Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 MARTIN, THANKS FOR THE INFORMATION. MY HUSBAND AND I HAVE BEEN SO CONFUSED AS TO ALL THE DIFFERENT METHODS FOR CORRECTING CLUB FEET. WHEN WE FIRST SOUGHT TREATMENT AT SCOTTISH RITE THEY OFFERED TWO DIFFERENT METHODS, THE PONSETI AND THE FRENCH STRETCHING. WE DID NOT KNOW THE DIFFERENCE IN THE TWO EXCEPT WE KNEW WE COULD NOT DRIVE TO DALLAS EVERYDAY FOR THE FRENCH TECHNIQUE, SO WE CHOSE THE PONSETI. I'M HOPING WE MADE THE RIGHT CHOICE. MY HUSBAND WAS ALSO BORN W/ CLUB FEET. HE IS NOW 26 YRS OLD AND IS HAVING ALOT OF PAIN AND STIFFNESS IN HIS FEET NOW. WE HOPE TO AVOID THIS FOR KEARSTEN. AGAIN THANKS FOR THE INFORMATION. IT IS A REAL BLESSING TO FIND SO MANY OTHER FAMILIES GOING THROUGH THE SAME THING WE ARE. DO YOU KNOW HOW I CAN FIND OTHER FAMILIES WHO HAVE GONE TO SCOTTISH RITE HOSPITAL IN DALLAS? SINCERELY, KIM BARNETT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 My daughter was born on Nov. 22, 02 w/ bilateral clubfeet. We have been going to the " ish Rite Hospital for Children " for her treatment. After finding this site, I am beginning to wonder if her doctor is actually following the true " Ponseti " protocol or not. Could someone please respond to my message so that I can be better informed on the correct method. As of Feb. 06,2003, my daughter has not had any x-rays of her feet or hips. She has has the heel cord sx and is now in the bar as of Ja. 26,2003. Sincerely, Kim Barnett Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 Kim, Welcome to our group. In the Ponseti method, x-rays are typically not done. Also, I believe that in general babies hips are checked without the use of x- rays unless they may think that there is a potential problem. The amount of time from your child's birth to tenotomy at 6 weeks seems like the Ponseti method. If when looking at the information that is at Dr. Ponseti's web site, you think that something is being done that you don't think is the real Ponseti protocol, you can ask us and well will give you our impressions. At Dr. Ponseti's web site you can also look at a parents still photo web site showing the progression week by week of treatment with the Ponseti method at NYU. That site is the Cotton Family at http://hometown.aol.com/vc11 In addition, there is a downloadable video of all of the procedures done by Dr. Ponseti for a child filmed in 1956 showing the casting, tenotomy, FAB/DBB and the followup check-ups at 3 years, 8 years, 18 years and at 42 years of age. It is at the bottom of the Patient Testimonial page at http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/patientlist. html We are glad to have you here. and (3-17-99) > My daughter was born on Nov. 22, 02 w/ bilateral clubfeet. We have > been going to the " ish Rite Hospital for Children " for her > treatment. After finding this site, I am beginning to wonder if her > doctor is actually following the true " Ponseti " protocol or not. > Could someone please respond to my message so that I can be better > informed on the correct method. As of Feb. 06,2003, my daughter has > not had any x-rays of her feet or hips. She has has the heel cord sx > and is now in the bar as of Ja. 26,2003. > > Sincerely, > > Kim Barnett Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 Kim, Welcome to our group. In the Ponseti method, x-rays are typically not done. Also, I believe that in general babies hips are checked without the use of x- rays unless they may think that there is a potential problem. The amount of time from your child's birth to tenotomy at 6 weeks seems like the Ponseti method. If when looking at the information that is at Dr. Ponseti's web site, you think that something is being done that you don't think is the real Ponseti protocol, you can ask us and well will give you our impressions. At Dr. Ponseti's web site you can also look at a parents still photo web site showing the progression week by week of treatment with the Ponseti method at NYU. That site is the Cotton Family at http://hometown.aol.com/vc11 In addition, there is a downloadable video of all of the procedures done by Dr. Ponseti for a child filmed in 1956 showing the casting, tenotomy, FAB/DBB and the followup check-ups at 3 years, 8 years, 18 years and at 42 years of age. It is at the bottom of the Patient Testimonial page at http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/patientlist. html We are glad to have you here. and (3-17-99) > My daughter was born on Nov. 22, 02 w/ bilateral clubfeet. We have > been going to the " ish Rite Hospital for Children " for her > treatment. After finding this site, I am beginning to wonder if her > doctor is actually following the true " Ponseti " protocol or not. > Could someone please respond to my message so that I can be better > informed on the correct method. As of Feb. 06,2003, my daughter has > not had any x-rays of her feet or hips. She has has the heel cord sx > and is now in the bar as of Ja. 26,2003. > > Sincerely, > > Kim Barnett Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 Kim, My daughter Isabella was born in October. The army hospital did not take any x rays of her feet and neither did the ponsetti doctor in Kansas city. She said she didn't have to because she could tell by moving the feet and hips. I am very greatful for finding this group and getting Isabella a ponsetti method doctor.I went on Dr.Ponsetti's website and emailed him and he gave me a properly trained doctor that does his method. We travel almost 3 hours to see her but it is so well worth it.Isabella is doing great and with no surgery. Everyone who don't understand clubbed feet ask me if she is going to get surgery and i say no. They automatically assume that is what will correct it. Until they see her feet out of the DBB and are amazed how straight they are. I don't know how you can find other families that go to your hospital. Maybe post it on the parents place clubfoot board or the other yahoo clubfoot board. Sincerely, (Mom to Isabella 10-12-02 bilateral clubbed feet) > MARTIN, > > THANKS FOR THE INFORMATION. MY HUSBAND AND I HAVE BEEN SO CONFUSED AS TO ALL > THE DIFFERENT METHODS FOR CORRECTING CLUB FEET. WHEN WE FIRST SOUGHT > TREATMENT AT SCOTTISH RITE THEY OFFERED TWO DIFFERENT METHODS, THE PONSETI > AND THE FRENCH STRETCHING. WE DID NOT KNOW THE DIFFERENCE IN THE TWO EXCEPT > WE KNEW WE COULD NOT DRIVE TO DALLAS EVERYDAY FOR THE FRENCH TECHNIQUE, SO WE > CHOSE THE PONSETI. I'M HOPING WE MADE THE RIGHT CHOICE. > > MY HUSBAND WAS ALSO BORN W/ CLUB FEET. HE IS NOW 26 YRS OLD AND IS HAVING > ALOT OF PAIN AND STIFFNESS IN HIS FEET NOW. WE HOPE TO AVOID THIS FOR > KEARSTEN. AGAIN THANKS FOR THE INFORMATION. IT IS A REAL BLESSING TO FIND SO > MANY OTHER FAMILIES GOING THROUGH THE SAME THING WE ARE. > > DO YOU KNOW HOW I CAN FIND OTHER FAMILIES WHO HAVE GONE TO SCOTTISH RITE > HOSPITAL IN DALLAS? > > SINCERELY, > > KIM BARNETT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 Kim, My daughter Isabella was born in October. The army hospital did not take any x rays of her feet and neither did the ponsetti doctor in Kansas city. She said she didn't have to because she could tell by moving the feet and hips. I am very greatful for finding this group and getting Isabella a ponsetti method doctor.I went on Dr.Ponsetti's website and emailed him and he gave me a properly trained doctor that does his method. We travel almost 3 hours to see her but it is so well worth it.Isabella is doing great and with no surgery. Everyone who don't understand clubbed feet ask me if she is going to get surgery and i say no. They automatically assume that is what will correct it. Until they see her feet out of the DBB and are amazed how straight they are. I don't know how you can find other families that go to your hospital. Maybe post it on the parents place clubfoot board or the other yahoo clubfoot board. Sincerely, (Mom to Isabella 10-12-02 bilateral clubbed feet) > MARTIN, > > THANKS FOR THE INFORMATION. MY HUSBAND AND I HAVE BEEN SO CONFUSED AS TO ALL > THE DIFFERENT METHODS FOR CORRECTING CLUB FEET. WHEN WE FIRST SOUGHT > TREATMENT AT SCOTTISH RITE THEY OFFERED TWO DIFFERENT METHODS, THE PONSETI > AND THE FRENCH STRETCHING. WE DID NOT KNOW THE DIFFERENCE IN THE TWO EXCEPT > WE KNEW WE COULD NOT DRIVE TO DALLAS EVERYDAY FOR THE FRENCH TECHNIQUE, SO WE > CHOSE THE PONSETI. I'M HOPING WE MADE THE RIGHT CHOICE. > > MY HUSBAND WAS ALSO BORN W/ CLUB FEET. HE IS NOW 26 YRS OLD AND IS HAVING > ALOT OF PAIN AND STIFFNESS IN HIS FEET NOW. WE HOPE TO AVOID THIS FOR > KEARSTEN. AGAIN THANKS FOR THE INFORMATION. IT IS A REAL BLESSING TO FIND SO > MANY OTHER FAMILIES GOING THROUGH THE SAME THING WE ARE. > > DO YOU KNOW HOW I CAN FIND OTHER FAMILIES WHO HAVE GONE TO SCOTTISH RITE > HOSPITAL IN DALLAS? > > SINCERELY, > > KIM BARNETT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 Kim, My daughter Isabella was born in October. The army hospital did not take any x rays of her feet and neither did the ponsetti doctor in Kansas city. She said she didn't have to because she could tell by moving the feet and hips. I am very greatful for finding this group and getting Isabella a ponsetti method doctor.I went on Dr.Ponsetti's website and emailed him and he gave me a properly trained doctor that does his method. We travel almost 3 hours to see her but it is so well worth it.Isabella is doing great and with no surgery. Everyone who don't understand clubbed feet ask me if she is going to get surgery and i say no. They automatically assume that is what will correct it. Until they see her feet out of the DBB and are amazed how straight they are. I don't know how you can find other families that go to your hospital. Maybe post it on the parents place clubfoot board or the other yahoo clubfoot board. Sincerely, (Mom to Isabella 10-12-02 bilateral clubbed feet) > MARTIN, > > THANKS FOR THE INFORMATION. MY HUSBAND AND I HAVE BEEN SO CONFUSED AS TO ALL > THE DIFFERENT METHODS FOR CORRECTING CLUB FEET. WHEN WE FIRST SOUGHT > TREATMENT AT SCOTTISH RITE THEY OFFERED TWO DIFFERENT METHODS, THE PONSETI > AND THE FRENCH STRETCHING. WE DID NOT KNOW THE DIFFERENCE IN THE TWO EXCEPT > WE KNEW WE COULD NOT DRIVE TO DALLAS EVERYDAY FOR THE FRENCH TECHNIQUE, SO WE > CHOSE THE PONSETI. I'M HOPING WE MADE THE RIGHT CHOICE. > > MY HUSBAND WAS ALSO BORN W/ CLUB FEET. HE IS NOW 26 YRS OLD AND IS HAVING > ALOT OF PAIN AND STIFFNESS IN HIS FEET NOW. WE HOPE TO AVOID THIS FOR > KEARSTEN. AGAIN THANKS FOR THE INFORMATION. IT IS A REAL BLESSING TO FIND SO > MANY OTHER FAMILIES GOING THROUGH THE SAME THING WE ARE. > > DO YOU KNOW HOW I CAN FIND OTHER FAMILIES WHO HAVE GONE TO SCOTTISH RITE > HOSPITAL IN DALLAS? > > SINCERELY, > > KIM BARNETT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 Kim, I have talked to the doctors and physiotherapists at Dallas ish Rite a number of times over the past 3 years. Here is a message from April 2001 soon after they had started offering the Ponseti method in addition to the French Physiotherpay method. http://groups.yahoo.com/group/nosurgery4clubfoot/message/6994 In the past, Dr. Ponseti has had a number of parents from the Dallas area who had gone to Iowa, but I don't think were on this site. There have also been a few parents here on the internet from around Dallas such as this prior message at http://groups.yahoo.com/group/nosurgery4clubfoot/message/8977 and this message from at http://groups.yahoo.com/group/nosurgery4clubfoot/message/10744 and (3-17-99) > MARTIN, > > THANKS FOR THE INFORMATION. MY HUSBAND AND I HAVE BEEN SO CONFUSED AS TO ALL > THE DIFFERENT METHODS FOR CORRECTING CLUB FEET. WHEN WE FIRST SOUGHT > TREATMENT AT SCOTTISH RITE THEY OFFERED TWO DIFFERENT METHODS, THE PONSETI > AND THE FRENCH STRETCHING. WE DID NOT KNOW THE DIFFERENCE IN THE TWO EXCEPT > WE KNEW WE COULD NOT DRIVE TO DALLAS EVERYDAY FOR THE FRENCH TECHNIQUE, SO WE > CHOSE THE PONSETI. I'M HOPING WE MADE THE RIGHT CHOICE. > > MY HUSBAND WAS ALSO BORN W/ CLUB FEET. HE IS NOW 26 YRS OLD AND IS HAVING > ALOT OF PAIN AND STIFFNESS IN HIS FEET NOW. WE HOPE TO AVOID THIS FOR > KEARSTEN. AGAIN THANKS FOR THE INFORMATION. IT IS A REAL BLESSING TO FIND SO > MANY OTHER FAMILIES GOING THROUGH THE SAME THING WE ARE. > > DO YOU KNOW HOW I CAN FIND OTHER FAMILIES WHO HAVE GONE TO SCOTTISH RITE > HOSPITAL IN DALLAS? > > SINCERELY, > > KIM BARNETT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 Kim, I have talked to the doctors and physiotherapists at Dallas ish Rite a number of times over the past 3 years. Here is a message from April 2001 soon after they had started offering the Ponseti method in addition to the French Physiotherpay method. http://groups.yahoo.com/group/nosurgery4clubfoot/message/6994 In the past, Dr. Ponseti has had a number of parents from the Dallas area who had gone to Iowa, but I don't think were on this site. There have also been a few parents here on the internet from around Dallas such as this prior message at http://groups.yahoo.com/group/nosurgery4clubfoot/message/8977 and this message from at http://groups.yahoo.com/group/nosurgery4clubfoot/message/10744 and (3-17-99) > MARTIN, > > THANKS FOR THE INFORMATION. MY HUSBAND AND I HAVE BEEN SO CONFUSED AS TO ALL > THE DIFFERENT METHODS FOR CORRECTING CLUB FEET. WHEN WE FIRST SOUGHT > TREATMENT AT SCOTTISH RITE THEY OFFERED TWO DIFFERENT METHODS, THE PONSETI > AND THE FRENCH STRETCHING. WE DID NOT KNOW THE DIFFERENCE IN THE TWO EXCEPT > WE KNEW WE COULD NOT DRIVE TO DALLAS EVERYDAY FOR THE FRENCH TECHNIQUE, SO WE > CHOSE THE PONSETI. I'M HOPING WE MADE THE RIGHT CHOICE. > > MY HUSBAND WAS ALSO BORN W/ CLUB FEET. HE IS NOW 26 YRS OLD AND IS HAVING > ALOT OF PAIN AND STIFFNESS IN HIS FEET NOW. WE HOPE TO AVOID THIS FOR > KEARSTEN. AGAIN THANKS FOR THE INFORMATION. IT IS A REAL BLESSING TO FIND SO > MANY OTHER FAMILIES GOING THROUGH THE SAME THING WE ARE. > > DO YOU KNOW HOW I CAN FIND OTHER FAMILIES WHO HAVE GONE TO SCOTTISH RITE > HOSPITAL IN DALLAS? > > SINCERELY, > > KIM BARNETT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 Kim, I have talked to the doctors and physiotherapists at Dallas ish Rite a number of times over the past 3 years. Here is a message from April 2001 soon after they had started offering the Ponseti method in addition to the French Physiotherpay method. http://groups.yahoo.com/group/nosurgery4clubfoot/message/6994 In the past, Dr. Ponseti has had a number of parents from the Dallas area who had gone to Iowa, but I don't think were on this site. There have also been a few parents here on the internet from around Dallas such as this prior message at http://groups.yahoo.com/group/nosurgery4clubfoot/message/8977 and this message from at http://groups.yahoo.com/group/nosurgery4clubfoot/message/10744 and (3-17-99) > MARTIN, > > THANKS FOR THE INFORMATION. MY HUSBAND AND I HAVE BEEN SO CONFUSED AS TO ALL > THE DIFFERENT METHODS FOR CORRECTING CLUB FEET. WHEN WE FIRST SOUGHT > TREATMENT AT SCOTTISH RITE THEY OFFERED TWO DIFFERENT METHODS, THE PONSETI > AND THE FRENCH STRETCHING. WE DID NOT KNOW THE DIFFERENCE IN THE TWO EXCEPT > WE KNEW WE COULD NOT DRIVE TO DALLAS EVERYDAY FOR THE FRENCH TECHNIQUE, SO WE > CHOSE THE PONSETI. I'M HOPING WE MADE THE RIGHT CHOICE. > > MY HUSBAND WAS ALSO BORN W/ CLUB FEET. HE IS NOW 26 YRS OLD AND IS HAVING > ALOT OF PAIN AND STIFFNESS IN HIS FEET NOW. WE HOPE TO AVOID THIS FOR > KEARSTEN. AGAIN THANKS FOR THE INFORMATION. IT IS A REAL BLESSING TO FIND SO > MANY OTHER FAMILIES GOING THROUGH THE SAME THING WE ARE. > > DO YOU KNOW HOW I CAN FIND OTHER FAMILIES WHO HAVE GONE TO SCOTTISH RITE > HOSPITAL IN DALLAS? > > SINCERELY, > > KIM BARNETT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 Dear Kim, Welcome to the site! Have you checked the files section of this website? There is alot of information there (you have to sign in to access). Also, another good site is the message board at Parents Place. To get there, go to www.ivillage.com. Next, at the top of the page is a search. Type in " clubfoot " . This will bring you to about 10 choices. Click on the the Clubfoot Message Board one. You will find quite a bit of information including links to several other helpful sites. How has your daughter been treated so far? Was your doctor recommended by Ponseti? Bethany any info. on club feet My daughter was born on Nov. 22, 02 w/ bilateral clubfeet. We have been going to the " ish Rite Hospital for Children " for her treatment. After finding this site, I am beginning to wonder if her doctor is actually following the true " Ponseti " protocol or not. Could someone please respond to my message so that I can be better informed on the correct method. As of Feb. 06,2003, my daughter has not had any x-rays of her feet or hips. She has has the heel cord sx and is now in the bar as of Ja. 26,2003. Sincerely, Kim Barnett Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 Dear Kim, Welcome to the site! Have you checked the files section of this website? There is alot of information there (you have to sign in to access). Also, another good site is the message board at Parents Place. To get there, go to www.ivillage.com. Next, at the top of the page is a search. Type in " clubfoot " . This will bring you to about 10 choices. Click on the the Clubfoot Message Board one. You will find quite a bit of information including links to several other helpful sites. How has your daughter been treated so far? Was your doctor recommended by Ponseti? Bethany any info. on club feet My daughter was born on Nov. 22, 02 w/ bilateral clubfeet. We have been going to the " ish Rite Hospital for Children " for her treatment. After finding this site, I am beginning to wonder if her doctor is actually following the true " Ponseti " protocol or not. Could someone please respond to my message so that I can be better informed on the correct method. As of Feb. 06,2003, my daughter has not had any x-rays of her feet or hips. She has has the heel cord sx and is now in the bar as of Ja. 26,2003. Sincerely, Kim Barnett Quote Link to comment Share on other sites More sharing options...
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