Re: tube-feeding--Marsha/Jaclyn

[Guest guest]

Jaclyn;

You asked about my daughter's g-i issues.

The ones I referred to that have been plaguing my daughter are 1) reflux and 2)

slow intestinal motility. Her reflux was well controlled before the diet on

Prilosec. Going generic did indeed alter the medications formula, despite

manufacturer claims, and it was no longer effective; took us several months to

work around to Nexium and things in the reflux dept. are fine again. The one

that's getting us is the slow gut motility. She doesn't send food through her

intestines at a normal speed, and fat is known to slow things down even more.

For her, this means that huge volumes of gas (most likely from a mild soy

intolerance she has, and her keto formula is soy based) sit unmoving in her gut

and cause extreme pain.

Thankfully, these issues aren't widespread among kids on the keto diet. They

are just kind of overwhelming at our house. Several people on our list have

used digestive enzymes to address the difficulties digesting fat; I couldn't get

our keto team to agree to let us try them. Since don't plan on staying on the

diet, it's not a battle I feel worth fighting. When a parent deals with major

medical issues from head to toe, you have to prioritize how you spend your

energy!

Rose-Marie,

wife to Don,

mom to (8 year old, RS),

and Becky (age 6),

North Bend, WA USA