Guest guest Posted May 16, 2001 Report Share Posted May 16, 2001 Hi Lin, My son's dermatologist is also very supportive of the AP, in fact, he said in his opinion, it was the only way to go. Of further interest, I've been discussing the AP with my pharmacist, who is extremely interested in it to the point where she's planning to read The New Arthritis Breakthrough. Anyway, the last time I was in to pick up a prescription, she excitedly asked me to wait while she dug out the latest issue of the Pharmacology Association Newsletter. The front page of the Newsletter had an article stating that the latest research repeatedly points to infections being the likely cause of most autoimmune disorders, such as MS, RA, lupus, etc. The article went on to discuss the importance of treating the infections with --- big surprise --- antibiotics such as minocycline as well as macrolides!!! I was very impressed that my pharmacist had remembered our conversations and instantly picked up that this article supported what I'd been telling her. She's planning to pass the info along to other customers with rheumatic illnesses, which made me happy. If we can't clue in all the rheumatologists, maybe educating our pharmacists is another way to go. Hugs a Tomlinkara@... wrote: > > Hi everyone, > With each year that passes it seems that a new mole appears on my face (like > tree rings) !! So today I had them all cut off by a Dermatologist.He is > familiar with Antibiotic Therapy as there are people in our group with > Scleroderma who see him.Anyway he said that the field of Dermatology has > known for YEARS that Minocin has anti-inflammatory properties.Hence they have > used it for years.I thought if there are any of you out there having trouble > getting Minocin,Dermatologists may be another avenue for you... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2001 Report Share Posted May 16, 2001 on 5/16/01 4:04 PM, Tomlinkara@... at Tomlinkara@... wrote: > Anyway he said that the field of Dermatology has > known for YEARS that Minocin has anti-inflammatory properties.Hence they have > used it for years.I thought if there are any of you out there having trouble > getting Minocin,Dermatologists may be another avenue for you. I saw a new GP last summer, told him about mino for arthritis, he said he had never heard of this, but it would probably work similarly to mino for acne. He was interested and pleased it was helping me. I also recently heard of a friend of a friend who went to a main-stream rheumatologist when she first came down with RA, was promptly prescribed mino, and promptly got the RA under control. I think we're getting somewhere... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2001 Report Share Posted May 16, 2001 Hi everyone: I'm new to the group. My name is Suzanne and I have dermatomyositis. I am so encouraged by all the emails I have read regarding antibiotic to treat rheumatic diseases. I have been taking doxycycline for the last year. I think it has helped but am not sure. Some of the positive things I have experienced is that the rash on the front of my neck has completely disappeared and so has the rash on my eyelids. When I went off of the predinisone in March, I had a slight flare following its discontinuance. The flare was nothing compared to the flare I had when my disease started. Is the doxycycline working for me? Can anyone share their experiences with me. On June 5 I am going to see a new doctor who treats people with rheumatic diseases by using minocin as the antibiotic of choice. To date, he has put 6 people with dm into remission by using minocin along with dietary change. I'll let everyone know how it goes. I love being part of this group. Everyone is so supportive. Thanks for everything. Suzanne Delich> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2001 Report Share Posted May 17, 2001 Hi Suzanne I'm replying because I too am fairly new to the AP and " think it is helped but am not sure. " I've been on it for just over a year and got onto it as soon as I realised something was seriously wrong with me (that took about a year). I have just been to my rheumatologist for my 6 monthly check. I've seen him three times now. It was an opportunity to review how things have been going. Althought there have been severe set backs along the way, I am now able to do things I couldn't a year ago. I spent last Sunday in the garden, able to get up and down, weed, prune the roses, plant plants and sow seeds. This evening I could bother and comfortably bring in wood and make a fire. My energy levels are up and my point of view has changed so that I now look at what I can still do and can begin to do again instead of feeling grey and frustrated because of all the things I can't do. I am managing to do some things in the evening after work (often just more work!) instead of collapsing in a sore heap. When I asked Dr Chiu if it could simply be the Celebrex keeping the pain under control he pointed out that I am feeling and behaving better overall while the Celebrex has been a constant factor over the year. I haven't just stayed the same. The 6 monthly blood tests were down and I am waiting on the results of this last lot. I am not " cured " yet, but feel hopeful that I am on the way to quality of life again. Oh I have RA, by the way. I go to a cranial osteopath every month and she too is noticing the difference. The AP works. All the best Gail > From: Delich Suzanne <zannie68@...> > Date: Wed, 16 May 2001 21:52:07 -0700 (PDT) > Tomlinkara@..., rheumatic > Subject: Re: rheumatic Dermatology > > > Hi everyone: > > I'm new to the group. My name is Suzanne and I have > dermatomyositis. > > I am so encouraged by all the emails I have read > regarding antibiotic to treat rheumatic diseases. > > I have been taking doxycycline for the last year. I > think it has helped but am not sure. Some of the > positive things I have experienced is that the rash on > the front of my neck has completely disappeared and so > has the rash on my eyelids. When I went off of the > predinisone in March, I had a slight flare following > its discontinuance. The flare was nothing compared to > the flare I had when my disease started. > > Is the doxycycline working for me? Can anyone share > their experiences with me. On June 5 I am going to > see a new doctor who treats people with rheumatic > diseases by using minocin as the antibiotic of choice. > To date, he has put 6 people with dm into remission > by using minocin along with dietary change. > > I'll let everyone know how it goes. > > I love being part of this group. Everyone is so > supportive. Thanks for everything. > > Suzanne Delich> > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2001 Report Share Posted May 17, 2001 you may need to add an antifungal to your regime as well. Sporanox, nystatin, diflucan for example. this may help accelerate your recovery. kathy Re: rheumatic Dermatology > >Hi everyone: > >I'm new to the group. My name is Suzanne and I have >dermatomyositis. > >I am so encouraged by all the emails I have read >regarding antibiotic to treat rheumatic diseases. > >I have been taking doxycycline for the last year. I >think it has helped but am not sure. Some of the >positive things I have experienced is that the rash on >the front of my neck has completely disappeared and so >has the rash on my eyelids. When I went off of the >predinisone in March, I had a slight flare following >its discontinuance. The flare was nothing compared to >the flare I had when my disease started. > >Is the doxycycline working for me? Can anyone share >their experiences with me. On June 5 I am going to >see a new doctor who treats people with rheumatic >diseases by using minocin as the antibiotic of choice. > To date, he has put 6 people with dm into remission >by using minocin along with dietary change. > >I'll let everyone know how it goes. > >I love being part of this group. Everyone is so >supportive. Thanks for everything. > >Suzanne Delich> > > >To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 Hi Bev The workings of cranial osteopathy are a little mysterious to me, and I couldn't really explain how it works, but I can just tell of some experiences. All practitioners are fully trained regular osteopaths, by the way. I was initially sceptical, but went for back and shoulder problems that I'd had for years. I was impressed with the gentleness of the treatment. It involves manipulated fluids. I got a lot better and came to respect my doctor tremendously. She suggested I might have RA and sent me to a GP, and told me about the antibiotic treatment that another patient of hers was having. She saved me years of suffering from this. She says she's currently working on my kidneys as a way of helping fluids drain from my tissues and joints. Anyway about your head: several months ago I discovered I had higher than safe blood pressure. I did not want to take any medications and told the GP that I wanted some time to try to get it down myself. She gave me a week! So I went to the osteopath and said she had a week to get my blood pressure down. Which she did. Well it could have been a conincidence but I doubt it. I think if you find a cranial ostoepath that you can relate to well, and you're willing to hang in there over time, then you can be helped a lot. I refer to her as doing my routine maintenance, like you do with a car! Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 Judy I know I am sooooo lucky to have Dr Chiu. I read how so many people suffer for years before finding out about the AP, and how so many people struggle to find a good rheumatologist. I went to a shocking one at first, just once, but fortunately had already been told about the AP by my osteopath. So one visit to a conventional patronising specialist convinced me to make the plane trip to Wellington. It's well worth it. I told Dr Chiu that people on this list still referred to him and quoted him. I think he was touched. He said that he was just too busy these days. I'll pass on your message next time. Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 Gail - please tell Dr. Chiu that we all really loved him and I want to thank him for all the time he gave us. Hope he's still getting lots of chocolates and that life is good for him Chris. On Sat, 19 May 2001, Gail wrote: > Judy I know I am sooooo lucky to have Dr Chiu. I read how so many people > suffer for years before finding out about the AP, and how so many people > struggle to find a good rheumatologist. I went to a shocking one at first, > just once, but fortunately had already been told about the AP by my > osteopath. So one visit to a conventional patronising specialist convinced > me to make the plane trip to Wellington. It's well worth it. I told Dr > Chiu that people on this list still referred to him and quoted him. I think > he was touched. He said that he was just too busy these days. I'll pass on > your message next time. > Gail > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
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