Guest guest Posted October 22, 2002 Report Share Posted October 22, 2002 Melita--I am so sorry to hear of your latest development. It must be so frustrating and exhausting. I hate when my eyes get irritated and can not imagine what it must be like to deal with that on an ongoing basis. Definitely don't wear your contacts until you are cleared up for a couple of weeks anyway! Vickie Hey everyone - Guess what I think I have just developed??? Sjogren's syndrome. When I went to the dentist she said that I had very little saliva. Then this last week wearing my contacts I felt like I had sand in my eyes. So my rheumy said to try liquid tears. Well that resulted in my eyes swelling up like a pumpkin. I looked at the type of liquid tears I had and they were extra strength. Go figure!!! So I am up for mucho suggestions on what I should do. I have been wearing my glasses to work (can't even fathom putting my contacts back in) but I would like to think at some point I can go back to wearing my contacts. I am going to call my eye Dr. to see what he says...but this is only the 2nd time seeing him. So any words of wisdom?? Thanks Melita Check out my webpages: www.geocities.com/chaosposte let me know if you have zine info to add New sheets of rubber coming soon! Over 50 to choose from! Ebay user ID: VickieEnkoff or VickieEnkoff@... This week: Unmounted rubber stamps Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2002 Report Share Posted October 22, 2002 Melita--I am so sorry to hear of your latest development. It must be so frustrating and exhausting. I hate when my eyes get irritated and can not imagine what it must be like to deal with that on an ongoing basis. Definitely don't wear your contacts until you are cleared up for a couple of weeks anyway! Vickie Hey everyone - Guess what I think I have just developed??? Sjogren's syndrome. When I went to the dentist she said that I had very little saliva. Then this last week wearing my contacts I felt like I had sand in my eyes. So my rheumy said to try liquid tears. Well that resulted in my eyes swelling up like a pumpkin. I looked at the type of liquid tears I had and they were extra strength. Go figure!!! So I am up for mucho suggestions on what I should do. I have been wearing my glasses to work (can't even fathom putting my contacts back in) but I would like to think at some point I can go back to wearing my contacts. I am going to call my eye Dr. to see what he says...but this is only the 2nd time seeing him. So any words of wisdom?? Thanks Melita Check out my webpages: www.geocities.com/chaosposte let me know if you have zine info to add New sheets of rubber coming soon! Over 50 to choose from! Ebay user ID: VickieEnkoff or VickieEnkoff@... This week: Unmounted rubber stamps Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2002 Report Share Posted October 22, 2002 Melita... Go to a Sjogren's site on the net. There are many of them. A very dear friend of mine has Sjogren's and she goes to the sites often. There are things one can do for the dryness. Good luck on finding information, Melita. Annette -----Original Message-----From: Melita Sent: Tuesday, October 22, 2002 12:45 PMTo: OurMyositis Subject: Sjogren's syndromeHey everyone -Guess what I think I have just developed??? Sjogren's syndrome. When I went to the dentist she said that I had very little saliva. Then this last week wearing my contacts I felt like I had sand in my eyes. So my rheumy said to try liquid tears. Well that resulted in my eyes swelling up like a pumpkin. I looked at the type of liquid tears I had and they were extra strength. Go figure!!! So I am up for mucho suggestions on what I should do. I have been wearing my glasses to work (can't even fathom putting my contacts back in) but I would like to think at some point I can go back to wearing my contacts. I am going to call my eye Dr. to see what he says...but this is only the 2nd time seeing him. So any words of wisdom??ThanksMelita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2002 Report Share Posted October 22, 2002 Melita... Go to a Sjogren's site on the net. There are many of them. A very dear friend of mine has Sjogren's and she goes to the sites often. There are things one can do for the dryness. Good luck on finding information, Melita. Annette -----Original Message-----From: Melita Sent: Tuesday, October 22, 2002 12:45 PMTo: OurMyositis Subject: Sjogren's syndromeHey everyone -Guess what I think I have just developed??? Sjogren's syndrome. When I went to the dentist she said that I had very little saliva. Then this last week wearing my contacts I felt like I had sand in my eyes. So my rheumy said to try liquid tears. Well that resulted in my eyes swelling up like a pumpkin. I looked at the type of liquid tears I had and they were extra strength. Go figure!!! So I am up for mucho suggestions on what I should do. I have been wearing my glasses to work (can't even fathom putting my contacts back in) but I would like to think at some point I can go back to wearing my contacts. I am going to call my eye Dr. to see what he says...but this is only the 2nd time seeing him. So any words of wisdom??ThanksMelita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2002 Report Share Posted October 22, 2002 Melita... Go to a Sjogren's site on the net. There are many of them. A very dear friend of mine has Sjogren's and she goes to the sites often. There are things one can do for the dryness. Good luck on finding information, Melita. Annette -----Original Message-----From: Melita Sent: Tuesday, October 22, 2002 12:45 PMTo: OurMyositis Subject: Sjogren's syndromeHey everyone -Guess what I think I have just developed??? Sjogren's syndrome. When I went to the dentist she said that I had very little saliva. Then this last week wearing my contacts I felt like I had sand in my eyes. So my rheumy said to try liquid tears. Well that resulted in my eyes swelling up like a pumpkin. I looked at the type of liquid tears I had and they were extra strength. Go figure!!! So I am up for mucho suggestions on what I should do. I have been wearing my glasses to work (can't even fathom putting my contacts back in) but I would like to think at some point I can go back to wearing my contacts. I am going to call my eye Dr. to see what he says...but this is only the 2nd time seeing him. So any words of wisdom??ThanksMelita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2002 Report Share Posted October 22, 2002 Hmmm....not really. If you want to know for sure, you have your Rheumy test you for the Ro antibody & then if necessary, take a lip biopsy (which hurts like hell afterwards!!) As for relieving the symptoms, I'm not really sure, other than the eye drops for your eyes (and I'd stay clear of your contacts). Not sure about your mouth, as I also wish I could find something to relieve the dryness. Good luck to you. Dawn Melita wrote: > Hey everyone - > > Guess what I think I have just developed??? Sjogren's syndrome. When > I went to the dentist she said that I had very little saliva. Then > this last week wearing my contacts I felt like I had sand in my eyes. > So my rheumy said to try liquid tears. Well that resulted in my eyes > swelling up like a pumpkin. I looked at the type of liquid tears I > had and they were extra strength. Go figure!!! > > So I am up for mucho suggestions on what I should do. I have been > wearing my glasses to work (can't even fathom putting my contacts > back in) but I would like to think at some point I can go back to > wearing my contacts. I am going to call my eye Dr. to see what he > says...but this is only the 2nd time seeing him. > > So any words of wisdom?? > > Thanks > Melita > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2002 Report Share Posted October 22, 2002 Hmmm....not really. If you want to know for sure, you have your Rheumy test you for the Ro antibody & then if necessary, take a lip biopsy (which hurts like hell afterwards!!) As for relieving the symptoms, I'm not really sure, other than the eye drops for your eyes (and I'd stay clear of your contacts). Not sure about your mouth, as I also wish I could find something to relieve the dryness. Good luck to you. Dawn Melita wrote: > Hey everyone - > > Guess what I think I have just developed??? Sjogren's syndrome. When > I went to the dentist she said that I had very little saliva. Then > this last week wearing my contacts I felt like I had sand in my eyes. > So my rheumy said to try liquid tears. Well that resulted in my eyes > swelling up like a pumpkin. I looked at the type of liquid tears I > had and they were extra strength. Go figure!!! > > So I am up for mucho suggestions on what I should do. I have been > wearing my glasses to work (can't even fathom putting my contacts > back in) but I would like to think at some point I can go back to > wearing my contacts. I am going to call my eye Dr. to see what he > says...but this is only the 2nd time seeing him. > > So any words of wisdom?? > > Thanks > Melita > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2002 Report Share Posted October 22, 2002 Hi Melita. This might just be a temporary problem, caused by the changing dose of (what else?) prednisone. I wear hard contacts, and I had to switch to glasses on some days when I was on higher doses (~20 mg/day) of prednisone because my eyes were so dry. The problem ended when I got down to lower doses of the steroid. So don't throw out the contacts. Stay cool. Mike B > Hey everyone - > > Guess what I think I have just developed??? Sjogren's syndrome. When > I went to the dentist she said that I had very little saliva. Then > this last week wearing my contacts I felt like I had sand in my eyes. > So my rheumy said to try liquid tears. Well that resulted in my eyes > swelling up like a pumpkin. I looked at the type of liquid tears I > had and they were extra strength. Go figure!!! > > So I am up for mucho suggestions on what I should do. I have been > wearing my glasses to work (can't even fathom putting my contacts > back in) but I would like to think at some point I can go back to > wearing my contacts. I am going to call my eye Dr. to see what he > says...but this is only the 2nd time seeing him. > > So any words of wisdom?? > > Thanks > Melita Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.