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Hello everybody! Something happened recently that has me going a bit crazy! I have been on Minocycline for almost 6 months now. All of it has been a herx too so not much relief for these past few months. Anyway, in the last week, I have felt worse than any other time in my life. I hurt in every joint I think I have. My whole hands are swollen to the point that some joints barely move, like my wrists and some fingers. What scares me though is that my mom asked me what was wrong with my fingers? When I looked down, I noticed that 2 of my fingers (both Index fingers) are turned inward. I guess you could say from the nuckle up, they are contracted and turn half way inward-HALF WAY! Is this another sign of my RA? It is not a nodule and I am rather confused. Also, it happened so fast. Due to the new Vioxx, heart disease scare, I went off the Vioxx a few weeks ago. Surely, that couldn't have caused this?? If that's the case, I just cannot believe how much worse my RA has gotten over a year. When I started Vioxx a year ago, it helped me get through the day-no real big deal. Now after being off of it, I can barely move this week. Could that be why I have been hurting in every joint so badly? I never thought it was helping that much, especially with only 1 a day. My husband is very concerned abut my fingers turning and wants to know if we can take a stronger AP approach or if it could be something else. Lyme disease test was negative, RA factor was neg. but doc feels that's what I have had for 3 years because of the high sed. rate and classic symptoms. He does not do mycoplasma testing and said that often you can have it and still test negative. He also only gives oral Mino which I had to talk him into. Someone mentioned seeing a wholistic doc that helped because the AP therapy alone was not working, too many other infections or something. I could handle waiting for the AP to work, even with the herxing pain but I don't want to lose the use of my hands/fingers. I was wondering what everybody's input is? This is really scary. I was planning on going back to nursing soon and after this week, I'm not so sure I can just yet.

~Roseanne~

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You probabaly do need another anti-inflammatory. I tried coming off mine too early and couldn't because of the pain. And they do help prevent joint damage while the anti biotic works.

Gail

From: " Roseanne " <roseanne@...>

Date: Sun, 3 Jun 2001 10:16:13 -0400

<rheumatic >

Subject: rheumatic very scared

Hello everybody! Something happened recently that has me going a bit crazy! I have been on Minocycline for almost 6 months now. All of it has been a herx too so not much relief for these past few months. Anyway, in the last week, I have felt worse than any other time in my life. I hurt in every joint I think I have. My whole hands are swollen to the point that some joints barely move, like my wrists and some fingers. What scares me though is that my mom asked me what was wrong with my fingers? When I looked down, I noticed that 2 of my fingers (both Index fingers) are turned inward. I guess you could say from the nuckle up, they are contracted and turn half way inward-HALF WAY! Is this another sign of my RA? It is not a nodule and I am rather confused. Also, it happened so fast. Due to the new Vioxx, heart disease scare, I went off the Vioxx a few weeks ago. Surely, that couldn't have caused this?? If that's the case, I just cannot believe how much worse my RA has gotten over a year. When I started Vioxx a year ago, it helped me get through the day-no real big deal. Now after being off of it, I can barely move this week. Could that be why I have been hurting in every joint so badly? I never thought it was helping that much, especially with only 1 a day. My husband is very concerned abut my fingers turning and wants to know if we can take a stronger AP approach or if it could be something else. Lyme disease test was negative, RA factor was neg. but doc feels that's what I have had for 3 years because of the high sed. rate and classic symptoms. He does not do mycoplasma testing and said that often you can have it and still test negative. He also only gives oral Mino which I had to talk him into. Someone mentioned seeing a wholistic doc that helped because the AP therapy alone was not working, too many other infections or something. I could handle waiting for the AP to work, even with the herxing pain but I don't want to lose the use of my hands/fingers. I was wondering what everybody's input is? This is really scary. I was planning on going back to nursing soon and after this week, I'm not so sure I can just yet.

~Roseanne~

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  • 8 years later...

First ask yourself this question. Have I been giving alot of Antibotics in past

years? And if so did I develops any a white coating on my tongue?

candidiasis

From: nosdollgic@...

Date: Thu, 27 Aug 2009 18:46:34 +0000

Subject: Very scared

From what I've been reading, it looks to me like this is

systemic in me. I've had problems in my eye, joints, nails, etc. I just read

that there's a 50% mortality rate when it's systemic.Has anyone here been

diagnosed as having it in their blood and gotten rid of it successfully? If so,

how? I have an appointment with an infectious disease doctor at the Cleveland

Clinic on 9/10. Is there anything I should be asking him in particular? Any help

will be greatly appreciated.

Dana

_________________________________________________________________

Windows Live: Keep your friends up to date with what you do online.

http://windowslive.com/Campaign/SocialNetworking?ocid=PID23285::T:WLMTAGL:ON:WL:\

en-US:SI_SB_online:082009

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I'm not sure what you mean by a lot, but when I have been prescribed antibiotics

it was infrequently and not for more than a week. The white coating has appeared

in the past, but I can't remember if it was connected to antibiotics. Why do you

ask? Does it have anything to do with survival chances?

>

>

> First ask yourself this question. Have I been giving alot of Antibotics in

past years? And if so did I develops any a white coating on my tongue?

>

> candidiasis

> From: nosdollgic@...

> Date: Thu, 27 Aug 2009 18:46:34 +0000

> Subject: Very scared

>

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> From what I've been reading, it looks to me like this is

systemic in me. I've had problems in my eye, joints, nails, etc. I just read

that there's a 50% mortality rate when it's systemic.Has anyone here been

diagnosed as having it in their blood and gotten rid of it successfully? If so,

how? I have an appointment with an infectious disease doctor at the Cleveland

Clinic on 9/10. Is there anything I should be asking him in particular? Any help

will be greatly appreciated.

>

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> Dana

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> _________________________________________________________________

> Windows Live: Keep your friends up to date with what you do online.

>

http://windowslive.com/Campaign/SocialNetworking?ocid=PID23285::T:WLMTAGL:ON:WL:\

en-US:SI_SB_online:082009

>

>

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Good news you are not going to die but if you don't get it resolved you will

feel lousy most of the time.

Candida Symptoms

The longer the candida organism lives systemically in the body, the

greater number of symptoms can develop. The Classic symptoms of yeast

overgrowth include, digestive disturbances, diarrhea and/or

constipation or altering between the two, tingling of the hands and

feet, vaginal discharge, repeated vaginal yeast infections, headaches,

a feeling of being disconnected with the environment, a spacey out of

touch feeling, fatigue, excessive sleeping or insomnia alternating,

adult onset allergies, sensitivity to smells, and many other fleeting

health concerns. Since the symptoms can vary from person to person, it

is important to understand that there can be potentially hundreds of

symptoms linked to yeast overgrowth

candidiasis

From: nosdollgic@...

Date: Fri, 28 Aug 2009 01:51:08 +0000

Subject: Re: Very scared

I'm not sure what you mean by a lot, but when I have been

prescribed antibiotics it was infrequently and not for more than a week. The

white coating has appeared in the past, but I can't remember if it was connected

to antibiotics. Why do you ask? Does it have anything to do with survival

chances?

>

>

> First ask yourself this question. Have I been giving alot of Antibotics in

past years? And if so did I develops any a white coating on my tongue?

>

> candidiasis

> From: nosdollgic@...

> Date: Thu, 27 Aug 2009 18:46:34 +0000

> Subject: Very scared

>

>

>

>

>

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>

>

>

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>

>

> From what I've been reading, it looks to me like this is

systemic in me. I've had problems in my eye, joints, nails, etc. I just read

that there's a 50% mortality rate when it's systemic.Has anyone here been

diagnosed as having it in their blood and gotten rid of it successfully? If so,

how? I have an appointment with an infectious disease doctor at the Cleveland

Clinic on 9/10. Is there anything I should be asking him in particular? Any help

will be greatly appreciated.

>

>

>

> Dana

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> __________________________________________________________

> Windows Live: Keep your friends up to date with what you do online.

>

http://windowslive.com/Campaign/SocialNetworking?ocid=PID23285::T:WLMTAGL:ON:WL:\

en-US:SI_SB_online:082009

>

>

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