Re: metallic taste/can't eat

January 25, 2003

Sorry, I'm a " newbie " , and I was wondering why she needed the EBR.

Thanks,

January 25, 2003

Sorry, I'm a " newbie " , and I was wondering why she needed the EBR.

Thanks,

January 25, 2003

Sorry, I'm a " newbie " , and I was wondering why she needed the EBR.

Thanks,

January 25, 2003

Hi, Sherri -

> My mother had a total thyroidectomy in Nov/02. Almost immediately

> afterwards, she developed a " metallic " taste in her mouth, which she

> is still having.

This is a pretty common side effect of RAI - not sure about after a

TT.

> She has been through two courses of RAI

Is it possible that the " TT in Nov 02 " was a typo? It would be very

unusual to have had 2 courses of RAI since Nov 02.

> and developed a very nasty sore at the back of her tongue that took

> weeks to heal.

I had a lot of sores in my mouth and tongue after the RAI (don't know

if it was all from the RAI or being hypo), which took awhile to heal.

> About three weeks ago, she started EBR. Since then, she

> has not been able to eat, as she says if she puts food in her mouth,

> her throat closes off. She has lost 25 pounds already and her

> radiation oncologist tells her all of this is perfectly normal and

> expected.

There are probably some folks on here who are familiar with side

effects from EBR, and hopefully they'll write in. Also, you might want

to pose this to the advanced thyca group:

http://groups.yahoo.com/group/adv-thyca/

Good luck! Sounds like your mom's having a rough time of it :-(.

She's fortunate to have you to advocate for her, though!

Cheers,

Alisa

Currently - 140mcg Levoxyl

2/15/2002: Nodule found 2/27/2002: FNA

3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!!

4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos

5/28/2002: 100 mCi RAI

12/16/02: WBS (5 mCi): clean scan - no thyroid tissue in body!!!

Age: 49 -- Location: near Seattle WA --- Check out my posts:

Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472

My LID - http://groups.yahoo.com/group/Thyca/message/15872

My RAI - http://groups.yahoo.com/group/Thyca/message/15873

LID stuff - http://groups.yahoo.com/group/Thyca/message/25430

January 25, 2003

Hi, Sherri -

> My mother had a total thyroidectomy in Nov/02. Almost immediately

> afterwards, she developed a " metallic " taste in her mouth, which she

> is still having.

This is a pretty common side effect of RAI - not sure about after a

TT.

> She has been through two courses of RAI

Is it possible that the " TT in Nov 02 " was a typo? It would be very

unusual to have had 2 courses of RAI since Nov 02.

> and developed a very nasty sore at the back of her tongue that took

> weeks to heal.

I had a lot of sores in my mouth and tongue after the RAI (don't know

if it was all from the RAI or being hypo), which took awhile to heal.

> About three weeks ago, she started EBR. Since then, she

> has not been able to eat, as she says if she puts food in her mouth,

> her throat closes off. She has lost 25 pounds already and her

> radiation oncologist tells her all of this is perfectly normal and

> expected.

There are probably some folks on here who are familiar with side

effects from EBR, and hopefully they'll write in. Also, you might want

to pose this to the advanced thyca group:

http://groups.yahoo.com/group/adv-thyca/

Good luck! Sounds like your mom's having a rough time of it :-(.

She's fortunate to have you to advocate for her, though!

Cheers,

Alisa

Currently - 140mcg Levoxyl

2/15/2002: Nodule found 2/27/2002: FNA

3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!!

4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos

5/28/2002: 100 mCi RAI

12/16/02: WBS (5 mCi): clean scan - no thyroid tissue in body!!!

Age: 49 -- Location: near Seattle WA --- Check out my posts:

Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472

My LID - http://groups.yahoo.com/group/Thyca/message/15872

My RAI - http://groups.yahoo.com/group/Thyca/message/15873

LID stuff - http://groups.yahoo.com/group/Thyca/message/25430

January 25, 2003

Hi, Sherri -

> My mother had a total thyroidectomy in Nov/02. Almost immediately

> afterwards, she developed a " metallic " taste in her mouth, which she

> is still having.

This is a pretty common side effect of RAI - not sure about after a

TT.

> She has been through two courses of RAI

Is it possible that the " TT in Nov 02 " was a typo? It would be very

unusual to have had 2 courses of RAI since Nov 02.

> and developed a very nasty sore at the back of her tongue that took

> weeks to heal.

I had a lot of sores in my mouth and tongue after the RAI (don't know

if it was all from the RAI or being hypo), which took awhile to heal.

> About three weeks ago, she started EBR. Since then, she

> has not been able to eat, as she says if she puts food in her mouth,

> her throat closes off. She has lost 25 pounds already and her

> radiation oncologist tells her all of this is perfectly normal and

> expected.

There are probably some folks on here who are familiar with side

effects from EBR, and hopefully they'll write in. Also, you might want

to pose this to the advanced thyca group:

http://groups.yahoo.com/group/adv-thyca/

Good luck! Sounds like your mom's having a rough time of it :-(.

She's fortunate to have you to advocate for her, though!

Cheers,

Alisa

Currently - 140mcg Levoxyl

2/15/2002: Nodule found 2/27/2002: FNA

3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!!

4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos

5/28/2002: 100 mCi RAI

12/16/02: WBS (5 mCi): clean scan - no thyroid tissue in body!!!

Age: 49 -- Location: near Seattle WA --- Check out my posts:

Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472

My LID - http://groups.yahoo.com/group/Thyca/message/15872

My RAI - http://groups.yahoo.com/group/Thyca/message/15873

LID stuff - http://groups.yahoo.com/group/Thyca/message/25430

January 26, 2003

Sheri.

I got my thyca from mercury in amalgams.

One main symptom for me was metallic taste in mouth.

It is the taste of mercury.

When they take thyroid away which is targetorgan for mercury from

silverfillings,mercury goes right down into throat and body.

See my earlier post about the proof I have that this is true.

I have been investigating this for three years but have been very sick from

mercury for thirty years.

Go to searchengine google search for word " amalgam " and you will find info

for a lifetime.

Vanja Karlsson.

> "

>Reply-To: Thyca

>To: Thyca

>Subject: metallic taste/can't eat

>Date: Sun, 26 Jan 2003 01:16:33 -0000

>

>My mother had a total thyroidectomy in Nov/02. Almost immediately

>afterwards, she developed a " metallic " taste in her mouth, which she

>is still having. She has been through two courses of RAI and

>developed a very nasty sore at the back of her tongue that took weeks

>to heal. About three weeks ago, she started EBR. Since then, she

>has not been able to eat, as she says if she puts food in her mouth,

>her throat closes off. She has lost 25 pounds already and her

>radiation oncologist tells her all of this is perfectly normal and

>expected. I am really starting to question that as I have been

>browsing through posts here and many other sites for weeks and have

>yet to come across those symptoms.

>

>I would very much like to know if that is so and if anyone else has

>dealt with them.

>

>Thank you.

>

>Sheri L.

>

_________________________________________________________________

Planera semestern på MSN http://www.msn.se/resor/default.asp

January 26, 2003

Hello Alisa !

> > My mother had a total thyroidectomy in Nov/02. Almost immediately

> > afterwards, she developed a " metallic " taste in her mouth, which

she

> > is still having.

>

> This is a pretty common side effect of RAI - not sure about after a

> TT.

>

> > She has been through two courses of RAI

>

> Is it possible that the " TT in Nov 02 " was a typo?

As I am looking at the paperwork, the TT was actually on 10/18/02.

It would be very

> unusual to have had 2 courses of RAI since Nov 02.

Everything so far has seemed unusual, but I didn't realize the two

scans really were. We were quite shocked it ever got to this, as

docs were sure she did not have CA at all. All prior testing to

surgery read negative, from the ultrasounds to the needle

aspriation. The doctor knew he did not get it all, as the left lobe

nodule was 1.7 cm with extrathyroidal extension and focal involvement

of the inked surgical margin. It had actually grown right into her

left laryngeal nerve, which is the reason she has lost her voice. I

have every record of every test, pathology report, etc. The doc's

wish I'd stay home, I'm sure ) But mom doesn't know what to ask or

what they are talking about, so I gotta take care of that, and her..

I believe she was given the two doses to see what they were dealing

with. She had never had a thyroid problem and was not on Synthroid

or anything. They gave her 7-mCi of RAI on 11/20/02 with total body

scan on 11/22/02, then she went back on 11/25/02 and was given 20-mCi

with another total body scan 11/29/02. The two were compared

with " no changes seen " .

>

> > and developed a very nasty sore at the back of her tongue that

took

> > weeks to heal.

>

> I had a lot of sores in my mouth and tongue after the RAI (don't

know

> if it was all from the RAI or being hypo), which took awhile to

heal.

>

> > About three weeks ago, she started EBR. Since then, she

> > has not been able to eat, as she says if she puts food in her

mouth,

> > her throat closes off. She has lost 25 pounds already and her

> > radiation oncologist tells her all of this is perfectly normal

and

> > expected.

>

> There are probably some folks on here who are familiar with side

> effects from EBR, and hopefully they'll write in. Also, you might

want

> to pose this to the advanced thyca group:

>

> http://groups.yahoo.com/group/adv-thyca/

Thanks for your input. I will check out the advanced group as well.

This is driving her nuts and although she has some really good

doctors, they kind of blow off her concerns, like she is talking

about a hangnail or something ( ..

>

> Good luck! Sounds like your mom's having a rough time of it :-(.

> She's fortunate to have you to advocate for her, though!

>

> Cheers,

> Alisa

>

> Currently - 140mcg Levoxyl

> 2/15/2002: Nodule found 2/27/2002: FNA

> 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer -

BENIGN!!

> 4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos

> 5/28/2002: 100 mCi RAI

> 12/16/02: WBS (5 mCi): clean scan - no thyroid tissue in body!!!

> Age: 49 -- Location: near Seattle WA --- Check out my

posts:

> Radioactive Girl -

http://groups.yahoo.com/group/Thyca/message/19472

> My LID - http://groups.yahoo.com/group/Thyca/message/15872

> My RAI - http://groups.yahoo.com/group/Thyca/message/15873

> LID stuff - http://groups.yahoo.com/group/Thyca/message/25430

January 26, 2003