Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 At 06:29 AM 8/17/2004, you wrote: > is correct about the diagnoses for celiac; the blood tests are >reasonably >good but they miss some cases; the " gold standard " is the intestinal >biopsy - >sounds gruesome but it's not, it's out-patient, somewhat similar to a >colonoscopy but from the other end!! No particular discomfort normally. > >Symptoms in my case were continuing and worsening stomach-area pain, >sometimes nausea, not easily pegged to anything. Some people get brown >marks on their skin, arms especially. The issue with gluten sensitivity >is not >short term, though, the real problem is a long-term deterioration of >intestinal >tissue (hence the intestinal biopsy for diagnosis). It's not like a >shellfish or >peanut allergy, where you are at instant risk of dying (though a few >celiacs may >be unusually sensitive). It's an insidious long-term process. For many >of us, >only if we somehow take in a large quantity of gluten, say a couple of >slices of >bread or equivalent, do we get pain. Celiac disease, in many cases, is a genetic thing. In my granddaughter's case, it came from her paternal grandmother. She was diagnosed at the tender age of 10 months. They were treating her for failure to thrive. She had trouble keeping food down and cried incessantly. As soon as the she was on that diet, she settled down and did ok. It is not an easy diet. One thing, her mother said that she could have french fries from Mac's as the only thing they cook in those particular fryers are the potatoes. Most other fast food places cook other things in the same fryer and contaminate the oil with gluten from the breading. in Portland OR in Portland OR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 At 06:29 AM 8/17/2004, you wrote: > is correct about the diagnoses for celiac; the blood tests are >reasonably >good but they miss some cases; the " gold standard " is the intestinal >biopsy - >sounds gruesome but it's not, it's out-patient, somewhat similar to a >colonoscopy but from the other end!! No particular discomfort normally. > >Symptoms in my case were continuing and worsening stomach-area pain, >sometimes nausea, not easily pegged to anything. Some people get brown >marks on their skin, arms especially. The issue with gluten sensitivity >is not >short term, though, the real problem is a long-term deterioration of >intestinal >tissue (hence the intestinal biopsy for diagnosis). It's not like a >shellfish or >peanut allergy, where you are at instant risk of dying (though a few >celiacs may >be unusually sensitive). It's an insidious long-term process. For many >of us, >only if we somehow take in a large quantity of gluten, say a couple of >slices of >bread or equivalent, do we get pain. Celiac disease, in many cases, is a genetic thing. In my granddaughter's case, it came from her paternal grandmother. She was diagnosed at the tender age of 10 months. They were treating her for failure to thrive. She had trouble keeping food down and cried incessantly. As soon as the she was on that diet, she settled down and did ok. It is not an easy diet. One thing, her mother said that she could have french fries from Mac's as the only thing they cook in those particular fryers are the potatoes. Most other fast food places cook other things in the same fryer and contaminate the oil with gluten from the breading. in Portland OR in Portland OR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 Kathleen, can you have an allergy to gluten without it¹s being celiac disease? Thanks for helping me with this. (There seem to be several Kathleens on this list, including me!) -- Kathleen Stept (Dofetilide 250mcg bid, Diltiazem 120 mg, Coumadin 5mg), , Mississippi > is correct about the diagnoses for celiac; the blood tests are reasonably > good but they miss some cases; the " gold standard " is the intestinal biopsy - > sounds gruesome but it's not, it's out-patient, somewhat similar to a > colonoscopy but from the other end!! No particular discomfort normally. > > Symptoms in my case were continuing and worsening stomach-area pain, > sometimes nausea, not easily pegged to anything. Some people get brown > marks on their skin, arms especially. The issue with gluten sensitivity is > not > short term, though, the real problem is a long-term deterioration of > intestinal > tissue (hence the intestinal biopsy for diagnosis). It's not like a shellfish > or > peanut allergy, where you are at instant risk of dying (though a few celiacs > may > be unusually sensitive). It's an insidious long-term process. For many of > us, > only if we somehow take in a large quantity of gluten, say a couple of slices > of > bread or equivalent, do we get pain. > > And I agree, I've never seen or heard of any links to AF. > > Best. Kathleen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 Kathleen, can you have an allergy to gluten without it¹s being celiac disease? Thanks for helping me with this. (There seem to be several Kathleens on this list, including me!) -- Kathleen Stept (Dofetilide 250mcg bid, Diltiazem 120 mg, Coumadin 5mg), , Mississippi > is correct about the diagnoses for celiac; the blood tests are reasonably > good but they miss some cases; the " gold standard " is the intestinal biopsy - > sounds gruesome but it's not, it's out-patient, somewhat similar to a > colonoscopy but from the other end!! No particular discomfort normally. > > Symptoms in my case were continuing and worsening stomach-area pain, > sometimes nausea, not easily pegged to anything. Some people get brown > marks on their skin, arms especially. The issue with gluten sensitivity is > not > short term, though, the real problem is a long-term deterioration of > intestinal > tissue (hence the intestinal biopsy for diagnosis). It's not like a shellfish > or > peanut allergy, where you are at instant risk of dying (though a few celiacs > may > be unusually sensitive). It's an insidious long-term process. For many of > us, > only if we somehow take in a large quantity of gluten, say a couple of slices > of > bread or equivalent, do we get pain. > > And I agree, I've never seen or heard of any links to AF. > > Best. Kathleen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 Vicky, I assume that you can eat other grains, right? -- Kathleen Stept (Dofetilide 250mcg bid, Diltiazem 120 mg, Coumadin 5mg), , Mississippi > on Mon, 16 Aug 2004 at 22:07:16, Kathleen Stept > wrote : >> >Hi, Vicky! How did you figure out that you have a wheat intolerance? > > Tried cutting out all wheat products (this was 3 years after trying > everything else!), then after a few months (it takes ages) I tried some > bread, and my insides hurt like heck > > > Best of health to all, > Vicky > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 THANKS for the great web reference, reinforcing something I have said many, many times - namely, that AF is a multifaceted and highly complex condition that is not about to yield simple and clean answers. Sort of like cancer, without the terrible outcomes, another disease that has obviously many, many causes and paths, and whose treatment is evolving daily. At the moment, unless someone lucks into clear " trigger " identification, it looks as though some variety of maze and/or ablation is the only cure for AF, and that's a symptomatic cure, not truly one that gets at the cause(s). Thanks again. Kathleen (24/7 AF, coumadin, atenolol, digoxin, a little lasix). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 THANKS for the great web reference, reinforcing something I have said many, many times - namely, that AF is a multifaceted and highly complex condition that is not about to yield simple and clean answers. Sort of like cancer, without the terrible outcomes, another disease that has obviously many, many causes and paths, and whose treatment is evolving daily. At the moment, unless someone lucks into clear " trigger " identification, it looks as though some variety of maze and/or ablation is the only cure for AF, and that's a symptomatic cure, not truly one that gets at the cause(s). Thanks again. Kathleen (24/7 AF, coumadin, atenolol, digoxin, a little lasix). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 As I understand it, " celiac " is really a gluten intolerance. It typically involves wheat, barley, oats and rye. I know there are people who are uniquetly wheat intolerant (or say they are), and I don't know how they would officially be classified. KathleenGreenBay (24/7,atenolol, digoxin,coumadin) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 As I understand it, " celiac " is really a gluten intolerance. It typically involves wheat, barley, oats and rye. I know there are people who are uniquetly wheat intolerant (or say they are), and I don't know how they would officially be classified. KathleenGreenBay (24/7,atenolol, digoxin,coumadin) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 Hi Vicky, I too have this. If your interested you can buy a rye bread from Lidels only 65p other wise they are 2.60p in tescos. C ---- Original message ---- >Date: Tue, 17 Aug 2004 21:33:32 +0100 > >Subject: Re: Gluten Free Diet >To: AFIBsupport > >on Mon, 16 Aug 2004 at 22:07:16, Kathleen Stept >wrote : >>Hi, Vicky! How did you figure out that you have a wheat intolerance? > >Tried cutting out all wheat products (this was 3 years after trying >everything else!), then after a few months (it takes ages) I tried some >bread, and my insides hurt like heck > > >Best of health to all, >Vicky > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 Hi Vicky, I too have this. If your interested you can buy a rye bread from Lidels only 65p other wise they are 2.60p in tescos. C ---- Original message ---- >Date: Tue, 17 Aug 2004 21:33:32 +0100 > >Subject: Re: Gluten Free Diet >To: AFIBsupport > >on Mon, 16 Aug 2004 at 22:07:16, Kathleen Stept >wrote : >>Hi, Vicky! How did you figure out that you have a wheat intolerance? > >Tried cutting out all wheat products (this was 3 years after trying >everything else!), then after a few months (it takes ages) I tried some >bread, and my insides hurt like heck > > >Best of health to all, >Vicky > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 Hi Vicky, I too have this. If your interested you can buy a rye bread from Lidels only 65p other wise they are 2.60p in tescos. C ---- Original message ---- >Date: Tue, 17 Aug 2004 21:33:32 +0100 > >Subject: Re: Gluten Free Diet >To: AFIBsupport > >on Mon, 16 Aug 2004 at 22:07:16, Kathleen Stept >wrote : >>Hi, Vicky! How did you figure out that you have a wheat intolerance? > >Tried cutting out all wheat products (this was 3 years after trying >everything else!), then after a few months (it takes ages) I tried some >bread, and my insides hurt like heck > > >Best of health to all, >Vicky > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 Hi Vicky, I too have this. If your interested you can buy a rye bread from Lidels only 65p other wise they are 2.60p in tescos. C ---- Original message ---- >Date: Tue, 17 Aug 2004 21:33:32 +0100 > >Subject: Re: Gluten Free Diet >To: AFIBsupport > >on Mon, 16 Aug 2004 at 22:07:16, Kathleen Stept >wrote : >>Hi, Vicky! How did you figure out that you have a wheat intolerance? > >Tried cutting out all wheat products (this was 3 years after trying >everything else!), then after a few months (it takes ages) I tried some >bread, and my insides hurt like heck > > >Best of health to all, >Vicky > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 Hi Vicky, I too have this. If your interested you can buy a rye bread from Lidels only 65p other wise they are 2.60p in tescos. C ---- Original message ---- >Date: Tue, 17 Aug 2004 21:33:32 +0100 > >Subject: Re: Gluten Free Diet >To: AFIBsupport > >on Mon, 16 Aug 2004 at 22:07:16, Kathleen Stept >wrote : >>Hi, Vicky! How did you figure out that you have a wheat intolerance? > >Tried cutting out all wheat products (this was 3 years after trying >everything else!), then after a few months (it takes ages) I tried some >bread, and my insides hurt like heck > > >Best of health to all, >Vicky > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 Hi Vicky, I too have this. If your interested you can buy a rye bread from Lidels only 65p other wise they are 2.60p in tescos. C ---- Original message ---- >Date: Tue, 17 Aug 2004 21:33:32 +0100 > >Subject: Re: Gluten Free Diet >To: AFIBsupport > >on Mon, 16 Aug 2004 at 22:07:16, Kathleen Stept >wrote : >>Hi, Vicky! How did you figure out that you have a wheat intolerance? > >Tried cutting out all wheat products (this was 3 years after trying >everything else!), then after a few months (it takes ages) I tried some >bread, and my insides hurt like heck > > >Best of health to all, >Vicky > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 on Tue, 17 Aug 2004 at 21:04:27, Kathleen Stept wrote : >Vicky, I assume that you can eat other grains, right? Yep, fine. Best of health to all, Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 on Tue, 17 Aug 2004 at 21:04:27, Kathleen Stept wrote : >Vicky, I assume that you can eat other grains, right? Yep, fine. Best of health to all, Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 on Tue, 17 Aug 2004 at 21:04:27, Kathleen Stept wrote : >Vicky, I assume that you can eat other grains, right? Yep, fine. Best of health to all, Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 on Wed, 18 Aug 2004 at 23:10:35, john codling wrote : >Hi Vicky, I too have this. If your interested you can buy a >rye bread from Lidels only 65p other wise they are 2.60p in >tescos. > C I never knew ! We (including my daughter) use out local Waitrose who have a good rye bread selection, though you have to read the small print as some have wheat in them! About £1.40 a loaf. Will look out for a Lidels, thanks Best of health to all, Vicky London, UK, 1954 model Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 on Wed, 18 Aug 2004 at 23:10:35, john codling wrote : >Hi Vicky, I too have this. If your interested you can buy a >rye bread from Lidels only 65p other wise they are 2.60p in >tescos. > C I never knew ! We (including my daughter) use out local Waitrose who have a good rye bread selection, though you have to read the small print as some have wheat in them! About £1.40 a loaf. Will look out for a Lidels, thanks Best of health to all, Vicky London, UK, 1954 model Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 on Wed, 18 Aug 2004 at 23:10:35, john codling wrote : >Hi Vicky, I too have this. If your interested you can buy a >rye bread from Lidels only 65p other wise they are 2.60p in >tescos. > C I never knew ! We (including my daughter) use out local Waitrose who have a good rye bread selection, though you have to read the small print as some have wheat in them! About £1.40 a loaf. Will look out for a Lidels, thanks Best of health to all, Vicky London, UK, 1954 model Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 At 01:58 PM 8/19/2004, you wrote: >on Tue, 17 Aug 2004 at 21:04:27, Kathleen Stept >wrote : > >Vicky, I assume that you can eat other grains, right? > >Yep, fine. Sorry, Vicky, but rye and barley are on the forbidden list also. See the following for the forbidden list: <http://www.celiac.com/st_prod.html?p_prodid=185 & p_catid=12 & sid=91hH9H0-nMKdChL-\ 26104354283.07> in Portland OR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 At 01:58 PM 8/19/2004, you wrote: >on Tue, 17 Aug 2004 at 21:04:27, Kathleen Stept >wrote : > >Vicky, I assume that you can eat other grains, right? > >Yep, fine. Sorry, Vicky, but rye and barley are on the forbidden list also. See the following for the forbidden list: <http://www.celiac.com/st_prod.html?p_prodid=185 & p_catid=12 & sid=91hH9H0-nMKdChL-\ 26104354283.07> in Portland OR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 At 01:58 PM 8/19/2004, you wrote: >on Tue, 17 Aug 2004 at 21:04:27, Kathleen Stept >wrote : > >Vicky, I assume that you can eat other grains, right? > >Yep, fine. Sorry, Vicky, but rye and barley are on the forbidden list also. See the following for the forbidden list: <http://www.celiac.com/st_prod.html?p_prodid=185 & p_catid=12 & sid=91hH9H0-nMKdChL-\ 26104354283.07> in Portland OR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 on Thu, 19 Aug 2004 at 15:38:09, Laughlin wrote : >> >Vicky, I assume that you can eat other grains, right? >> >>Yep, fine. > >Sorry, Vicky, but rye and barley are on the forbidden list also. See the >following for the forbidden list: They are for coeliac, but I am not coeliac. Best of health to all, Vicky Quote Link to comment Share on other sites More sharing options...
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