Help with weaning meds (lamictal, clonipin)

[Guest guest]

I am making another futile effort to post a group message.

My son EThan is 11 years old and has been on the diet since 2/04.

We are having a terrible time. He hates it and his seizures are

worse than ever. Our doctor believes kids do better on the diet

when they are off medicine. So, I perhaps I became overly eager in

the weaning process. The last two lamictal reductions (12.5 grams 4

weeks ago and 12.5 grams one week ago) have correlated with a

worsening of seizures. He has never had seizures that interferred

with his ability to carry on at school during the day; now, I have

kept him at home for 2 weeks, because he becomes unconsious and

paralyzed for up to 30 minutes 3 times a day. (new and now only

seizure type) Also, he has been so very very depressed.

I think since a week has now gone by since his last lamictal

decrease, he is happier (not so much crying); but the siezures have

not improved.

I see others have mentioned nutrasweet as a culprit. It is sort

of ironic, but after denying him so much of the food he loves, I

don't have the heart to take away his coveted sugar free jello twice

a day.

If there is anyone out there who has an older child on the diet,

one who loves pizza, Easter candy and all the things 11 year olds

like; or if there is anyone who has experience, advice or

encouragement on medicine weans; or if there is anyone who has a

shoulder I can cry on, please write! I'll try to do the same for

you.

Thanks. Gretchen

[Guest guest]

Hi

Could you give me the specifics for your knox jello recipe?

Thanks

Heidi, future occupational therapist and single mom to (IS,

Severely/Multiply Impaired) and twin brother, (4 years), and big sis

Madison (6).

[Guest guest]

Hi

Could you give me the specifics for your knox jello recipe?

Thanks

Heidi, future occupational therapist and single mom to (IS,

Severely/Multiply Impaired) and twin brother, (4 years), and big sis

Madison (6).