Re: question from a newbie

[Guest guest]

Hi

My daughter took reglan for a few weeks and it caused CNS problems

(flutterring of her hands, etc.) We tried prilosec, which really didn't help as

it just

lowers acid. Then several people on this website suggested digestive enzymes

from the health food store. Guess what? No gagging or vomiting for 2

weeks!! I give her about 1/2 of the powder in a little bit of water just before

eating (don't use warm water - it kills the enzymes).

Good luck,

Heidi, future occupational therapist and single mom to (IS,

Severely/Multiply Impaired) and twin brother, (4 years), and big sis

Madison (6).

[Guest guest]

Heidi,

I am thrilled to read that has been helped by the digestive enzymes!

What a relief to you and ! Here's hoping that will continue to

get better.

Rhonda

Hi

My daughter took reglan for a few weeks and it caused CNS problems

(flutterring of her hands, etc.) We tried prilosec, which really didn't

help as it just

lowers acid. Then several people on this website suggested digestive

enzymes

from the health food store. Guess what? No gagging or vomiting for 2

weeks!! I give her about 1/2 of the powder in a little bit of water just

before

eating (don't use warm water - it kills the enzymes).

Good luck,

[Guest guest]

Heidi,

I am thrilled to read that has been helped by the digestive enzymes!

What a relief to you and ! Here's hoping that will continue to

get better.

Rhonda

Hi

My daughter took reglan for a few weeks and it caused CNS problems

(flutterring of her hands, etc.) We tried prilosec, which really didn't

help as it just

lowers acid. Then several people on this website suggested digestive

enzymes

from the health food store. Guess what? No gagging or vomiting for 2

weeks!! I give her about 1/2 of the powder in a little bit of water just

before

eating (don't use warm water - it kills the enzymes).

Good luck,

[Guest guest]

Heidi,

I am thrilled to read that has been helped by the digestive enzymes!

What a relief to you and ! Here's hoping that will continue to

get better.

Rhonda

Hi

My daughter took reglan for a few weeks and it caused CNS problems

(flutterring of her hands, etc.) We tried prilosec, which really didn't

help as it just

lowers acid. Then several people on this website suggested digestive

enzymes

from the health food store. Guess what? No gagging or vomiting for 2

weeks!! I give her about 1/2 of the powder in a little bit of water just

before

eating (don't use warm water - it kills the enzymes).

Good luck,

[Guest guest]

I would certainly raise up the head of the bed to help with sleeping and

reflux. Also, you might try giving a small amount of soda water at the

end of meals to get relief.

Bill

tflourie@... wrote:

> Well, I'm not *exactly* a newbie...this is our third go-round on the diet for

> my 17 year old son Skyler, who has *suffered* w/intractable seizures for 13

> years. Having recently gotten a g-tube (Skyler, unfortunately developed

> another horrific disorder a little over a year ago: Myasthenia Gravis), this

is our

> first time on the diet via tube.

> We are using RCF + Microlipids + Polycose. At least by day, Skyler is

> tolerating the formula well. Ketones are good and seizure control is already

better.

> But...we are having some 'stomach' issues.

>

> For a couple of nights in a row, Skyler had episodes of vomiting during

> sleep. Coupled w/some other symptoms (unusual lethargy, tachycardia,

flushing),

> though he's not hypoglycemic, and the fact that his ketostix go BLACK even

first

> thing in the morning, yesterday we reduced his ratio from 3.5:1 to 3:1.

>

> Now, he is having prolonged episodes of ferocious hiccuping!

>

> My questions to the group are:

> 1. Any experience w/vomiting in sleep?

> 2. Any experience w/major hiccups?

> 3. Anyone ever used a med to speed gastric emptying? G-I doc suggested

> Reglan, but I said no. Then suggested erythromycin (yes, an antibiotic!).

>

> We were on Prevacid but switched to Prilosec which interacted w/Clobazam (a

> valium type drug) and made him drunk.

> 4. Do any of your kids take either of these...or maybe zantac?

>

> I have already read several posts and archives and look forward to becoming a

> part of this informed and supportive group.

> Thanks in advance.

> Tracey

>

>

>