Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 Dan, I'm on LDN, I hope it works as well for you as it does for me. I really do. ~*~Hugs~*~ ~*~Akiba~*~ -- Dan's update Hi, all: I'm glad I finally got to see an MS specialist at UCSF Center for Neurology in San Francisco yesterday. Only wish it had been sooner. The neuro at UCSF is confident that I have primary progressive MS as opposed to relapsing remitting. That is consistent with my steady physical decline. I will stop taking Copaxone and probably try an experimental drug called rituxan. But, it will be several months before I can start on it. He also gave me prescriptions for fampridine and low dose naltrexone, which may improve my muscle strength. We'll see. Dan U dao_nguuhotmail Hotmail: Trusted email with Microsoft's powerful SPAM protection. Sign up now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 Dan, I'm on LDN, I hope it works as well for you as it does for me. I really do. ~*~Hugs~*~ ~*~Akiba~*~ -- Dan's update Hi, all: I'm glad I finally got to see an MS specialist at UCSF Center for Neurology in San Francisco yesterday. Only wish it had been sooner. The neuro at UCSF is confident that I have primary progressive MS as opposed to relapsing remitting. That is consistent with my steady physical decline. I will stop taking Copaxone and probably try an experimental drug called rituxan. But, it will be several months before I can start on it. He also gave me prescriptions for fampridine and low dose naltrexone, which may improve my muscle strength. We'll see. Dan U dao_nguuhotmail Hotmail: Trusted email with Microsoft's powerful SPAM protection. Sign up now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 Dan, I'm on LDN, I hope it works as well for you as it does for me. I really do. ~*~Hugs~*~ ~*~Akiba~*~ -- Dan's update Hi, all: I'm glad I finally got to see an MS specialist at UCSF Center for Neurology in San Francisco yesterday. Only wish it had been sooner. The neuro at UCSF is confident that I have primary progressive MS as opposed to relapsing remitting. That is consistent with my steady physical decline. I will stop taking Copaxone and probably try an experimental drug called rituxan. But, it will be several months before I can start on it. He also gave me prescriptions for fampridine and low dose naltrexone, which may improve my muscle strength. We'll see. Dan U dao_nguuhotmail Hotmail: Trusted email with Microsoft's powerful SPAM protection. Sign up now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 Dear Dan,This is troubling to read...I am so sorry you have entered into this phase of MS. I am glad you did in fact see an MS specialist. It does sound, from what you have been describing of your physical condition, that things have been advancing for you. What can I do to help support you at this time? I'll pray of course. I hope the new meds will help to stabilize you Dan...blessings and many hugs, Kate Dan's updateTo: mserslife > > Hi, all:> > > > I'm glad I finally got to see an MS specialist at UCSF Center > for Neurology in San Francisco yesterday. Only wish it had been > sooner. The neuro at UCSF is confident that I have primary > progressive MS as opposed to relapsing remitting. That is > consistent with my steady physical decline. I will stop taking > Copaxone and probably try an experimental drug called rituxan. > But, it will be several months before I can start on it. He also > gave me prescriptions for fampridine and low dose naltrexone, > which may improve my muscle strength. We'll see. > > > Dan U > dao_nguu@...> > > > > > > > > > > > > _________________________________________________________________> Hotmail: Trusted email with Microsoft's powerful SPAM protection.> http://clk.atdmt.com/GBL/go/177141664/direct/01/> http://clk.atdmt.com/GBL/go/177141664/direct/01/> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 Dear Dan,This is troubling to read...I am so sorry you have entered into this phase of MS. I am glad you did in fact see an MS specialist. It does sound, from what you have been describing of your physical condition, that things have been advancing for you. What can I do to help support you at this time? I'll pray of course. I hope the new meds will help to stabilize you Dan...blessings and many hugs, Kate Dan's updateTo: mserslife > > Hi, all:> > > > I'm glad I finally got to see an MS specialist at UCSF Center > for Neurology in San Francisco yesterday. Only wish it had been > sooner. The neuro at UCSF is confident that I have primary > progressive MS as opposed to relapsing remitting. That is > consistent with my steady physical decline. I will stop taking > Copaxone and probably try an experimental drug called rituxan. > But, it will be several months before I can start on it. He also > gave me prescriptions for fampridine and low dose naltrexone, > which may improve my muscle strength. We'll see. > > > Dan U > dao_nguu@...> > > > > > > > > > > > > _________________________________________________________________> Hotmail: Trusted email with Microsoft's powerful SPAM protection.> http://clk.atdmt.com/GBL/go/177141664/direct/01/> http://clk.atdmt.com/GBL/go/177141664/direct/01/> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 Dear Dan,This is troubling to read...I am so sorry you have entered into this phase of MS. I am glad you did in fact see an MS specialist. It does sound, from what you have been describing of your physical condition, that things have been advancing for you. What can I do to help support you at this time? I'll pray of course. I hope the new meds will help to stabilize you Dan...blessings and many hugs, Kate Dan's updateTo: mserslife > > Hi, all:> > > > I'm glad I finally got to see an MS specialist at UCSF Center > for Neurology in San Francisco yesterday. Only wish it had been > sooner. The neuro at UCSF is confident that I have primary > progressive MS as opposed to relapsing remitting. That is > consistent with my steady physical decline. I will stop taking > Copaxone and probably try an experimental drug called rituxan. > But, it will be several months before I can start on it. He also > gave me prescriptions for fampridine and low dose naltrexone, > which may improve my muscle strength. We'll see. > > > Dan U > dao_nguu@...> > > > > > > > > > > > > _________________________________________________________________> Hotmail: Trusted email with Microsoft's powerful SPAM protection.> http://clk.atdmt.com/GBL/go/177141664/direct/01/> http://clk.atdmt.com/GBL/go/177141664/direct/01/> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 I feel for you Dan. I also have PPMS and was diagnosed in 2003. The only thing is up here in Ontario, Canada, I'm not finding that my neurologist is suggesting anything except pain meds, which don't work for me. the stiffness just keeps getting worse. a McAleese ARF Volunteer To: mserslife Sent: Wed, November 25, 2009 10:32:50 AMSubject: Dan's update Hi, all: I'm glad I finally got to see an MS specialist at UCSF Center for Neurology in San Francisco yesterday. Only wish it had been sooner. The neuro at UCSF is confident that I have primary progressive MS as opposed to relapsing remitting. That is consistent with my steady physical decline. I will stop taking Copaxone and probably try an experimental drug called rituxan. But, it will be several months before I can start on it. He also gave me prescriptions for fampridine and low dose naltrexone, which may improve my muscle strength. We'll see. Dan U dao_nguuhotmail (DOT) com Hotmail: Trusted email with Microsoft's powerful SPAM protection. Sign up now. The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Yahoo! Get it Now for Free! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 I feel for you Dan. I also have PPMS and was diagnosed in 2003. The only thing is up here in Ontario, Canada, I'm not finding that my neurologist is suggesting anything except pain meds, which don't work for me. the stiffness just keeps getting worse. a McAleese ARF Volunteer To: mserslife Sent: Wed, November 25, 2009 10:32:50 AMSubject: Dan's update Hi, all: I'm glad I finally got to see an MS specialist at UCSF Center for Neurology in San Francisco yesterday. Only wish it had been sooner. The neuro at UCSF is confident that I have primary progressive MS as opposed to relapsing remitting. That is consistent with my steady physical decline. I will stop taking Copaxone and probably try an experimental drug called rituxan. But, it will be several months before I can start on it. He also gave me prescriptions for fampridine and low dose naltrexone, which may improve my muscle strength. We'll see. Dan U dao_nguuhotmail (DOT) com Hotmail: Trusted email with Microsoft's powerful SPAM protection. Sign up now. The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Yahoo! Get it Now for Free! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 I feel for you Dan. I also have PPMS and was diagnosed in 2003. The only thing is up here in Ontario, Canada, I'm not finding that my neurologist is suggesting anything except pain meds, which don't work for me. the stiffness just keeps getting worse. a McAleese ARF Volunteer To: mserslife Sent: Wed, November 25, 2009 10:32:50 AMSubject: Dan's update Hi, all: I'm glad I finally got to see an MS specialist at UCSF Center for Neurology in San Francisco yesterday. Only wish it had been sooner. The neuro at UCSF is confident that I have primary progressive MS as opposed to relapsing remitting. That is consistent with my steady physical decline. I will stop taking Copaxone and probably try an experimental drug called rituxan. But, it will be several months before I can start on it. He also gave me prescriptions for fampridine and low dose naltrexone, which may improve my muscle strength. We'll see. Dan U dao_nguuhotmail (DOT) com Hotmail: Trusted email with Microsoft's powerful SPAM protection. Sign up now. The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Yahoo! Get it Now for Free! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 Dan I will keep you in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com -----Original Message-----From: dao_nguu@...Sent: Wed, 25 Nov 2009 15:32:50 +0000To: mserslife Subject: Dan's update Hi, all: I'm glad I finally got to see an MS specialist at UCSF Center for Neurology in San Francisco yesterday. Only wish it had been sooner. The neuro at UCSF is confident that I have primary progressive MS as opposed to relapsing remitting. That is consistent with my steady physical decline. I will stop taking Copaxone and probably try an experimental drug called rituxan. But, it will be several months before I can start on it. He also gave me prescriptions for fampridine and low dose naltrexone, which may improve my muscle strength. We'll see. Dan U dao_nguuhotmail Hotmail: Trusted email with Microsoft's powerful SPAM protection. Sign up now. Get Free 5GB Email – Check out spam free email with many cool features! Visit http://www.inbox.com/email to find out more! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 Thanks, Akiba: Do you experience vivid dreams on LDN? The neuro at UCSF says it should help with sleep and give more vivid dreams. The diagnosis of PPMS is not surprising considering how my condition had deteriorated so much in the past 18 months. But, it's still disappointing. Well, at least no more nasty welts and bruises from the Copaxone injections! And, this neuro is much more willing to prescribe medications such as LDN and fampridine.Dan U dao_nguu@... To: MSersLife From: akyba@...Date: Wed, 25 Nov 2009 10:44:36 -0500Subject: Re: Dan's update Dan, I'm on LDN, I hope it works as well for you as it does for me. I really do. ~*~Hugs~*~ ~*~Akiba~*~ -- Dan's update Hi, all: I'm glad I finally got to see an MS specialist at UCSF Center for Neurology in San Francisco yesterday. Only wish it had been sooner. The neuro at UCSF is confident that I have primary progressive MS as opposed to relapsing remitting. That is consistent with my steady physical decline. I will stop taking Copaxone and probably try an experimental drug called rituxan. But, it will be several months before I can start on it. He also gave me prescriptions for fampridine and low dose naltrexone, which may improve my muscle strength. We'll see. Dan U dao_nguuhotmail Hotmail: Trusted email with Microsoft's powerful SPAM protection. Sign up now. Hotmail: Trusted email with Microsoft's powerful SPAM protection. Sign up now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 Thanks, Akiba: Do you experience vivid dreams on LDN? The neuro at UCSF says it should help with sleep and give more vivid dreams. The diagnosis of PPMS is not surprising considering how my condition had deteriorated so much in the past 18 months. But, it's still disappointing. Well, at least no more nasty welts and bruises from the Copaxone injections! And, this neuro is much more willing to prescribe medications such as LDN and fampridine.Dan U dao_nguu@... To: MSersLife From: akyba@...Date: Wed, 25 Nov 2009 10:44:36 -0500Subject: Re: Dan's update Dan, I'm on LDN, I hope it works as well for you as it does for me. I really do. ~*~Hugs~*~ ~*~Akiba~*~ -- Dan's update Hi, all: I'm glad I finally got to see an MS specialist at UCSF Center for Neurology in San Francisco yesterday. Only wish it had been sooner. The neuro at UCSF is confident that I have primary progressive MS as opposed to relapsing remitting. That is consistent with my steady physical decline. I will stop taking Copaxone and probably try an experimental drug called rituxan. But, it will be several months before I can start on it. He also gave me prescriptions for fampridine and low dose naltrexone, which may improve my muscle strength. We'll see. Dan U dao_nguuhotmail Hotmail: Trusted email with Microsoft's powerful SPAM protection. Sign up now. Hotmail: Trusted email with Microsoft's powerful SPAM protection. Sign up now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 Hi, Kate: Thanks for your concern. At present my biggest concern is getting SSDI and my LTD claim (with my former employer) approved. As I may have mentioned, I retained an ERISA attorney for the LTD claim as the insurance company certainly doesn't want to approve my claim. I'm still waiting for word on my SSDI claim and expect to be waiting a couple more months.Dan U dao_nguu@... To: MSersLife From: katelloydkidz@...Date: Wed, 25 Nov 2009 16:03:47 +0000Subject: Re: Dan's update Dear Dan,This is troubling to read...I am so sorry you have entered into this phase of MS. I am glad you did in fact see an MS specialist. It does sound, from what you have been describing of your physical condition, that things have been advancing for you. What can I do to help support you at this time? I'll pray of course. I hope the new meds will help to stabilize you Dan...blessings and many hugs, Kate Hotmail: Trusted email with Microsoft's powerful SPAM protection. Sign up now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 Hi, Kate: Thanks for your concern. At present my biggest concern is getting SSDI and my LTD claim (with my former employer) approved. As I may have mentioned, I retained an ERISA attorney for the LTD claim as the insurance company certainly doesn't want to approve my claim. I'm still waiting for word on my SSDI claim and expect to be waiting a couple more months.Dan U dao_nguu@... To: MSersLife From: katelloydkidz@...Date: Wed, 25 Nov 2009 16:03:47 +0000Subject: Re: Dan's update Dear Dan,This is troubling to read...I am so sorry you have entered into this phase of MS. I am glad you did in fact see an MS specialist. It does sound, from what you have been describing of your physical condition, that things have been advancing for you. What can I do to help support you at this time? I'll pray of course. I hope the new meds will help to stabilize you Dan...blessings and many hugs, Kate Hotmail: Trusted email with Microsoft's powerful SPAM protection. Sign up now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 Hi, Kate: Thanks for your concern. At present my biggest concern is getting SSDI and my LTD claim (with my former employer) approved. As I may have mentioned, I retained an ERISA attorney for the LTD claim as the insurance company certainly doesn't want to approve my claim. I'm still waiting for word on my SSDI claim and expect to be waiting a couple more months.Dan U dao_nguu@... To: MSersLife From: katelloydkidz@...Date: Wed, 25 Nov 2009 16:03:47 +0000Subject: Re: Dan's update Dear Dan,This is troubling to read...I am so sorry you have entered into this phase of MS. I am glad you did in fact see an MS specialist. It does sound, from what you have been describing of your physical condition, that things have been advancing for you. What can I do to help support you at this time? I'll pray of course. I hope the new meds will help to stabilize you Dan...blessings and many hugs, Kate Hotmail: Trusted email with Microsoft's powerful SPAM protection. Sign up now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 I did more when I first started it, now not as much, maybe my body has become more accustomed to it?. And yes, no more shots is a bit of a silver lining...I remember those shots, and the injection site reactions I had..nasty... ~*~Hugs~*~ ~*~Akiba~*~ -- Dan's update Hi, all: I'm glad I finally got to see an MS specialist at UCSF Center for Neurology in San Francisco yesterday. Only wish it had been sooner. The neuro at UCSF is confident that I have primary progressive MS as opposed to relapsing remitting. That is consistent with my steady physical decline. I will stop taking Copaxone and probably try an experimental drug called rituxan. But, it will be several months before I can start on it. He also gave me prescriptions for fampridine and low dose naltrexone, which may improve my muscle strength. We'll see. Dan U dao_nguuhotmail Hotmail: Trusted email with Microsoft's powerful SPAM protection. Sign up now. Hotmail: Trusted email with Microsoft's powerful SPAM protection. Sign up now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 Dear Dan.....I'm thankful you went to this new doc but I'm sorry he feels it is primary progressive. How do you feel about this news? It's interesting he is giving you LDN. What did the doc say about the LDN? ((hugs)) SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: mserslife Sent: Wed, November 25, 2009 8:32:50 AMSubject: Dan's update Hi, all: I'm glad I finally got to see an MS specialist at UCSF Center for Neurology in San Francisco yesterday. Only wish it had been sooner. The neuro at UCSF is confident that I have primary progressive MS as opposed to relapsing remitting. That is consistent with my steady physical decline. I will stop taking Copaxone and probably try an experimental drug called rituxan. But, it will be several months before I can start on it. He also gave me prescriptions for fampridine and low dose naltrexone, which may improve my muscle strength. We'll see. Dan U dao_nguu@... Hotmail: Trusted email with Microsoft's powerful SPAM protection. Sign up now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 Hi again,I too have been waiting on disability, so I understand the 'waiting game'. Hopefully you'll hear something soon...and favorable! blessings to you, Kate Re: Dan's update> > > > > > Dear Dan,> This is troubling to read...I am so sorry you have entered into > this phase of MS. I am glad you did in fact see an MS > specialist. It does sound, from what you have been describing of > your physical condition, that things have been advancing for > you. What can I do to help support you at this time? I'll pray > of course. I hope the new meds will help to stabilize you Dan...> blessings and many hugs, Kate> > > > _________________________________________________________________> Hotmail: Trusted email with Microsoft's powerful SPAM protection.> http://clk.atdmt.com/GBL/go/177141664/direct/01/> http://clk.atdmt.com/GBL/go/177141664/direct/01/> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 Its good you were able to see a specialist. Better to know what you are dealing with and being able to properly treat your form of MS. I don;t know if that came out right, but I hope you know what I'm trying to say. I hope your new meds work well for you. Jolie > Hi again,I too have been waiting on disability, so I understand the 'waiting > game'. Hopefully you'll hear something soon...and favorable! blessings to > you, Kate > Re: Dan's update> > > > > > Dear Dan,> This is troubling to > read...I am so sorry you have entered into > this phase of MS. I am glad you > did in fact see an MS > specialist. It does sound, from what you have been > describing of > your physical condition, that things have been advancing for >> you. What can I do to help support you at this time? I'll pray > of > course. I hope the new meds will help to stabilize you Dan...> blessings and > many hugs, Kate> > > > > _________________________________________________________________> Hotmail: > Trusted email with Microsoft's powerful SPAM protection.> > http://clk.atdmt.com/GBL/go/177141664/direct/01/> > http://clk.atdmt.com/GBL/go/177141664/direct/01/> > -- Jolie And we pray X 4 Everyday X 4 Haters can keep on hating... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 Its good you were able to see a specialist. Better to know what you are dealing with and being able to properly treat your form of MS. I don;t know if that came out right, but I hope you know what I'm trying to say. I hope your new meds work well for you. Jolie > Hi again,I too have been waiting on disability, so I understand the 'waiting > game'. Hopefully you'll hear something soon...and favorable! blessings to > you, Kate > Re: Dan's update> > > > > > Dear Dan,> This is troubling to > read...I am so sorry you have entered into > this phase of MS. I am glad you > did in fact see an MS > specialist. It does sound, from what you have been > describing of > your physical condition, that things have been advancing for >> you. What can I do to help support you at this time? I'll pray > of > course. I hope the new meds will help to stabilize you Dan...> blessings and > many hugs, Kate> > > > > _________________________________________________________________> Hotmail: > Trusted email with Microsoft's powerful SPAM protection.> > http://clk.atdmt.com/GBL/go/177141664/direct/01/> > http://clk.atdmt.com/GBL/go/177141664/direct/01/> > -- Jolie And we pray X 4 Everyday X 4 Haters can keep on hating... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 Its good you were able to see a specialist. Better to know what you are dealing with and being able to properly treat your form of MS. I don;t know if that came out right, but I hope you know what I'm trying to say. I hope your new meds work well for you. Jolie > Hi again,I too have been waiting on disability, so I understand the 'waiting > game'. Hopefully you'll hear something soon...and favorable! blessings to > you, Kate > Re: Dan's update> > > > > > Dear Dan,> This is troubling to > read...I am so sorry you have entered into > this phase of MS. I am glad you > did in fact see an MS > specialist. It does sound, from what you have been > describing of > your physical condition, that things have been advancing for >> you. What can I do to help support you at this time? I'll pray > of > course. I hope the new meds will help to stabilize you Dan...> blessings and > many hugs, Kate> > > > > _________________________________________________________________> Hotmail: > Trusted email with Microsoft's powerful SPAM protection.> > http://clk.atdmt.com/GBL/go/177141664/direct/01/> > http://clk.atdmt.com/GBL/go/177141664/direct/01/> > -- Jolie And we pray X 4 Everyday X 4 Haters can keep on hating... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2009 Report Share Posted November 26, 2009 Hi Dao, I hope you will get best results with the new prescriptions. I have read about famipridine which is a new drug approved by fda and which has not come to Turkey and will not be able to come before a few years.. I will be glad to hear your progress with the new drugs. I hope the best for you. Nukhet Subject: Dan's updateTo: mserslife Date: Wednesday, November 25, 2009, 5:32 PM Hi, all: I'm glad I finally got to see an MS specialist at UCSF Center for Neurology in San Francisco yesterday. Only wish it had been sooner. The neuro at UCSF is confident that I have primary progressive MS as opposed to relapsing remitting. That is consistent with my steady physical decline. I will stop taking Copaxone and probably try an experimental drug called rituxan. But, it will be several months before I can start on it. He also gave me prescriptions for fampridine and low dose naltrexone, which may improve my muscle strength. We'll see. Dan U dao_nguuhotmail (DOT) com Hotmail: Trusted email with Microsoft's powerful SPAM protection. Sign up now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2009 Report Share Posted November 26, 2009 Hi Dao, I hope you will get best results with the new prescriptions. I have read about famipridine which is a new drug approved by fda and which has not come to Turkey and will not be able to come before a few years.. I will be glad to hear your progress with the new drugs. I hope the best for you. Nukhet Subject: Dan's updateTo: mserslife Date: Wednesday, November 25, 2009, 5:32 PM Hi, all: I'm glad I finally got to see an MS specialist at UCSF Center for Neurology in San Francisco yesterday. Only wish it had been sooner. The neuro at UCSF is confident that I have primary progressive MS as opposed to relapsing remitting. That is consistent with my steady physical decline. I will stop taking Copaxone and probably try an experimental drug called rituxan. But, it will be several months before I can start on it. He also gave me prescriptions for fampridine and low dose naltrexone, which may improve my muscle strength. We'll see. Dan U dao_nguuhotmail (DOT) com Hotmail: Trusted email with Microsoft's powerful SPAM protection. Sign up now. Quote Link to comment Share on other sites More sharing options...
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