Re: Therapy/Meds for MOM early intervention

[Guest guest]

n,

You HAVE to have early intervention near you. It is provided under federal

laws and protections. After the age of 3 you are then covered under you state

and local community.

Patty had it immediately as her social worker set her up with it before she

was released from the hospital. That was over 21 years ago. They came out to

my house the very first week and from there early intervention didn't

stop-ever. Patty has had a teacher in her life from the beginning. She also

had a

speech and language therapist, OT, PT ... and on and on. At first it is hard to

get used to people in your house but when you see what they do with your baby

it is worth ever second. They also included Kris in the " play " time as that

was important too.

My only warning to you is to make sure you get in touch with your deafblind

program in the state you live in. Sure EI is great but it also has to be

appropriate. If we had Patty placed in our local community she would not have

succeeded as far as she did. That was not appropriate. They tried like heck

but I

knew better. Instead she went to a " school " for children who had severe

disabilities. There she learned how to move and finally to walk. But that too

wasn't appropriate. I did my research as no one provided me with information on

different programs to utilize for her. I found a school for the deaf that

also had " inclusion " opportunities [That term wasn't even around back then] for

the later part of her day. The beginning of her day was 3 teachers for 5

students who were deaf. It was there she learned how to talk and she learned

life. She learned how to read, how to run and how to play with peers. She

learned!

I must add that it killed me to put my sick little baby on a bus and send her

away from me. The mother instinct is to keep your baby close. If I had done

that she would not be where she is now. I spent months (years actually) of

felling heartbroken but Patty needed a chance.

But then the age 3 came around. That's when our local community had to pay

for the program and bussing. It was then that the battles started. They said

they could and would do the same. By the age of 6 they wore me down. Then

the long story began.......

Please know your baby has the right to early intervention. It can and will

have a positive change on everyone's lives. Please also know it must be

appropriate. Again, contact your states deafblind program. You can find it in

the

yellow pages. It might take time to figure out who to talk to but it is worth

every second. It is also hard to grasp the term deafblind but that is the

closest term for many of our children to fit in to.

Found a snippet of a definition for early intervention. Here it is:

" Early intervention refers to services that are delivered to children three

years of age or younger, who are discovered to have or to be at risk of

developing a handicapping condition or other special need that may affect their

development. Early intervention can focus on remediating existing developmental

problems or preventing their occurrence. Early intervention services focus on

the

child and family together. Early intervention programs may be center-based,

home-based, hospital-based, or a combination. Services range from

identification (such as screening and referral services) to diagnostic and

direct

intervention programs. Early intervention may begin at any time between birth

and three

years of age. However, there are many reasons for it to begin as early as

possible. "

So yes your state DOES have it. No one has informed you about all of it yet.

Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to

[Guest guest]

n,

You HAVE to have early intervention near you. It is provided under federal

laws and protections. After the age of 3 you are then covered under you state

and local community.

Patty had it immediately as her social worker set her up with it before she

was released from the hospital. That was over 21 years ago. They came out to

my house the very first week and from there early intervention didn't

stop-ever. Patty has had a teacher in her life from the beginning. She also

had a

speech and language therapist, OT, PT ... and on and on. At first it is hard to

get used to people in your house but when you see what they do with your baby

it is worth ever second. They also included Kris in the " play " time as that

was important too.

My only warning to you is to make sure you get in touch with your deafblind

program in the state you live in. Sure EI is great but it also has to be

appropriate. If we had Patty placed in our local community she would not have

succeeded as far as she did. That was not appropriate. They tried like heck

but I

knew better. Instead she went to a " school " for children who had severe

disabilities. There she learned how to move and finally to walk. But that too

wasn't appropriate. I did my research as no one provided me with information on

different programs to utilize for her. I found a school for the deaf that

also had " inclusion " opportunities [That term wasn't even around back then] for

the later part of her day. The beginning of her day was 3 teachers for 5

students who were deaf. It was there she learned how to talk and she learned

life. She learned how to read, how to run and how to play with peers. She

learned!

I must add that it killed me to put my sick little baby on a bus and send her

away from me. The mother instinct is to keep your baby close. If I had done

that she would not be where she is now. I spent months (years actually) of

felling heartbroken but Patty needed a chance.

But then the age 3 came around. That's when our local community had to pay

for the program and bussing. It was then that the battles started. They said

they could and would do the same. By the age of 6 they wore me down. Then

the long story began.......

Please know your baby has the right to early intervention. It can and will

have a positive change on everyone's lives. Please also know it must be

appropriate. Again, contact your states deafblind program. You can find it in

the

yellow pages. It might take time to figure out who to talk to but it is worth

every second. It is also hard to grasp the term deafblind but that is the

closest term for many of our children to fit in to.

Found a snippet of a definition for early intervention. Here it is:

" Early intervention refers to services that are delivered to children three

years of age or younger, who are discovered to have or to be at risk of

developing a handicapping condition or other special need that may affect their

development. Early intervention can focus on remediating existing developmental

problems or preventing their occurrence. Early intervention services focus on

the

child and family together. Early intervention programs may be center-based,

home-based, hospital-based, or a combination. Services range from

identification (such as screening and referral services) to diagnostic and

direct

intervention programs. Early intervention may begin at any time between birth

and three

years of age. However, there are many reasons for it to begin as early as

possible. "

So yes your state DOES have it. No one has informed you about all of it yet.

Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to

[Guest guest]

n,

You HAVE to have early intervention near you. It is provided under federal

laws and protections. After the age of 3 you are then covered under you state

and local community.

Patty had it immediately as her social worker set her up with it before she

was released from the hospital. That was over 21 years ago. They came out to

my house the very first week and from there early intervention didn't

stop-ever. Patty has had a teacher in her life from the beginning. She also

had a

speech and language therapist, OT, PT ... and on and on. At first it is hard to

get used to people in your house but when you see what they do with your baby

it is worth ever second. They also included Kris in the " play " time as that

was important too.

My only warning to you is to make sure you get in touch with your deafblind

program in the state you live in. Sure EI is great but it also has to be

appropriate. If we had Patty placed in our local community she would not have

succeeded as far as she did. That was not appropriate. They tried like heck

but I

knew better. Instead she went to a " school " for children who had severe

disabilities. There she learned how to move and finally to walk. But that too

wasn't appropriate. I did my research as no one provided me with information on

different programs to utilize for her. I found a school for the deaf that

also had " inclusion " opportunities [That term wasn't even around back then] for

the later part of her day. The beginning of her day was 3 teachers for 5

students who were deaf. It was there she learned how to talk and she learned

life. She learned how to read, how to run and how to play with peers. She

learned!

I must add that it killed me to put my sick little baby on a bus and send her

away from me. The mother instinct is to keep your baby close. If I had done

that she would not be where she is now. I spent months (years actually) of

felling heartbroken but Patty needed a chance.

But then the age 3 came around. That's when our local community had to pay

for the program and bussing. It was then that the battles started. They said

they could and would do the same. By the age of 6 they wore me down. Then

the long story began.......

Please know your baby has the right to early intervention. It can and will

have a positive change on everyone's lives. Please also know it must be

appropriate. Again, contact your states deafblind program. You can find it in

the

yellow pages. It might take time to figure out who to talk to but it is worth

every second. It is also hard to grasp the term deafblind but that is the

closest term for many of our children to fit in to.

Found a snippet of a definition for early intervention. Here it is:

" Early intervention refers to services that are delivered to children three

years of age or younger, who are discovered to have or to be at risk of

developing a handicapping condition or other special need that may affect their

development. Early intervention can focus on remediating existing developmental

problems or preventing their occurrence. Early intervention services focus on

the

child and family together. Early intervention programs may be center-based,

home-based, hospital-based, or a combination. Services range from

identification (such as screening and referral services) to diagnostic and

direct

intervention programs. Early intervention may begin at any time between birth

and three

years of age. However, there are many reasons for it to begin as early as

possible. "

So yes your state DOES have it. No one has informed you about all of it yet.

Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to

[Guest guest]

Check with your department of education, Special Education Dept, they can put

you into contact with an early intervention program. I know in Tennessee its

called TEIS. And at age 3 they can start a sped preschool program. Going

through the education dept can be a hassel sometimes and its a constant fight

until they graduate but keep pushing them something will happen.

-------------- Original message --------------

From: Turk22082@...

n,

You HAVE to have early intervention near you. It is provided under federal

laws and protections. After the age of 3 you are then covered under you state

and local community.

Patty had it immediately as her social worker set her up with it before she

was released from the hospital. That was over 21 years ago. They came out to

my house the very first week and from there early intervention didn't

stop-ever. Patty has had a teacher in her life from the beginning. She also

had a

speech and language therapist, OT, PT ... and on and on. At first it is hard to

get used to people in your house but when you see what they do with your baby

it is worth ever second. They also included Kris in the " play " time as that

was important too.

My only warning to you is to make sure you get in touch with your deafblind

program in the state you live in. Sure EI is great but it also has to be

appropriate. If we had Patty placed in our local community she would not have

succeeded as far as she did. That was not appropriate. They tried like heck

but I

knew better. Instead she went to a " school " for children who had severe

disabilities. There she learned how to move and finally to walk. But that too

wasn't appropriate. I did my research as no one provided me with information on

different programs to utilize for her. I found a school for the deaf that

also had " inclusion " opportunities [That term wasn't even around back then] for

the later part of her day. The beginning of her day was 3 teachers for 5

students who were deaf. It was there she learned how to talk and she learned

life. She learned how to read, how to run and how to play with peers. She

learned!

I must add that it killed me to put my sick little baby on a bus and send her

away from me. The mother instinct is to keep your baby close. If I had done

that she would not be where she is now. I spent months (years actually) of

felling heartbroken but Patty needed a chance.

But then the age 3 came around. That's when our local community had to pay

for the program and bussing. It was then that the battles started. They said

they could and would do the same. By the age of 6 they wore me down. Then

the long story began.......

Please know your baby has the right to early intervention. It can and will

have a positive change on everyone's lives. Please also know it must be

appropriate. Again, contact your states deafblind program. You can find it in

the

yellow pages. It might take time to figure out who to talk to but it is worth

every second. It is also hard to grasp the term deafblind but that is the

closest term for many of our children to fit in to.

Found a snippet of a definition for early intervention. Here it is:

" Early intervention refers to services that are delivered to children three

years of age or younger, who are discovered to have or to be at risk of

developing a handicapping condition or other special need that may affect their

development. Early intervention can focus on remediating existing developmental

problems or preventing their occurrence. Early intervention services focus on

the

child and family together. Early intervention programs may be center-based,

home-based, hospital-based, or a combination. Services range from

identification (such as screening and referral services) to diagnostic and

direct

intervention programs. Early intervention may begin at any time between birth

and three

years of age. However, there are many reasons for it to begin as early as

possible. "

So yes your state DOES have it. No one has informed you about all of it yet.

Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to

[Guest guest]

Check with your department of education, Special Education Dept, they can put

you into contact with an early intervention program. I know in Tennessee its

called TEIS. And at age 3 they can start a sped preschool program. Going

through the education dept can be a hassel sometimes and its a constant fight

until they graduate but keep pushing them something will happen.

-------------- Original message --------------

From: Turk22082@...

n,

You HAVE to have early intervention near you. It is provided under federal

laws and protections. After the age of 3 you are then covered under you state

and local community.

Patty had it immediately as her social worker set her up with it before she

was released from the hospital. That was over 21 years ago. They came out to

my house the very first week and from there early intervention didn't

stop-ever. Patty has had a teacher in her life from the beginning. She also

had a

speech and language therapist, OT, PT ... and on and on. At first it is hard to

get used to people in your house but when you see what they do with your baby

it is worth ever second. They also included Kris in the " play " time as that

was important too.

My only warning to you is to make sure you get in touch with your deafblind

program in the state you live in. Sure EI is great but it also has to be

appropriate. If we had Patty placed in our local community she would not have

succeeded as far as she did. That was not appropriate. They tried like heck

but I

knew better. Instead she went to a " school " for children who had severe

disabilities. There she learned how to move and finally to walk. But that too

wasn't appropriate. I did my research as no one provided me with information on

different programs to utilize for her. I found a school for the deaf that

also had " inclusion " opportunities [That term wasn't even around back then] for

the later part of her day. The beginning of her day was 3 teachers for 5

students who were deaf. It was there she learned how to talk and she learned

life. She learned how to read, how to run and how to play with peers. She

learned!

I must add that it killed me to put my sick little baby on a bus and send her

away from me. The mother instinct is to keep your baby close. If I had done

that she would not be where she is now. I spent months (years actually) of

felling heartbroken but Patty needed a chance.

But then the age 3 came around. That's when our local community had to pay

for the program and bussing. It was then that the battles started. They said

they could and would do the same. By the age of 6 they wore me down. Then

the long story began.......

Please know your baby has the right to early intervention. It can and will

have a positive change on everyone's lives. Please also know it must be

appropriate. Again, contact your states deafblind program. You can find it in

the

yellow pages. It might take time to figure out who to talk to but it is worth

every second. It is also hard to grasp the term deafblind but that is the

closest term for many of our children to fit in to.

Found a snippet of a definition for early intervention. Here it is:

" Early intervention refers to services that are delivered to children three

years of age or younger, who are discovered to have or to be at risk of

developing a handicapping condition or other special need that may affect their

development. Early intervention can focus on remediating existing developmental

problems or preventing their occurrence. Early intervention services focus on

the

child and family together. Early intervention programs may be center-based,

home-based, hospital-based, or a combination. Services range from

identification (such as screening and referral services) to diagnostic and

direct

intervention programs. Early intervention may begin at any time between birth

and three

years of age. However, there are many reasons for it to begin as early as

possible. "

So yes your state DOES have it. No one has informed you about all of it yet.

Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to

[Guest guest]

Check with your department of education, Special Education Dept, they can put

you into contact with an early intervention program. I know in Tennessee its

called TEIS. And at age 3 they can start a sped preschool program. Going

through the education dept can be a hassel sometimes and its a constant fight

until they graduate but keep pushing them something will happen.

-------------- Original message --------------

From: Turk22082@...

n,

You HAVE to have early intervention near you. It is provided under federal

laws and protections. After the age of 3 you are then covered under you state

and local community.

Patty had it immediately as her social worker set her up with it before she

was released from the hospital. That was over 21 years ago. They came out to

my house the very first week and from there early intervention didn't

stop-ever. Patty has had a teacher in her life from the beginning. She also

had a

speech and language therapist, OT, PT ... and on and on. At first it is hard to

get used to people in your house but when you see what they do with your baby

it is worth ever second. They also included Kris in the " play " time as that

was important too.

My only warning to you is to make sure you get in touch with your deafblind

program in the state you live in. Sure EI is great but it also has to be

appropriate. If we had Patty placed in our local community she would not have

succeeded as far as she did. That was not appropriate. They tried like heck

but I

knew better. Instead she went to a " school " for children who had severe

disabilities. There she learned how to move and finally to walk. But that too

wasn't appropriate. I did my research as no one provided me with information on

different programs to utilize for her. I found a school for the deaf that

also had " inclusion " opportunities [That term wasn't even around back then] for

the later part of her day. The beginning of her day was 3 teachers for 5

students who were deaf. It was there she learned how to talk and she learned

life. She learned how to read, how to run and how to play with peers. She

learned!

I must add that it killed me to put my sick little baby on a bus and send her

away from me. The mother instinct is to keep your baby close. If I had done

that she would not be where she is now. I spent months (years actually) of

felling heartbroken but Patty needed a chance.

But then the age 3 came around. That's when our local community had to pay

for the program and bussing. It was then that the battles started. They said

they could and would do the same. By the age of 6 they wore me down. Then

the long story began.......

Please know your baby has the right to early intervention. It can and will

have a positive change on everyone's lives. Please also know it must be

appropriate. Again, contact your states deafblind program. You can find it in

the

yellow pages. It might take time to figure out who to talk to but it is worth

every second. It is also hard to grasp the term deafblind but that is the

closest term for many of our children to fit in to.

Found a snippet of a definition for early intervention. Here it is:

" Early intervention refers to services that are delivered to children three

years of age or younger, who are discovered to have or to be at risk of

developing a handicapping condition or other special need that may affect their

development. Early intervention can focus on remediating existing developmental

problems or preventing their occurrence. Early intervention services focus on

the

child and family together. Early intervention programs may be center-based,

home-based, hospital-based, or a combination. Services range from

identification (such as screening and referral services) to diagnostic and

direct

intervention programs. Early intervention may begin at any time between birth

and three

years of age. However, there are many reasons for it to begin as early as

possible. "

So yes your state DOES have it. No one has informed you about all of it yet.

Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to

[Guest guest]

n,

The reason no one offered it is because they would then have to provide it

and that costs money.

I haven't ever heard of parents getting counseling through those programs but

there are other avenues to find counseling. Where there's a will there's a

way. You just have to either find it or make it up as you go along. Are there

any parent support groups you can join? Meeting other parents in similar

predicaments helps tons. And no, that doesn't mean just CHARGE.

Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to

[Guest guest]

Dear Bonnie and Everyone,

Sorry for any type of confusion, but does recieve every resource and

program that is available to us in the state of Indiana. She went throught First

Steps until age 3 and is now in a developmental preschool. She recieves

O.T,D.T,P.T,S.T. and has a vision specialist who works with her and goes through

an audiology program as well.

I thought that she was referring to a special Family counseling program and

no, we did not recieve counseling, and I don't think anybody asked us if we

wanted counseling for ourselves, This has obviously has become an issue and is

to much for me to overcome and I really need some profressional guidance to help

me deal with the emotional and mental stress that I have been put under.

Everyone tells me I am so calm and " with it " , but on the inside I feel like

I'm coming apart.....

Again, so sorry for any type of confusion. Believe me, she is getting a ton of

help! It's her poor mother who could use some of it herself!!!

n-mom to 3yrs. CHARGE ,Zach 10yrs. Jordan 7 yrs, Candace 2yrs and

wife toLester for 11 yrs.

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