Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 how the heck did you get diagnosed? I have felt I have it due to syptoms for yrs...drs roll their eyes. I finally give myself isocort. but had I been given isocort 8 yrs ago when it was obvoius..I would need so much now. I have been offered the acth test, but I cant get off the isocort to take it. Subject: Re: HC and isocortTo: RT3_T3 Date: Wednesday, December 30, 2009, 8:40 AM I take HC during the day and Isocort right before bed and during the night if I wake up with adrenaline surges. I have no problem with taking a combination of both. I find I can take Isocort without food with no gastric problems but I have to take HC WITH food. I've been using Isocort for about 5 years with the addition of HC 2 years ago when Isocort was not strong enough and I was diagnosed with s.Stevie Lyn>> What do you think of taking both? Not together, but at alternate times? Has anyone done this and would you share your results?> TY> Sylvia>------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2009 Report Share Posted December 31, 2009 Thank you for that response. I too have spent thousands of dollars and even more thousands in lost wages for 10 yrs now, and have the horrible cortisol tests and an old acth 24hr urine that was rock bottom...yet still I have drs who say not to go over the 9 isocort...and then recently to stop isocort for the acth test. Absolutely crazy. Subject: Re: HC and isocortTo: RT3_T3 Date: Thursday, December 31, 2009, 12:49 PM The only way to get an accurate ACTH stim test is to switch to dexamethasone for a week or so before the test. This seems to be what the 's web sites recommend. You're right, if you're on Isocort or any other form of HC or Predisone, you won't get accurate results. And honestly, for many patients, even the ACTH stim test is not definitive. For me, I never was able to have the ACTH stim test, but I diligently paid for cortisol saliva and blood tests (both Free and Total cortisol) and over time, the trend became obvious, that my cortisol levels were dropping and dropping. This was even before I was on Iscocort or HC. After awhile I used the phone consult services of Dr. Neville at Clymer Healing Center. After about a year and a half of 1000's of dollars of consult fees, vitamins, minerals, supplements, Adrenal Cortex Drops, Dr. Neville explained that it appeared my adrenals were simply not 'regenerating' as he would have hoped, that my levels were simply too low to continue treatment without danger and he recommended I find a local Dr. who would accept all the testing we had done. I did find a Dr. who understood the whole process. I went on HC and T3 only therapy for a time, then switched to Armour.After about 5 months on HC my morning levels of cortisol before meds was "0", which indicated I was no longer producing any cortisol on my own during the night. But then, it was a moot point as I had been sick for about 6 years and was willing to be on full replacement HC. It would be nice someday to follow Val's lead and be able to wean back off, but for now I'm simply trying to get enough thyroid meds in me to feel human!Warm Regards,Stevie LynTexas> >> > What do you think of taking both? Not together, but at alternate times? Has anyone done this and would you share your results?> > TY> > Sylvia> >> > > > > ------------------------------------> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2009 Report Share Posted December 31, 2009 Thank you for that response. I too have spent thousands of dollars and even more thousands in lost wages for 10 yrs now, and have the horrible cortisol tests and an old acth 24hr urine that was rock bottom...yet still I have drs who say not to go over the 9 isocort...and then recently to stop isocort for the acth test. Absolutely crazy. Subject: Re: HC and isocortTo: RT3_T3 Date: Thursday, December 31, 2009, 12:49 PM The only way to get an accurate ACTH stim test is to switch to dexamethasone for a week or so before the test. This seems to be what the 's web sites recommend. You're right, if you're on Isocort or any other form of HC or Predisone, you won't get accurate results. And honestly, for many patients, even the ACTH stim test is not definitive. For me, I never was able to have the ACTH stim test, but I diligently paid for cortisol saliva and blood tests (both Free and Total cortisol) and over time, the trend became obvious, that my cortisol levels were dropping and dropping. This was even before I was on Iscocort or HC. After awhile I used the phone consult services of Dr. Neville at Clymer Healing Center. After about a year and a half of 1000's of dollars of consult fees, vitamins, minerals, supplements, Adrenal Cortex Drops, Dr. Neville explained that it appeared my adrenals were simply not 'regenerating' as he would have hoped, that my levels were simply too low to continue treatment without danger and he recommended I find a local Dr. who would accept all the testing we had done. I did find a Dr. who understood the whole process. I went on HC and T3 only therapy for a time, then switched to Armour.After about 5 months on HC my morning levels of cortisol before meds was "0", which indicated I was no longer producing any cortisol on my own during the night. But then, it was a moot point as I had been sick for about 6 years and was willing to be on full replacement HC. It would be nice someday to follow Val's lead and be able to wean back off, but for now I'm simply trying to get enough thyroid meds in me to feel human!Warm Regards,Stevie LynTexas> >> > What do you think of taking both? Not together, but at alternate times? Has anyone done this and would you share your results?> > TY> > Sylvia> >> > > > > ------------------------------------> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2009 Report Share Posted December 31, 2009 Thank you for that response. I too have spent thousands of dollars and even more thousands in lost wages for 10 yrs now, and have the horrible cortisol tests and an old acth 24hr urine that was rock bottom...yet still I have drs who say not to go over the 9 isocort...and then recently to stop isocort for the acth test. Absolutely crazy. Subject: Re: HC and isocortTo: RT3_T3 Date: Thursday, December 31, 2009, 12:49 PM The only way to get an accurate ACTH stim test is to switch to dexamethasone for a week or so before the test. This seems to be what the 's web sites recommend. You're right, if you're on Isocort or any other form of HC or Predisone, you won't get accurate results. And honestly, for many patients, even the ACTH stim test is not definitive. For me, I never was able to have the ACTH stim test, but I diligently paid for cortisol saliva and blood tests (both Free and Total cortisol) and over time, the trend became obvious, that my cortisol levels were dropping and dropping. This was even before I was on Iscocort or HC. After awhile I used the phone consult services of Dr. Neville at Clymer Healing Center. After about a year and a half of 1000's of dollars of consult fees, vitamins, minerals, supplements, Adrenal Cortex Drops, Dr. Neville explained that it appeared my adrenals were simply not 'regenerating' as he would have hoped, that my levels were simply too low to continue treatment without danger and he recommended I find a local Dr. who would accept all the testing we had done. I did find a Dr. who understood the whole process. I went on HC and T3 only therapy for a time, then switched to Armour.After about 5 months on HC my morning levels of cortisol before meds was "0", which indicated I was no longer producing any cortisol on my own during the night. But then, it was a moot point as I had been sick for about 6 years and was willing to be on full replacement HC. It would be nice someday to follow Val's lead and be able to wean back off, but for now I'm simply trying to get enough thyroid meds in me to feel human!Warm Regards,Stevie LynTexas> >> > What do you think of taking both? Not together, but at alternate times? Has anyone done this and would you share your results?> > TY> > Sylvia> >> > > > > ------------------------------------> > Quote Link to comment Share on other sites More sharing options...
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