Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 -snip...... In the meantime, he said I might want to try > a gluten-free diet, which has helped a couple of his patients. Has anyone > on the list benefited from a gluten-free diet? (I am aware of a couple of > folks who have written about going dairy-free.)....snip Several years before AF, I was diagnosed with adult-onset celiac disease, a person who cannot tolerate wheat, oats, rye or barley - no gluten. Despite being as faithful as possible to the gluten free diet (wheat hides everywhere: soy sauce, many mustards, " modified starch " food additives, " binders " in many pills, etc.), AF came on and continues. Fortunately I was never a big bread or cake or pasta eater, so missing out on gluten isn't too bad. Worth a try, though, for you because we're all different. Good luck. Kathleen > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 -snip...... In the meantime, he said I might want to try > a gluten-free diet, which has helped a couple of his patients. Has anyone > on the list benefited from a gluten-free diet? (I am aware of a couple of > folks who have written about going dairy-free.)....snip Several years before AF, I was diagnosed with adult-onset celiac disease, a person who cannot tolerate wheat, oats, rye or barley - no gluten. Despite being as faithful as possible to the gluten free diet (wheat hides everywhere: soy sauce, many mustards, " modified starch " food additives, " binders " in many pills, etc.), AF came on and continues. Fortunately I was never a big bread or cake or pasta eater, so missing out on gluten isn't too bad. Worth a try, though, for you because we're all different. Good luck. Kathleen > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 Kathleen, Wow, I had no idea! I really appreciate your reply. Gluten-free sounds really challenging‹I have always been a big bread & pasta eater. Many thanks. -- Kathleen Stept (Dofetilide 250mcg bid, Diltiazem 120 mg, Coumadin 5mg), , Mississippi > -snip...... In the meantime, he said I might want to try >> > a gluten-free diet, which has helped a couple of his patients. Has anyone >> > on the list benefited from a gluten-free diet? (I am aware of a couple of >> > folks who have written about going dairy-free.)....snip > > Several years before AF, I was diagnosed with adult-onset celiac disease, a > person who cannot tolerate wheat, oats, rye or barley - no gluten. Despite > being as faithful as possible to the gluten free diet (wheat hides everywhere: > soy sauce, many mustards, " modified starch " food additives, " binders " in many > pills, etc.), AF came on and continues. Fortunately I was never a big bread or > cake or pasta eater, so missing out on gluten isn't too bad. Worth a try, > though, > for you because we're all different. Good luck. Kathleen >> > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 Kathleen, Wow, I had no idea! I really appreciate your reply. Gluten-free sounds really challenging‹I have always been a big bread & pasta eater. Many thanks. -- Kathleen Stept (Dofetilide 250mcg bid, Diltiazem 120 mg, Coumadin 5mg), , Mississippi > -snip...... In the meantime, he said I might want to try >> > a gluten-free diet, which has helped a couple of his patients. Has anyone >> > on the list benefited from a gluten-free diet? (I am aware of a couple of >> > folks who have written about going dairy-free.)....snip > > Several years before AF, I was diagnosed with adult-onset celiac disease, a > person who cannot tolerate wheat, oats, rye or barley - no gluten. Despite > being as faithful as possible to the gluten free diet (wheat hides everywhere: > soy sauce, many mustards, " modified starch " food additives, " binders " in many > pills, etc.), AF came on and continues. Fortunately I was never a big bread or > cake or pasta eater, so missing out on gluten isn't too bad. Worth a try, > though, > for you because we're all different. Good luck. Kathleen >> > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2004 Report Share Posted August 15, 2004 > Wow, I had no idea! I really appreciate your reply. Gluten-free sounds > really challenging‹I have always been a big bread & pasta eater. Many > thanks. > -- > Kathleen Stept (Dofetilide 250mcg bid, Diltiazem 120 mg, Coumadin 5mg), > , Mississippi It's been years since I studied gluten web sites, but there are celiac supp= ort groups all over the country, and there is, as usual, loads of info on the c= eliac and/or gluten-free web sites. " Pamela's " produces great gluten-free cookie= s (try Pecan Shortbread), there are gluten-free pastas at Whole Foods and oth= er stores, gluten-free cookbooks, etc. The gluten for celiacs is sort of like= AF, it's rarely life-threatening like a strong allergy would be, but just something = you have to become aware of and then go about a normal life. Good luck. Kathleen (chronic, permanent AF 15 months, digoxin, atenolol, coumadin, and= some lasix). > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2004 Report Share Posted August 15, 2004 > Wow, I had no idea! I really appreciate your reply. Gluten-free sounds > really challenging‹I have always been a big bread & pasta eater. Many > thanks. > -- > Kathleen Stept (Dofetilide 250mcg bid, Diltiazem 120 mg, Coumadin 5mg), > , Mississippi It's been years since I studied gluten web sites, but there are celiac supp= ort groups all over the country, and there is, as usual, loads of info on the c= eliac and/or gluten-free web sites. " Pamela's " produces great gluten-free cookie= s (try Pecan Shortbread), there are gluten-free pastas at Whole Foods and oth= er stores, gluten-free cookbooks, etc. The gluten for celiacs is sort of like= AF, it's rarely life-threatening like a strong allergy would be, but just something = you have to become aware of and then go about a normal life. Good luck. Kathleen (chronic, permanent AF 15 months, digoxin, atenolol, coumadin, and= some lasix). > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2004 Report Share Posted August 15, 2004 > Wow, I had no idea! I really appreciate your reply. Gluten-free sounds > really challenging‹I have always been a big bread & pasta eater. Many > thanks. > -- > Kathleen Stept (Dofetilide 250mcg bid, Diltiazem 120 mg, Coumadin 5mg), > , Mississippi It's been years since I studied gluten web sites, but there are celiac supp= ort groups all over the country, and there is, as usual, loads of info on the c= eliac and/or gluten-free web sites. " Pamela's " produces great gluten-free cookie= s (try Pecan Shortbread), there are gluten-free pastas at Whole Foods and oth= er stores, gluten-free cookbooks, etc. The gluten for celiacs is sort of like= AF, it's rarely life-threatening like a strong allergy would be, but just something = you have to become aware of and then go about a normal life. Good luck. Kathleen (chronic, permanent AF 15 months, digoxin, atenolol, coumadin, and= some lasix). > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2004 Report Share Posted August 15, 2004 > > > Wow, I had no idea! I really appreciate your reply. Gluten-free sounds > > really challenging‹ What are the symptoms of a gluten problem other than possible afib? Is there anyway to know that it might be a problem and how long one has to stay off it to see if it helps? (already dairy, chocoate, caffiene, alcohol free, etc. sigh.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2004 Report Share Posted August 15, 2004 > > > Wow, I had no idea! I really appreciate your reply. Gluten-free sounds > > really challenging‹ What are the symptoms of a gluten problem other than possible afib? Is there anyway to know that it might be a problem and how long one has to stay off it to see if it helps? (already dairy, chocoate, caffiene, alcohol free, etc. sigh.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2004 Report Share Posted August 15, 2004 > > > Wow, I had no idea! I really appreciate your reply. Gluten-free sounds > > really challenging‹ What are the symptoms of a gluten problem other than possible afib? Is there anyway to know that it might be a problem and how long one has to stay off it to see if it helps? (already dairy, chocoate, caffiene, alcohol free, etc. sigh.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 > What are the symptoms of a gluten problem other than possible afib? > Is there anyway to know that it might be a problem and how long one > has to stay off it to see if it helps? > > (already dairy, chocoate, caffiene, alcohol free, etc. sigh.) Coeliac (pronounced see-lee-ack) disease symptoms include diarrhea, vomiting, weight loss, anemia, fatigue, recurrent mouth ulcers and others. Symptoms of wheat allergy include persistent digestive upsets, fatigue, joint pain, asthma, rhinitis and skin complaints. Conditions that can be alleviated by going gluten-free include dermatitis herpetiformis, multiple sclerosis, rheumatoid arthritis and Crohn¹s disease. In the literature I have seen so far, afib is not mentioned. -- Kathleen Stept (Dofetilide 250mcg bid, Diltiazem 120 mg, Coumadin 5mg, baby aspirin), , Mississippi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 > What are the symptoms of a gluten problem other than possible afib? > Is there anyway to know that it might be a problem and how long one > has to stay off it to see if it helps? > > (already dairy, chocoate, caffiene, alcohol free, etc. sigh.) Coeliac (pronounced see-lee-ack) disease symptoms include diarrhea, vomiting, weight loss, anemia, fatigue, recurrent mouth ulcers and others. Symptoms of wheat allergy include persistent digestive upsets, fatigue, joint pain, asthma, rhinitis and skin complaints. Conditions that can be alleviated by going gluten-free include dermatitis herpetiformis, multiple sclerosis, rheumatoid arthritis and Crohn¹s disease. In the literature I have seen so far, afib is not mentioned. -- Kathleen Stept (Dofetilide 250mcg bid, Diltiazem 120 mg, Coumadin 5mg, baby aspirin), , Mississippi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 > What are the symptoms of a gluten problem other than possible afib? > Is there anyway to know that it might be a problem and how long one > has to stay off it to see if it helps? > > (already dairy, chocoate, caffiene, alcohol free, etc. sigh.) Coeliac (pronounced see-lee-ack) disease symptoms include diarrhea, vomiting, weight loss, anemia, fatigue, recurrent mouth ulcers and others. Symptoms of wheat allergy include persistent digestive upsets, fatigue, joint pain, asthma, rhinitis and skin complaints. Conditions that can be alleviated by going gluten-free include dermatitis herpetiformis, multiple sclerosis, rheumatoid arthritis and Crohn¹s disease. In the literature I have seen so far, afib is not mentioned. -- Kathleen Stept (Dofetilide 250mcg bid, Diltiazem 120 mg, Coumadin 5mg, baby aspirin), , Mississippi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 (snip) Gluten-free sounds really challenging. > > What are the symptoms of a gluten problem other than possible afib? > Is there anyway to know that it might be a problem and how long one > has to stay off it to see if it helps? > > (already dairy, chocoate, caffiene, alcohol free, etc. sigh.) I agree with in Portland --- while celiac disease is common (maybe 1 of 133), and serious; there is no documented link to afib. There is a quick and easy blood test for celiac disease. So before embarking on six months of a very difficult diet, if you suspect celiac, you may just want to get a blood test. I quote from www.celiac.com: " Testing is fairly simple and involves screening the patient's blood for antigliadin (AGA) and endomysium antibodies (EmA), and/or doing a biopsy on the areas of the intestines mentioned above, which is still the standard for a formal diagnosis. " H, Charlotte NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 (snip) Gluten-free sounds really challenging. > > What are the symptoms of a gluten problem other than possible afib? > Is there anyway to know that it might be a problem and how long one > has to stay off it to see if it helps? > > (already dairy, chocoate, caffiene, alcohol free, etc. sigh.) I agree with in Portland --- while celiac disease is common (maybe 1 of 133), and serious; there is no documented link to afib. There is a quick and easy blood test for celiac disease. So before embarking on six months of a very difficult diet, if you suspect celiac, you may just want to get a blood test. I quote from www.celiac.com: " Testing is fairly simple and involves screening the patient's blood for antigliadin (AGA) and endomysium antibodies (EmA), and/or doing a biopsy on the areas of the intestines mentioned above, which is still the standard for a formal diagnosis. " H, Charlotte NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 (snip) Gluten-free sounds really challenging. > > What are the symptoms of a gluten problem other than possible afib? > Is there anyway to know that it might be a problem and how long one > has to stay off it to see if it helps? > > (already dairy, chocoate, caffiene, alcohol free, etc. sigh.) I agree with in Portland --- while celiac disease is common (maybe 1 of 133), and serious; there is no documented link to afib. There is a quick and easy blood test for celiac disease. So before embarking on six months of a very difficult diet, if you suspect celiac, you may just want to get a blood test. I quote from www.celiac.com: " Testing is fairly simple and involves screening the patient's blood for antigliadin (AGA) and endomysium antibodies (EmA), and/or doing a biopsy on the areas of the intestines mentioned above, which is still the standard for a formal diagnosis. " H, Charlotte NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 on Sat, 14 Aug 2004 at 13:07:19, Kathleen Stept wrote : >I saw my EP yesterday. He is to the point where he thinks ablation is the >next step. I certainly wasn¹t ready to make THAT decision, however! It's not so bad, actually! It saved /my/ life ! Far preferable to AF. >In the meantime, he said I might want to try >a gluten-free diet, which has helped a couple of his patients. Has anyone >on the list benefited from a gluten-free diet? (I am aware of a couple of >folks who have written about going dairy-free.) Gastric problems were a lot to do with my AF. Once I finally sorted out I had a wheat intolerance, the opposite to what I expected happened - see http://www.vagalafibinfo.fsnet.co.uk/Review.htm >Also, I am interested in finding out if anyone else on the list has tried >the ³Eat Right for Your Type² diet, the blood type diet developed by >J. D¹Adamo. I found this did nothing for me. Best of health to all, Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 on Sat, 14 Aug 2004 at 13:07:19, Kathleen Stept wrote : >I saw my EP yesterday. He is to the point where he thinks ablation is the >next step. I certainly wasn¹t ready to make THAT decision, however! It's not so bad, actually! It saved /my/ life ! Far preferable to AF. >In the meantime, he said I might want to try >a gluten-free diet, which has helped a couple of his patients. Has anyone >on the list benefited from a gluten-free diet? (I am aware of a couple of >folks who have written about going dairy-free.) Gastric problems were a lot to do with my AF. Once I finally sorted out I had a wheat intolerance, the opposite to what I expected happened - see http://www.vagalafibinfo.fsnet.co.uk/Review.htm >Also, I am interested in finding out if anyone else on the list has tried >the ³Eat Right for Your Type² diet, the blood type diet developed by >J. D¹Adamo. I found this did nothing for me. Best of health to all, Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Hi, Vicky! How did you figure out that you have a wheat intolerance? Kathleen P.S. I haven¹t gotten to the web site yet, which probably contains the answer to my question. If so, I apologize! > > Gastric problems were a lot to do with my AF. Once I finally sorted out > I had a wheat intolerance, the opposite to what I expected happened - > see > http://www.vagalafibinfo.fsnet.co.uk/Review.htm > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Hi, Vicky! How did you figure out that you have a wheat intolerance? Kathleen P.S. I haven¹t gotten to the web site yet, which probably contains the answer to my question. If so, I apologize! > > Gastric problems were a lot to do with my AF. Once I finally sorted out > I had a wheat intolerance, the opposite to what I expected happened - > see > http://www.vagalafibinfo.fsnet.co.uk/Review.htm > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 is correct about the diagnoses for celiac; the blood tests are reasonably good but they miss some cases; the " gold standard " is the intestinal biopsy - sounds gruesome but it's not, it's out-patient, somewhat similar to a colonoscopy but from the other end!! No particular discomfort normally. Symptoms in my case were continuing and worsening stomach-area pain, sometimes nausea, not easily pegged to anything. Some people get brown marks on their skin, arms especially. The issue with gluten sensitivity is not short term, though, the real problem is a long-term deterioration of intestinal tissue (hence the intestinal biopsy for diagnosis). It's not like a shellfish or peanut allergy, where you are at instant risk of dying (though a few celiacs may be unusually sensitive). It's an insidious long-term process. For many of us, only if we somehow take in a large quantity of gluten, say a couple of slices of bread or equivalent, do we get pain. And I agree, I've never seen or heard of any links to AF. Best. Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 is correct about the diagnoses for celiac; the blood tests are reasonably good but they miss some cases; the " gold standard " is the intestinal biopsy - sounds gruesome but it's not, it's out-patient, somewhat similar to a colonoscopy but from the other end!! No particular discomfort normally. Symptoms in my case were continuing and worsening stomach-area pain, sometimes nausea, not easily pegged to anything. Some people get brown marks on their skin, arms especially. The issue with gluten sensitivity is not short term, though, the real problem is a long-term deterioration of intestinal tissue (hence the intestinal biopsy for diagnosis). It's not like a shellfish or peanut allergy, where you are at instant risk of dying (though a few celiacs may be unusually sensitive). It's an insidious long-term process. For many of us, only if we somehow take in a large quantity of gluten, say a couple of slices of bread or equivalent, do we get pain. And I agree, I've never seen or heard of any links to AF. Best. Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 is correct about the diagnoses for celiac; the blood tests are reasonably good but they miss some cases; the " gold standard " is the intestinal biopsy - sounds gruesome but it's not, it's out-patient, somewhat similar to a colonoscopy but from the other end!! No particular discomfort normally. Symptoms in my case were continuing and worsening stomach-area pain, sometimes nausea, not easily pegged to anything. Some people get brown marks on their skin, arms especially. The issue with gluten sensitivity is not short term, though, the real problem is a long-term deterioration of intestinal tissue (hence the intestinal biopsy for diagnosis). It's not like a shellfish or peanut allergy, where you are at instant risk of dying (though a few celiacs may be unusually sensitive). It's an insidious long-term process. For many of us, only if we somehow take in a large quantity of gluten, say a couple of slices of bread or equivalent, do we get pain. And I agree, I've never seen or heard of any links to AF. Best. Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 on Mon, 16 Aug 2004 at 22:07:16, Kathleen Stept wrote : >Hi, Vicky! How did you figure out that you have a wheat intolerance? Tried cutting out all wheat products (this was 3 years after trying everything else!), then after a few months (it takes ages) I tried some bread, and my insides hurt like heck Best of health to all, Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 on Mon, 16 Aug 2004 at 22:07:16, Kathleen Stept wrote : >Hi, Vicky! How did you figure out that you have a wheat intolerance? Tried cutting out all wheat products (this was 3 years after trying everything else!), then after a few months (it takes ages) I tried some bread, and my insides hurt like heck Best of health to all, Vicky Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.