Re: nat charge related ....just a tender moment

[Guest guest]

Beautiful...I love how she's reaching up for your face and looks like she's

getting ready to smooch you.

>

> i have put a picture of Amelie and me on my new profile page, its a

> rare and very tender moment, which i couldnt help but share, its taken

> on her first birthday in hospital after coming off her vent. she looks

> a litle frail with shaven hair from canulas, and i have to say is

> looking a lot better now, but the picture is a significant one for me,

> mind you they all are!!! arent they, each day of every week of every

> year....our pictures mean so much to us!!

>

> anyway wanted to share it, as i cant do any fancy videos or blog

> things this is my latest IT skill.....gosh i;m so useless at it.

>

> love les x

>

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in

> the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

Beautiful...I love how she's reaching up for your face and looks like she's

getting ready to smooch you.

>

> i have put a picture of Amelie and me on my new profile page, its a

> rare and very tender moment, which i couldnt help but share, its taken

> on her first birthday in hospital after coming off her vent. she looks

> a litle frail with shaven hair from canulas, and i have to say is

> looking a lot better now, but the picture is a significant one for me,

> mind you they all are!!! arent they, each day of every week of every

> year....our pictures mean so much to us!!

>

> anyway wanted to share it, as i cant do any fancy videos or blog

> things this is my latest IT skill.....gosh i;m so useless at it.

>

> love les x

>

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in

> the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

Where is the picture?

Whats the url?

Chantelle

[Guest guest]

I missed the photo! What's the link??

Michele W

mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ

RE: nat charge related ....just a tender moment

Oh Lesley, that picture is so sweet! Thanks for sharing!

[Guest guest]

I missed the photo! What's the link??

Michele W

mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ

RE: nat charge related ....just a tender moment

Oh Lesley, that picture is so sweet! Thanks for sharing!

[Guest guest]

I missed the photo! What's the link??

Michele W

mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ

RE: nat charge related ....just a tender moment

Oh Lesley, that picture is so sweet! Thanks for sharing!

[Guest guest]

It's her yahoo profile pic... the url is:

http://profiles.yahoo.com/studentmidwifechan

Lis

>

> I missed the photo! What's the link??

>

> Michele W

> mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ

>

>

[Guest guest]

It's her yahoo profile pic... the url is:

http://profiles.yahoo.com/studentmidwifechan

Lis

>

> I missed the photo! What's the link??

>

> Michele W

> mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ

>

>

[Guest guest]

Such a beautiful picture!! Amelie's little mouth looks like she is puckering up

for a kiss for Mommy.

pam

[Guest guest]

Such a beautiful picture!! Amelie's little mouth looks like she is puckering up

for a kiss for Mommy.

pam

[Guest guest]

Oh my. She's just as beautiful as I thought she was.

Bonnie, Mom to a 23, Patty CHARGE 21, and wife to

[Guest guest]

Oh my. She's just as beautiful as I thought she was.

Bonnie, Mom to a 23, Patty CHARGE 21, and wife to

[Guest guest]

Oh my. She's just as beautiful as I thought she was.

Bonnie, Mom to a 23, Patty CHARGE 21, and wife to

[Guest guest]

its sooo cute

>

> It's her yahoo profile pic... the url is:

> http://profiles.yahoo.com/studentmidwifechan

> Lis

>

>

>

> >

> > I missed the photo! What's the link??

> >

> > Michele W

> > mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ

> >

> >

>

>

>

[Guest guest]

Lesley-

That is a beautiful photo!! There's another magazine cover just waiting for

the pages to fill in behind it!

Michele W

mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ

[Guest guest]

Lesley-

That is a beautiful photo!! There's another magazine cover just waiting for

the pages to fill in behind it!

Michele W

mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ

[Guest guest]

Lesley,

Just catching up on my posts, I am sooo behind! I have to say that the

photo of you and Amelie is just so beautiful it has to be treasured. It

really reminded me of the " not so good looking but very significant " photos

of when she was in NICU. They are alwayd the ones that make my eyes

water. That photo of you and Amelie surely brought tears to my eyes. I

can't wait to see her and you again. Roll on Sept!!!

Flo

[Guest guest]

Lesley,

Just catching up on my posts, I am sooo behind! I have to say that the

photo of you and Amelie is just so beautiful it has to be treasured. It

really reminded me of the " not so good looking but very significant " photos

of when she was in NICU. They are alwayd the ones that make my eyes

water. That photo of you and Amelie surely brought tears to my eyes. I

can't wait to see her and you again. Roll on Sept!!!

Flo

[Guest guest]

I cant wait either flo for the next UK get to gether, i am hoping

Amelie is stronger and her next surgery is long out of the way, and it

will also be nice to catch up with you and some of the other families,

Les x

> Lesley,

> Just catching up on my posts, I am sooo behind! I have to say that the

> photo of you and Amelie is just so beautiful it has to be treasured. It

> really reminded me of the " not so good looking but very significant " photos

> of when she was in NICU. They are alwayd the ones that make my eyes

> water. That photo of you and Amelie surely brought tears to my eyes. I

> can't wait to see her and you again. Roll on Sept!!!

>

> Flo

>

>

>

[Guest guest]

I cant wait either flo for the next UK get to gether, i am hoping

Amelie is stronger and her next surgery is long out of the way, and it

will also be nice to catch up with you and some of the other families,

Les x

> Lesley,

> Just catching up on my posts, I am sooo behind! I have to say that the

> photo of you and Amelie is just so beautiful it has to be treasured. It

> really reminded me of the " not so good looking but very significant " photos

> of when she was in NICU. They are alwayd the ones that make my eyes

> water. That photo of you and Amelie surely brought tears to my eyes. I

> can't wait to see her and you again. Roll on Sept!!!

>

> Flo

>

>

>

[Guest guest]

wat is the next surgery lesly

>

> I cant wait either flo for the next UK get to gether, i am hoping

> Amelie is stronger and her next surgery is long out of the way, and it

> will also be nice to catch up with you and some of the other families,

>

> Les x

>

>

> > Lesley,

> > Just catching up on my posts, I am sooo behind! I have to say that the

> > photo of you and Amelie is just so beautiful it has to be treasured. It

> > really reminded me of the " not so good looking but very significant "

> photos

> > of when she was in NICU. They are alwayd the ones that make my

> eyes

> > water. That photo of you and Amelie surely brought tears to my eyes. I

> > can't wait to see her and you again. Roll on Sept!!!

> >

> > Flo

> >

> >

> >

[Guest guest]

wat is the next surgery lesly

>

> I cant wait either flo for the next UK get to gether, i am hoping

> Amelie is stronger and her next surgery is long out of the way, and it

> will also be nice to catch up with you and some of the other families,

>

> Les x

>

>

> > Lesley,

> > Just catching up on my posts, I am sooo behind! I have to say that the

> > photo of you and Amelie is just so beautiful it has to be treasured. It

> > really reminded me of the " not so good looking but very significant "

> photos

> > of when she was in NICU. They are alwayd the ones that make my

> eyes

> > water. That photo of you and Amelie surely brought tears to my eyes. I

> > can't wait to see her and you again. Roll on Sept!!!

> >

> > Flo

> >

> >

> >

[Guest guest]

Hi Ellen

We are awaiting either the disassociation or repeat Nissen Fundoplication,

any day now waiting for news of multidisciplinary meeting with all her

teams ie: respiratory, surgical surgeon, feeding, ICU consultant, paed

consultant and speech and language, once everyone is together i hope a

decision can be made which is best for Amelie, we are leaning towards a

repeat nissen.

love and hugs to you

Les x Amelie x

>

> wat is the next surgery lesly

>

>

> >

> > I cant wait either flo for the next UK get to gether, i am hoping

> > Amelie is stronger and her next surgery is long out of the way, and it

> > will also be nice to catch up with you and some of the other families,

> >

> > Les x

> >

> >

> > > Lesley,

> > > Just catching up on my posts, I am sooo behind! I have to say that

> the

> > > photo of you and Amelie is just so beautiful it has to be

> treasured. It

> > > really reminded me of the " not so good looking but very significant "

> > photos

> > > of when she was in NICU. They are alwayd the ones that make

> my

> > eyes

> > > water. That photo of you and Amelie surely brought tears to my

> eyes. I

> > > can't wait to see her and you again. Roll on Sept!!!

> > >

> > > Flo

> > >

> > >

> > >

[Guest guest]

Hi Ellen

We are awaiting either the disassociation or repeat Nissen Fundoplication,

any day now waiting for news of multidisciplinary meeting with all her

teams ie: respiratory, surgical surgeon, feeding, ICU consultant, paed

consultant and speech and language, once everyone is together i hope a

decision can be made which is best for Amelie, we are leaning towards a

repeat nissen.

love and hugs to you

Les x Amelie x

>

> wat is the next surgery lesly

>

>

> >

> > I cant wait either flo for the next UK get to gether, i am hoping

> > Amelie is stronger and her next surgery is long out of the way, and it

> > will also be nice to catch up with you and some of the other families,

> >

> > Les x

> >

> >

> > > Lesley,

> > > Just catching up on my posts, I am sooo behind! I have to say that

> the

> > > photo of you and Amelie is just so beautiful it has to be

> treasured. It

> > > really reminded me of the " not so good looking but very significant "

> > photos

> > > of when she was in NICU. They are alwayd the ones that make

> my

> > eyes

> > > water. That photo of you and Amelie surely brought tears to my

> eyes. I

> > > can't wait to see her and you again. Roll on Sept!!!

> > >

> > > Flo

> > >

> > >

> > >

[Guest guest]

Hi Ellen

We are awaiting either the disassociation or repeat Nissen Fundoplication,

any day now waiting for news of multidisciplinary meeting with all her

teams ie: respiratory, surgical surgeon, feeding, ICU consultant, paed

consultant and speech and language, once everyone is together i hope a

decision can be made which is best for Amelie, we are leaning towards a

repeat nissen.

love and hugs to you

Les x Amelie x

>

> wat is the next surgery lesly

>

>

> >

> > I cant wait either flo for the next UK get to gether, i am hoping

> > Amelie is stronger and her next surgery is long out of the way, and it

> > will also be nice to catch up with you and some of the other families,

> >

> > Les x

> >

> >

> > > Lesley,

> > > Just catching up on my posts, I am sooo behind! I have to say that

> the

> > > photo of you and Amelie is just so beautiful it has to be

> treasured. It

> > > really reminded me of the " not so good looking but very significant "

> > photos

> > > of when she was in NICU. They are alwayd the ones that make

> my

> > eyes

> > > water. That photo of you and Amelie surely brought tears to my

> eyes. I

> > > can't wait to see her and you again. Roll on Sept!!!

> > >

> > > Flo

> > >

> > >

> > >