Guest guest Posted November 27, 2005 Report Share Posted November 27, 2005 Thanks for the feedback. I know the alternative of looking for veins is not a good option for me, especially since I'm looking at 1+ years of chemo. I just hope it works - since I've read that there can be problems accessing it. Did you need 2 ports because one didn't work? - Elaine wrote on 11/27/2005, 10:28 PM: > ---oops, forgot to say that this was a reply to Wayne's post > > > In breastcancer2 , " Elaine " <button49@h...> wrote: > > > > --- > > How nice of you to look up that info on portacaths....But I think > it > > would be more appropiate for someone who actually has/had one to > > give advice and share experiences. Yes, I had not one, but two > > ports, and I was aware of them ALL THE TIME....but it was > something > > that I needed to have to help me fight the dragon, and I lived > with > > it. I would have one again, if necessary. > > > > Elaine, > > (8 year survivor) > > > > > > > > In breastcancer2 , Wayneho Kam <wakam007@y...> > wrote: > > > > > > You may feel a bit sore and bruised for a few days after the > port > > is put in. But as for just being aware of it, I think it's fine. > If > > you notice any redness, swelling, bleeding, bruising, pain or heat > > around the wounds, let your doctor know. I read somewhere that at > > first before you get used to it, I think you are always aware of > it > > and after a while it is just part of you. According to the > National > > Cancer Institute, " Catheters, ports, and pumps cause no pain if > they > > are properly placed and cared for, although a person is aware they > > are there. " > > > > > > Best regards, > > > Wayne > > > > > > & nne Svihlik <moochie1@a...> wrote: > > > Hi and welcome to the group. I did not have a > > port so can't help you out. I will keep you in my prayers. > > > Hugs > > > nne > > > Breast Cancer Patients Soul Mates for Life > > > http://www.geocities.com/chucky5741/breastcancerpatients.html > > > > > > Check out my breast cancer ornaments at: > > > http://www.geocities.com/chucky5741/bcornament.html > > > also check out my other ornaments and lots of nice gifts at: > > > http://www.cancerclub.com > > > Re: Posting--response > > > > > > > > > > > > > > > > > > Why is no one here using a portacath? > > > > > > > > > > > > The Surgeon and the Onc didn't give me an option. They > > said > > > > the > > > > > portacath > > > > > > was the only way to go when receiving chemotherapy. > > > > > > > > > > > > This floors me that it sounds like so many of you have > not > > > > been > > > > > offered or > > > > > > maybe not chosen the portacath. > > > > > > > > > > > > Dari > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2005 Report Share Posted November 27, 2005 Thanks for the feedback. I know the alternative of looking for veins is not a good option for me, especially since I'm looking at 1+ years of chemo. I just hope it works - since I've read that there can be problems accessing it. Did you need 2 ports because one didn't work? - Elaine wrote on 11/27/2005, 10:28 PM: > ---oops, forgot to say that this was a reply to Wayne's post > > > In breastcancer2 , " Elaine " <button49@h...> wrote: > > > > --- > > How nice of you to look up that info on portacaths....But I think > it > > would be more appropiate for someone who actually has/had one to > > give advice and share experiences. Yes, I had not one, but two > > ports, and I was aware of them ALL THE TIME....but it was > something > > that I needed to have to help me fight the dragon, and I lived > with > > it. I would have one again, if necessary. > > > > Elaine, > > (8 year survivor) > > > > > > > > In breastcancer2 , Wayneho Kam <wakam007@y...> > wrote: > > > > > > You may feel a bit sore and bruised for a few days after the > port > > is put in. But as for just being aware of it, I think it's fine. > If > > you notice any redness, swelling, bleeding, bruising, pain or heat > > around the wounds, let your doctor know. I read somewhere that at > > first before you get used to it, I think you are always aware of > it > > and after a while it is just part of you. According to the > National > > Cancer Institute, " Catheters, ports, and pumps cause no pain if > they > > are properly placed and cared for, although a person is aware they > > are there. " > > > > > > Best regards, > > > Wayne > > > > > > & nne Svihlik <moochie1@a...> wrote: > > > Hi and welcome to the group. I did not have a > > port so can't help you out. I will keep you in my prayers. > > > Hugs > > > nne > > > Breast Cancer Patients Soul Mates for Life > > > http://www.geocities.com/chucky5741/breastcancerpatients.html > > > > > > Check out my breast cancer ornaments at: > > > http://www.geocities.com/chucky5741/bcornament.html > > > also check out my other ornaments and lots of nice gifts at: > > > http://www.cancerclub.com > > > Re: Posting--response > > > > > > > > > > > > > > > > > > Why is no one here using a portacath? > > > > > > > > > > > > The Surgeon and the Onc didn't give me an option. They > > said > > > > the > > > > > portacath > > > > > > was the only way to go when receiving chemotherapy. > > > > > > > > > > > > This floors me that it sounds like so many of you have > not > > > > been > > > > > offered or > > > > > > maybe not chosen the portacath. > > > > > > > > > > > > Dari > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2005 Report Share Posted November 27, 2005 Thanks for the feedback. I know the alternative of looking for veins is not a good option for me, especially since I'm looking at 1+ years of chemo. I just hope it works - since I've read that there can be problems accessing it. Did you need 2 ports because one didn't work? - Elaine wrote on 11/27/2005, 10:28 PM: > ---oops, forgot to say that this was a reply to Wayne's post > > > In breastcancer2 , " Elaine " <button49@h...> wrote: > > > > --- > > How nice of you to look up that info on portacaths....But I think > it > > would be more appropiate for someone who actually has/had one to > > give advice and share experiences. Yes, I had not one, but two > > ports, and I was aware of them ALL THE TIME....but it was > something > > that I needed to have to help me fight the dragon, and I lived > with > > it. I would have one again, if necessary. > > > > Elaine, > > (8 year survivor) > > > > > > > > In breastcancer2 , Wayneho Kam <wakam007@y...> > wrote: > > > > > > You may feel a bit sore and bruised for a few days after the > port > > is put in. But as for just being aware of it, I think it's fine. > If > > you notice any redness, swelling, bleeding, bruising, pain or heat > > around the wounds, let your doctor know. I read somewhere that at > > first before you get used to it, I think you are always aware of > it > > and after a while it is just part of you. According to the > National > > Cancer Institute, " Catheters, ports, and pumps cause no pain if > they > > are properly placed and cared for, although a person is aware they > > are there. " > > > > > > Best regards, > > > Wayne > > > > > > & nne Svihlik <moochie1@a...> wrote: > > > Hi and welcome to the group. I did not have a > > port so can't help you out. I will keep you in my prayers. > > > Hugs > > > nne > > > Breast Cancer Patients Soul Mates for Life > > > http://www.geocities.com/chucky5741/breastcancerpatients.html > > > > > > Check out my breast cancer ornaments at: > > > http://www.geocities.com/chucky5741/bcornament.html > > > also check out my other ornaments and lots of nice gifts at: > > > http://www.cancerclub.com > > > Re: Posting--response > > > > > > > > > > > > > > > > > > Why is no one here using a portacath? > > > > > > > > > > > > The Surgeon and the Onc didn't give me an option. They > > said > > > > the > > > > > portacath > > > > > > was the only way to go when receiving chemotherapy. > > > > > > > > > > > > This floors me that it sounds like so many of you have > not > > > > been > > > > > offered or > > > > > > maybe not chosen the portacath. > > > > > > > > > > > > Dari > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2005 Report Share Posted November 27, 2005 I had a portacath - was a godsend with A/C - since 23 lymph nodes removed on left side, only one arm left for veins, so I was told this is what I had to do...it worked like a charm! Best, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2005 Report Share Posted November 27, 2005 I had a portacath - was a godsend with A/C - since 23 lymph nodes removed on left side, only one arm left for veins, so I was told this is what I had to do...it worked like a charm! Best, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 > > > > > > > > > > > > > > I asked about the porta cath. The Onc said that they only > > > use > > > > > > those if you > > > > > > > are going to be undergoing long term treatments because > > they > > > are > > > > > > not without > > > > > > > problems and they are sometimes painful to have inserted. > > I > > > am > > > > > > only > > > > > > > supposed to do 6 treatments and hopefully that will be the > > > end > > > > > of > > > > > > it, then > > > > > > > radiation. If my cancer becomes more serious and they > > think > > > > > they > > > > > > will have > > > > > > > to do long term care or more future treatments then they > > will > > > > > > probably go > > > > > > > with a port at that time. > > > > > > > LICS > > > > > > > June > > > > > > > " The best protection any woman can have...is courage. " > > > > > > > > > Cady > > > > > > > Stanton > > > > > > > Secular Breast Cancer Support group: > > > > > > > http://health.groups.yahoo.com/group/SecularBCSupport/ > > > > > > > > > > > > > > Re: Posting--response > > > > > > > > > > > > > > > > > > > > > Why is no one here using a portacath? > > > > > > > > > > > > > > The Surgeon and the Onc didn't give me an option. They > > > said > > > > > the > > > > > > portacath > > > > > > > was the only way to go when receiving chemotherapy. > > > > > > > > > > > > > > This floors me that it sounds like so many of you have > > not > > > > > been > > > > > > offered or > > > > > > > maybe not chosen the portacath. > > > > > > > > > > > > > > Dari > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 > > > > > > > > > > > > > > I asked about the porta cath. The Onc said that they only > > > use > > > > > > those if you > > > > > > > are going to be undergoing long term treatments because > > they > > > are > > > > > > not without > > > > > > > problems and they are sometimes painful to have inserted. > > I > > > am > > > > > > only > > > > > > > supposed to do 6 treatments and hopefully that will be the > > > end > > > > > of > > > > > > it, then > > > > > > > radiation. If my cancer becomes more serious and they > > think > > > > > they > > > > > > will have > > > > > > > to do long term care or more future treatments then they > > will > > > > > > probably go > > > > > > > with a port at that time. > > > > > > > LICS > > > > > > > June > > > > > > > " The best protection any woman can have...is courage. " > > > > > > > > > Cady > > > > > > > Stanton > > > > > > > Secular Breast Cancer Support group: > > > > > > > http://health.groups.yahoo.com/group/SecularBCSupport/ > > > > > > > > > > > > > > Re: Posting--response > > > > > > > > > > > > > > > > > > > > > Why is no one here using a portacath? > > > > > > > > > > > > > > The Surgeon and the Onc didn't give me an option. They > > > said > > > > > the > > > > > > portacath > > > > > > > was the only way to go when receiving chemotherapy. > > > > > > > > > > > > > > This floors me that it sounds like so many of you have > > not > > > > > been > > > > > > offered or > > > > > > > maybe not chosen the portacath. > > > > > > > > > > > > > > Dari > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 > > > > > > > > > > > > > > I asked about the porta cath. The Onc said that they only > > > use > > > > > > those if you > > > > > > > are going to be undergoing long term treatments because > > they > > > are > > > > > > not without > > > > > > > problems and they are sometimes painful to have inserted. > > I > > > am > > > > > > only > > > > > > > supposed to do 6 treatments and hopefully that will be the > > > end > > > > > of > > > > > > it, then > > > > > > > radiation. If my cancer becomes more serious and they > > think > > > > > they > > > > > > will have > > > > > > > to do long term care or more future treatments then they > > will > > > > > > probably go > > > > > > > with a port at that time. > > > > > > > LICS > > > > > > > June > > > > > > > " The best protection any woman can have...is courage. " > > > > > > > > > Cady > > > > > > > Stanton > > > > > > > Secular Breast Cancer Support group: > > > > > > > http://health.groups.yahoo.com/group/SecularBCSupport/ > > > > > > > > > > > > > > Re: Posting--response > > > > > > > > > > > > > > > > > > > > > Why is no one here using a portacath? > > > > > > > > > > > > > > The Surgeon and the Onc didn't give me an option. They > > > said > > > > > the > > > > > > portacath > > > > > > > was the only way to go when receiving chemotherapy. > > > > > > > > > > > > > > This floors me that it sounds like so many of you have > > not > > > > > been > > > > > > offered or > > > > > > > maybe not chosen the portacath. > > > > > > > > > > > > > > Dari > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 ...my name is Donna and I had a port put in June of '04 for chemo and I still have it. I have had no trouble with it. I have it flushed every six weeks and I am just waiting until I have all my surgeries over before I have it removed. I don't even know I have it most of the time. It was much better for treatment. Donna wrote: Thanks for the feedback.I know the alternative of looking for veins is not a good option for me, especially since I'm looking at 1+ years of chemo.I just hope it works - since I've read that there can be problems accessing it.Did you need 2 ports because one didn't work?- Elaine wrote on 11/27/2005, 10:28 PM:> ---oops, forgot to say that this was a reply to Wayne's post>>> In breastcancer2 , "Elaine" <button49@h...> wrote:> >> > ---> > How nice of you to look up that info on portacaths....But I think> it> > would be more appropiate for someone who actually has/had one to> > give advice and share experiences. Yes, I had not one, but two> > ports, and I was aware of them ALL THE TIME....but it was> something> > that I needed to have to help me fight the dragon, and I lived> with> > it. I would have one again, if necessary.> >> > Elaine,> > (8 year survivor)> >> >> >> > In breastcancer2 , Wayneho Kam <wakam007@y...>> wrote:> > >> > > You may feel a bit sore and bruised for a few days after the> port> > is put in. But as for just being aware of it, I think it's fine.> If> > you notice any redness, swelling, bleeding, bruising, pain or heat> > around the wounds, let your doctor know. I read somewhere that at> > first before you get used to it, I think you are always aware of> it> > and after a while it is just part of you. According to the> National> > Cancer Institute, "Catheters, ports, and pumps cause no pain if> they> > are properly placed and cared for, although a person is aware they> > are there."> > >> > > Best regards,> > > Wayne> > >> > > & nne Svihlik <moochie1@a...> wrote:> > > Hi and welcome to the group. I did not have a> > port so can't help you out. I will keep you in my prayers.> > > Hugs> > > nne> > > Breast Cancer Patients Soul Mates for Life> > > http://www.geocities.com/chucky5741/breastcancerpatients.html> > >> > > Check out my breast cancer ornaments at:> > > http://www.geocities.com/chucky5741/bcornament.html> > > also check out my other ornaments and lots of nice gifts at:> > > http://www.cancerclub.com> > > Re: Posting--response> > > > > >> > > > > >> > > > > > Why is no one here using a portacath?> > > > > >> > > > > > The Surgeon and the Onc didn't give me an option. They> > said> > > > the> > > > > portacath> > > > > > was the only way to go when receiving chemotherapy.> > > > > >> > > > > > This floors me that it sounds like so many of you have> not> > > > been> > > > > offered or> > > > > > maybe not chosen the portacath.> > > > > >> > > > > > Dari> > >> > >> > >> > >> LIFE IS WHAT YOU MAKE IT!! DONNA Yahoo! Personals Single? There's someone we'd like you to meet. Lot's of someone's, actually. Try Yahoo! Personals Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 ...my name is Donna and I had a port put in June of '04 for chemo and I still have it. I have had no trouble with it. I have it flushed every six weeks and I am just waiting until I have all my surgeries over before I have it removed. I don't even know I have it most of the time. It was much better for treatment. Donna wrote: Thanks for the feedback.I know the alternative of looking for veins is not a good option for me, especially since I'm looking at 1+ years of chemo.I just hope it works - since I've read that there can be problems accessing it.Did you need 2 ports because one didn't work?- Elaine wrote on 11/27/2005, 10:28 PM:> ---oops, forgot to say that this was a reply to Wayne's post>>> In breastcancer2 , "Elaine" <button49@h...> wrote:> >> > ---> > How nice of you to look up that info on portacaths....But I think> it> > would be more appropiate for someone who actually has/had one to> > give advice and share experiences. Yes, I had not one, but two> > ports, and I was aware of them ALL THE TIME....but it was> something> > that I needed to have to help me fight the dragon, and I lived> with> > it. I would have one again, if necessary.> >> > Elaine,> > (8 year survivor)> >> >> >> > In breastcancer2 , Wayneho Kam <wakam007@y...>> wrote:> > >> > > You may feel a bit sore and bruised for a few days after the> port> > is put in. But as for just being aware of it, I think it's fine.> If> > you notice any redness, swelling, bleeding, bruising, pain or heat> > around the wounds, let your doctor know. I read somewhere that at> > first before you get used to it, I think you are always aware of> it> > and after a while it is just part of you. According to the> National> > Cancer Institute, "Catheters, ports, and pumps cause no pain if> they> > are properly placed and cared for, although a person is aware they> > are there."> > >> > > Best regards,> > > Wayne> > >> > > & nne Svihlik <moochie1@a...> wrote:> > > Hi and welcome to the group. I did not have a> > port so can't help you out. I will keep you in my prayers.> > > Hugs> > > nne> > > Breast Cancer Patients Soul Mates for Life> > > http://www.geocities.com/chucky5741/breastcancerpatients.html> > >> > > Check out my breast cancer ornaments at:> > > http://www.geocities.com/chucky5741/bcornament.html> > > also check out my other ornaments and lots of nice gifts at:> > > http://www.cancerclub.com> > > Re: Posting--response> > > > > >> > > > > >> > > > > > Why is no one here using a portacath?> > > > > >> > > > > > The Surgeon and the Onc didn't give me an option. They> > said> > > > the> > > > > portacath> > > > > > was the only way to go when receiving chemotherapy.> > > > > >> > > > > > This floors me that it sounds like so many of you have> not> > > > been> > > > > offered or> > > > > > maybe not chosen the portacath.> > > > > >> > > > > > Dari> > >> > >> > >> > >> LIFE IS WHAT YOU MAKE IT!! DONNA Yahoo! Personals Single? There's someone we'd like you to meet. Lot's of someone's, actually. Try Yahoo! Personals Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 ...my name is Donna and I had a port put in June of '04 for chemo and I still have it. I have had no trouble with it. I have it flushed every six weeks and I am just waiting until I have all my surgeries over before I have it removed. I don't even know I have it most of the time. It was much better for treatment. Donna wrote: Thanks for the feedback.I know the alternative of looking for veins is not a good option for me, especially since I'm looking at 1+ years of chemo.I just hope it works - since I've read that there can be problems accessing it.Did you need 2 ports because one didn't work?- Elaine wrote on 11/27/2005, 10:28 PM:> ---oops, forgot to say that this was a reply to Wayne's post>>> In breastcancer2 , "Elaine" <button49@h...> wrote:> >> > ---> > How nice of you to look up that info on portacaths....But I think> it> > would be more appropiate for someone who actually has/had one to> > give advice and share experiences. Yes, I had not one, but two> > ports, and I was aware of them ALL THE TIME....but it was> something> > that I needed to have to help me fight the dragon, and I lived> with> > it. I would have one again, if necessary.> >> > Elaine,> > (8 year survivor)> >> >> >> > In breastcancer2 , Wayneho Kam <wakam007@y...>> wrote:> > >> > > You may feel a bit sore and bruised for a few days after the> port> > is put in. But as for just being aware of it, I think it's fine.> If> > you notice any redness, swelling, bleeding, bruising, pain or heat> > around the wounds, let your doctor know. I read somewhere that at> > first before you get used to it, I think you are always aware of> it> > and after a while it is just part of you. According to the> National> > Cancer Institute, "Catheters, ports, and pumps cause no pain if> they> > are properly placed and cared for, although a person is aware they> > are there."> > >> > > Best regards,> > > Wayne> > >> > > & nne Svihlik <moochie1@a...> wrote:> > > Hi and welcome to the group. I did not have a> > port so can't help you out. I will keep you in my prayers.> > > Hugs> > > nne> > > Breast Cancer Patients Soul Mates for Life> > > http://www.geocities.com/chucky5741/breastcancerpatients.html> > >> > > Check out my breast cancer ornaments at:> > > http://www.geocities.com/chucky5741/bcornament.html> > > also check out my other ornaments and lots of nice gifts at:> > > http://www.cancerclub.com> > > Re: Posting--response> > > > > >> > > > > >> > > > > > Why is no one here using a portacath?> > > > > >> > > > > > The Surgeon and the Onc didn't give me an option. They> > said> > > > the> > > > > portacath> > > > > > was the only way to go when receiving chemotherapy.> > > > > >> > > > > > This floors me that it sounds like so many of you have> not> > > > been> > > > > offered or> > > > > > maybe not chosen the portacath.> > > > > >> > > > > > Dari> > >> > >> > >> > >> LIFE IS WHAT YOU MAKE IT!! DONNA Yahoo! Personals Single? There's someone we'd like you to meet. Lot's of someone's, actually. Try Yahoo! Personals Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 Lots of people have portacaths, probably call them ports however. I had a subclavian catheter, but that was back in the dark ages of 1991. Anything is better than getting stuck over and over. best of luck, Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 Lots of people have portacaths, probably call them ports however. I had a subclavian catheter, but that was back in the dark ages of 1991. Anything is better than getting stuck over and over. best of luck, Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 Hi , mine was inserted the same way....I was very thin and VERY aware of it.......the good side to it was that the nurses said it was always an easy access and quick to find. After you've had it for a while you'll be apt to forget it's there.......I know I would forget about it....that is until I bumped it.........I know it sure felt funny when they took it out cuz I had had it so long........ Darlene wrote: Hi all,I'm new to the group, and will start chemo in December.I had a port put in 10 days ago and I am so aware of it everytime I swallow or bend down (the cathertube was inserted through the neck.)I read somewhere that thin people are more aware of it?Did it take people a while to get use to it? I will need it for more than a year (AC X 4, followed by a year of Herceptin)- avalonpenn wrote on 11/27/2005, 6:14 PM:> So did mine. It really helped to not have needle sticks all the> time, but I hated it. It ached almost constantly for the 8 or 9> months I had it in and I finally insisted that he take it out before> the year he had wanted.>>> > > >> > > I asked about the porta cath. The Onc said that they only use> > those if you> > > are going to be undergoing long term treatments because they are> > not without> > > problems and they are sometimes painful to have inserted. I am> > only> > > supposed to do 6 treatments and hopefully that will be the end> of> > it, then> > > radiation. If my cancer becomes more serious and they think> they> > will have> > > to do long term care or more future treatments then they will> > probably go> > > with a port at that time.> > > LICS> > > June> > > "The best protection any woman can have...is courage." > > Cady> > > Stanton> > > Secular Breast Cancer Support group:> > > http://health.groups.yahoo.com/group/SecularBCSupport/> > >> > > Re: Posting--response> > >> > >> > > Why is no one here using a portacath?> > >> > > The Surgeon and the Onc didn't give me an option. They said> the> > portacath> > > was the only way to go when receiving chemotherapy.> > >> > > This floors me that it sounds like so many of you have not> been> > offered or> > > maybe not chosen the portacath.> > >> > > Dari Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 I did have one and it worked fine with no problemsLucilla wrote: never been offered one :-(fastest2@... wrote: Why is no one here using a portacath?The Surgeon and the Onc didn't give me an option. They said the portacath was the only way to go when receiving chemotherapy.This floors me that it sounds like so many of you have not been offered or maybe not chosen the portacath.Dari Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Fran Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 I did have one and it worked fine with no problemsLucilla wrote: never been offered one :-(fastest2@... wrote: Why is no one here using a portacath?The Surgeon and the Onc didn't give me an option. They said the portacath was the only way to go when receiving chemotherapy.This floors me that it sounds like so many of you have not been offered or maybe not chosen the portacath.Dari Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Fran Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 Just to clear things up , it wasn't this that wrote the reply to Wayne...... --- & nne Svihlik wrote: > Wayne you did absolutely nothing wrong and I > appreciate that you took the time and effort to try > to help breast cancer patients/survivors. > Hugs > nne > Breast Cancer Patients Soul Mates for Life > http://www.geocities.com/chucky5741/breastcancerpatients.html > > Check out my breast cancer ornaments at: > http://www.geocities.com/chucky5741/bcornament.html > also check out my other ornaments and lots of nice > gifts at: > http://www.cancerclub.com > Re: > Posting--response > === message truncated === __________________________________ Yahoo! Mail - PC Magazine Editors' Choice 2005 http://mail.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 Hi , I know it wasn't you. It was (senalb). Why don't you sign your posts as 2. We have 2 nne's here although the other nne doesn't post much. But when she does she signs her posts as nne2. We do have Ann also! Either that or use your last initial. A lot of people after awhile learn who is who by their email addresses. But its hard for the newcomers to keep track of everyone. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com Re: > Posting--response> === message truncated === __________________________________ Yahoo! Mail - PC Magazine Editors' Choice 2005 http://mail.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 , you'll be GLAD you had the port put in.....I know I was. I too, had long tx. time. Sincerely, Darlene wrote: Thanks for the feedback.I know the alternative of looking for veins is not a good option for me, especially since I'm looking at 1+ years of chemo.I just hope it works - since I've read that there can be problems accessing it.Did you need 2 ports because one didn't work?- Elaine wrote on 11/27/2005, 10:28 PM:> ---oops, forgot to say that this was a reply to Wayne's post>>> In breastcancer2 , "Elaine" <button49@h...> wrote:> >> > ---> > How nice of you to look up that info on portacaths....But I think> it> > would be more appropiate for someone who actually has/had one to> > give advice and share experiences. Yes, I had not one, but two> > ports, and I was aware of them ALL THE TIME....but it was> something> > that I needed to have to help me fight the dragon, and I lived> with> > it. I would have one again, if necessary.> >> > Elaine,> > (8 year survivor)> >> >> >> > In breastcancer2 , Wayneho Kam <wakam007@y...>> wrote:> > >> > > You may feel a bit sore and bruised for a few days after the> port> > is put in. But as for just being aware of it, I think it's fine.> If> > you notice any redness, swelling, bleeding, bruising, pain or heat> > around the wounds, let your doctor know. I read somewhere that at> > first before you get used to it, I think you are always aware of> it> > and after a while it is just part of you. According to the> National> > Cancer Institute, "Catheters, ports, and pumps cause no pain if> they> > are properly placed and cared for, although a person is aware they> > are there."> > >> > > Best regards,> > > Wayne> > >> > > & nne Svihlik <moochie1@a...> wrote:> > > Hi and welcome to the group. I did not have a> > port so can't help you out. I will keep you in my prayers.> > > Hugs> > > nne> > > Breast Cancer Patients Soul Mates for Life> > > http://www.geocities.com/chucky5741/breastcancerpatients.html> > >> > > Check out my breast cancer ornaments at:> > > http://www.geocities.com/chucky5741/bcornament.html> > > also check out my other ornaments and lots of nice gifts at:> > > http://www.cancerclub.com> > > Re: Posting--response> > > > > >> > > > > >> > > > > > Why is no one here using a portacath?> > > > > >> > > > > > The Surgeon and the Onc didn't give me an option. They> > said> > > > the> > > > > portacath> > > > > > was the only way to go when receiving chemotherapy.> > > > > >> > > > > > This floors me that it sounds like so many of you have> not> > > > been> > > > > offered or> > > > > > maybe not chosen the portacath.> > > > > >> > > > > > Dari> > >> > >> > >> > >> Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 , you'll be GLAD you had the port put in.....I know I was. I too, had long tx. time. Sincerely, Darlene wrote: Thanks for the feedback.I know the alternative of looking for veins is not a good option for me, especially since I'm looking at 1+ years of chemo.I just hope it works - since I've read that there can be problems accessing it.Did you need 2 ports because one didn't work?- Elaine wrote on 11/27/2005, 10:28 PM:> ---oops, forgot to say that this was a reply to Wayne's post>>> In breastcancer2 , "Elaine" <button49@h...> wrote:> >> > ---> > How nice of you to look up that info on portacaths....But I think> it> > would be more appropiate for someone who actually has/had one to> > give advice and share experiences. Yes, I had not one, but two> > ports, and I was aware of them ALL THE TIME....but it was> something> > that I needed to have to help me fight the dragon, and I lived> with> > it. I would have one again, if necessary.> >> > Elaine,> > (8 year survivor)> >> >> >> > In breastcancer2 , Wayneho Kam <wakam007@y...>> wrote:> > >> > > You may feel a bit sore and bruised for a few days after the> port> > is put in. But as for just being aware of it, I think it's fine.> If> > you notice any redness, swelling, bleeding, bruising, pain or heat> > around the wounds, let your doctor know. I read somewhere that at> > first before you get used to it, I think you are always aware of> it> > and after a while it is just part of you. According to the> National> > Cancer Institute, "Catheters, ports, and pumps cause no pain if> they> > are properly placed and cared for, although a person is aware they> > are there."> > >> > > Best regards,> > > Wayne> > >> > > & nne Svihlik <moochie1@a...> wrote:> > > Hi and welcome to the group. I did not have a> > port so can't help you out. I will keep you in my prayers.> > > Hugs> > > nne> > > Breast Cancer Patients Soul Mates for Life> > > http://www.geocities.com/chucky5741/breastcancerpatients.html> > >> > > Check out my breast cancer ornaments at:> > > http://www.geocities.com/chucky5741/bcornament.html> > > also check out my other ornaments and lots of nice gifts at:> > > http://www.cancerclub.com> > > Re: Posting--response> > > > > >> > > > > >> > > > > > Why is no one here using a portacath?> > > > > >> > > > > > The Surgeon and the Onc didn't give me an option. They> > said> > > > the> > > > > portacath> > > > > > was the only way to go when receiving chemotherapy.> > > > > >> > > > > > This floors me that it sounds like so many of you have> not> > > > been> > > > > offered or> > > > > > maybe not chosen the portacath.> > > > > >> > > > > > Dari> > >> > >> > >> > >> Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2005 Report Share Posted November 29, 2005 My first breast cancer in 87, I had a port in that stuck of of my skin. I was painful because when I held my son he would hit it. My second bc in 91 was under the skin. When I did the stem cell rescue I received a pheresis cath that was put in my jugular vein. Will I was in the hospital for my stem cell I started to run a fever and the first cath was infection so they removed it. Fran Hoffman wrote: I did have one and it worked fine with no problemsLucilla wrote: never been offered one :-(fastest2@... wrote: Why is no one here using a portacath?The Surgeon and the Onc didn't give me an option. They said the portacath was the only way to go when receiving chemotherapy.This floors me that it sounds like so many of you have not been offered or maybe not chosen the portacath.Dari Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Fran Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 i have a portacath it is about 2 inches below my right collar bone it bothers me very rarelyandwemet03 wrote: Hi ,i mine was inserted the same way....I was very thin and VERY aware of it.......the good side to it was that the nurses said it was always an easy access and quick to find. After you've had it for a while you'll be apt to forget it's there.......I know I would forget about it....that is until I bumped it.........I know it sure felt funny when they took it out cuz I had had it so long........ Darlene wrote: Hi all,I'm new to the group, and will start chemo in December.I had a port put in 10 days ago and I am so aware of it everytime I swallow or bend down (the cathertube was inserted through the neck.)I read somewhere that thin people are more aware of it?Did it take people a while to get use to it? I will need it for more than a year (AC X 4, followed by a year of Herceptin)- avalonpenn wrote on 11/27/2005, 6:14 PM:> So did mine. It really helped to not have needle sticks all the> time, but I hated it. It ached almost constantly for the 8 or 9> months I had it in and I finally insisted that he take it out before> the year he had wanted.>>> > > >> > > I asked about the porta cath. The Onc said that they only use> > those if you> > > are going to be undergoing long term treatments because they are> > not without> > > problems and they are sometimes painful to have inserted. I am> > only> > > supposed to do 6 treatments and hopefully that will be the end> of> > it, then> > > radiation. If my cancer becomes more serious and they think> they> > will have> > > to do long term care or more future treatments then they will> > probably go> > > with a port at that time.> > > LICS> > > June> > > "The best protection any woman can have...is courage." > > Cady> > > Stanton> > > Secular Breast Cancer Support group:> > > http://health.groups.yahoo.com/group/SecularBCSupport/> > >> > > Re: Posting--response> > >> > >> > > Why is no one here using a portacath?> > >> > > The Surgeon and the Onc didn't give me an option. They said> the> > portacath> > > was the only way to go when receiving chemotherapy.> > >> > > This floors me that it sounds like so many of you have not> been> > offered or> > > maybe not chosen the portacath.> > >> > > Dari Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Yahoo! Personals Let fate take it's course directly to your email. See who's waiting for you Yahoo! Personals Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 i have a portacath it is about 2 inches below my right collar bone it bothers me very rarelyandwemet03 wrote: Hi ,i mine was inserted the same way....I was very thin and VERY aware of it.......the good side to it was that the nurses said it was always an easy access and quick to find. After you've had it for a while you'll be apt to forget it's there.......I know I would forget about it....that is until I bumped it.........I know it sure felt funny when they took it out cuz I had had it so long........ Darlene wrote: Hi all,I'm new to the group, and will start chemo in December.I had a port put in 10 days ago and I am so aware of it everytime I swallow or bend down (the cathertube was inserted through the neck.)I read somewhere that thin people are more aware of it?Did it take people a while to get use to it? I will need it for more than a year (AC X 4, followed by a year of Herceptin)- avalonpenn wrote on 11/27/2005, 6:14 PM:> So did mine. It really helped to not have needle sticks all the> time, but I hated it. It ached almost constantly for the 8 or 9> months I had it in and I finally insisted that he take it out before> the year he had wanted.>>> > > >> > > I asked about the porta cath. The Onc said that they only use> > those if you> > > are going to be undergoing long term treatments because they are> > not without> > > problems and they are sometimes painful to have inserted. I am> > only> > > supposed to do 6 treatments and hopefully that will be the end> of> > it, then> > > radiation. If my cancer becomes more serious and they think> they> > will have> > > to do long term care or more future treatments then they will> > probably go> > > with a port at that time.> > > LICS> > > June> > > "The best protection any woman can have...is courage." > > Cady> > > Stanton> > > Secular Breast Cancer Support group:> > > http://health.groups.yahoo.com/group/SecularBCSupport/> > >> > > Re: Posting--response> > >> > >> > > Why is no one here using a portacath?> > >> > > The Surgeon and the Onc didn't give me an option. They said> the> > portacath> > > was the only way to go when receiving chemotherapy.> > >> > > This floors me that it sounds like so many of you have not> been> > offered or> > > maybe not chosen the portacath.> > >> > > Dari Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Yahoo! Personals Let fate take it's course directly to your email. See who's waiting for you Yahoo! Personals Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 i have a portacath it is about 2 inches below my right collar bone it bothers me very rarelyandwemet03 wrote: Hi ,i mine was inserted the same way....I was very thin and VERY aware of it.......the good side to it was that the nurses said it was always an easy access and quick to find. After you've had it for a while you'll be apt to forget it's there.......I know I would forget about it....that is until I bumped it.........I know it sure felt funny when they took it out cuz I had had it so long........ Darlene wrote: Hi all,I'm new to the group, and will start chemo in December.I had a port put in 10 days ago and I am so aware of it everytime I swallow or bend down (the cathertube was inserted through the neck.)I read somewhere that thin people are more aware of it?Did it take people a while to get use to it? I will need it for more than a year (AC X 4, followed by a year of Herceptin)- avalonpenn wrote on 11/27/2005, 6:14 PM:> So did mine. It really helped to not have needle sticks all the> time, but I hated it. It ached almost constantly for the 8 or 9> months I had it in and I finally insisted that he take it out before> the year he had wanted.>>> > > >> > > I asked about the porta cath. The Onc said that they only use> > those if you> > > are going to be undergoing long term treatments because they are> > not without> > > problems and they are sometimes painful to have inserted. I am> > only> > > supposed to do 6 treatments and hopefully that will be the end> of> > it, then> > > radiation. If my cancer becomes more serious and they think> they> > will have> > > to do long term care or more future treatments then they will> > probably go> > > with a port at that time.> > > LICS> > > June> > > "The best protection any woman can have...is courage." > > Cady> > > Stanton> > > Secular Breast Cancer Support group:> > > http://health.groups.yahoo.com/group/SecularBCSupport/> > >> > > Re: Posting--response> > >> > >> > > Why is no one here using a portacath?> > >> > > The Surgeon and the Onc didn't give me an option. They said> the> > portacath> > > was the only way to go when receiving chemotherapy.> > >> > > This floors me that it sounds like so many of you have not> been> > offered or> > > maybe not chosen the portacath.> > >> > > Dari Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Yahoo! Personals Let fate take it's course directly to your email. See who's waiting for you Yahoo! Personals Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 16 treatments, wow, and I'm worried about 8. Why 4 years with the port? Just curious. I told my Onc I'd like to keep it in for a year, just in case. I'm an optimist but I'm also a realist, kind of a contradiction in terms. I think positive and I'm confident I'll beat this (otherwise I'd be a total basket case 100% of the time), but I also know that I could have a recurrence and need more treatments. But I think my Onc is really feeling I'm doing so well with treatments that she has a totally positive outlook. She's very pleased with how healthy I look. Other than the hair loss and some minor aches and pains and fatigue the first week after treatment, I'm not experiencing many side effects from chemo and nothing major so far.. Just the Neulastra knocked me for a loop. Since we're not doing that anymore I'll have to be more diligent about eating immune boosting foods and taking my Astragalus, vitamins and minerals. I forget much of the time. Not good. LICS June "The best protection any woman can have...is courage." Cady Stanton Secular Breast Cancer Support group: http://health.groups.yahoo.com/group/SecularBCSupport/ -----Original Message-----From: breastcancer2 [mailto:breastcancer2 ]On Behalf Of WeinbergerSent: Thursday, December 01, 2005 11:06 PMTo: breastcancer2 Subject: Re: Posting--response hi everyone i have had a port for almost 4 years it was the best thing i did when i had cancer much less discomfort than the old needle in the vein thing i still get my blood work done using my port i had 16 chemo treatments mary Quote Link to comment Share on other sites More sharing options...
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