Re: tube-feeding--Rose Marie

March 3, 2004

Hi Rose Marie,

Hope you got my earlier post. I forgot to change the subject line.

Thanks for the info. I agree - prioritizing is the answer. Pick your

battles carefully - right. Anyway, just wanted to say hi to a fellow

northwesterner. I use to live north of Seattle for years until we

moved to WI. North Bend is a beautiful area. I miss the mountains,

but not the rain that Seattle and north get.

Have a good day,

Marsha

> Jaclyn;

>

> You asked about my daughter's g-i issues.

>

> The ones I referred to that have been plaguing my daughter are 1)

reflux and 2) slow intestinal motility. Her reflux was well

controlled before the diet on Prilosec. Going generic did indeed

alter the medications formula, despite manufacturer claims, and it

was no longer effective; took us several months to work around to

Nexium and things in the reflux dept. are fine again. The one

that's getting us is the slow gut motility. She doesn't send food

through her intestines at a normal speed, and fat is known to slow

things down even more. For her, this means that huge volumes of gas

(most likely from a mild soy intolerance she has, and her keto

formula is soy based) sit unmoving in her gut and cause extreme pain.

>

> Thankfully, these issues aren't widespread among kids on the keto

diet. They are just kind of overwhelming at our house. Several

people on our list have used digestive enzymes to address the

difficulties digesting fat; I couldn't get our keto team to agree to

let us try them. Since don't plan on staying on the diet, it's not

a battle I feel worth fighting. When a parent deals with major

medical issues from head to toe, you have to prioritize how you

spend your energy!

>

> Rose-Marie,

> wife to Don,

> mom to (8 year old, RS),

> and Becky (age 6),

> North Bend, WA USA

>

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