Guest guest Posted December 22, 2005 Report Share Posted December 22, 2005 Yowsa nne, 6 months. I'm glad I'm only doing 4 of the AC. Big Red, that's a good name for it. So far I'm holding up. I'll ask Wed. for a sheet on what my next 4 rounds will be and let everyone know. LICS June "The best protection any woman can have...is courage." Cady Stanton Secular Breast Cancer Support group: http://health.groups.yahoo.com/group/SecularBCSupport/ -----Original Message-----From: breastcancer2 [mailto:breastcancer2 ]On Behalf Of & nne SvihlikSent: Thursday, December 22, 2005 5:15 PMTo: breastcancer2 Subject: Re: New to Group, diagnosed with Breast Cancer November 2005 Hi June, Back when I had my chemo which was Methotrexate, 5FU and Cytoxan, they used to call Adriamycin Big Red. It was considered to be the roughest chemo around. I had Cytoxan but didn't have problems with it. I would take the Methotrexate and 5FU in an IV push the first two Tues. of the month and then take Cytoxan pills the 3rd week and rest the 4th week. This went on for 6 months. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com RE: New to Group, diagnosed with Breast Cancer November 2005 Yes, yes, no, yes. First let me tell you I have an aggressive form of er bc (estrogen receptive breast cancer), stage 3, in situ and in the lymph nodes, tumor was about 2 inches and there was cancer in the surrounding breast tissue. They are treating me with a very aggressive form of chemo, A/C ( adriamicin and cytoxan) at once for 4 treatments, one treatment every 3 weeks. Then they will treat me with a different type of chemo for the last 4 treatments but I cleaned my desk, can't find the paper they gave me about it so I forgot the name. 1. My hair started coming out 2 weeks to the day after my first AC treatment. AC is, I believe, the most potent chemo therapy, someone correct me if I'm wrong. With AC you have about a 1% chance of keeping your hair. I had it shaved about 4 days after it started falling out. Now my head always has a kind of 5 o'clock shadow but you can tell where no hair is growing. 2. The first treatment I didn't have too many symptoms but I was a bit fatigued the first week, not a whole lot, kind of like at the end of your period tired. My white blood cells went way down. At the end of 2nd treatment I was more fatigued, white blood cells way down again. 3rd treatment knocked me for a loop in the first week, my red blood cells dropped quite a bit but my white count wasn't as low as the first 2 treatments. Go figure. She gave me a shot of something to increase my "red" cells and I felt better in a couple of days. 3. Haven't lost my appetite for the most part. Seems I prefer eating in small chunks all day though and I don't eat as much at night but I still eat quite well most of the time. I haven't lost much weight, about 7 pounds in 3 months. 4. Other side effects caused by anemia after 3rd treatment was light headed, dizzy and a bit queasy most of the time but not out right sick to my stomach. I have yet to have vomiting with treatment but they drip me with anti nausea medication before they administer the chemo. So far so good. My next treatment is on the 28th. It was delayed a week because she wanted me to rest after I had my port in place. I could have gone in today and gotten treatment but I'm really glad I didn't. I was out of it the whole day and hubby has a long day in town today. Anyway, everyone is different and so there's a big possibility of having different reactions to the treatments. Keep us posted. LICS June "The best protection any woman can have...is courage." Cady Stanton Secular Breast Cancer Support group: http://health.groups.yahoo.com/group/SecularBCSupport/ -----Original Message-----From: breastcancer2 [mailto:breastcancer2 ]On Behalf Of leonefamSent: Thursday, December 22, 2005 11:40 AMTo: breastcancer2 Subject: Re: New to Group, diagnosed with Breast Cancer November 2005Hi, Thank you June, Have you had any problems with hair loss or fatigue? Loss of appetite? any side effects? Thanks -sue->> HUGS Sue. Keep us posted. I'll be doing my 4th round on Dec 28th. Folks> here will help get you through the rough times.> > LICS> June> "The best protection any woman can have...is courage." Cady> Stanton> Secular Breast Cancer Support group:> http://health.groups.yahoo.com/group/SecularBCSupport/> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2005 Report Share Posted December 22, 2005 Yowsa nne, 6 months. I'm glad I'm only doing 4 of the AC. Big Red, that's a good name for it. So far I'm holding up. I'll ask Wed. for a sheet on what my next 4 rounds will be and let everyone know. LICS June "The best protection any woman can have...is courage." Cady Stanton Secular Breast Cancer Support group: http://health.groups.yahoo.com/group/SecularBCSupport/ -----Original Message-----From: breastcancer2 [mailto:breastcancer2 ]On Behalf Of & nne SvihlikSent: Thursday, December 22, 2005 5:15 PMTo: breastcancer2 Subject: Re: New to Group, diagnosed with Breast Cancer November 2005 Hi June, Back when I had my chemo which was Methotrexate, 5FU and Cytoxan, they used to call Adriamycin Big Red. It was considered to be the roughest chemo around. I had Cytoxan but didn't have problems with it. I would take the Methotrexate and 5FU in an IV push the first two Tues. of the month and then take Cytoxan pills the 3rd week and rest the 4th week. This went on for 6 months. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com RE: New to Group, diagnosed with Breast Cancer November 2005 Yes, yes, no, yes. First let me tell you I have an aggressive form of er bc (estrogen receptive breast cancer), stage 3, in situ and in the lymph nodes, tumor was about 2 inches and there was cancer in the surrounding breast tissue. They are treating me with a very aggressive form of chemo, A/C ( adriamicin and cytoxan) at once for 4 treatments, one treatment every 3 weeks. Then they will treat me with a different type of chemo for the last 4 treatments but I cleaned my desk, can't find the paper they gave me about it so I forgot the name. 1. My hair started coming out 2 weeks to the day after my first AC treatment. AC is, I believe, the most potent chemo therapy, someone correct me if I'm wrong. With AC you have about a 1% chance of keeping your hair. I had it shaved about 4 days after it started falling out. Now my head always has a kind of 5 o'clock shadow but you can tell where no hair is growing. 2. The first treatment I didn't have too many symptoms but I was a bit fatigued the first week, not a whole lot, kind of like at the end of your period tired. My white blood cells went way down. At the end of 2nd treatment I was more fatigued, white blood cells way down again. 3rd treatment knocked me for a loop in the first week, my red blood cells dropped quite a bit but my white count wasn't as low as the first 2 treatments. Go figure. She gave me a shot of something to increase my "red" cells and I felt better in a couple of days. 3. Haven't lost my appetite for the most part. Seems I prefer eating in small chunks all day though and I don't eat as much at night but I still eat quite well most of the time. I haven't lost much weight, about 7 pounds in 3 months. 4. Other side effects caused by anemia after 3rd treatment was light headed, dizzy and a bit queasy most of the time but not out right sick to my stomach. I have yet to have vomiting with treatment but they drip me with anti nausea medication before they administer the chemo. So far so good. My next treatment is on the 28th. It was delayed a week because she wanted me to rest after I had my port in place. I could have gone in today and gotten treatment but I'm really glad I didn't. I was out of it the whole day and hubby has a long day in town today. Anyway, everyone is different and so there's a big possibility of having different reactions to the treatments. Keep us posted. LICS June "The best protection any woman can have...is courage." Cady Stanton Secular Breast Cancer Support group: http://health.groups.yahoo.com/group/SecularBCSupport/ -----Original Message-----From: breastcancer2 [mailto:breastcancer2 ]On Behalf Of leonefamSent: Thursday, December 22, 2005 11:40 AMTo: breastcancer2 Subject: Re: New to Group, diagnosed with Breast Cancer November 2005Hi, Thank you June, Have you had any problems with hair loss or fatigue? Loss of appetite? any side effects? Thanks -sue->> HUGS Sue. Keep us posted. I'll be doing my 4th round on Dec 28th. Folks> here will help get you through the rough times.> > LICS> June> "The best protection any woman can have...is courage." Cady> Stanton> Secular Breast Cancer Support group:> http://health.groups.yahoo.com/group/SecularBCSupport/> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2005 Report Share Posted December 22, 2005 The 6 months wern't bad at all. I guess not getting sick helped a lot. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com RE: New to Group, diagnosed with Breast Cancer November 2005 Yes, yes, no, yes. First let me tell you I have an aggressive form of er bc (estrogen receptive breast cancer), stage 3, in situ and in the lymph nodes, tumor was about 2 inches and there was cancer in the surrounding breast tissue. They are treating me with a very aggressive form of chemo, A/C ( adriamicin and cytoxan) at once for 4 treatments, one treatment every 3 weeks. Then they will treat me with a different type of chemo for the last 4 treatments but I cleaned my desk, can't find the paper they gave me about it so I forgot the name. 1. My hair started coming out 2 weeks to the day after my first AC treatment. AC is, I believe, the most potent chemo therapy, someone correct me if I'm wrong. With AC you have about a 1% chance of keeping your hair. I had it shaved about 4 days after it started falling out. Now my head always has a kind of 5 o'clock shadow but you can tell where no hair is growing. 2. The first treatment I didn't have too many symptoms but I was a bit fatigued the first week, not a whole lot, kind of like at the end of your period tired. My white blood cells went way down. At the end of 2nd treatment I was more fatigued, white blood cells way down again. 3rd treatment knocked me for a loop in the first week, my red blood cells dropped quite a bit but my white count wasn't as low as the first 2 treatments. Go figure. She gave me a shot of something to increase my "red" cells and I felt better in a couple of days. 3. Haven't lost my appetite for the most part. Seems I prefer eating in small chunks all day though and I don't eat as much at night but I still eat quite well most of the time. I haven't lost much weight, about 7 pounds in 3 months. 4. Other side effects caused by anemia after 3rd treatment was light headed, dizzy and a bit queasy most of the time but not out right sick to my stomach. I have yet to have vomiting with treatment but they drip me with anti nausea medication before they administer the chemo. So far so good. My next treatment is on the 28th. It was delayed a week because she wanted me to rest after I had my port in place. I could have gone in today and gotten treatment but I'm really glad I didn't. I was out of it the whole day and hubby has a long day in town today. Anyway, everyone is different and so there's a big possibility of having different reactions to the treatments. Keep us posted. LICS June "The best protection any woman can have...is courage." Cady Stanton Secular Breast Cancer Support group: http://health.groups.yahoo.com/group/SecularBCSupport/ -----Original Message-----From: breastcancer2 [mailto:breastcancer2 ]On Behalf Of leonefamSent: Thursday, December 22, 2005 11:40 AMTo: breastcancer2 Subject: Re: New to Group, diagnosed with Breast Cancer November 2005Hi, Thank you June, Have you had any problems with hair loss or fatigue? Loss of appetite? any side effects? Thanks -sue->> HUGS Sue. Keep us posted. I'll be doing my 4th round on Dec 28th. Folks> here will help get you through the rough times.> > LICS> June> "The best protection any woman can have...is courage." Cady> Stanton> Secular Breast Cancer Support group:> http://health.groups.yahoo.com/group/SecularBCSupport/> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2005 Report Share Posted December 22, 2005 The 6 months wern't bad at all. I guess not getting sick helped a lot. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com RE: New to Group, diagnosed with Breast Cancer November 2005 Yes, yes, no, yes. First let me tell you I have an aggressive form of er bc (estrogen receptive breast cancer), stage 3, in situ and in the lymph nodes, tumor was about 2 inches and there was cancer in the surrounding breast tissue. They are treating me with a very aggressive form of chemo, A/C ( adriamicin and cytoxan) at once for 4 treatments, one treatment every 3 weeks. Then they will treat me with a different type of chemo for the last 4 treatments but I cleaned my desk, can't find the paper they gave me about it so I forgot the name. 1. My hair started coming out 2 weeks to the day after my first AC treatment. AC is, I believe, the most potent chemo therapy, someone correct me if I'm wrong. With AC you have about a 1% chance of keeping your hair. I had it shaved about 4 days after it started falling out. Now my head always has a kind of 5 o'clock shadow but you can tell where no hair is growing. 2. The first treatment I didn't have too many symptoms but I was a bit fatigued the first week, not a whole lot, kind of like at the end of your period tired. My white blood cells went way down. At the end of 2nd treatment I was more fatigued, white blood cells way down again. 3rd treatment knocked me for a loop in the first week, my red blood cells dropped quite a bit but my white count wasn't as low as the first 2 treatments. Go figure. She gave me a shot of something to increase my "red" cells and I felt better in a couple of days. 3. Haven't lost my appetite for the most part. Seems I prefer eating in small chunks all day though and I don't eat as much at night but I still eat quite well most of the time. I haven't lost much weight, about 7 pounds in 3 months. 4. Other side effects caused by anemia after 3rd treatment was light headed, dizzy and a bit queasy most of the time but not out right sick to my stomach. I have yet to have vomiting with treatment but they drip me with anti nausea medication before they administer the chemo. So far so good. My next treatment is on the 28th. It was delayed a week because she wanted me to rest after I had my port in place. I could have gone in today and gotten treatment but I'm really glad I didn't. I was out of it the whole day and hubby has a long day in town today. Anyway, everyone is different and so there's a big possibility of having different reactions to the treatments. Keep us posted. LICS June "The best protection any woman can have...is courage." Cady Stanton Secular Breast Cancer Support group: http://health.groups.yahoo.com/group/SecularBCSupport/ -----Original Message-----From: breastcancer2 [mailto:breastcancer2 ]On Behalf Of leonefamSent: Thursday, December 22, 2005 11:40 AMTo: breastcancer2 Subject: Re: New to Group, diagnosed with Breast Cancer November 2005Hi, Thank you June, Have you had any problems with hair loss or fatigue? Loss of appetite? any side effects? Thanks -sue->> HUGS Sue. Keep us posted. I'll be doing my 4th round on Dec 28th. Folks> here will help get you through the rough times.> > LICS> June> "The best protection any woman can have...is courage." Cady> Stanton> Secular Breast Cancer Support group:> http://health.groups.yahoo.com/group/SecularBCSupport/> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2005 Report Share Posted December 22, 2005 The 6 months wern't bad at all. I guess not getting sick helped a lot. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com RE: New to Group, diagnosed with Breast Cancer November 2005 Yes, yes, no, yes. First let me tell you I have an aggressive form of er bc (estrogen receptive breast cancer), stage 3, in situ and in the lymph nodes, tumor was about 2 inches and there was cancer in the surrounding breast tissue. They are treating me with a very aggressive form of chemo, A/C ( adriamicin and cytoxan) at once for 4 treatments, one treatment every 3 weeks. Then they will treat me with a different type of chemo for the last 4 treatments but I cleaned my desk, can't find the paper they gave me about it so I forgot the name. 1. My hair started coming out 2 weeks to the day after my first AC treatment. AC is, I believe, the most potent chemo therapy, someone correct me if I'm wrong. With AC you have about a 1% chance of keeping your hair. I had it shaved about 4 days after it started falling out. Now my head always has a kind of 5 o'clock shadow but you can tell where no hair is growing. 2. The first treatment I didn't have too many symptoms but I was a bit fatigued the first week, not a whole lot, kind of like at the end of your period tired. My white blood cells went way down. At the end of 2nd treatment I was more fatigued, white blood cells way down again. 3rd treatment knocked me for a loop in the first week, my red blood cells dropped quite a bit but my white count wasn't as low as the first 2 treatments. Go figure. She gave me a shot of something to increase my "red" cells and I felt better in a couple of days. 3. Haven't lost my appetite for the most part. Seems I prefer eating in small chunks all day though and I don't eat as much at night but I still eat quite well most of the time. I haven't lost much weight, about 7 pounds in 3 months. 4. Other side effects caused by anemia after 3rd treatment was light headed, dizzy and a bit queasy most of the time but not out right sick to my stomach. I have yet to have vomiting with treatment but they drip me with anti nausea medication before they administer the chemo. So far so good. My next treatment is on the 28th. It was delayed a week because she wanted me to rest after I had my port in place. I could have gone in today and gotten treatment but I'm really glad I didn't. I was out of it the whole day and hubby has a long day in town today. Anyway, everyone is different and so there's a big possibility of having different reactions to the treatments. Keep us posted. LICS June "The best protection any woman can have...is courage." Cady Stanton Secular Breast Cancer Support group: http://health.groups.yahoo.com/group/SecularBCSupport/ -----Original Message-----From: breastcancer2 [mailto:breastcancer2 ]On Behalf Of leonefamSent: Thursday, December 22, 2005 11:40 AMTo: breastcancer2 Subject: Re: New to Group, diagnosed with Breast Cancer November 2005Hi, Thank you June, Have you had any problems with hair loss or fatigue? Loss of appetite? any side effects? Thanks -sue->> HUGS Sue. Keep us posted. I'll be doing my 4th round on Dec 28th. Folks> here will help get you through the rough times.> > LICS> June> "The best protection any woman can have...is courage." Cady> Stanton> Secular Breast Cancer Support group:> http://health.groups.yahoo.com/group/SecularBCSupport/> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 Welcome Sue. Glad to hear that your lymph nodes were negative. That is always a good thing. I told some people at work the other day that chemo wasn't as bad as I expected BUT I also wasn't handling it as well as I expected either. I keep getting thrown off at how little I'm able to manage the first few days after each treatment. The one really stupid thing that went through me was that I got on this kick that if I didn't have side effects the chemo wasn't doing its job. Or the Neulasta or the Procrit. Don't make that mistake. You probably will have some side effects but you don't have to. I haven't had to deal with nausea. I take Zofran (anti-nausea) and Decadron (steroid) for 4 days after my treatment. Be sure you ask your oncologist about nausea preventing drugs. The interesting and helpful thing about Zofran is that it is placed on the tongue and disolved in seconds. You don't have to try to drink water (that comes back up for some people) to swallow a pill. Find out what chemotherapy drugs you will be getting and go have a look at side effects. Be prepared to lose your hair and by that I mean get measured for a wig if you want that or get some soft turbans and other hats. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 Welcome Sue. Glad to hear that your lymph nodes were negative. That is always a good thing. I told some people at work the other day that chemo wasn't as bad as I expected BUT I also wasn't handling it as well as I expected either. I keep getting thrown off at how little I'm able to manage the first few days after each treatment. The one really stupid thing that went through me was that I got on this kick that if I didn't have side effects the chemo wasn't doing its job. Or the Neulasta or the Procrit. Don't make that mistake. You probably will have some side effects but you don't have to. I haven't had to deal with nausea. I take Zofran (anti-nausea) and Decadron (steroid) for 4 days after my treatment. Be sure you ask your oncologist about nausea preventing drugs. The interesting and helpful thing about Zofran is that it is placed on the tongue and disolved in seconds. You don't have to try to drink water (that comes back up for some people) to swallow a pill. Find out what chemotherapy drugs you will be getting and go have a look at side effects. Be prepared to lose your hair and by that I mean get measured for a wig if you want that or get some soft turbans and other hats. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 Welcome Sue. Glad to hear that your lymph nodes were negative. That is always a good thing. I told some people at work the other day that chemo wasn't as bad as I expected BUT I also wasn't handling it as well as I expected either. I keep getting thrown off at how little I'm able to manage the first few days after each treatment. The one really stupid thing that went through me was that I got on this kick that if I didn't have side effects the chemo wasn't doing its job. Or the Neulasta or the Procrit. Don't make that mistake. You probably will have some side effects but you don't have to. I haven't had to deal with nausea. I take Zofran (anti-nausea) and Decadron (steroid) for 4 days after my treatment. Be sure you ask your oncologist about nausea preventing drugs. The interesting and helpful thing about Zofran is that it is placed on the tongue and disolved in seconds. You don't have to try to drink water (that comes back up for some people) to swallow a pill. Find out what chemotherapy drugs you will be getting and go have a look at side effects. Be prepared to lose your hair and by that I mean get measured for a wig if you want that or get some soft turbans and other hats. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 Gee, my Zofran is just a regular pill that I have to swallow with water. Luckily it's not too big. I always had a problem with taking pills and now I'm finding that I can't swallow anything bigger than a small circle, which means I can't take my multi-vitamin any more (more of an oval shape). I remember when multi-vitamins were just small circles, but then I guess they got bigger as they started adding more stuff to them. Can anyone recommend a really small multi-vitamin? - Dennis wrote on 12/23/2005, 6:47 AM: The interesting and helpful thing about Zofran is that it is placed on the tongue and disolved in seconds. You don't have to try to drink water (that comes back up for some people) to swallow a pill. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 Gee, my Zofran is just a regular pill that I have to swallow with water. Luckily it's not too big. I always had a problem with taking pills and now I'm finding that I can't swallow anything bigger than a small circle, which means I can't take my multi-vitamin any more (more of an oval shape). I remember when multi-vitamins were just small circles, but then I guess they got bigger as they started adding more stuff to them. Can anyone recommend a really small multi-vitamin? - Dennis wrote on 12/23/2005, 6:47 AM: The interesting and helpful thing about Zofran is that it is placed on the tongue and disolved in seconds. You don't have to try to drink water (that comes back up for some people) to swallow a pill. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 >Hi, thats what I hear, everyone is different, you can help but stress on what is going to happen to your once the chemo starts tho. Only thing you can do I guess is deal with as they come. I do know what drugs they are giving me for chemo and have read the side effects. Hair loss seems to be a given with the adryamiacin(sp) He is giving me something for nausea too..overall I am a healthy person (except for this!!) soo I am hope that helps. Thanks for all your info. Happy Holidays-sue- > Welcome Sue. Glad to hear that your lymph nodes were negative. That is always a good thing. I told some people at work the other day that chemo wasn't as bad as I expected BUT I also wasn't handling it as well as I expected either. I keep getting thrown off at how little I'm able to manage the first few days after each treatment. > > The one really stupid thing that went through me was that I got on this kick that if I didn't have side effects the chemo wasn't doing its job. Or the Neulasta or the Procrit. Don't make that mistake. You probably will have some side effects but you don't have to. > > I haven't had to deal with nausea. I take Zofran (anti-nausea) and Decadron (steroid) for 4 days after my treatment. Be sure you ask your oncologist about nausea preventing drugs. The interesting and helpful thing about Zofran is that it is placed on the tongue and disolved in seconds. You don't have to try to drink water (that comes back up for some people) to swallow a pill. > > Find out what chemotherapy drugs you will be getting and go have a look at side effects. Be prepared to lose your hair and by that I mean get measured for a wig if you want that or get some soft turbans and other hats. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 >Hi, thats what I hear, everyone is different, you can help but stress on what is going to happen to your once the chemo starts tho. Only thing you can do I guess is deal with as they come. I do know what drugs they are giving me for chemo and have read the side effects. Hair loss seems to be a given with the adryamiacin(sp) He is giving me something for nausea too..overall I am a healthy person (except for this!!) soo I am hope that helps. Thanks for all your info. Happy Holidays-sue- > Welcome Sue. Glad to hear that your lymph nodes were negative. That is always a good thing. I told some people at work the other day that chemo wasn't as bad as I expected BUT I also wasn't handling it as well as I expected either. I keep getting thrown off at how little I'm able to manage the first few days after each treatment. > > The one really stupid thing that went through me was that I got on this kick that if I didn't have side effects the chemo wasn't doing its job. Or the Neulasta or the Procrit. Don't make that mistake. You probably will have some side effects but you don't have to. > > I haven't had to deal with nausea. I take Zofran (anti-nausea) and Decadron (steroid) for 4 days after my treatment. Be sure you ask your oncologist about nausea preventing drugs. The interesting and helpful thing about Zofran is that it is placed on the tongue and disolved in seconds. You don't have to try to drink water (that comes back up for some people) to swallow a pill. > > Find out what chemotherapy drugs you will be getting and go have a look at side effects. Be prepared to lose your hair and by that I mean get measured for a wig if you want that or get some soft turbans and other hats. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 >Hi, thats what I hear, everyone is different, you can help but stress on what is going to happen to your once the chemo starts tho. Only thing you can do I guess is deal with as they come. I do know what drugs they are giving me for chemo and have read the side effects. Hair loss seems to be a given with the adryamiacin(sp) He is giving me something for nausea too..overall I am a healthy person (except for this!!) soo I am hope that helps. Thanks for all your info. Happy Holidays-sue- > Welcome Sue. Glad to hear that your lymph nodes were negative. That is always a good thing. I told some people at work the other day that chemo wasn't as bad as I expected BUT I also wasn't handling it as well as I expected either. I keep getting thrown off at how little I'm able to manage the first few days after each treatment. > > The one really stupid thing that went through me was that I got on this kick that if I didn't have side effects the chemo wasn't doing its job. Or the Neulasta or the Procrit. Don't make that mistake. You probably will have some side effects but you don't have to. > > I haven't had to deal with nausea. I take Zofran (anti-nausea) and Decadron (steroid) for 4 days after my treatment. Be sure you ask your oncologist about nausea preventing drugs. The interesting and helpful thing about Zofran is that it is placed on the tongue and disolved in seconds. You don't have to try to drink water (that comes back up for some people) to swallow a pill. > > Find out what chemotherapy drugs you will be getting and go have a look at side effects. Be prepared to lose your hair and by that I mean get measured for a wig if you want that or get some soft turbans and other hats. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 I have had 9 treatments with the Adriamycin, I really think that why I have trouble even after 18yrs. I am always sick, recently bronchitis/biaxiam, raising heart/toprol-xl, I also do an inhaler for my empyhysema, nexium, ambien to help me sleep. I went to the doctor yesterday for my monthy checkup and now I have a bladder infection and taking levaquin, also I am on two zolfot a day. Some are good and some days are bad. I am so sick of these good/bad days sick and tired of taking pills.I just wish I could be a normal 50 year old. I do believe I am aging faster than a normal 50yr would be. & nne Svihlik wrote: Hi June, Back when I had my chemo which was Methotrexate, 5FU and Cytoxan, they used to call Adriamycin Big Red. It was considered to be the roughest chemo around. I had Cytoxan but didn't have problems with it. I would take the Methotrexate and 5FU in an IV push the first two Tues. of the month and then take Cytoxan pills the 3rd week and rest the 4th week. This went on for 6 months. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com RE: New to Group, diagnosed with Breast Cancer November 2005 Yes, yes, no, yes. First let me tell you I have an aggressive form of er bc (estrogen receptive breast cancer), stage 3, in situ and in the lymph nodes, tumor was about 2 inches and there was cancer in the surrounding breast tissue. They are treating me with a very aggressive form of chemo, A/C ( adriamicin and cytoxan) at once for 4 treatments, one treatment every 3 weeks. Then they will treat me with a different type of chemo for the last 4 treatments but I cleaned my desk, can't find the paper they gave me about it so I forgot the name. 1. My hair started coming out 2 weeks to the day after my first AC treatment. AC is, I believe, the most potent chemo therapy, someone correct me if I'm wrong. With AC you have about a 1% chance of keeping your hair. I had it shaved about 4 days after it started falling out. Now my head always has a kind of 5 o'clock shadow but you can tell where no hair is growing. 2. The first treatment I didn't have too many symptoms but I was a bit fatigued the first week, not a whole lot, kind of like at the end of your period tired. My white blood cells went way down. At the end of 2nd treatment I was more fatigued, white blood cells way down again. 3rd treatment knocked me for a loop in the first week, my red blood cells dropped quite a bit but my white count wasn't as low as the first 2 treatments. Go figure. She gave me a shot of something to increase my "red" cells and I felt better in a couple of days. 3. Haven't lost my appetite for the most part. Seems I prefer eating in small chunks all day though and I don't eat as much at night but I still eat quite well most of the time. I haven't lost much weight, about 7 pounds in 3 months. 4. Other side effects caused by anemia after 3rd treatment was light headed, dizzy and a bit queasy most of the time but not out right sick to my stomach. I have yet to have vomiting with treatment but they drip me with anti nausea medication before they administer the chemo. So far so good. My next treatment is on the 28th. It was delayed a week because she wanted me to rest after I had my port in place. I could have gone in today and gotten treatment but I'm really glad I didn't. I was out of it the whole day and hubby has a long day in town today. Anyway, everyone is different and so there's a big possibility of having different reactions to the treatments. Keep us posted. LICS June "The best protection any woman can have...is courage." Cady Stanton Secular Breast Cancer Support group: http://health.groups.yahoo.com/group/SecularBCSupport/ -----Original Message-----From: breastcancer2 [mailto:breastcancer2 ]On Behalf Of leonefamSent: Thursday, December 22, 2005 11:40 AMTo: breastcancer2 Subject: Re: New to Group, diagnosed with Breast Cancer November 2005Hi, Thank you June, Have you had any problems with hair loss or fatigue? Loss of appetite? any side effects? Thanks -sue->> HUGS Sue. Keep us posted. I'll be doing my 4th round on Dec 28th. Folks> here will help get you through the rough times.> > LICS> June> "The best protection any woman can have...is courage." Cady> Stanton> Secular Breast Cancer Support group:> http://health.groups.yahoo.com/group/SecularBCSupport/> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 oh my gosh, . I didn't realize they use to give Adriamycin 9 times! I'm just hoping to handle 4. The more I read and go along this journey, the more I realize doctor's are doing their best 'based on the information they have at the time', but so much of the treatment and predictions are still a guessing game. take care, Malone wrote on 12/23/2005, 9:40 AM: I have had 9 treatments with the Adriamycin, I really think that why I have trouble even after 18yrs. I am always sick, recently bronchitis/biaxiam, raising heart/toprol-xl, I also do an inhaler for my empyhysema, nexium, ambien to help me sleep. I went to the doctor yesterday for my monthy checkup and now I have a bladder infection and taking levaquin, also I am on two zolfot a day. Some are good and some days are bad. I am so sick of these good/bad days sick and tired of taking pills.I just wish I could be a normal 50 year old. I do believe I am aging faster than a normal 50yr would be. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 oh my gosh, . I didn't realize they use to give Adriamycin 9 times! I'm just hoping to handle 4. The more I read and go along this journey, the more I realize doctor's are doing their best 'based on the information they have at the time', but so much of the treatment and predictions are still a guessing game. take care, Malone wrote on 12/23/2005, 9:40 AM: I have had 9 treatments with the Adriamycin, I really think that why I have trouble even after 18yrs. I am always sick, recently bronchitis/biaxiam, raising heart/toprol-xl, I also do an inhaler for my empyhysema, nexium, ambien to help me sleep. I went to the doctor yesterday for my monthy checkup and now I have a bladder infection and taking levaquin, also I am on two zolfot a day. Some are good and some days are bad. I am so sick of these good/bad days sick and tired of taking pills.I just wish I could be a normal 50 year old. I do believe I am aging faster than a normal 50yr would be. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 oh my gosh, . I didn't realize they use to give Adriamycin 9 times! I'm just hoping to handle 4. The more I read and go along this journey, the more I realize doctor's are doing their best 'based on the information they have at the time', but so much of the treatment and predictions are still a guessing game. take care, Malone wrote on 12/23/2005, 9:40 AM: I have had 9 treatments with the Adriamycin, I really think that why I have trouble even after 18yrs. I am always sick, recently bronchitis/biaxiam, raising heart/toprol-xl, I also do an inhaler for my empyhysema, nexium, ambien to help me sleep. I went to the doctor yesterday for my monthy checkup and now I have a bladder infection and taking levaquin, also I am on two zolfot a day. Some are good and some days are bad. I am so sick of these good/bad days sick and tired of taking pills.I just wish I could be a normal 50 year old. I do believe I am aging faster than a normal 50yr would be. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 I know they do all this crap with us but don't know what to do after your done. I tease everyone I have more Dr's than the president. wrote: oh my gosh, . I didn't realize they use to give Adriamycin 9 times! I'm just hoping to handle 4. The more I read and go along this journey, the more I realize doctor's are doing their best 'based on the information they have at the time', but so much of the treatment and predictions are still a guessing game.take care, Malone wrote on 12/23/2005, 9:40 AM: I have had 9 treatments with the Adriamycin, I really think that why I have trouble even after 18yrs. I am always sick, recently bronchitis/biaxiam, raising heart/toprol-xl, I also do an inhaler for my empyhysema, nexium, ambien to help me sleep. I went to the doctor yesterday for my monthy checkup and now I have a bladder infection and taking levaquin, also I am on two zolfot a day. Some are good and some days are bad. I am so sick of these good/bad days sick and tired of taking pills.I just wish I could be a normal 50 year old. I do believe I am aging faster than a normal 50yr would be. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 anna, you can get liquid vitamins at the drug store, just ask at the pharmacy.....i use to work as a pharmacy tech... hugs from carol in michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 Good point Carol, yes you can. You can also get liquid vitamins from health food stores or places like The Vitamin Shoppe if there's one close to you. LICS June "The best protection any woman can have...is courage." Cady Stanton Secular Breast Cancer Support group: http://health.groups.yahoo.com/group/SecularBCSupport/ -----Original Message-----From: breastcancer2 [mailto:breastcancer2 ]On Behalf Of CAROL REINHOUTSent: Friday, December 23, 2005 9:35 AMTo: breastcancer2 Subject: Re: New to Group, diagnosed with Breast Cancer November 2005 anna, you can get liquid vitamins at the drug store, just ask at the pharmacy.....i use to work as a pharmacy tech... hugs from carol in michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 They also make a chewable it's about 8.00 $ at walmart, for me liquid taste sucks. sorry. That is why I want to the chew ables.June wrote: Good point Carol, yes you can. You can also get liquid vitamins from health food stores or places like The Vitamin Shoppe if there's one close to you. LICS June "The best protection any woman can have...is courage." Cady Stanton Secular Breast Cancer Support group: http://health.groups.yahoo.com/group/SecularBCSupport/ -----Original Message-----From: breastcancer2 [mailto:breastcancer2 ]On Behalf Of CAROL REINHOUTSent: Friday, December 23, 2005 9:35 AMTo: breastcancer2 Subject: Re: New to Group, diagnosed with Breast Cancer November 2005 anna, you can get liquid vitamins at the drug store, just ask at the pharmacy.....i use to work as a pharmacy tech... hugs from carol in michigan Yahoo! Shopping Find Great Deals on Holiday Gifts at Yahoo! Shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 They also make a chewable it's about 8.00 $ at walmart, for me liquid taste sucks. sorry. That is why I want to the chew ables.June wrote: Good point Carol, yes you can. You can also get liquid vitamins from health food stores or places like The Vitamin Shoppe if there's one close to you. LICS June "The best protection any woman can have...is courage." Cady Stanton Secular Breast Cancer Support group: http://health.groups.yahoo.com/group/SecularBCSupport/ -----Original Message-----From: breastcancer2 [mailto:breastcancer2 ]On Behalf Of CAROL REINHOUTSent: Friday, December 23, 2005 9:35 AMTo: breastcancer2 Subject: Re: New to Group, diagnosed with Breast Cancer November 2005 anna, you can get liquid vitamins at the drug store, just ask at the pharmacy.....i use to work as a pharmacy tech... hugs from carol in michigan Yahoo! Shopping Find Great Deals on Holiday Gifts at Yahoo! Shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 They also make a chewable it's about 8.00 $ at walmart, for me liquid taste sucks. sorry. That is why I want to the chew ables.June wrote: Good point Carol, yes you can. You can also get liquid vitamins from health food stores or places like The Vitamin Shoppe if there's one close to you. LICS June "The best protection any woman can have...is courage." Cady Stanton Secular Breast Cancer Support group: http://health.groups.yahoo.com/group/SecularBCSupport/ -----Original Message-----From: breastcancer2 [mailto:breastcancer2 ]On Behalf Of CAROL REINHOUTSent: Friday, December 23, 2005 9:35 AMTo: breastcancer2 Subject: Re: New to Group, diagnosed with Breast Cancer November 2005 anna, you can get liquid vitamins at the drug store, just ask at the pharmacy.....i use to work as a pharmacy tech... hugs from carol in michigan Yahoo! Shopping Find Great Deals on Holiday Gifts at Yahoo! Shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 Thanks for all the good advice! As I said in previous email, my brain is slowing down! After I sent the mail I was giving my daughter her chewable vitamin and thinking that I can't be the only adult with this problem. I was in awe of my mother-in-law (who lived till 94 and had Parkinsons) who could swallow several pills at a time. - Frieda Vasco wrote on 12/23/2005, 3:30 PM: They also make a chewable it's about 8.00 $ at walmart, for me liquid taste sucks. sorry. That is why I want to the chew ables. June wrote: Good point Carol, yes you can. You can also get liquid vitamins from health food stores or places like The Vitamin Shoppe if there's one close to you. LICS June "The best protection any woman can have...is courage." Cady Stanton Secular Breast Cancer Support group: http://health.groups.yahoo.com/group/SecularBCSupport/ Re: New to Group, diagnosed with Breast Cancer November 2005 anna, you can get liquid vitamins at the drug store, just ask at the pharmacy.....i use to work as a pharmacy tech... hugs from carol in michigan Yahoo! Shopping Find Great Deals on Holiday Gifts at Yahoo! Shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 Thanks for all the good advice! As I said in previous email, my brain is slowing down! After I sent the mail I was giving my daughter her chewable vitamin and thinking that I can't be the only adult with this problem. I was in awe of my mother-in-law (who lived till 94 and had Parkinsons) who could swallow several pills at a time. - Frieda Vasco wrote on 12/23/2005, 3:30 PM: They also make a chewable it's about 8.00 $ at walmart, for me liquid taste sucks. sorry. That is why I want to the chew ables. June wrote: Good point Carol, yes you can. You can also get liquid vitamins from health food stores or places like The Vitamin Shoppe if there's one close to you. LICS June "The best protection any woman can have...is courage." Cady Stanton Secular Breast Cancer Support group: http://health.groups.yahoo.com/group/SecularBCSupport/ Re: New to Group, diagnosed with Breast Cancer November 2005 anna, you can get liquid vitamins at the drug store, just ask at the pharmacy.....i use to work as a pharmacy tech... hugs from carol in michigan Yahoo! Shopping Find Great Deals on Holiday Gifts at Yahoo! Shopping Quote Link to comment Share on other sites More sharing options...
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