in the early

morning). Has he gained or lost weight? The large ketones in the am may be

a red herring as the urine is probably a mix of the very high from the

night before and the very weak from the early morning. What is his morning

blood sugar like? The use of a blood ketone testing kit could really help

you sort this out as it is a much more reliable method than testing urine.

Jill

At 10:44 AM 1/05/2004, you wrote:

>'s ketones are all over the map. They usually register lare in

>the AM (and I know that is unreliable), but he seems to have good

>mornings and then by afternoon his ketones hit small to moderate and

>his seizures are worse. Then the evenings bring very large ketones

>(stick turns dark purple immediately) and his seizures get some

>better.

>

>What can I do to get them more consistent. He is at 3.2:1 now and we

>go back May 18th when they may raise it again. Aside from raising

>the ratio what else can I do?

>

>Tina Buckner (mom to 18 months with generalized myoclonic

>seizures - 5th week on diet)

>

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a last

> resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a

> professional keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

>

>

[Guest guest]

My keto team doesn't feel that a blood ketone test kit would be

worthwhile. Maybe I should push this if we don't get some favorable

changes soon. Thanks to those who have responded. I am anxious for

the next change, but I have a feeling they will drop topamax instead

of changing the ratio or calories. This one change at a time thing

makes it drag out so long. Argh! If you think of anything else,

please let me know.

Tina Buckner

> >'s ketones are all over the map. They usually register lare in

> >the AM (and I know that is unreliable), but he seems to have good

> >mornings and then by afternoon his ketones hit small to moderate

and

> >his seizures are worse. Then the evenings bring very large ketones

> >(stick turns dark purple immediately) and his seizures get some

> >better.

> >

> >What can I do to get them more consistent. He is at 3.2:1 now and

we

> >go back May 18th when they may raise it again. Aside from raising

> >the ratio what else can I do?

> >

> >Tina Buckner (mom to 18 months with generalized myoclonic

> >seizures - 5th week on diet)

> >

> >

> >

> > " The Ketogenic Diet....a realistic treatment option, NOT just a

last

> > resort! "

> >

> > List is for parent to parent support only.

> > It is important to get medical advice from a

> > professional keto team!

> > Subscribe: ketogenic-subscribe

> > Unsubscribe: ketogenic-

unsubscribe

> >

> >

> >

[Guest guest]

My keto team doesn't feel that a blood ketone test kit would be

worthwhile. Maybe I should push this if we don't get some favorable

changes soon. Thanks to those who have responded. I am anxious for

the next change, but I have a feeling they will drop topamax instead

of changing the ratio or calories. This one change at a time thing

makes it drag out so long. Argh! If you think of anything else,

please let me know.

Tina Buckner

> >'s ketones are all over the map. They usually register lare in

> >the AM (and I know that is unreliable), but he seems to have good

> >mornings and then by afternoon his ketones hit small to moderate

and

> >his seizures are worse. Then the evenings bring very large ketones

> >(stick turns dark purple immediately) and his seizures get some

> >better.

> >

> >What can I do to get them more consistent. He is at 3.2:1 now and

we

> >go back May 18th when they may raise it again. Aside from raising

> >the ratio what else can I do?

> >

> >Tina Buckner (mom to 18 months with generalized myoclonic

> >seizures - 5th week on diet)

> >

> >

> >

> > " The Ketogenic Diet....a realistic treatment option, NOT just a

last

> > resort! "

> >

> > List is for parent to parent support only.

> > It is important to get medical advice from a

> > professional keto team!

> > Subscribe: ketogenic-subscribe

> > Unsubscribe: ketogenic-

unsubscribe

> >

> >

> >