Re: urgent - antiarrhythmic drugs survey

July 26, 2004

In a message dated 7/26/04 9:48:41 AM Eastern Daylight Time,

joecoll2004@... writes:

As a scientist and an engineer I often wonder whether or not a serious and

comprehensive data bank exists on these drugs which can serve as a guide to

a more judicious choice by bewildered patients. Are there such data bases?

Or perhaps we ought to start an initiative of preparing our own

How long how we going to continue playing roulettes?

Hi Joe, I posted at The Atrial Fibrillation Network . They have a statistic

page for all that post (over 400) would be great if the 1000 plus here would

fill out the form and add to the statistics. I found it very helpful and

useful. The more that participate in that site the stronger the statistics page

will get for us. If you would like to read mine put me in a Lucas.

a in Massachusetts 49 Sotalol 80 x 2, Warfarin 5mg alternate with 7 1/2

July 26, 2004

In a message dated 7/26/04 9:48:41 AM Eastern Daylight Time,

joecoll2004@... writes:

As a scientist and an engineer I often wonder whether or not a serious and

comprehensive data bank exists on these drugs which can serve as a guide to

a more judicious choice by bewildered patients. Are there such data bases?

Or perhaps we ought to start an initiative of preparing our own

How long how we going to continue playing roulettes?

Hi Joe, I posted at The Atrial Fibrillation Network . They have a statistic

page for all that post (over 400) would be great if the 1000 plus here would

fill out the form and add to the statistics. I found it very helpful and

useful. The more that participate in that site the stronger the statistics page

will get for us. If you would like to read mine put me in a Lucas.

a in Massachusetts 49 Sotalol 80 x 2, Warfarin 5mg alternate with 7 1/2

July 26, 2004

I hope you all take the time to review ' Database; especially

our new folk! While you're in there, think about adding your own

history also.

http://www.dialsolutions.com/af/

Ellen

NSR in NC

*********************************

(snip) As a scientist and an engineer I often wonder whether or not

a serious and comprehensive data bank exists on these drugs which

can serve as a guide to a more judicious choice by bewildered

patients. Are there such data bases? Or perhaps we ought to start an

initiative of preparing our own (snip) Joe Y.

***********************************

July 26, 2004

I hope you all take the time to review ' Database; especially

our new folk! While you're in there, think about adding your own

history also.

http://www.dialsolutions.com/af/

Ellen

NSR in NC

*********************************

(snip) As a scientist and an engineer I often wonder whether or not

a serious and comprehensive data bank exists on these drugs which

can serve as a guide to a more judicious choice by bewildered

patients. Are there such data bases? Or perhaps we ought to start an

initiative of preparing our own (snip) Joe Y.

***********************************

July 26, 2004

I hope you all take the time to review ' Database; especially

our new folk! While you're in there, think about adding your own

history also.

http://www.dialsolutions.com/af/

Ellen

NSR in NC

*********************************

(snip) As a scientist and an engineer I often wonder whether or not

a serious and comprehensive data bank exists on these drugs which

can serve as a guide to a more judicious choice by bewildered

patients. Are there such data bases? Or perhaps we ought to start an

initiative of preparing our own (snip) Joe Y.

***********************************

July 26, 2004

(snip)

> As a scientist and an engineer I often wonder whether or not a

serious and

> comprehensive data bank exists on these drugs which can serve as a

guide to

> a more judicious choice by bewildered patients. Are there such data

bases?

> Or perhaps we ought to start an initiative of preparing our own

(snip)

Joe: While I think more data is always a good thing ---- I am not

sure that we can find the " silver bullet " for a-fib. As you mention,

there is a tremendous variation among us. But there is strength in

seeing how others " similarly situatued " (in underlying causes,

duration, and affect on quality of life) are faring.

H, Charlotte NC

July 26, 2004

(snip)

> As a scientist and an engineer I often wonder whether or not a

serious and

> comprehensive data bank exists on these drugs which can serve as a

guide to

> a more judicious choice by bewildered patients. Are there such data

bases?

> Or perhaps we ought to start an initiative of preparing our own

(snip)

Joe: While I think more data is always a good thing ---- I am not

sure that we can find the " silver bullet " for a-fib. As you mention,

there is a tremendous variation among us. But there is strength in

seeing how others " similarly situatued " (in underlying causes,

duration, and affect on quality of life) are faring.

H, Charlotte NC

July 26, 2004

> 1. The effectiveness of these drugs vary individually. Some drugs are

> effective for some people, and not for others. Whether effective or not,

> some patients complain of significant side effects, while other, more

> fortunate, report little or no side effects.

> [sNIP]

> As a scientist and an engineer I often wonder whether or not a serious and

> comprehensive data bank exists on these drugs which can serve as a guide to

> a more judicious choice by bewildered patients. Are there such data bases?

> Or perhaps we ought to start an initiative of preparing our own

>

> How long how we going to continue playing roulettes?

>

> Joe Y.

>

Hi Joe, any idea how you mate the idea of choosing judiciously

with the observation that results vary so wildly from individual

to individual?

You'll find sites that discuss protocols on what meds to use.

I'm thinking in particular of

http://www.acc.org/clinical/guidelines/atrial_fib/af_index.htm

but there are more to be found on the web.

You'll also find many sites with monographs for particular meds,

some sites can be found from our links section

http://health.groups.yahoo.com/group/AFIBsupport/links

a search at PubMed

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=PubMed

will throw up specific research for many drugs

and if you want to get a personal patient view you can try my database

http://www.dialsolutions.com/af/database/index.html?Adv=1 & All=3

just tick a med then click on search

I think roulette is the only game in the house at the moment. (albeit

with a wheel with some numbers in our favour). Knowing if flecainide

is going to cure you of AF or give you rapid atrial flutter is

still in the 'suck and see' category. Doctors can only play the

percentage game and try target the most successful drugs.

I'll have 10 bucks on red or black or green

--

D

July 26, 2004

> 1. The effectiveness of these drugs vary individually. Some drugs are

> effective for some people, and not for others. Whether effective or not,

> some patients complain of significant side effects, while other, more

> fortunate, report little or no side effects.

> [sNIP]

> As a scientist and an engineer I often wonder whether or not a serious and

> comprehensive data bank exists on these drugs which can serve as a guide to

> a more judicious choice by bewildered patients. Are there such data bases?

> Or perhaps we ought to start an initiative of preparing our own

>

> How long how we going to continue playing roulettes?

>

> Joe Y.

>

Hi Joe, any idea how you mate the idea of choosing judiciously

with the observation that results vary so wildly from individual

to individual?

You'll find sites that discuss protocols on what meds to use.

I'm thinking in particular of

http://www.acc.org/clinical/guidelines/atrial_fib/af_index.htm

but there are more to be found on the web.

You'll also find many sites with monographs for particular meds,

some sites can be found from our links section

http://health.groups.yahoo.com/group/AFIBsupport/links

a search at PubMed

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=PubMed

will throw up specific research for many drugs

and if you want to get a personal patient view you can try my database

http://www.dialsolutions.com/af/database/index.html?Adv=1 & All=3

just tick a med then click on search

I think roulette is the only game in the house at the moment. (albeit

with a wheel with some numbers in our favour). Knowing if flecainide

is going to cure you of AF or give you rapid atrial flutter is

still in the 'suck and see' category. Doctors can only play the

percentage game and try target the most successful drugs.

I'll have 10 bucks on red or black or green

--

D

July 26, 2004

> Hi Joe, I posted at The Atrial Fibrillation Network . They have a statistic

> page for all that post (over 400) would be great if the 1000 plus here would

> fill out the form and add to the statistics. I found it very helpful and

> useful. The more that participate in that site the stronger the statistics

page

> will get for us. If you would like to read mine put me in a Lucas.

> a in Massachusetts 49 Sotalol 80 x 2, Warfarin 5mg alternate with 7 1/2

and if somebody can figure out how we get all the people who are cured of AF

because the meds are working (or they've learnt that standing on one leg and

whistling 'Yankee Doodle Dandy' helps) to fill in entries in the database

that would be great

--

D

July 26, 2004

> > Hi Joe, I posted at The Atrial Fibrillation Network . They have

a statistic

> > page for all that post (over 400)

Hi I agree it is a great idea to collect this data!

I found it a little hard to know how to go about filling it out. I

did not find any tools to view the data trends and graphs . Have I

just gone into the site in an incorrect route ? The site should be

updated so that those encountering the page feel like it is still

active . It says to " view the first 161 visitors " .I saw it before

and thought it was a causalty of an earlier era .I am sorry to say

that but even if there was a request paragraph and an updated in the

last few months i think it would attract more folks. If one coculd

view the results to date it would be great .I recently took Hans

survey and he used a web service i have no idea about its cost but it

wsa very slick.

The Atrial Fibrillation Network has been a pioneering work and

deserves a lot of respect. Thanks to its creators.

regards

July 26, 2004