Guest guest Posted February 22, 2004 Report Share Posted February 22, 2004 Hi my names is Fiona, and I have a son Keelan who is nearly five and has SMEI. He has been on the MCT Keto diet for three weeks now and we have had to slow down the introduction of MCT oil as it was giving him diarreheao. The question I would like to ask is that we have Keelan's ketones up to 8 in the evening but he is still seizing in the night, should this be happenning?, does this suggest that the diet make not work for Keelan? fiona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 Hi my son Mike (then 4) started on the MCT version of the diet and after three weeks was sick - diarrhea or vomitting after every meal - so we changed over to the MCT/cream mixed diet and that proved to be the right way to go for him. It was not until we totally weaned his dilantin that we saw some positive results in seizure control (took us 9 months) and it has taken us almost 3 yrs to get to where we are now (which until an hour ago was seizure free over two months, but I did a reduction again today and this evening it has all hit the fan with yet another seizure type - so not sure yet whether I will brave this seizure wave and keep up with the reduction or if I will put it back in the am - ugh - truely hate this Anyway, it might take a bit longer for your son's metabolism to adjust to the change the diet makes and to accept using ketones for fuel. My son would have good ketones at night in the beginning, then would seize during the nite and have low ketones in the am - this eventually worked itself out. Jenn MCT Hi my names is Fiona, and I have a son Keelan who is nearly five and has SMEI. He has been on the MCT Keto diet for three weeks now and we have had to slow down the introduction of MCT oil as it was giving him diarreheao. The question I would like to ask is that we have Keelan's ketones up to 8 in the evening but he is still seizing in the night, should this be happenning?, does this suggest that the diet make not work for Keelan? fiona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 Fiona, If he has diarhea, he isn't diggesting the food properly. The diet isn't totally effective when this is occurring. Often ketones have to be 16 in the evening for the diet to work. It is too soon to tell if the diet is going to work or not. Most people give it at least 6 month trial. You will have to do fine tuning to get the best results. Bill glenn3682 wrote: > Hi my names is Fiona, and I have a son Keelan who is nearly five and > has SMEI. He has been on the MCT Keto diet for three weeks now and > we have had to slow down the introduction of MCT oil as it was > giving him diarreheao. The question I would like to ask is that we > have Keelan's ketones up to 8 in the evening but he is still seizing > in the night, should this be happenning?, does this suggest that the > diet make not work for Keelan? fiona > > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 Fiona, If he has diarhea, he isn't diggesting the food properly. The diet isn't totally effective when this is occurring. Often ketones have to be 16 in the evening for the diet to work. It is too soon to tell if the diet is going to work or not. Most people give it at least 6 month trial. You will have to do fine tuning to get the best results. Bill glenn3682 wrote: > Hi my names is Fiona, and I have a son Keelan who is nearly five and > has SMEI. He has been on the MCT Keto diet for three weeks now and > we have had to slow down the introduction of MCT oil as it was > giving him diarreheao. The question I would like to ask is that we > have Keelan's ketones up to 8 in the evening but he is still seizing > in the night, should this be happenning?, does this suggest that the > diet make not work for Keelan? fiona > > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > Quote Link to comment Share on other sites More sharing options...
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