Re: Need some advice for my godchild

[Guest guest]

-

Has he had an EEG to rule out a seizure disorder?

Tracey

(mom to a BIG Skyler <17 y.o.>)

[Guest guest]

-

EEG's can show other things besides seizure activity (I think). When you

said Skyler just 'looks beyond you,' I thought of absence sz activity. Someone

suggested (Barb?) testing for neurotransmitter disease and I think this is an

outstanding idea...even if it requires a spinal tap. And of course, the

results should be sent to the 'experts' at Emory. Have the neuro think of other

neuromuscular disease as well...w/Skyler's low tone. Does he have any facial

droopiness? (Though *extremely* rare, this was my Skyler's first symptom of

myasthenia gravis).

Good luck to the mom.

Tracey

[Guest guest]

-

EEG's can show other things besides seizure activity (I think). When you

said Skyler just 'looks beyond you,' I thought of absence sz activity. Someone

suggested (Barb?) testing for neurotransmitter disease and I think this is an

outstanding idea...even if it requires a spinal tap. And of course, the

results should be sent to the 'experts' at Emory. Have the neuro think of other

neuromuscular disease as well...w/Skyler's low tone. Does he have any facial

droopiness? (Though *extremely* rare, this was my Skyler's first symptom of

myasthenia gravis).

Good luck to the mom.

Tracey

[Guest guest]

-

EEG's can show other things besides seizure activity (I think). When you

said Skyler just 'looks beyond you,' I thought of absence sz activity. Someone

suggested (Barb?) testing for neurotransmitter disease and I think this is an

outstanding idea...even if it requires a spinal tap. And of course, the

results should be sent to the 'experts' at Emory. Have the neuro think of other

neuromuscular disease as well...w/Skyler's low tone. Does he have any facial

droopiness? (Though *extremely* rare, this was my Skyler's first symptom of

myasthenia gravis).

Good luck to the mom.

Tracey